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Research Reports

Listening to the voice of living life with aphasia: Anne's story

Pages 30-46 | Published online: 03 Jul 2009

References

  • Abma T. A. Powerful stories: the role of stories in sustaining and transforming professional practice within a mental hospital. The Narrative Study of Lives, 6, R Josselson, A Lieblich. Sage, London 1999; 169–195
  • Alexander E. Aphasia — the worm's eye view of a philosophic patient and the medical establishment. Diogenes 1990; 38((150))1–23
  • Barrow A. R. Narratives of stroke and aphasia: an ethnographic investigation. 2004, Unpublished PhD thesis, Trinity College, Dublin
  • Barrow R. Hearing the story: a narrative perspective on aphasia therapy. Bulletin of the Royal College of Speech and Language Therapists 2000; 576(April): 8–10
  • Barton L. Disability and Society: Emerging Issues and Insights. Addison Wesley Longman, Harlow 1996
  • Becker G. Disrupted Lives: How People Create Meaning in a Chaotic World. University of California Press, Berkeley, CA 1999
  • Becker G., Kaufman S. Managing an uncertain illness trajectory in old age: patients' and physicians' views of stroke. Medical Anthropology Quarterly 1995; 9: 165–187
  • Boazman S. Inside aphasia. Disability Discourse, M Corker, S French. Open University Press, Buckingham 1999; 15–20
  • Burck C. Language and narrative: learning from bilingualism. Multiple Voices: Narrative in Systemic Family Psychotherapy, R. K Papadopoulos, J Byng‐Hall. Duckworth, London 1997; 64–85
  • Connect. DVD: Reconnecting With Life After Stroke. Connect — The Communication Disability Network & the National Audit Office, London 2006, (available at: http://www.patientvoices.org.uk)
  • Corker M., French S. Disability Discourse. Open University Press, Buckingham 1999
  • Coulehan J., Platt F., Egener B., Frankel R., Lin C.‐T., Lown B., Salazar W. ‘Let me see if I have this right …’: words that help build empathy. Annals of Internal Medicine 2001; 135: 221–227
  • Crossley M. Introducing Narrative Psychology: Self, Trauma and the Construction of Meaning. Open University Press, Buckingham 2000
  • Devlieger P., Albrecht G., Hertz M. The production of disability culture among young African‐American men. Social Science and Medicine 2007; 64: 1948–1959
  • Donald A. The words we live in. Narrative Based Medicine: Dialogue and Discourse in Clinical Practice, T Greenhalgh, B Hurwitz. BMJ Books, London 1998; 17–26
  • Faircloth C., Rittman M., Boylstein C., Young M., Van Puymbroeck M. Energizing the ordinary: Biographical work and the future in stroke recovery narratives. Journal of Aging Studies 2004; 18: 399–413
  • Finkelstein V. Emancipating disability studies. Disability Reader: Social Science Perspectives, T Shakespeare. Continuum, London 1998; 28–49
  • Frank A. The Wounded Storyteller: Body, Illness and Ethics. University of Chicago Press, Chicago, IL 1995
  • Freedman J., Combs G. Narrative Therapy: The Social Construction of Preferred Realities. W. W. Norton, New York, NY 1996
  • Geertz C. The Interpretation of Cultures. Basic, New York, NY 1973
  • Goodley D., Tregaskis C. Storying disability and impairment: retrospective accounts of disabled family life. Qualitative Health Research 2006; 16: 630–646
  • Greenhalgh T., Collard A. Narrative Based Health Care: Sharing Stories — A Multiprofessional Workbook. BMJ Books, London 2003
  • Griffin J., Tyrrell I. Human Givens: A New Approach to Emotional Health and Clear Thinking. HG Publ., Chalvington 2004
  • Häggström T., Axelsson K., Norberg A. The experience of living with stroke sequelae illuminated by means of stories and metaphors. Qualitative Health Research 1994; 4: 321–337
  • Hammersley M., Atkinson P. Ethnography: Principles in Practice. Routledge, London 1995, 2nd edn
  • Hinckley J. The piano lesson: an autoethnography about changing clinical paradigms in aphasia practice. Aphasiology 2005; 19: 765–779
  • Hinckley J. Finding messages in bottles: living successfully with stroke and aphasia. Topics in Stroke Rehabilitation 2006; 13: 25–36
  • Hydén L.‐C. Illness and narrative. Sociology of Health and Illness 1997; 19: 48–69
  • Ireland C. 100 Years on from Freud's On Aphasia: from patient to counsellor. Treatment of Aphasia: From Theory to Practice, C Code, D Mu˝ller. Whurr, London 1997; 29–43
  • Ireland C., Black M. Living with aphasia: the insight story. UCL Working Papers 1992; 4: 355–358
  • Ireland C., Pound C. Cebrelating aphasia: poetry and power. Aphasia Inside Out: Reflections on Communication Disability, S Parr, J Duchan, C Pound. Open University Press, Maidenhead 2003; 143–161
  • Kagan A. Supported conversation for adults with aphasia: methods and resources for training conversation partners. Aphasiology 1998; 12: 811–864
  • Khosa J. Still life of a chameleon: aphasia and its impact on identity. Aphasia Inside Out: Reflections on Communication Disability, S Parr, J Duchan, C Pound. Open University Press, Maidenhead 2003; 10–20
  • Kleinman A. The Illness Narratives: Suffering, Healing and the Human Condition. Basic, New York, NY 1988
  • Knight G. Better Conversations: A Guide for Relatives. Connect, London 2005
  • Kovarsky D., Curran M. A missing voice in the discourse of evidence‐based practice. Topics in Language Disorders 2007; 27: 50–61
  • Moss B., Parr S., Byng S., Petheram B. ‘Pick me up and not a down down, up up’: how are the identities of people with aphasia represented in aphasia, stroke and disability websites?. Disability and Society 2004; 19: 753–768
  • Newborn B. Return to Ithaca: A Woman's Triumph Over the Disabilities of a Severe Stroke. Element, Shaftesbury 1997
  • Oliver M. Understanding Disability: From Theory to Practice. Macmillan, Basingstoke 1996
  • Parr S., Byng S., Gilpin S., Ireland C. Talking About Aphasia. Open University Press, Buckingham 1997
  • Phillips M. Damaged goods: oral narratives of the experience of disability in American culture. Social Science and Medicine 1990; 30: 849–857
  • Pound C. Dare to be different: the person and the practice. Challenging Aphasia Therapies: Broadening the Discourse and Extending the Boundaries, J Duchan, S Byng. Psychology Press, Hove 2004; 32–53
  • Pound C., Parr S., Lindsay J., Woolf C. Beyond Aphasia: Therapies for Living with Communication Disability. Winslow, Bicester 2000
  • Reeve D. Negotiating psycho‐emotional dimensions of disability and their influence on identity constructions. Disability and Society 2002; 17: 493–508
  • Ritchie J., Spencer L. Qualitative data analysis for applied policy research. Analyzing Qualitative Data, A Bryman, R Burgess. Routledge, London 1994; 173–194
  • Shakespeare T. Disability Rights and Wrongs. Routledge, London 2006
  • Simpson S. Respecting the rights of a person with aphasia to their own life choices: a longitudinal case study. The Aphasia Therapy File: Volume 2, S Byng, J Duchan, C Pound. Psychology Press, Hove 2007; 181–208
  • Somers M. R. The narrative constitution of identity: a relational and network approach. Theory and Society 1994; 23: 605–649
  • Stainton‐Rogers W. Enabling Health and Illness: An Exploration of Diversity. Harvester Wheatsheaf, London 1991
  • Swain J., Clark J., Parry K., French S., Reynolds F. Enabling Relationships in Health and Social Care: A Guide for Therapists. Butterworth‐Heinemann, Oxford 2004b
  • Swain J., French S. Towards an affirmation model of disability. Disability and Society 2000; 15: 569–582
  • Swain J., French S., Barnes C., Thomas C. Disabling Barriers — Enabling Environments. Sage, London 2004a, 2nd edn
  • Swinburn K. Journeys with aphasia: personal reflections. Speech and Language Therapy: Issues in Professional Practice, C Anderson, A van der Gaag. Whurr, London 2005; 111–130
  • Thomas C. Female Forms: Experiencing and Understanding Disability. Open University Press, Buckingham 1999
  • World Health Organisation (WHO). International Classification of Impairments, Disabilities and Handicaps: A Manual of Classification Relating to the Consequences of Disease. WHO, Geneva 1980

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