On the need for a specialist service within the generic hospital setting for the adult patient with intellectual disability and physical health problems

References

• Australian Institute of Health and Welfare (AIHW). Disability support services 2004–05: National data on services provided under the Commonwealth State/Territory Disability Agreement. AIHW Cat. No. DIS 46. Disability Series. AIHW, Canberra 2006
   Google Scholar
• Australian Institute of Health and Welfare (AIHW). Chronic Disease Indicators Database. AIHW, Canberra 2007, Available at: http://www.aihw.gov.au/cdi/cdi_njs/index.cfm?DisplCommand=DataAvailableList
   Google Scholar
• Baird P. A., Sadovnick A. D. Life expectancy in Down syndrome. Journal of Pediatrics 1987; 110(6)849–854
   PubMed Web of Science ®Google Scholar
• Beange H., McElduff A., Baker W. Medical disorders of adults with mental retardation: A population study. American Journal on Mental Retardation 1995; 99: 595–604
   PubMedGoogle Scholar
• Bittles A., Petterson B., Sullivan S., Hussain R., Glasson E., Montgomery P. The influence of intellectual disability on life expectancy. Journal of Gerontology (Series A: Biology Sciences and Medical Sciences) 2002; 57: M470–M472
   PubMed Web of Science ®Google Scholar
• Durvasula S., Beange H., Baker W. Mortality of people with intellectual disability in northern Sydney. Journal of Intellectual & Developmental Disability 2002; 27(4)255–264
   Web of Science ®Google Scholar
• Durvasula S., Beange H., Baker W., Bell D. Mortality of people with intellectual disability in northern Sydney: Associated factors [Abstract]. Journal of Intellectual Disability Research 2004; 48(4–5)432
   Google Scholar
• Eyman R. K., Grossman H. J., Chaney R. H., Call T. L. The life expectancy of profoundly handicapped people with mental retardation. New England Journal of Medicine 1990; 323(9)584–589
   PubMed Web of Science ®Google Scholar
• Hsieh K.-F. Analysis of hospital utilization among adults with intellectual disabilities in one American State [Abstract]. Journal of Policy and Practice in Intellectual Disabilities 2005; 2(3/4)199
   Google Scholar
• Jancar J., Sabogal N. M., Wiley Y. V. Life expectancy of mentally retarded hemiplegics. Journal of Intellectual Disability Research 1996; 40(2)180–182
   PubMedGoogle Scholar
• Janicki M. P., Davidson P. W., Henderson C. M., McCallion P., Taets J. D., Force L. T., et al. Health characteristics and health services utilization in older adults with intellectual disability living in community residences. Journal of Intellectual Disability Research 2002; 46(4)287–298
   PubMed Web of Science ®Google Scholar
• Kapell D., Nightingdale B., Rodriguez A., Lee J. H., Zigman W. B., Schupf N. Prevalence of chronic medical conditions in adults with mental retardation: Comparison with the general population. Mental Retardation 1998; 36(4)269–279
   PubMedGoogle Scholar
• Kastner T., Nathanson R., Friedman D. L. Mortality among individuals with mental retardation living in the community. American Journal on Mental Retardation 1993; 98: 285–292
   PubMedGoogle Scholar
• Loh C.-H., Lin J.-D., Choi I.-C., Yen C.-F., Hsu S.-W., Wu J.-L., Tang C. C. Longitudinal analysis of inpatient utilization among people with intellectual disabilities: 1999–2002. Journal of Intellectual Disability Research 2007; 51(2)101–108
   PubMedGoogle Scholar
• Mathew P., Moodie D., Sterba R., Murphy D., Rosenkranz E., Homa A. Long-term follow-up of children with Down syndrome with cardiac lesions. Clinical Paediatrics 1990; 29(10)569–574
   PubMed Web of Science ®Google Scholar
• Meerding W. J., Bonneux L., Polder J. J., Koopmanschap M. A., van der Maas P. J. Demographic and epidemiological determinants of healthcare costs in Netherlands: Cost of illness study. British Medical Journal 1998; 317(7151)111–115
   PubMed Web of Science ®Google Scholar
• Meijer M. M., Carpenter S., Scholte F. A. European Manifesto on basic standards of health care for people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities 2004; 1(1)10–15
   Google Scholar
• Minihan P. M. Planning for community physician services prior to deinstitutionalization of mentally retarded persons. American Journal of Public Health 1986; 76: 1202–1206
   PubMed Web of Science ®Google Scholar
• Minkler M., Fuller-Thomson E., Guralnik J. M. Gradient of disability across the socioeconomic spectrum in the United States. New England Journal of Medicine 2006; 355: 695–703
   PubMed Web of Science ®Google Scholar
• Morgan C. L., Ahmed Z., Kerr M. P. Health care provision for people with a learning disability. Record-linkage study of epidemiology and factors contributing to hospital care uptake. British Journal of Psychiatry 2000; 176: 37–41
   PubMed Web of Science ®Google Scholar
• Nirje B. The normalisation principle: Implications and comments. British Journal of Mental Subnormality 1970; 16: 62–70
   Google Scholar
• New South Wales Ombudsman. Reviewable Deaths Annual Report 2003–2004. NSW Ombudsman, Sydney 2004
   Google Scholar
• O'Hara D. The unwell patient with intellectual disability presenting to hospital risks their life due to the process and not the illness. Newsletter of the IASSID Physical Health Special Interest Research Group 2006, January
   Google Scholar
• Scheepers M., Kerr M., O'Hara D., Bainbridge D., Cooper S.-A., Davis R., et al. Reducing health disparity in people with intellectual disabilities: A report from the Health Issues Special Interest Research Group of the International Association for the Scientific Study of Intellectual Disabilities (IASSID). Journal of Policy and Practice in Intellectual Disabilities 2005; 2(3–4)249–255
   Google Scholar
• Turnbull H. R. The least restrictive alternative: Principles and practices. American Association on Mental Retardation, Washington 1981
   Google Scholar
• United Nations General Assembly. Adoption of the UN Convention on the Rights of Persons with Disabilities. 2006, Available at: http://www.un.org/esa/socdev/enable/rights/adhoccom.htm
   Google Scholar
• Voitk A. Acute abdomen in severely mentally retarded patients. Canadian Journal of Surgery 1987; 30: 195–196
   PubMed Web of Science ®Google Scholar
• Wallace R. A. Biopsychosocial profile of adults with intellectual disability. The Medical Journal of Australia 2001; 174: 200–201
   PubMed Web of Science ®Google Scholar
• Wallace R. A. Results of census of Australian doctors working with patients with intellectual disability. Association of Australian Doctors in Developmental Disability Medicine, Brisbane 2004, [Unpublished survey]
   Google Scholar
• Wolfensberger W. The principle of normalisation in human services in Toronto. National Institute of Mental Retardation, Toronto 1972
   Google Scholar