3,782
Views
191
CrossRef citations to date
0
Altmetric
Articles

The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilitiesFootnote

&
Pages 153-162 | Published online: 10 Jul 2009

References

  • Abbeduto L., Seltzer M. M., Shattuck P., Krauss M. W., Orsmond G., Murphy M. M. Psychological well-being and coping in mothers of youths with autism, Down syndrome, or fragile X syndrome. American Journal on Mental Retardation 2004; 109: 237–254
  • Bailey D. B., Jr, McWilliam R. A., Darkes L. A., Hebbeler K., Simeonsson R. J., Spiker D., et al. Family outcomes in early intervention: A framework for program evaluation and efficacy research. Exceptional Children 1998; 64: 313–328
  • Baker B. L., McIntyre L. L., Blacher J., Crnic K., Edelbrock C., Low C. Pre-school children with and without developmental delay: Behaviour problems and parenting stress over time. Journal of Intellectual Disability Research 2003; 47: 217–230
  • Beach Center on Disability. Family Quality of Life Scale. University of Kansas, Lawrence, KS 2003
  • Bristol M. M., Gallagher J. J., Schopler E. A developmental perspective on stress and coping in families of autistic children. Severely handicapped young children and their families: Research in review, Blacher J.. Academic Press, New York 1984; 91–134
  • Bronfenbrenner U. The ecology of human development: Experiments by nature and design. Harvard University Press, Cambridge, MA 1979
  • Brown I., Anand S., Fung W. L. A., Isaacs B., Baum N. Family quality of life: Canadian results from an international study. Journal of Developmental and Physical Disabilities 2003; 15: 207–230
  • Brown I., Brown R. I. Family quality of life as an area of study. Families and people with mental retardation and quality of life: International perspectives, Turnbull A., Brown I., H. R Turnbull, III. American Association on Mental Retardation, Washington, DC 2004
  • Dempsey I., Keen D. A review of processes and outcomes in family-centered services for children with a disability. Topics in Early Childhood Special Education 2008; 28: 42–52
  • Dunlap G., Robbins F. R., Darrow M. A. Parents' reports of their children's challenging behaviors: Results of a statewide survey. Mental Retardation 1994; 32: 206–212
  • Dunst C. J., Brookfield J., Epstein J. Family-centered early intervention and child, parent and family benefits: Final report. Orelena Hawks Puckett Institute, Asheville, NC 1998
  • Dunst C. J., Bruder M. B. Valued outcomes of service coordination, early intervention, and natural environments. Exceptional Children 2002; 68: 361–375
  • Dunst C. J., Trivette C. M., Hamby D. W. Meta-analysis of family-centered helpgiving practices research. Mental Retardation and Developmental Disabilities Research Reviews 2007; 13: 370–378
  • Einfeld S. L., Tonge B. J. Population prevalence of behavioural and emotional disturbance in children and adolescents with mental retardation: II Epidemiological findings. Journal of Intellectual Disability Research 1996; 40: 99–109
  • Elder G. H., Jr, Nguyen T. V., Caspi A. Linking family hardship to children's lives. Child Development 1985; 56: 361–375
  • Essex E. L., Seltzer M. M., Krauss M. W. Differences in coping effectiveness and well-being among aging mothers and fathers of adults with retardation. American Journal on Mental Retardation 1999; 104: 545–563
  • Freedman R. I., Boyer N. C. The power to choose: Supports for families caring for individuals with developmental disabilities. Health & Social Work 2000; 25: 59–68
  • Fujiura G. T. Demography of family households. American Journal on Mental Retardation 1998; 103: 225–235
  • Gavidia-Payne S., Matthews J., Hudson A., Richdale A., Nankervis K. Stress in parents of children with disabilities: The Parenting Hassles Scale. Paper presented at the Helping Families Change Conference, Sydney, February, 2003
  • Green V. A., O'Reilly M., Itchon J., Sigafoos J. Persistence of early emerging aberrant behavior in children with developmental disabilities. Research in Developmental Disabilities 2005; 26: 47–55
  • Guralnick M. J. The effectiveness of early intervention. Brookes, Baltimore, MD 1997
  • Haldy M. B., Hanzlik J. R. A comparison of perceived competence in child-rearing practices between mothers of children with Down syndrome and mothers of children without delays. Education and Training in Mental Retardation 1990; 25: 132–141
  • Hastings R. P. Parental stress and behaviour problems of children with developmental disability. Journal of Intellectual & Developmental Disability 2002; 27: 149–160
  • Judge S. L. Parental perceptions of help-giving practices and control appraisals in early intervention programs. Topics in Early Childhood Special Education 1997; 17: 457–476
  • Kazak A. E., Clark M. W. Stress in families of children with myelomeningocele. Developmental Medicine & Child Neurology 1986; 28: 220–228
  • King G., King S., Rosenbaum P., Goffin R. Family-centered caregiving and well-being of parents of children with disabilities: Linking process to outcome. Journal of Pediatric Psychology 1999; 24: 41–53
  • King S., Rosenbaum P. L., King G. The Measures of Processes of Care (MPOC): A means to assess family-centred behaviours of health care providers. McMaster University, Hamilton, ON 1995
  • King S. M., Teplicky R., King G., Rosenbaum P. Family-centered service for children with cerebral palsy and their families: A review of the literature. Seminars in Pediatric Neurology 2004; 11: 78–86
  • Knox M., Parmenter T. R., Atkinson N., Yazbeck M. Family control: The views of families who have a child with an intellectual disability. Journal of Applied Research in Intellectual Disabilities 2000; 13: 17–28
  • Law M., Teplicky R., King S., King G., Kertoy M., Moning T., et al. Family-centred service: Moving ideas into practice. Child: Care, Health & Development 2005; 31: 633–642
  • Lecavalier L., Leone S., Wiltz J. The impact of behaviour problems on caregiver stress in young children with autism spectrum disorders. Journal of Intellectual Disability Research 2006; 50: 172–183
  • Odom S. L., Wolery M. A unified theory of practice in early intervention/early childhood special education: Evidence-based practices. The Journal of Special Education 2003; 37: 164–173
  • Olsson M. B., Hwang C. P. Depression in mothers and fathers of children with intellectual disability. Journal of Intellectual Disability Research 2001; 45: 535–543
  • Osher T. Outcomes and accountability from a family perspective. Journal of Behavioral Health Sciences and Research 1998; 25: 230–232
  • Park J., Hoffman L., Marquis J., Turnbull A. P., Poston D. J., Mannan H., et al. Towards assessing family outcomes of service delivery: Validation of a family quality of life survey. Journal of Intellectual Disability Research 2003; 47: 367–384
  • Park J., Turnbull A. P., Turnbull H. R., III. Impacts of poverty on quality of life in families of children with disabilities. Exceptional Children 2002; 68: 151–170
  • Rosenbaum P. L., King S., Law M., King G., Evans J. Family-centred service: A conceptual framework and research review. Physical & Occupational Therapy in Pediatrics 1998; 18: 1–20
  • Scorgie K., Wilgosh L., McDonald L. Stress and coping in families of children with disabilities: An examination of recent literature. Developmental Disabilities Bulletin 1998; 26: 22–42
  • Seligman M., Csikszentmihalyi M. Positive psychology: An introduction. American Psychologist 2000; 55: 5–14
  • Siklos S., Kerns K. A. Assessing need for social support in parents of children with Autism and Down Syndrome. Journal of Autism and Developmental Disorders 2006; 36: 921–933
  • Smith-Bird E., Turnbull A. P. Linking positive behavior support to family quality-of-life outcomes. Journal of Positive Behavior Interventions 2005; 7: 174–180
  • Summers J. A., Poston D. J., Turnbull A. P., Marquis J., Hoffman L., Mannan H., et al. Conceptualising and measuring family quality of life. Journal of Intellectual Disability Research 2005; 49: 777–783
  • Tew B., Laurence K. M. Some sources of stress found in mothers of spina bifida children. British Journal of Preventive & Social Medicine 1975; 29: 27–30
  • Trivette C. M., Dunst C. J., Boyd K., Hamby D. W. Family-orientated program models, helpgiving practices, and parental control appraisals. Exceptional Children 1995; 62: 237–248
  • Trivette C. M., Dunst C. J., Hamby D. W. Factors associated with perceived control appraisals in a family-centered early intervention program. Journal of Early Intervention 1996; 20: 165–178
  • Turnbull H. R., Beegle G., Stowe M. J. The core concepts of disability policy affecting families who have children with disabilities. Journal of Disability Policy Studies 2001; 12: 133–143
  • Turnbull A. P., Summers J. A., Turnbull R., Brotherson M. J., Winton P., Roberts R., et al. Family supports and services in early intervention: A bold vision. Journal of Early Intervention 2007; 29: 187–206
  • Van Riper M. Maternal perceptions of family–provider relationships and well-being in families of children with Down syndrome. Research in Nursing & Health 1999; 22: 357–368
  • Wang M., Turnbull A. P., Summers J. A., Little T. D., Poston D. J., Mannan H., et al. Severity of disability and income as predictors of parents' satisfaction with their family quality of life during early childhood years. Research and Practice for Persons with Severe Disabilities 2004; 29: 82–94
  • Willoughby J. C., Glidden L. M. Fathers helping out: Shared child care and marital satisfaction of parents of children with disabilities. American Journal on Mental Retardation 1995; 99: 399–406
  • World Health Organization. International classification of functioning, disability and health. World Health Organization, GenevaSwitzerland 2001
  • Yau M. K., Li-Tsang C. W. Adjustment and adaptation in parents of children with developmental disability in two-parent families: A review of the characteristics and attributes. British Journal of Developmental Disability 1999; 45: 38–51

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.