Participating in community research: exploring the experiences of lay researchers in Bradford

References

• Airedale Primary Care Trust, Bradford City Teaching PCT, Bradford South & West PCT, & North Bradford PCT . 2004 . Health information and health inequalities across the Bradford Metropolitan district 2004 . Bradford : Author .
   Google Scholar
• Annett , H. and Rifkin , S. 1995 . Guidelines for rapid participatory appraisals to assess community health needs (WHO/SHS/DHS/95.8) , Geneva : World Health Organization .
   Google Scholar
• Arnstein , S.R. 1969 . A ladder of citizen participation . Journal of the American Institute of Planners , 35 : 216 – 224 .
   Web of Science ®Google Scholar
• Bauld , L. and Judge , K. 2002 . Learning from health action zones , Chichester : Aeneas Press .
   Google Scholar
• Benoit , C. , Jansson , M. , Millar , A. and Phillips , R. 2005 . Community–academic research on hard-to-reach populations: Benefits and challenges . Qualitative Health Research , 15 : 263 – 282 .
   PubMed Web of Science ®Google Scholar
• Beresford , P. 2003 . User involvement in research: Exploring the challenges . Nursing Times Research , 8 : 36 – 46 .
   Google Scholar
• Bhopal , K. 2000 . “ Gender, ‘race’ and power in the research process: South Asian women in East London ” . In Research and inequality , Edited by: Truman , C. , Mertens , D.M. and Humphris , B. 67 – 79 . London : Routledge .
   Google Scholar
• Bland , P. , Hodgson , S. and South , J. 2003 . ‘Undercliffe voices.’ Undercliffe health needs assessment , Bradford : North Bradford PCT, Powerhouse .
   Google Scholar
• Boote , J. , Telford , R. and Cooper , C. 2002 . Consumer involvement in health research: A review and research agenda . Health Policy , 61 : 213 – 236 .
   PubMed Web of Science ®Google Scholar
• Boutilier , M. , Mason , R. and Rootman , I. 1997 . Community action and reflective practice in health promotion research . Health Promotion International , 12 : 69 – 78 .
   Web of Science ®Google Scholar
• Brager , C. and Specht , H. 1973 . Community organising , New York : Columbia University Press .
   Google Scholar
• Brodie , I. 2003 . The involvement of parents and carers in Sure Start local evaluations . National Evaluation of Sure Start. Retrieved from http://www.ness.bbk.ac.uk
   Google Scholar
• Cornwall , A. and Jewkes , R. 1995 . What is participatory research? . Social Science and Medicine , 4 : 1667 – 1676 .
   Web of Science ®Google Scholar
• Darlow , A. , Bickerstaffe , T. , Burden , T. , Green , J. , Jassi , S. Johnson , S. 2005 . Researching Bradford. A review of social research on Bradford District , York : Joseph Rowntree Foundation .
   Google Scholar
• De Konig , K. and Martin , M. 1997 . Participatory research in health. Issues and experiences , London : Zed Books .
   Google Scholar
• Entwistle , V. , Renfrew , M. , Yearley , S. , Forrester , J. and Lamont , T. 1998 . Lay perspectives: Advantages for health research . British Medical Journal , 316 : 463 – 466 .
   PubMed Web of Science ®Google Scholar
• Harper , G.W. and Carver , L.J. 1999 . Out-of-the-mainstream’ youth as partners in collaborative research: Exploring the benefits and challenges . Health Education & Behavior , 26 : 250 – 265 .
   PubMed Web of Science ®Google Scholar
• Holman , B. 1987 . Research from the underside . British Journal of Social Work , 17 : 669 – 683 .
   Web of Science ®Google Scholar
• Jewkes , R. 2000 . “ Evaluating community development initiatives in health promotion ” . In Evaluating health promotion: Practice and methods , Edited by: Thorogood , M. and Coombes , Y. 129 – 139 . Oxford : Oxford University Press .
   Google Scholar
• Kai , J. and Hedges , C. 1999 . Minority ethnic community participation in needs assessment and service development in primary care: Perceptions of Pakistani and Bangladeshi people about psychological distress . Health Expectations , 2 : 7 – 20 .
   PubMedGoogle Scholar
• Labonte , R. 1994 . Health promotion and empowerment: Reflections on professional practice . Health Education Quarterly , 21 : 253 – 268 .
   PubMedGoogle Scholar
• Legard , R. , Keegan , J. and Ward , K. 2003 . “ In-depth interviews ” . In Qualitative research practice. A guide for social science students and researchers , Edited by: Ritchie , J. and Lewis , J. 138 – 169 . London : Sage .
   Google Scholar
• Lindsey , E. and McGuinness , L. 1998 . Significant elements of community involvement in participatory action research: Evidence from a community project . Journal of Advanced Nursing , 28 : 1106 – 1114 .
   PubMed Web of Science ®Google Scholar
• Macaulay , A. , Commanda , L. , Freeman , W. , Gibson , N. , McCabe , M. Robbins , C. 1999 . Participatory research maximises community and lay involvement . British Medical Journal , 319 : 774 – 778 .
   PubMed Web of Science ®Google Scholar
• Martin , M. 1996 . “ Issues of power in the participatory research process ” . In Participatory research in health. Issues and experiences , Edited by: De Konig , K. and Martin , M. 82 – 93 . London : Zed Books .
   Google Scholar
• Mason , J. 1996 . Qualitative researching , London : Sage .
   Google Scholar
• Minkler , M. 2004 . Ethical challenges for the ‘outside’ researcher in community-based participatory research . Health Education & Behavior , 31 : 684 – 697 .
   PubMed Web of Science ®Google Scholar
• Murray , S. 1999 . Experiences with ‘rapid appraisal’ in primary care: Involving the public in assessing health needs, orientating staff, and educating medical students . British Medical Journal , 318 : 440 – 444 .
   PubMed Web of Science ®Google Scholar
• Murray , S. , Tapson , J. , Turnbull , L. , McCallum , J. and Little , A. 1994 . Listening to local voices: Adapting rapid appraisal to assess health and social needs in general practice . British Medical Journal , 308 : 698 – 670 .
   PubMed Web of Science ®Google Scholar
• National Statistics . (n.d.) . Neighbourhood statistics . Retrieved from http://neighbourhood.statistics.gov.uk/dissemination/
   Google Scholar
• Neighbourhood Renewal Unit . 2002 . People, places, prospects. Neighbourhood Renewal Unit – Annual Review 2001/2 . London : Office for the Deputy Prime Minister .
   Google Scholar
• Ong , B.N. and Humphris , G. 1994 . “ Prioritizing needs with communities: Rapid appraisal methodologies in health ” . In Researching the people's health , Edited by: Popay , J. and Williams , G. 58 – 82 . London : Routledge .
   Google Scholar
• Parry , O. , Gnich , W. and Platt , S. 2001 . Principles in practice: Reflections on a ‘postpositivist’ approach to evaluation research . Health Education Research , 16 : 215 – 226 .
   Web of Science ®Google Scholar
• Rhodes , P. , Nocon , A. , Booth , M. , Chowdrey , M. , Fabian , A. Lambert , N. 2002 . A service users’ research advisory group from the perspectives of both service users and researchers . Health and Social Care in the Community , 10 : 402 – 409 .
   PubMed Web of Science ®Google Scholar
• Rowe , A. 2006 . The effect of involvement in participatory research on parent researchers in a Sure Start programme . Health and Social Care in the Community , 14 : 465 – 473 .
   PubMed Web of Science ®Google Scholar
• Rowley , J. and Bhuhi , J. 1999 . Participatory needs assessment: A practical approach in partnerships between local residents and professionals . Public Health Medicine , 1 : 27 – 30 .
   Google Scholar
• Seale , C. and Silverman , D. 1997 . Ensuring rigour in qualitative research . European Journal of Public Health , 7 : 379 – 384 .
   Web of Science ®Google Scholar
• Sullivan , M. , Kone , A. , Senturia , K. , Chrisman , N. , Ciske , S. and Krieger , J. 2001 . Researcher and researched – Community perspectives: Toward bridging the gap . Health Education and Behavior , 28 : 130 – 149 .
   PubMed Web of Science ®Google Scholar
• Tandon , R. 1996 . “ The historical roots and contemporary tendencies in participatory research: Implications for health care ” . In Participatory research in health. Issues and experiences , Edited by: De Konig , K. and Martin , M. 19 – 26 . London : Zed Books .
   Google Scholar
• Tones , K. and Tilford , S. 2002 . Health promotion: Effectiveness, efficiency and equity , 3rd ed , Cheltenham : Nelson Thornes .
   Google Scholar
• Truman , C. and Raine , P. 2001 . Involving users in evaluation: The social relations of user participation in health research . Critical Public Health , 11 : 215 – 229 .
   Google Scholar
• UKHFA Network . 1993 . What's community health needs assessment? A protocol . Unpublished report, HFA 2000 Network Co-ordinators Group .
   Google Scholar
• Wallerstein , N. 1999 . Power between evaluator and community: Research relationships within New Mexico's healthier communities . Social Science & Medicine , 49 : 39 – 53 .
   PubMed Web of Science ®Google Scholar
• Wallerstein , N. and Duran , B. 2006 . Using community-based participatory research to address health disparities . Health Promotion Practice , 7 : 312 – 323 .
   PubMedGoogle Scholar
• Watson , B. and Scraton , S. 2001 . Confronting whiteness? Researching the leisure lives of South Asian mothers . Journal of Gender Studies , 10 ( 3 ) : 265 – 277 .
   Web of Science ®Google Scholar
• Watt , S. , Higgins , C. and Kendrick , A. 2000 . Community participation in the development of services: A move towards community empowerment . Community Development Journal , 35 : 120 – 132 .
   Google Scholar