394
Views
2
CrossRef citations to date
0
Altmetric
Articles

The continuum of dependent family care: a theoretical explanation and model

ORCID Icon, &
Pages 599-619 | Received 09 Jan 2018, Accepted 31 Aug 2018, Published online: 21 Nov 2018

References

  • Adema, W., Clarke, C., & Thévenon, O. (2016). Walking the tightrope: Background brief on parents’ work-life balance across stages of childhood. Directorate for Employment, Labor and Social Affairs. Social Policy Division. Paris: OECD.
  • Barnett, R. C., & Gareis, K. C. (2006a). Antecedents and correlates of parental after-school stress: Exploring a newly identified work-family stressor. American Behavioral Scientist, 49(10), 1382–1399. doi: 10.1177/0002764206286561
  • Bianchi, S. M. (2011). Family change and time allocation in U.S. families. The Annals of the American Academy of Political and Social Sciences, 638(1), 21–44. doi: 10.1177/0002716211413731
  • Brennan, E., Bradley, J. R., & Leiberman, L. A. (2008). Child care: An essential support for working families. In J. M. Rosenzweig & E. M. Brennan (Eds.), Systems of care for children’s mental health. Work, life, and the mental health system of care: A guide for professionals supporting families of children with emotional or behavioral disorders (pp. 175–200). Baltimore, MD: Paul H Brookes.
  • Brennan, E. M., & Brannan, A. M. (2005). Participation in the paid labor force by caregivers of children with emotional and behavioral disorders. Journal of Emotional and Behavioral Disorders, 13(4), 237–246. doi: 10.1177/10634266050130040501
  • Brennan, E. M., Jivanjee, P., Rosenzweig, J. M., & Stewart, L. M. (2016). Challenges and supports for employed parents of children and youth with special needs. In T. Allen & L. Eby (Eds.), Oxford handbook of work and family (pp. 165–181). New York, NY: Oxford University Press.
  • Brennan, E. M., Nygren, P., Stephens, R., & Croskey, A. (2015). Predicting positive education outcomes for emerging adults in mental health systems of care. The Journal of Behavioral Health Services & Research. doi: 10.1007/s11414-015-9454-y
  • Brennan, E. M., Rosenzweig, J. M., Malsch, A. M., Stewart, L.M., Kjellstrand, J., & Coleman, D. (2013). Supports for working parents of children with disabilities: A cross-national comparison of inclusive policies. In V. Dujon, J. Dillard, & E. Brennan (Eds.), Social sustainability: A multilevel approach to social inclusion(pp. 183–207). New York, NY: Routlege.
  • Brohan, E., Henderson, C., Wheat, K., Malcolm, E., Clement, S., Barley, E. A., … Thornicroft, G. (2012). Systematic review of beliefs, behaviors and influencing factors associated with disclosure of a mental health problem in the workplace. BMC Psychiatry, 12(11), 1–14.
  • Bronfenbrenner, U. (1989). Ecological systems theory. Annals of Child Development, 6, 187–249.
  • Brown, T., & Pitt-Catsouphes, M. (2016). A mediational model of workplace flexibility, work-family conflict, and perceived stress among caregivers of older adults. Community, Work, & Family, 19(4), 374–395. doi: 10.1080/13668803.2015.1034656
  • Byron, K. (2005). A meta-analytic review of work-family conflict and its antecedents. Journal of Vocational Behavior, 67, 169–198. doi: 10.1016/j.jvb.2004.08.009
  • Columbo, F., Llena-Nozal, A., Mercier, J., & Tjadens, F. (2011). Help wanted? Providing and paying for long term care. Paris: OECD Health Policy Studies, OECD. doi: 10.1787/9789264097759-en
  • Corrigan, P., & Lundin, R. (2001). Don’t call me nuts: Coping with the stigma of mental illness. Tinley Park, IL: Recovery Press.
  • Corrigan, P. W., & Miller, F. E. (2004). Shame, blame, and contamination: A review of the impact of mental illness stigma on family members. Journal of Mental Health, 13, 537–548. doi: 10.1080/09638230400017004
  • Earle, A., & Heymann, J. (2011). Protecting the health of employed adults caring for family members with chronic or disabling conditions. Social Science and Medicine, 73(1), 68–78. doi: 10.1016/j.socscimed.2011.05.016
  • Earle, A., & Heymann, J. (2012). The cost of caregiving: Wage loss among caregivers of elderly and disabled adults and children with special needs. Community, Work & Family, 15(3), 357–375. doi: 10.1080/13668803.2012.674408
  • Elder, G. H. Jr. (1998). The life course as developmental theory. Child Development, 69(1), 1–12. doi: 10.1111/j.1467-8624.1998.tb06128.x
  • Emlen, A. (2010). Solving the childcare and flexibility puzzle: How working parents make the best feasible choices and what that means for public policy. Boca Raton, FL: Universal.
  • Erikson, J. J., Martinegro, G., & Hill, E. J. (2010). Putting work and family experiences into context: Differences by family life stages. Human Relations, 63(7), 955–979. doi: 10.1177/0018726709353138
  • Essex, E. L., & Hong, J. (2005). Older caregiving parents: Division of household labor, marital satisfaction, and caregiver burden. Family Relations, 54(3), 448–460. doi: 10.1111/j.1741-3729.2005.00330.x
  • Fast, J. (2012). Generational differences in caregiving and its consequences. In S. A. McDaniel & Z. Zimmer (Eds.), Global ageing in the twenty-first century: Challenges, opportunities, and implications (pp. 253–266). Surrey: Routledge.
  • Feinberg, L., Reinhard, S. C., Houser, A., & Choula, R. (2011). Valuing the invaluable: 2011 update—The growing contributions and costs of family caregiving. Washington, DC: AARP Public Policy Institute.
  • Folbre, N., & Yoon, J. (2008). The value of unpaid child care in the United States in 2003. In J. Kimmel (Ed.), How do we spend our time?: Evidence from the American time use survey (pp. 31–56). Kalamazoo, MI: W.E. Upjohn Institute for Employment Research.
  • Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. Englewood Cliffs, NJ: Prentice-Hall.
  • Green, L. (2017). Understanding the life course: Sociological and psychological perspectives. Cambridge, MA: Polity Press.
  • Hilbrecht, M., Lero, D., Schryer, E., Mock, S. E., & Smale, B. (2017). Understanding the association between time spent caregiving and well-being among employed adults: Testing a model of work-life fit and sense of community. Community, Work and Family, 20(2), 162–180. doi: 10.1080/13668803.2015.1112254
  • Hill, E. J., Jacob, J. I., Shannon, L. L., Brennan, R. T., Blanchard, V. L., & Martinengo, G. (2008). Exploring the relationship of workplace flexibility, gender, and life stage to family-to-work conflict, and stress and burnout. Community, Work & Family, 11(2), 165–181. doi: 10.1080/13668800802027564
  • Hofstede, G. (1980). Culture’s consequences: International differences in work-related values. Beverly Hills, CA: Sage.
  • Kelly, E., Moen, P., Tranby, E., & Huang, Q. (2011). Changing work, changing health: Can real work-time flexibility promote health behaviors and well being? Journal of Health and Social Behavior, 52(4), 404–429. doi: 10.1177/0022146511418979
  • Kossek, E., & Thompson, R. (2016). Workplace flexibility: Integrating employer and employee perspectives to close the research-practice implementation gap. In T. Allen & L. T. Eby (Eds.), Oxford handbook of work and family (pp. 255–270). New York, NY: Oxford University Press.
  • Lahaie, C., Earle, A., & Heymann, J. (2012). An uneven burden: Social disparities in adult caregiving responsibilities, working conditions, and caregiver outcomes. Research on Aging, 35(3), 243–274. doi: 10.1177/0164027512446028
  • Lero, D., Spinks, N., Fast, J., Hilbretch, M., & Tremblay, D. (2012). The availability, accessibility and effectiveness of workplace supports for Canadian caregivers. Ottawa, ON: TVanier Institute of the Family. Retrieved from https://www.worklifecanada.ca/cms/resources/files/703/The_Availability,_Accessibility_and_Effectiveness_of_Workplace_Supports_for_Canadian_Caregivers.pdf
  • Lewis, S., Kagan, C., & Heaton, P. (2000). Dual earner parents with disabled children: Family patterns for working and caring. Journal of Family Issues, 21(8), 1031–1060. doi: 10.1177/019251300021008005
  • Lily, M. B., Laporte, A., & Coyte, P. C. (2007). Labor market work and home care’s unpaid caregivers: A systematic review of labor forced participation rates, predictors of labor market withdrawal, and hours of work. Millbank Quarterly, 85(4), 641–690. doi: 10.1111/j.1468-0009.2007.00504.x
  • Masuda, A. D., Poelmans, S. A. Y., Allen, T. D., Spector, P. E., Lapierre, L. M., Cooper, C. L., … Moreno-Velazquez, I. (2012). Flexible work arrangements availability and their relationship with work-to-family conflict, job satisfaction, and turnover intentions: A comparison of three country clusters. Applied Psychology, 61(1), 1–29. doi: 10.1111/j.1464-0597.2011.00453.x
  • Moen, P., Kelly, E., & Huang, Q. (2008). Work, family and life course fit: Does control over work time matter? Journal of Vocational Behavior, 73(3), 414–425. doi: 10.1016/j.jvb.2008.08.002
  • Mooreman, S. M., & MacDonald, C. (2012). Medically complex home care and caregiver strain. The Gerontologist, 53(3), 407–417. doi: 10.1093/geront/gns067
  • Namkung, E. H., Song, J., Greenberg, J. S., Mailick, M. R., & Floyd, F. J. (2015). The relative risk of divorce in parents of children with developmental disabilities: Impacts on lifelong parenting. American Journal on Intellectual and Developmental Disabilities, 120(6), 514–526. doi: 10.1352/1944-7558-120.6.514
  • National Alliance for Caregiving and AARP. (2015). Caregiving in the U.S. 2015. Retrieved from http://assets.aarp.org/rgcenter/il/caregiving_09_fr.pdf
  • Netemeyer, R. G., Boles, J. S., & McMurrian, R. (1996). Development and validation of work-family conflict and family-work conflict scales. Journal of Applied Psychology, 81(4), 400–410. doi: 10.1037/0021-9010.81.4.400
  • Oliver, M. (1996). The social model in context. In Understanding disability (pp. 30–42). London: Palgrave.
  • Organisation for Economic Cooperation and Development (OECD). (2017). Health at a glance 2017: OECD indicators. Paris: OECD. doi: 10.1787/health_glance-2017-en
  • Organisation for Economic Cooperation and Development (OECD). (2018). Family data base. Paris: OECD. Retrieved from http://www.oecd.org/els/family/database.htm
  • Parish, S. L., Grinstein-Weiss, M., Yeo, Y. H., Rose, R. A., & Rimmerman, A. (2010). Assets and income: Disability-based disparities in the United States. Social Work Research, 34(2), 71–82. doi: 10.1093/swr/34.2.71
  • Pleck, J. H., & Hofferth, S. L. (2008). Mother involvement as an influence on father involvement with early adolescents. Fathering, 6(3), 267–286. doi: 10.3149/fth.0603.267
  • Pledger, C. (2003). Discourse on disability and rehabilitation issues: Oppportunities for psychology. American Psychologist, 58(4), 279–284. doi: 10.1037/0003-066X.58.4.279
  • Principi, A., Lamura, G., Sirolla, C., Mestheneos, L., Bien, B., Brown, J., … Döhner, H. (2014). Work restrictions experienced by midlife family care-givers of older people: Evidence from six European countries. Ageing and Society, 34(2), 209–231. doi: 10.1017/S0144686X12000967
  • Reinhard, S., Levine, C., & Samis, S. (2012). Home alone: Family caregivers providing complex chronic care. Washington, DC: AARP Public Policy Institute.
  • Revenson, T., Griva, K., Luszczynska, V., Morrison, V., Panagopoulou, E., Vilchinsky, N., & Hagedoorn, M. (2016). Caregiving in the illness context (pp. 64–78). Basingstoke: Palgrave Macmillan. doi: 10.1057/9781137558985.0009
  • Rolland, J. S. (1993). Mastering family challenges in serious illness and disability. In F. Walsh (Ed.), Normal family processes (2nd ed., pp. 444–473). New York, NY: Guilford Press.
  • Rolland, J. S. (2003). Mastering family challenges in illness and disability. In F. Walsh (Ed.), Normal family processes: Growing diversity and complexity (pp. 460–489). New York, NY: Guilford Press. http://dx.doi.org/10.4324/9780203428436
  • Rosenzweig, J. M., Brennan, E., Huffstutter, K. J., & Kendall, J. (2008). Inside: The family insights and experiences of family members. In J. M. Rosenzweig & E. M. Brennan (Eds.), Systems of care for children’s mental health. Work, life, and the mental health system of care: A guide for professionals supporting families of children with emotional or behavioral disorders (pp. 5–87). Baltimore, MD: Paul H Brookes.
  • Rosenzweig, J. M., Brennan, E. M., & Ogilvie, A. M. (2002). Work/family fit for parents of children with emotional or behavioral disorders: A qualitative study. Social Work, 47(4), 415–424. doi: 10.1093/sw/47.4.415
  • Rosenzweig, J. M., & Huffstutter, K. (2004). Disclosure and reciprocity: On the job strategies for taking care of business and family. Focal Point: A National Bulletin on Family Support and Children’s Mental Health, 18, 4–7.
  • Rosenzweig, J. M., Malsch, A. M., Brennan, E. M., Huffstutter, K. J., Stewart, L. M., & Lieberman, L. A. (2011). Managing communication at the work-life boundary: Parents of children and youth with mental health disorders and human resource professionals. Best Practices in Mental Health: An International Journal, 7(1), 67–93.
  • Rosenzweig, J. M., Roundtree, L. T., & Huffstutter, K. J. (2008). The workplace: Work-life integration barriers and supports. In J. M. Rosenzweig & E. M. Brennan (Eds.), Work, life, and the mental health system of care: A guide for professionals supporting families of children with emotional orbehavioral disorders (pp. 143–173). Baltimore, MD: Paul H. Brookes.
  • Rothausen, T. (2016). Organizational dependent family care support. In T. Allen & L. T. Eby (Eds.), Oxford handbook of work and family (pp. 271–285). New York, NY: Oxford University Press. doi: 10.1093/oxfordhb/9780199337538.013.20
  • Roundtree, L., & Lynch, K. (2006). Exploring the complexities of exceptional caregiving. Executive briefing series. Boston, MA: Boston College, Center for Work & Family.
  • Seleigman, M., & Darling, R. B. (2007). Ordinary families, special children: A systems approach to childhood disability (3rd ed.). New York, NY: Guilford Press.
  • Sellmeier, C. (2015). Fathers caring for children with special health care needs: Experiences of work-life fit. (Dissertation, Paper 2636). Portland State University.
  • Stewart, L. M. (2013). Family care responsibilities and employment: Exploring the impact of type of family care on work-family and family-work conflict. Journal of Family Issues, 34(1), 113–138. doi: 10.1177/0192513X12437708
  • Stewart, L. M. (2014). Exceptional care responsibilities and work-related outcomes: Findings from the 2010 generations of talent study. Paper presented at the 2014 Annual Conference for the Society for Social Work and Social Research, San Antonio, TX.
  • Stewart, L. M., Rosenzweig, J. M., Malsch, A. M., & Brennan, E. M. (2018). Employees giving disability care: Does training improve supports? Unpublished Manuscript. Portland State University, Portland, OR.
  • Sweet, S., & Moen, P. (2006). Advancing a career focus on work and family: Insights from the life course perspective. In M. Pitt-Catsouphes, E. Kossek, & S. Sweet (Eds.), The work and family handbook: Multi-disciplinary perspectives, methods, and approaches (pp. 189–208). Mahwah, NJ: Erlbaum.
  • Thomas, L. T., & Ganster, D. C. (1995). Impact of family-supportive work variables on work-family conflict and strain: A control perspective. Journal of Applied Psychology, 80(1), 6–15. doi: 10.1037/0021-9010.80.1.6
  • Thompson, C. A., & Prottas, D. J. (2005). Relationships among organizational family support, job autonomy, perceived control, and employee well being. Journal of Occupational Health Psychology, 10(4), 100–118.
  • Timmermans, S., & Freidin, B. (2007). Caretaking as articulation work: The effects of taking up responsibility for a child with asthma on labor force participation. Social Science & Medicine, 65(7), 1351–1363. doi: 10.1016/j.socscimed.2007.05.027
  • Voydanoff, P. (1985). Work/family linkages over the life course. Journal of Career Development, 12(1), 23–32. doi: 10.1177/089484538501200104
  • Voydanoff, P. (2005). Toward a conceptualization of perceived work-family fit and balance: A demands and resources approach. Journal of Marriage and Family, 67(4), 822–836. doi: 10.1111/j.1741-3737.2005.00178.x
  • Voydanoff, P. (2007). Work, family, and community: Exploring interconnections. Mahwah, NJ: L. Erlbaum.
  • Yeandle, S., Bennett, C., Buckner, L., Fry, G., & Price, C. (2007a). Stages and transitions in the experience of caring (Rep. no. 1). London: Careers UK.
  • Yeandle, S., Bennett, C., Buckner, L., Fry, G., & Price, C. (2007b). Managing caring and employment (Rep. no. 2). London: Careers UK.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.