Community understanding of respondent-driven sampling in a medical research setting in Uganda: importance for the use of RDS for public health research

References

• Bernard , H.R. and Killworth , P.D. 1977 . Informant accuracy in social network data II . Human Communication Research , 4 ( 1 ) : 3 – 18 .
   Google Scholar
• Bleek , W. 1987 . Lying informants: A fieldwork experience from Ghana . Population and Development Review , 13 ( 2 ) : 314 – 322 .
   Web of Science ®Google Scholar
• Broadhead , R.S. 2008 . Notes on a cautionary (tall) tale about respondent-driven sampling: A critique of Scott's ethnography . International Journal of Drug Policy , 19 ( 3 ) : 235 – 237 .
   PubMed Web of Science ®Google Scholar
• Environmental Systems Research Institute. (2007). ArcGIS. Version 9.2. Redlands, CA.
   Google Scholar
• Flory , J. and Emanuel , E. 2004 . Interventions to improve research participants understanding in informed consent for research.A systematic review . The Journal of the American Medical Association , 292 ( 13 ) : 1593 – 1601 .
   PubMed Web of Science ®Google Scholar
• Goel , S. and Salganik , M.J. 2010 . Assessing respondent-driven sampling . Proceedings of the National Academy of Sciences , 107 ( 15 ) : 6743 – 6747 .
   PubMed Web of Science ®Google Scholar
• Grady , C. 2001 . Money for research participation: Does it jeopardise informed consent? . The American Journal of Bioethics , 1 ( 2 ) : 40 – 44 .
   PubMedGoogle Scholar
• Heckathorn , D.D. 1997 . Respondent-driven sampling: A new approach to the study of hidden populations . Social Problems , 44 ( 2 ) : 174 – 199 .
   Web of Science ®Google Scholar
• Heimer , R. 2005a . Critical issues and further questions about respondent-driven sampling: Comment on Ramirez-Valles et al. (2005) . AIDS and Behavior , 9 ( 4 ) : 403 – 408 . discussion 409–413
   PubMed Web of Science ®Google Scholar
• Heimer , R. 2005b . Critical issues and further questions about respondent-driven sampling: comment on Ramirez-Valles et al. (2005) . AIDS and Behavior , 9 ( 4 ) : 403 – 408 .
   PubMed Web of Science ®Google Scholar
• Herzeld , M. 1983 . Looking both ways: The ethnographer in the text . Semiotica , 46 ( 2/4 ) : 151 – 166 .
   Web of Science ®Google Scholar
• Lansky , A. and Mastro , T.D. 2008 . Using respondent-driven sampling for behavioural surveillance: Response to Scott . The International Journal on Drug Policy , 19 ( 3 ) : 241
   PubMed Web of Science ®Google Scholar
• Malekinejad , M. , Johnston , L. , Kendall , C. , Kerr , L. , Rifkin , M. and Rutherford , G. 2008 . Using respondent-driven sampling methodology for HIV biological and behavioral surveillance in international settings: A systematic review . AIDS and Behavior , 12 ( S1 ) : 105 – 130 .
   Web of Science ®Google Scholar
• Mays , N. and Pope , C. 2000 . Assessing quality in qualitative research . British Medical Journal , 320 ( 7226 ) : 50 – 52 .
   PubMed Web of Science ®Google Scholar
• McCarty , C. , Killworth , P.D. , Bernard , H.R. , Johnsen , E.C. and Shelley , G.A. 2001 . Comparing two methods for estimating network size . Human Organization , 60 ( 1 ) : 28 – 39 .
   Web of Science ®Google Scholar
• McCormick , T. , Salganik , M. and Zheng , T. 2010 . How many people do you know?: Efficiently estimating personal network size . Journal of the American Statistical Association , 105 ( 489 ) : 59 – 70 .
   PubMed Web of Science ®Google Scholar
• McCreesh , N. , Frost , S.D. , Seeley , J. , Katongole , J. , Ndagire-Tarsh , M. , Ndungutse , R. , Jichi , F. , … and White , R.G. 2012 . Evaluation of respondent-driven sampling . Epidemiology , 23 : 138 – 147 .
   PubMed Web of Science ®Google Scholar
• Microsoft Corporation. (2003). Microsoft Access 2003. Washington.
   Google Scholar
• Ouellet , L.J. 2008 . Cautionary comments on an ethnographic tale gone wrong . International Journal of Drug Policy , 19 ( 3 ) : 238 – 240 .
   PubMed Web of Science ®Google Scholar
• QSR International Pty Ltd. (2008). NVivo qualitative data analysis software, QSR International Pty Ltd.
   Google Scholar
• Ramirez-Valles , J. , Heckathorn , D.D. , Vázquez , R. , Diaz , R.M. and Campbell , R.T. 2005 . From networks to populations: The development and application of respondent-driven sampling among IDUs and Latino gay men . AIDS and Behavior , 9 ( 4 ) : 387 – 402 .
   PubMed Web of Science ®Google Scholar
• Salganik , M.J. and Heckathorn , D.D. 2004 . Sampling and estimation in hidden populations using respondent-driven sampling . Sociological Methodology , 34 ( 1 ) : 193 – 240 .
   Web of Science ®Google Scholar
• Scott , G. 2008 . ‘They got their program, and I got mine’: A cautionary tale concerning the ethical implications of using respondent-driven sampling to study injection drug users . International Journal of Drug Policy , 19 ( 1 ) : 42 – 51 .
   PubMed Web of Science ®Google Scholar
• Semaan , S. , Santibanez , S. , Garfein , R.S. , Heckathorn , D.D. and Des Jarlais , D.C. 2009 . Ethical and regulatory considerations in HIV prevention studies employing respondent-driven sampling . International Journal of Drug Policy , 20 ( 1 ) : 14 – 27 .
   PubMed Web of Science ®Google Scholar
• Shafer , L.A. , Biraro , S. , Nakiyingi-Miiro , J. , Kamali , A. , Ssematimba , D. , Ouma , J. , … and Grosskurth , H. 2008 . HIV prevalence and incidence are no longer falling in southwest Uganda: Evidence from a rural population cohort 1989–2005 . AIDS , 22 ( 13 ) : 1641 – 1649 .
   Google Scholar
• StataCorp . 2010 . Stata Statistical Software: Release 11.0. College station , Texas : Stata Press .
   Google Scholar
• Volz , E. and Heckathorn , D. 2008 . Probability based estimation theory for respondent driven sampling . Journal of Official Statistics , 24 ( 1 ) : 79 – 97 .
   Web of Science ®Google Scholar
• White , R.G. and Seeley , J. 2010 . Protocol for qualitative component of evaluation of respondent-driven sampling London
   Google Scholar