469
Views
5
CrossRef citations to date
0
Altmetric
Original Articles

Stories of family caregivers of people with dementia in Greece: Implications for counselling

HISTORIAS DE CUIDADORES EN FAMILIAS CON ALGUN MIEMBRO QUE SUFRE DE DEMENCIA EN GRECIA. IMPLICACIONES PARA LA ORIENTACION PSICOLOGICA

Storie di assistenza familiare di persone con demenza in Grecia: implicazioni per il counselling - Phillia Issari

Ιστορίες των οικογενειακών φροντιστών ατόμων με άνοια στην Ελλάδα: εφαρμογές στην συμβουλευτική- Φιλία Ίσαρη

Histoires des soignants familiaux de personnes atteintes de démence en Grèce : implications pour la relation d’aide psychologique (counselling)

&
Pages 290-306 | Received 01 Dec 2016, Accepted 19 Apr 2017, Published online: 13 Jul 2017

References

  • Alzheimer’s Association. (2015). Alzheimer’s disease facts and figures. Alzheimer’s and Dementia: The Journal of the Alzheimer’s Association, 11(3), 332.
  • Arango Lasprilla, J. C., Moreno, L., Rogers, H., & Francis, K. (2009). The effect of dementia patient's physical, cognitive, and emotional/behavioral problems on caregiver well-being: Findings from a Spanish-speaking sample From Colombia, South America. American Journal of Alzheimer's Disease and Other Dementias, 24, 384–395.10.1177/1533317509341465
  • Ayres, L. (2000a). Narratives of family caregiving: Four story types. Research in Nursing and Health, 23, 359–371.10.1002/(ISSN)1098-240X
  • Ayres, L. (2000b). Narratives of family caregiving: The process of making meaning. Research in Nursing and Health, 23, 424–434.10.1002/(ISSN)1098-240X
  • Brodaty, H., & Donkin, M. (2009). Family caregivers of people with dementia. Dialogues in Clinical Neuroscience, 11, 217–228.
  • Carmody, J., Traynor, V., & Marchetti, E. (2015). Barriers to qualitative demential research: The elephant in the room. Qualitative Health Research, 25, 1013–1019.10.1177/1049732314554099
  • Carretero, S., Garcés, J., Ródenas, F., & Sanjosé, V. (2009). The informal caregiver’s burden of dependent people: Theory and empirical review. Archives of Gerontology and Geriatrics, 49, 74–79.10.1016/j.archger.2008.05.004
  • Christakis, N. A., & Allison, P. D. (2006). New England Journal of Medicine, 354, 719–730.10.1056/NEJMsa050196
  • Cuijpers, P. (2005). Depressive disorders in caregivers of dementia patients: A systematic review. Aging Mental Health, 9, 325–330.10.1080/13607860500090078
  • Farran, C. J. (1997). Theoretical perspectives concerning positive aspects of caring for elderly persons with dementia: Stress/adaptation and existentialism. Geronlogist, 37, 250–257. doi:10.1093/geront/37.2.250.
  • Fonareva, I., & Oken, B. S. (2014). Physiological and functional consequences ofcaregiving for relatives with dementia. International Psychogeriatrics., 26, 725–747.10.1017/S1041610214000039
  • Fredman, L. (2016). Interconnections between my research and experience as a caregiver: Impacts on empirical and personal perspectives. The Gerontologist, 57, 40–45. doi:10.1093/geront/gnw113
  • Fredman, L., Cauley, J. A., Hochberg, M., Ensrud, K. E., & Doros, G. (2010). Mortality associated with caregiving, general stress, and caregiving-related stress in elderly women. Journal of the American Geriatrics Society, 58, 937–943.10.1111/j.1532-5415.2010.02808.x
  • Garcés, J., Carretero, S., Ródenas, F., & Alemán, C. (2010). A review of programs to alleviate the burden of informal caregivers of dependent persons. Archives of Gerontology and Geriatrics, 50, 254–259.10.1016/j.archger.2009.04.012
  • Gilligan, C. (1982). In a different voice: Psychological theory and women’s development. Cambridge, MA: Harvard University Press.
  • Heidegger, M. (1927/1962). Being and time. (J. Macquarrie & E. Robinson, Trans.). Oxford: Blackwell.
  • Issari, P., & Karayianni, T (2013). Greek mothers? Narratives of the construct of parental involvement. The European Journal of Counselling Psychology, 2, 17–32.10.5964/ejcop.v2i1.3
  • Issari, P., & Pourkos, M. (2015). Qualitative research methods in Psychology and Education. Kallipos [E-book]. Athens: Hellenic Academic books. Retrieved from https://hdl.handle.net/11419/5826
  • Janevic, M. R., & Conell, C. M. (2001). Racial, ethnic, and cultural differences in the dementia caregiving experience: Recent findings. Gerolongist, 41, 334–347.
  • Jang, S. N., Avendano, M., & Kawachi, I. (2012). Informal caregiving patterns in Korea and European countries: A cross-national comparison. Asian Nursing Research, 6, 19–26.10.1016/j.anr.2012.02.002
  • Kindell, J., Sage, K., Wilkinson, R., & Keady, J. (2014). Living with semantic dementia: A case study of one family’s experience. Qualitative Health Research, 24, 401–411.10.1177/1049732314521900
  • Lionis, C. (2000). Handling Alzheimer’s disease in well defined primary health care area of 3 distant regions. In D. F. Marks, & C. M. Sykes (Eds.), Dealing with dementia: Recent European research. London: Middlesex University Press.
  • Lyons, J. G., Cauley, J. A., & Fredman, L. (2015). The effect of transitions in caregiving status and intensity in perceived stress among 992 female caregivers and non caregivers. The Journals of Gerontology Series A: Biological Sciences and Medical Sciences, 70, 1018–1023. doi:10.1093/gerona/glv001
  • McCabe, M., You, E., & Tatangelo, G. (2016). Hearing their voice: A systematic review of dementia family caregivers’ needs. Gerolongist, 00, 1–19.
  • Meyer, O. L., Nguyen, K. H., Dao, T. N., Vu, P., Arean, P., & Hinton, L. (2015, September). The sociocultural context of caregiving experiences for Vietnamese dementia family caregivers. Asian American Journal of Psychology, 6, 263–272.10.1037/aap0000024
  • Moreno, J. A., Nicholls, E., Ojeda, N., De los Reyes Aragon, C. J., Rivera, D., & Arango-Lasprilla, J. C. (2015). Caregiving in dementia and its impact on psychological functioning and health-related quality of life: Findings from a Colombian sample. Journal of Cross-Cultural Gerontology, 30, 393–408.10.1007/s10823-015-9270-0
  • Mougias, A. A., Politis, A., Lyketsos, G. C., & Mavreas, G. V. (2011). Quality of life in dementia patients in Athens, Greece: Predictive factors and the role of caregiver-related factors. International Psychogeriatrics, 23, 395–403.10.1017/S1041610210001262
  • Murdoch, I. (1970). The sovereignty of God. Boston, MA: Routledge & Kegan Paul.
  • Mylonas, K., Gari, K., Giotsa, A., Pavlopoulos, V., & Panagiotopoulou, P. (2006). Greece. In J. Georgas, J. W. Berry, F. J. R. van de Vijver, C. Kagitcibasi, & Y. H. Poortinga (Eds.), Families across cultures: A 30-nation psychological study (pp. 344–352). New York, NY: Cambridge University Press.
  • Papastavrou, E., Tsangari, H., Karayiannis, G., Papacostas, S., Efstathiou, G., & Sourtzi, P. (2011). Caring and coping: The dementia caregivers. Aging and Mental Health, 15, 702–711.10.1080/13607863.2011.562178
  • Pienaar, L., & Reynolds, F. (2015). ‘A respite thing’: A qualitative study of a creative arts leisure programme for family caregivers of people with dementia. Health Psychology Open, 2, 1–11.
  • Pinquart, S. M., & Sörensen, S. (2003). Differences between caregivers and non caregivers in psychological health and physical health: A metanalysis. Psychology and Aging, 18, 250–267.10.1037/0882-7974.18.2.250
  • Ricoeur, P. (1970). Freud and philosophy: An essay on interpretation. New Haven, CT: Yale University Press.
  • Robertson, S. M., Zarit, S. H., Duncan, L. G., Rovine, M. J., & Femia, E. E. (2007). Family caregivers’ patterns of positive and negative affect. Family Relations, 56, 12–23. doi:10.1111/j.1741-3729.2007.00436.x
  • Scott, B. C. (2013). Alzheimer’s disease caregiver burden: Does resilience matter? Journal of Human Behavior in the Social Environment, 23, 879–892.10.1080/10911359.2013.803451
  • Scultz, R., & Sherwood, P. R. (2008). Physical and mental health effects of family family caregiving. American Journal of Nursing, 198, 23–27.
  • Shim, B., Barroso, J., & Davis, L. L. (2012). A comparative qualitative analysis stories of spousal caregivers of people with dementia: Negative, ambivalent, and positive experiences. International Journal of Nursing Studies, 49, 220–229.10.1016/j.ijnurstu.2011.09.003
  • Smith, A. J., Flowers, P., & Lapkin, M. (2009). IPA: Theory, method & research. London: Sage.
  • Smith, J. A., & Osborn, M. (2015). Interpretive phenomenological analysis. In J. A. Smith (Ed.), Qualitative psychology: A practical guide to research methods (pp. 25–52). London: Sage.
  • Talamantes, M. A. (2011). Exploring health and mental health experiences and the role of culture among Latino spouses and adult children caregivers of persons with Alzheimers disease or related dementia. San Antonio, TX: University of Our Lady of the Lake.
  • Theotoka, I., Frrokaj, E., Tsaliki, C., Issari, P., & Paparrigopoulos, T. (2015). Psychological disorders of caregivers of patients with dementing disorders: Increase of psychopathology and economic crisis in Greece. Hellenic Journal of Nuclear Medicine, 18, 173–197.
  • Triantafillou, J., Mestheneos, E., Prouskas, C., Goltsi, V., Kontouka, S., & Loukissis, A. (2006, November). Eurofamcare- Services for supporting family carers of older dependent people in Europe: Characteristics, coverage and usage. The National Survey Report for Greece.
  • Triantafillou, T., & Methaniou, E. (1993). Who provides care? Family care of dependent elderly in Greece and in Europe. Athens: Sextant.
  • Tuomola, J., Soon, J., Fisher, P., & Yap, P. (2016). Lived experience of caregivers of persons with dementia and the impact on their sense of self: A qualitative study in Singapore. Journal of Cross Cultural Gerontology, 31, 157–172.10.1007/s10823-016-9287-z
  • Vellone, E., Piras, G., Venturini, G., Alvaro, R., & Cohen, M. Z. (2012). The experience of quality of life for caregivers of people with Alzheimer’s disease living in Sardinia. Journal of Transcultural Nursing, 23, 46–55.10.1177/1043659611414199
  • Wolfs, C. A., Kessels, A., Severens, J. L., Brouwer, W., de Vugt, M. E., Verhey, F. R., & Dirksen, C. D. (2012). Predictive factors for the objective burden of informal care in people with dementia: A systematic review. Alzheimer Disease and Associated Disorders, 26, 197–204.10.1097/WAD.0b013e31823a6108
  • World Health Organization. (2015). Dementia key facts. Retrieved June 24, 2016, from https://www.who.int/mediacentre/factsheets/fs362/en/
  • Zarit, S. H. (2008). Diagnosis and management of caregiver burden in dementia. Handbook of Clinical Neurology, 89, 101–106.10.1016/S0072-9752(07)01209-2

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.