324
Views
7
CrossRef citations to date
0
Altmetric
Articles

Choice processes and satisfaction with care according to parents of children and young adults with intellectual disability in the Netherlands

, , &
Pages 127-136 | Published online: 25 May 2011

References

  • Abramson, J. H. WINPEPI (PEPI-for-Windows): Computer programs for epidemiologists. Epidemiologic Perspectives & Innovations, (2004). 16doi:10.1186/1742-5573-1-6
  • Bloom, P. N. Studying consumer responses to the changing information environment in health care: A research agenda. Advances in Consumer Research, (1997). 24, 360–365.
  • Calnan, M., & Gabe, J. From consumerism to partnership? Britain's National Health Service at the turn of the century. International Journal of Health Services, (2001). 31, 119–131. doi:10.2190/7H2Q-NX5H-5CU9-MCK2
  • Calnan, M., & Gabe, J. The restratification of primary care in England? A sociological analysis. The new sociology of the Health Service. Gabe, J., & Calnan, M. London, UK:Routledge. (2009) pp. 56–78.
  • Calnan, M., & Rowe, R. Trust relations in a changing health service. Journal of Health Services Research & Policy, (2008). 13, 97–103. doi:10.1258/jhsrp.2008.008010
  • Carlisle, R. T. Internet report cards on quality: What exists and the evidence on impact. West Virginia Medical Journal, (2007). 103, 17–21.
  • Cummins, R. A. Caregivers as managers of subjective wellbeing: A homeostatic perspective. Journal of Applied Research in Intellectual Disabilities, (2005). 18, 335–344. doi:10.1111/j.1468-3148.2005.00267.x
  • Foster, R., & Gabe, J. Voice or choice? Patient and public involvement in the National Health Service in England under New Labour. International Journal of Health Services, (2008). 38, 333–356. doi:10.2190/HS.38.2.g
  • Freeman, T. Using performance indicators to improve health care quality in the public sector: A review of the literature. Health Services Management Research, (2002). 15, 126–137. doi:10.1258/0951484021912897
  • Greener, I. Are the assumptions underlying patients choice realistic?: A review of the evidence. British Medical Bulletin, (2007). 83, 249–258. doi:10.1093/bmb/ldm024
  • Grisso, T., Appelbaum, P. S. MacArthur Treatment Competence Study. Journal of the American Psychiatric Nurses Association, (1995). 1, 125–127. doi:10.1177/107839039500100405
  • Groenewoud, A. S., & Huijsman, R. Prestatie-indicatoren voor de kiezende zorggebruiker?: Een onderzoek naar de mogelijkheden, de stand van zaken en toekomst van prestatie-indicatoren bij het versterken van patiënten in de zorgmarkt [Performance indicators for healthcare consumers' decision-making: A study of the possibilities, the current state and future of indicators to strengthen patients in the healthcare market]. Acta Hospitalia, (2005). 45, 25–49.
  • Huisseling, A., van, Wibaut, A., & Wieringa, E. Het is mijn leven: Een werkboek dat helpt bij beslissingen, (2004 [It's my life: A workbook that helps decision-making processes]. Utrecht, the Netherlands: LKNG/NIZW [National Knowledge Network Disabled/Dutch Institute for Care and Welfare]
  • Jenkinson, J. C. Who shall decide? The relevance of theory and research to decision-making by people with an intellectual disability. Disability & Society, (1993). 8, 361–375. doi:10.1080/02674649366780351
  • Kim, K. H., & Turnbull, A. Transition to adulthood for students with severe intellectual disabilities: Shifting toward person-family interdependent planning. Research & Practice for Persons with Severe Disabilities, (2004). 29, 53–57.
  • King, G., King, S., Rosenbaum, P., & Goffin, R. Family-centered caregiving and well-being of parents of children with disabilities: Linking process with outcome. Journal of Pediatric Psychology, (1999). 24, 41–53.
  • Kreuger, L., Groenewoud, A. S., Exel, N. J. A. van, & Huijsman, R. Bouwstenen voor Kwaliteitsinformatie in de Gehandicaptenzorg [Building blocks for quality information in disability care]. Den Haag, the Netherlands:ZonMw. (2006)
  • Linschoten, C. P., & Moorer, P. Toegang tot thuiszorg: Onderzoek naar ervaringen van zorgvragers en de rol van het zorgkantoor [Access to home care: A study of experiences of careseekers and the role of the health care agency]. Groningen, the Netherlands:ARGO Rijksuniversiteit Groningen. (2006)
  • Mannion, R., & Goddard, M. Impact of published clinical outcomes data: Case study in NHS hospital trusts. British Medical Journal, (2001). 323, 260–263.
  • Mansell, J., Beadle-Brown, J. Person-centred planning or person-centred action? Policy and practice in intellectual disability Services. Journal of Applied Research in Intellectual Disabilities, (2004). 17, 1–9. doi:10.1111/j.1468-3148.2004.00175.x
  • Marshall, M. N., Shekelle, P. G., Leatherman, S., Brook, R. H. The public release of performance data: What do we expect to gain? A review of the evidence. The Journal of the American Medical Association, (2000). 283, 1866–1874.
  • Meij, B. van der, Huijsman, R., & Nieboer, A. P. Informatiebehoefte van ouders/vertegenwoordigers van kinderen en jongeren met een verstandelijke beperking bij het maken van een keuze voor een zorgaanbieder [Information needs of parents/guardians of children and youngsters with intellectual disabilities in the choice for a care provider]. Nederland Tijdschrift voor de zorg aan mensen met verstandelijke beperkingen, (2009). 3, 151–165.
  • Parley, F. F. Person-centred outcomes: Are outcomes improved where a person-centred care model is used?. Journal of Intellectual Disabilities, (2001). 5, 299–308. doi:10.1177/146900470100500402
  • Raad voor the Volksgezondheid en Zorg [Council of Public Health and Health Care] Kiezen in de gezondheidszorg (publicatonnumber 03/10) [Health care choices]Zoetermeer, the Netherlands:Author. (2003 Retrieved 16 March 2011 from http://www.rvz.net/data/download/Kiezen_in_de_gezondheidszorg.pdf
  • Sanderson, H., Kennedy, J., Ritchie, P., & Goodwin, G. People, plans and possibilities: Exploring person centred planningEdinburgh, UK:SHS. (1997)
  • Schalock, R. L. The concept of quality of life: What we know and do not know. Journal of Intellectual Disability Research, (2004). 48, 203–216. doi:10.1111/j.1365-2788.2003.00558.x
  • Schneider, E. C., & Lieberman, T. Publicly disclosed information about the quality of health care: Response of the US public. Quality in Health Care, (2001). 10, 96–103. doi:10.1136/qhc.10.2.96
  • Schwartz, B. The paradox of choice. Why more is lessNew York, NY:HarperCollins. (2004)
  • Wibaut, A. Vraag wat je vragen wilt. Zo maakt u een persoonlijk toekomstplan. [Tell me what you would like. How to make a personal future plan.]Utrecht, the Netherlands:Federatie van Ouderverenigingen [Federation of Parents' Associations]. (1996)
  • Wibaut, A. Vraag wat je vragen wilt. Deel I: richtlijnen voor hulpvraagverduidelijking voor werkers. Deel II: zo maakt u een persoonlijk toekomstplan [Tell me what you would like. Part I: Guidelines for decision-support for professionals. Part II: How to make a personal future plan.]Utrecht, the Netherlands:Federatie van Ouderverenigingen [Federation of Parents' Associations]. (1997

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.