66
Views
26
CrossRef citations to date
0
Altmetric
Research Article

The quality of life of ventilator-assisted children

Pages 21-27 | Published online: 10 Jul 2009

References

  • FRATES, R. C., SP LAINGARD, M. L., SMITH, E. O. et al. : Outcome of home mechanical ventilation in children. Journal of Pediatrics, 106: 850±856, 1985.
  • SPLAINGARD, M. L., FRATES, R. C., HARRISON, G. M. et al. : Home positive-pressure ventilation: twenty years’ experience. Chest, 84: 376±382, 1983.
  • NELSON, V. S., CARROLL, J. C., HURVITZ, E. A. et al. : Home mechanical ventilation of children. Developmental Medicine and Child Neurology, 38: 704±715, 1996.
  • MALLORY, G. B. and STILLWELL, P. C.: The ventilator-dependent child: issues in diagnosis and management. Archives of Physical Medicine and Rehabilitation, 72: 43±55, 1991.
  • PEHRSSON, K., OLOFSON, J., LARSSON, S. et al. : Quality of life of patients treated by home mechanical ventilation due to restrictive ventilatory disorders. Respiratory Medicine, 88: 21±26, 1994.
  • GARDNER, B. P., THEOCLEOUS, F., WATT, J. W. H. et al. : Ventilation or digni®ed death for patients with high tetraplegia. British Medical Journa l, 291: 1620±1622, 1985.
  • MCDONALD, E. R., HILLEL, A. and WIEDENFELD, S. A.: Evaluation of the psychological status of ventilatory-supported patients with ALS/MND. Palliative Medicine, 10: 35±41, 1996.
  • BACH, J. R., CAMP AGNOLO, D. I. and HOEMANS, S.: Life satisfac- tion of individuals with Duchenne muscular dystrophy using long- term mechanical ventilatory support. American Journal of Physical Medicine and Rehabilitation, 70: 129±135, 1991.
  • BACH, J. R. and TILTON, M. C.: Life satisfaction and well-being measures in ventilator assisted individuals with traumatic tetraple- gia. Archives of Physical Medicine and Rehabilitation, 75: 626±632, 1994.
  • ORLOW SKI, J. P.: Ethical and quality-of-life issues in ventilator- dependent children. Clinical Pediatrics, 714±717, 1993.
  • KOOP, C. E.: (New York: Random House), pp. 252–261, 331-332, 1991.
  • COLBERT, A. P. and SCHOCK, N. C.: Respirator use in progressive neuromuscular diseases. Archives of Physical Medicine and Rehabilitation, 66: 760±762, 1985.
  • ADAY, L., WEGENER, D. H., ANDERSEN, R. M. et al. : Home care for ventlator-assisted children. Health AVairs, 8: 137±147, 1989.
  • WEGENER, D. H. and ADAY, L. A.: Home care for ventilator- assisted children: predicting family stress. Pediatric Nursing, 15: 371±376, 1989.
  • SCHARER, K. and DIXON, D. M.: Managing chronic illness: parents with a ventilator-dependent child. Journa l of Pediatric Nursing, 4: 236±247, 1989.
  • HAZ LETT, D. E.: A study of pediatric home ventilator manage- ment: medical, psychosocial, and ®nancial aspects. Journal of Pediatric Nursing, 4: 284±294, 1989.
  • QUINT, R. D., CHESTERMAN, E., CRAIN, L. S. et al. : Home care for ventilator-dependent children: psychosocial impact on the family. American Journa l of Diseases of Children, 144: 1238±1241, 1990.
  • BAUMGARDNER, D. J. and BURTEA, E. D.: Quality-of-life in technology-dependent children receiving home care, and their familiesÐa qualitative study. Wisconsin Medical Journa l, 97: 51± 55, 1998.
  • ALLEN, N. L., SIMONE, J. A. and WINGENBACH, G. F.: Families with a ventilator-assisted child: transitional issues. Journal of Perinatol, 14: 48±55, 1994.
  • MARCUS, C. L., JANSEN, M. T., POULSEN, M. K. et al. : Medical and psychosocial outcome of children with congenital central hypoventilaton syndrome. Journa l of Pediatrics, 119: 888±895, 1991.
  • WARSCHAUSKY, S., ENGEL, L., AUGENSTEIN, K. et al. : Family adjustment to home care of a ventilator-assisted child. Rehabilitation Psychology, 40: 148, 1995.
  • MILLER, J. R., COLBERT, A. P. and OSBERG, J. S.: Ventilator dependency: decision-making, daily functioning, and quality of life for patients with Duchenne muscular dystrophy. Develop-men- tal Medicine and Child Neurology, 32: 1078±1086, 1990.
  • WARCHAUSKY, S., ENGEL, L., KEW MAN, D. et al. : Psychosocial factors in rehabilitation of the child with a spinal cord injury. Betz M. J.Mulcahey (editors) The Child With a Spinal Cord Injury (Chicago: American Academy of Orthopedic Surgeons), pp. 471±482, 1996.
  • KEW MAN, D. G., STROM, D., WARSCHAUSKY, S. et al. : Parents’ and traumatically brain-injured adolescents’ perceptions of behavioral adjustment. Archives of Physical Medicine and Rehabilitation, 71: 816, 1990.
  • LAVIGNE, J. V. and FAIER-ROUTMAN, J.: Psychologic adjustment to pediatric physical disorders: a meta-analytic review. Journal of Pediatric Psychology, 17: 133±157, 1992.
  • TATE, D., FORCHHEIMER, M., MAYNARD, F. et al. : Predicting depression and psychological distress in persons with spinal cord injury based on indicators of handicap. American Journa l of Physical Medicine and Rehabilitation, 73: 175±183, 1994.
  • CLAYTON, K. S. and CHUBON, R. A.: Factors associated with the quality of life of long-term spinal cord injured person. Archives of Physical Medicine and Rehabilitation, 75: 633±638, 1994.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.