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Original Article

Using individualised communication for interviewing people with intellectual disability: a case study of user-centred research

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Pages 5-23 | Published online: 10 Jul 2009

References

  • American Speech–Language–Hearing Association (ASHA). (1991). Report: Augmentative and alternative communication. ASHA, 33 (Suppl. 5), 9–12.
  • Arscott K. Assessing the capacity of people with learning disabilities to make decisions about treatment Tizard Learning Disability Review 1997; 2(2) 17–28
  • Arscott K.,Dagnan D., Kroese B. Consent to psychological research by people with an intellectual disability Journal of Applied Research in Intellectual Disabilities 1998; 11(1) 77–83
  • Bartlett C. The importance of communication partnerships: a study to investigate the communicative exchanges between staff and adults with learning disabilities British Journal of Learning Disabilities 1997; 25 148–158
  • Beukelman D.,Mirenda P. Augmentative and alternative communication: management of severe communication disorders in children and adults Paul H. Brookes, Baltimore 1998
  • Blackwell C, Hulbert C,Bell J., Elston L., Morgan W., Robertshaw B., Tomas C. A survey of the communication abilities of people with learning difficulties. Disability Handicap and Society 1989; 3 213–226
  • Bradshaw J. Assessing and intervening in the communication environment British Journal of Learning Disabilities 1998; 26 62–66
  • Bradshaw J.Commentary: a total communication approach towards meeting the communication needs of people with learning disabilities Tizard Learning Disability Review 2000; 5(1) 27–30
  • British Medical Association. (1993). Medical ethics today. London: British Medical Association.
  • British Medical Association and the Law Society. (1995). Assessment of mental capacity: guidance for doctors and lawyers. London: British Medical Association.
  • Brown H., Thompson D. Service responses to men with intellectual disabilities who have unacceptable or abusive sexual behaviours; the case against inaction Journal of Applied Research in Intellectual Disabilities 1997; 10(2) 176–197
  • Brown J., Turk V. Defining sexual abuse as it affects adults with learning disabilities Mental Handicap 1992; 20 44–55
  • Bull R. Interviewing people with communicative disabilities Handbook of psychology in legal contexts R. Bull D. Carson Wiley, Chichester 1995
  • Cambridge P. Taking account of user choice in community care Report on the consent conference series P. Alderson SSRU, Institute of Education, University of London, London 1993
  • Cambridge P. At whose risk? Priorities and conflicts for policy development in HIV and intellectual disability Journal of Applied Research in Intellectual Disabilities 1997; 10(2) 83–104
  • Cambridge P. More than just a quick fix? The potential for joint commissioning services for people with learning disabilities. Research Policy and Planning 1999; 17(2) 12–22
  • Cambridge P., Carnaby S. Making it personal: providing intimate and personal care for people with learning disabilities Pavilion, Brighton 2000
  • Cambridge P., Carpenter J., Beecham J., Hallam A., Knapp M., Forrester-Jones R., Tate A. Twelve years on: the outcomes and costs of community care for people with learning disabilities and mental health problems Tizard Centre, University of Kent at Canterbury, Canterbury 2001
  • Cambridge P., Hayes L., Knapp M. Care in the community: five years on Arena, Aldershot 1994
  • Cambridge P., McCarthy M. Developing and implementing sexuality policy for a learning disability provider service Health and Social Care in the Community 1997; 5(4) 227–236
  • Cambridge P., McCarthy M. User focus groups and best value in services for people with learning disabilities Health and Social Care in the Community 2001; 9(6) 476–89
  • Carnaby S. A comparative approach to evaluating individual planning for people with learning disabilities Disability and Society 1997; 12 381–394
  • Carnaby S. Reflections on social integration for people with intellectual disability: does interdependence have a role Journal of Intellectual & Developmental Disability 1998; 23(3) 219–228
  • Clare I., Gudjonsson G. Interrogative suggestibility, confabulation and acquiescence in people with mild learning disability (mental handicap): implications for reliability during policy interrogations British Journal of Clinical Psychology 1993; 32 295–301
  • Conroy J., Bradley V. The Pennhurst longitudinal study: a report of five years of research and analysis Human Services Research Institute, Developmental Disabilities Center, Temple University, Boston 1985
  • Department of Health. (1993). Who decides? Making decisions on behalf of mentally incapacitated adults. , A consultation paper issued by the Lord Chancellor's Department. Cm 3803. London: HMSO.
  • Department of Health. (2001). Valuing people: a new strategy for learning disability for the 21st century. London: Department of Health.
  • Downs C., Craft A. Sex in context Pavilion, Brighton 1997
  • Emerson E., Hatton C. Moving out: relocation from hospital to community University of Manchester/HMSO, Manchester 1994
  • Estroff S. ‘Brokenhearted lifetimes’: ethnography, subjectivity and psychosocial rehabilitation International Journal of Mental Health 1995; 24(1) 82–92
  • Felce R. D. Facilitated communication: results from a number of recently published evaluations British Journal of Learning Disabilities 1994; 22122–126
  • Flesch R. A new readability yardstick Journal of Applied Psychology 1948; 32 221–223
  • Forrester-Jones, R., & Cambridge, P. (1998). The social network guide for Ten Years On. Canterbury: Tizard Centre, University of Kent at Canterbury (, unpublished).
  • Forrester-Jones R., Grant G. Resettlement from large psychiatric hospital to small community residence Avebury, Aldershot 1997
  • Grisso T., Appelbaum P. Assessing competence to consent to treatment. A guide for physicians and other health professionals Oxford University Press, Oxford 1998
  • Hewett D., Nind M.Interaction in action. Reflections on the use of intensive interactionDavid Fulton Publishers, London 1998
  • Jones J. Somerset Total Communication Somerset Total Communication, Bridgewater 1997
  • Jones J. A total communication approach towards meeting the needs of people with learning disabilities Tizard Learning Disability Review 2000; 5(1) 20–26
  • Kirk E. Research and patients: the legal perspective Missing law and ethics J. TingleA. Cross Blackwell Science, London 1995
  • Knapp M., Cambridge P., Thomason C, Beecham J., Allen C, Darton R. Care in the community: challenge and demonstration Ashgate, Aldershot 1992
  • Law J., Lester R. Speech therapy provision in a social education centre: is it possible to target intervention? Mental Handicap 1991; 19 22–28
  • McCarthy M., Thompson D. Sex and staff training: a training manual for staff working with people with learning disabilities Pavilion, Brighton 1994
  • Morris S. Experiences of risk: the role of therapy in sexual health HIV and learning disability P. Cambridge H. Brown British Institute of Learning Disabilities, Kidderminster 1997
  • Murphy, G., & Clare, I. (1997). Consent issues. , In J. O'Hara & A. Sperlinger ( Eds.), Adults with learning disabilities: a practical approach for health professionals (pp. 171–186). Chichester: John Wiley and Sons.
  • Nirje B. The normalisation principle and its human management implications Changing patterns in residential services for the mentally retarded R. Kugel W. Wolfensberger Government Printing Office, Washington 1969 179–195
  • Nocon A., Qureshi H. Outcomes of community care for users and carers Open University Press, Buckingham 1996
  • Oliver M. Understanding disability Macmillan, London 1996
  • Patton M. Utilization focused evaluation Sage, London 1997
  • Purvis K. Somerset Total Communication: an evaluation of the implementation of Somerset Total Communication Avalon Somerset NHS Trust, Bridgwater 1996
  • Remington B. Verbal communication in people with learning difficulties: an overview Tizard Learning Disability Review 1997; 2(4) 6–14
  • Renshaw J., Hampson R., Thomason C, Darton R. A., Judge K., Knapp M. Care in the community: the first steps Gower, Aldershot 1988
  • Richards S. A right to be heard Social Services Research 1985; 14(4) 49–56
  • Scheerenberger R., Felsenthal D. Community settings for mentally retarded persons: satisfactions and activities Mental Retardation 1977; 15(4) 3–7
  • Sigelman, C., Budd, E., Spanhel, C., & Schoenrock, C. (1981). When in doubt say yes: acquiescence in interviews with mentally retarded persons. Mental Retardation, 19, , April, 53–58.
  • Simons K., Booth T., Booth W. Speaking out: user studies and people with learning difficulties. Research Policy and Planning 1989; 7(1) 9–17
  • Sinclair L. Assessing the capacity of people with learning disabilities to make decisions about treatment Tizard Learning Disability Review 1997; 2(2) 29–30
  • Stalker K. Doing research with people with learning difficulties. Research Policy and Planning 1997; 15(2) 46
  • Ware J. Creating a responsive environment for people with profound and multiple learning difficulties David Fulton, London 1996
  • Whittaker A. Symbols in practice: a discussion paper about the use of symbols for communication by people with learning disabilities King's Fund, London 1999
  • Wolfensberger, W. (1972). Normalisation. , Canadian Institute for the Mentally Retarded.
  • Wolfensberger W. Social role valorization: a proposed new term for the principle of normalisation Mental Retardation 1983; 21(6) 235–239
  • Wong J. Assessment of capacity to make treatment decisions in adults with learning disabilities Tizard Disability Review 1997; 2(3) 35–39
  • Yorkston K., Dowden P., Honsinger M., Marriner N., Smith K. A comparison of standard and user vocabulary lists Augmentative and Alternative Communication 1988; 4(4)189–210

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