Environmental factors that influence communication between people with communication disability and their healthcare providers in hospital: a review of the literature within the International Classification of Functioning, Disability and Health (ICF) framework

References

• Adams‐Spink G. NHS ‘failing’ deaf patients. BBC News, , et al, 2004, (available at: http://news.bbc.co.uk/go/pr/fr/‐/1/hi/health/3527099.stm) (accessed on 9 March 2004)
   Google Scholar
• Ahmed A., Gibson P., Bannister P. Availability of equipment for assessing deaf patients on hospital wards. Age and Aging 1996; 5(supp 25)32
   Google Scholar
• Alasad J., Ahmad M. Communicating with critically ill patients. Journal of Advanced Nursing 2005; 50((4))356–362
   Google Scholar
• Armstrong E. Communication culture in acute speech pathology settings: current issues. Advances in Speech–Language Pathology 2003; 5((2))137–143
   Google Scholar
• Arthur V. Written patient information: a review of the literature. Journal of Advanced Nursing 1995; 21: 1081–1086
   PubMed Web of Science ®Google Scholar
• Baker C. Caring for patients with hearing impairments. Dermatology Nursing 2002; 14((1))49–50
   Google Scholar
• Balandin S., Hemsley B., Sigafoos J., Green V. Communicating with nurses: the experiences of 10 adults with cerebral palsy and complex communication needs. Applied Nursing Research 2007; 20: 56–62
   PubMed Web of Science ®Google Scholar
• Balandin S., Hemsley B., Sigafoos J., Green V., Forbes R., Taylor C., Parmenter T. Communicating with nurses: the experiences of 10 individuals with an acquired severe communication impairment. Brain Impairment 2001; 2((2))109–118
   Google Scholar
• Beckstrand R., Callister L., Kirchhoff K. Providing a ‘good death’: critical care nurses' suggestions for improving end‐of‐life care. American Journal of Critical Care 2006; 15((1))38–46
   PubMed Web of Science ®Google Scholar
• Bensing J., Verhaak P., Van Dulmen A., Visser A. Communication: the royal pathway to patient‐centred medicine. Patient Education and Counseling 2000; 39: 1–3
   PubMed Web of Science ®Google Scholar
• Bergbom I., Askwall A. The nearest and dearest: a lifeline for ICU patients. Intensive and Critical Care Nursing 2000; 16: 384–395
   Google Scholar
• Bergbom‐Engberg I., Haljamae H. The communication process with ventilator patients in the ICU as perceived by the nursing staff. Intensive and Critical Care Nursing 1993; 9: 40–47
   Google Scholar
• Byng S., Farrelly S., Fitzgerald L., Parr S., Ross S. , et al, 2005, Having a say: promoting the participation of people who have communication impairments in health care decision‐making (available at: http://www.healthinpartnership.org/publications/byng/byng‐final.html) (accessed on 14 November 2005)
   Google Scholar
• Cantley P., Pound S., Macdonald E. Hearing aids in elderly inpatients: how well do patients and hospital staff cope with them?. Age and Ageing 1996; 25((1; Suppl. 1))14
   Google Scholar
• Costello J. AAC intervention in the intensive care unit: the Children's Hospital Boston model. Augmentative and Alternative Communication 2000; 16: 137–153
   Google Scholar
• Cottrell S., Davies A. Supporting conversation, providing information. Royal College of Speech and Language Therapists Bulletin 2004; 12–13
   Google Scholar
• Cottrell S., Davies A. Stroke Talk: Patient Communication Kit. Connect, London 2006
   Google Scholar
• Cumella S., Martin D. Secondary healthcare and learning disability. Journal of Learning Disabilities 2004; 8((1))30–40
   Google Scholar
• Cunningham C., Archibald C. Supporting people with dementia in acute hospital settings. Nursing Standard 2006; 20((43))51–55
   Google Scholar
• Davies M., Channon B. Deaf patients in the medical imaging department — a qualitative study. Journal of Diagnostic Radiography and Imaging 2004; 5((2))99–106
   Google Scholar
• Di Blasi Z., Harkness E., Ernst E., Georgiou A., Kleijnen J. Influence of context effects on health outcomes: a systematic review. Lancet 2001; 357: 757–762
   PubMed Web of Science ®Google Scholar
• Dowden P., Honsinger M., Beukelman D. Serving nonspeaking patients in acute care settings: an intervention approach. AAC Augmentative and Alternative Communication 1986; 2((1))25–32
   Google Scholar
• Duffy S., Mallery L., Gordon J., Carver D. Ability of hospitalized older adults to use their call bell: a pilot study in a tertiary care teaching hospital. Aging Clinical and Experimental Research 2005; 17((5))390–393
   Google Scholar
• Forster S. Access for People Who are Deaf or Who Have Hearing Impairments. Princess Alexandra Hospital, Brisbane 1999
   Google Scholar
• Fox D., Wilson D. Parents' experiences of general hospital admission for adults with learning disabilities. Journal of Clinical Nursing 1999; 8: 610–614
   PubMed Web of Science ®Google Scholar
• Fried‐Oken M., Howard J., Stewart S. Feedback on AAC intervention for adults who are temporarily unable to speak. Augmentative and Alternative Communication 1991; 7: 43–50
   Google Scholar
• Goff M. Caring for a person with dementia in acute hospitals. Australian Nursing Journal 2000; 7((10))21–24
   Google Scholar
• Goodall D. Environmental changes increase hospital safety for dementia patients. Holistic Nursing Practice 2006; 20((2))80–84
   Google Scholar
• Gould M. Suffering in silence. The Guardian, , et al, 2004, (available at: http://society.guardian.co.uk/societyguardian/story/0,7843,1160204,00.html) (accessed on 9 March 2004)
   Google Scholar
• Granberg A., Bergbom Engberg I., Lundberg D. Patients' experience of being critically ill or severely injured and cared for in an intensive care unit in relation to the ICU syndrome. Part 1. Intensive and Critical Care Nursing 1998; 14: 294–307
   PubMedGoogle Scholar
• Halligan P. Caring for patients of Islamic denomination: critical care nurses' experiences in Saudi Arabia. Journal of Clinical Nursing 2006; 15((12))1565–1573
   Google Scholar
• Hamill‐Ruth R., Ruth R., Googer K., Volles D., Deivert M., Turrentine B. Use of otoacoustic emissions to screen for hearing loss in critically ill patients. Audiology 1998; 37((6))344–352
   Google Scholar
• Hannon L. Better preadmission assessment improves learning disability care. Nursing Times 2004; 100((25))44–47
   Google Scholar
• Happ M. Communicating with mechanically ventilated patients: state of the science. AACN Clinical Issues 2001; 12((2))247–258
   Google Scholar
• Happ M., Kenney Roesch T., Garrett K. Electronic voice‐output communication aids for temporarily nonspeaking patients in a medical intensive care unit: a feasibility study. Heart and Lung 2004; 33((2))92–101
   Google Scholar
• Hart S. Learning disabilities: learning disabled people's experiences of general hospital. British Journal of Nursing 1998; 7((8))470–477
   Google Scholar
• Hearnburg Johnson L. The building blocks for helping patients with sight or hearing impairments. PT Magazine 2002; July: 34–39
   Google Scholar
• Hemsley B., Balandin S. Without AAC: the stories of unpaid carers of adults with cerebral palsy and complex communication needs in hospital. Augmentative and Alternative Communication 2004; 20((4))243–258
   Google Scholar
• Hemsley B., Balandin S., Togher L. Narrative analysis of the hospital experience for older parents of people who cannot speak. Journal of Aging Studies 2007; 21: 239–254
   Web of Science ®Google Scholar
• Hemsley B., Sigafoos J., Balandin S., Forbes R., Taylor C., Green V., Parmenter T. Nursing the patient with severe communication impairment. Journal of Advanced Nursing 2001; 35((6))827–835
   Google Scholar
• Heron R., Wharrad H. Prevalence and nursing awareness of hearing impairment in older hospital patients. Journal of Clinical Nursing 2000; 9: 834–841
   Google Scholar
• Hickson L., Worrall L., Wilson J., Tilse C., Setterland D. Evaluating communication for resident participation in an aged care facility. Advances in Speech–Language Pathology 2005; 7((4))245–257
   Google Scholar
• Hines J. Communication problems of hearing‐impaired patients. Nursing Standard 2000; 14((19))33–37
   PubMedGoogle Scholar
• Hoffman J., Yorkston K., Shumway‐Cook A., Ciol M., Dudgeon B., Chan L. Effect of communication disability on satisfaction with healthcare: a survey of Medicare beneficiaries. American Journal of Speech–Language Pathology 2005; 14: 221–228
   PubMed Web of Science ®Google Scholar
• Holland A., Halper A. Talking to individuals with aphasia: a challenge for the rehabilitation team. Topics in Stroke Rehabilitation 1996; 2((4))27–37
   PubMedGoogle Scholar
• Iacono T., Davis R. The experience of people with developmental disability in emergency departments and hospital wards. Research in Developmental Disabilities 2003; 24: 247–264
   PubMed Web of Science ®Google Scholar
• Iezzoni L., O'Day B., Killeen M., Harker H. Communicating about health care: Observations from persons who are deaf or hard of hearing. Annals of Internal Medicine 2004; 140((5))356–362
   Google Scholar
• Kagan A. Revealing the competence of aphasic adults through conversation: a challenge to health professionals. Topics in Stroke Rehabilitation 1995; 2((1))15–28
   PubMedGoogle Scholar
• Kagan A., LeBlanc K. Motivating for infrastructure change: toward a communicatively accessible, participation‐based stroke care system for all those affected by aphasia. Journal of Communication Disorders 2002; 35: 153–169
   PubMed Web of Science ®Google Scholar
• Kagan A., Winckel J., Shumway E. Pictographic Communication Resources. Aphasia Center, North York 1996
   Google Scholar
• Law J., Bunning K., Byng S., Farrelly S., Heyman B. Making sense in primary care: leveling the playing field for people with communication difficulties. Disability and Society 2005; 20((2))169–184
   Web of Science ®Google Scholar
• Lubinski R. Perception of spoken communication by elderly chronically ill patients in an institutional setting. Journal of Speech and Hearing Disorders 1981; 46: 405–412
   PubMedGoogle Scholar
• Magnus V., Turkington L. Communication interaction in ICU — patient and staff experiences and perceptions. Intensive and Critical Care Nursing 2006; 22: 167–180
   PubMedGoogle Scholar
• McConnell E. How to converse with a hearing impaired patient. Nursing 2002; 32((8))20
   Google Scholar
• McCooey R., Toffolo D., Code C. A socioenvironmental approach to functional communication in hospital inpatients. Neurogenic Communication Disorders: A Functional Approach, L Worrall, C Frattali. Thieme, New York, NY 2000; 295–311
   Google Scholar
• McCooey‐O'Halloran R., Worrall L., Hickson L. Evaluating the role of speech–language pathology with patients with communication disability in the acute care hospital setting using the ICF. Journal of Medical Speech–Language Pathology 2004; 12((2))49–58
   Google Scholar
• Mencap. Treat me right!. , et al, 2004, (available at: http://www.mencap.org.uk) (accessed on 25 August 2004)
   Google Scholar
• Mitsuda P., Baarslag‐Benson R., Hazel K., Therriault T. Augmentative communication in intensive and acute care unit settings. Augmentative Communication in the Medical Setting, K Yorkston. Communication Skill Builders, Tuscon, AZ 1992; 5–58
   Google Scholar
• Moelker A., Maas R., Pattynama P. Verbal communication in MR environments: Effect of MR system acoustic noise on speech understanding. Radiology 2004; July: 107–113
   Google Scholar
• Morse J., Richards L. Read Me First for a User's Guide to Qualitative Methods. Sage, Thousand Oaks, CA 2002
   Google Scholar
• Mulley G., Ng K. Problems encountered by hearing impaired people in hospitals. Lancet 1995; 345: 1640
   Google Scholar
• Murphy J., Cameron L. Talking Mats and Learning Disability: A Low Tech Communication Resource to Help People to Express their Views and Feelings. Psychology Department, University of Stirling, Stirling 2002
   Google Scholar
• Murphy J., Tester S., Hubbard G., Downs M., MacDonald C. Enabling frail older people with a communication difficulty to express their views: the use of TALKING MATS as an interview tool. Health and Social Care in the Community 2005; 13((2))95–107
   Google Scholar
• Nzegwu F. , et al, 2004, The experience of visually impaired users of the NHS (available at: http://www.guidedogs.org.uk/index.php?id=1474) (accessed on 12 September 2006)
   Google Scholar
• O'Day B., Killeen M., Iezzoni L. Improving health care experiences of persons who are blind or have low vision: suggestions from focus groups. American Journal of Medical Quality 2004; 19((5))193–200
   Google Scholar
• Owens J. Accessible information for people with complex communication needs. AAC Augmentative and Alternative Communication 2006; 22((3))196–208
   PubMed Web of Science ®Google Scholar
• Page N., Ramesh P. Can you hear me?. Age and Aging 2000; 29(supp 2)27
   Google Scholar
• Park E., Song M. Communication barriers perceived by older patients and nurses. International Journal of Nursing Studies 2005; 42: 159–166
   PubMed Web of Science ®Google Scholar
• Parr S., Byng S., Gilpin S., Ireland C. Talking about Aphasia: Living with Loss of Language After Stroke. Open University Press, Buckingham 1997
   Google Scholar
• Parr S., Pound C., Byng S., Long B. The Aphasia Handbook. Connect Press, London 1999
   Google Scholar
• Parr S., Pound C., Hewitt A. Communication access to health and social services. Topics in Language Disorders 2006; 26((3))189–198
   Google Scholar
• Patak L., Gawlinski A., Fung N., Doering L., Berg J. Patients' reports of health care practitioner interventions that are related to communication during mechanical ventilation. Heart and Lung 2004; 33: 308–321
   PubMed Web of Science ®Google Scholar
• Peberdy S., Eastman L., Pichora‐Fuller M., Reesor P., Alberti P. Management of hearing‐impaired in‐patients in an active treatment hospital. Journal of Otolaryngology 1984; 13((4))221–226
   Google Scholar
• Plunkett A., Quine S. Difficulties experienced by carers from non‐English speaking backgrounds in using health and other support services. Australian and New Zealand Journal of Public Health 1996; 20((1))27–32
   Google Scholar
• Potl S., Hickson L. Hearing status of elderly hospital inpatients. Australian Journal of Audiology 1990; 12: 79–83
   Google Scholar
• Redmond M. Perianesthesia communication in hearing impaired patients. Journal of Perianesthesia Nursing 1996; 11((6))384–389
   Google Scholar
• Robillard A. Communication problems in the intensive care unit. Qualitative Sociology 1994; 17((4))383–395
   Google Scholar
• Roper T. The use of deaf-aid communicators in a Salford hospital: A failure of communication?. Age and Aging 1995; 24: 160–162
   PubMed Web of Science ®Google Scholar
• Roter D., Hall J. Doctors Talking with Patients/Patients Talking with Doctors: Improving Communication in Medical Visits. Praeger, Westport, CT 2006, 2nd edn
   Google Scholar
• Royal National Institute for the Deaf (RNID). A Simple Cure, , et al. RNID, London
   Google Scholar
• Sommer S., Sommer N. When your patient is hearing impaired. RN 2002; 65((12))27–32
   Google Scholar
• Stewart M. Effective physician–patient communication and health outcomes: a review. Canadian Medical Association Journal 1995; 152: 1423–1433
   PubMed Web of Science ®Google Scholar
• Sundin K., Jansson L., Norberg A. Communicating with people with stroke and aphasia: understanding through sensation without words. Journal of Clinical Nursing 2000; 9: 481–488
   PubMed Web of Science ®Google Scholar
• Tolson D. Age‐related hearing loss: a case for nursing intervention. Journal of Advanced Nursing 1997; 26: 1150–1157
   Google Scholar
• Trovo de Araujo M., Silva P. D. Communication with dying patients — perception of intensive care units nurses in Brazil. Journal of Clinical Nursing 2004; 13: 143–149
   Google Scholar
• United States of America. United States of America Against Silver Hill Hospital Settlement Agreement Under the Americans with Disabilities Act 1990. , et al, Department of Justice Washington, DC 2002
   Google Scholar
• United States of America. United States of America Norman Posner and Queens Independent Living Center Inc. Against Parkway Hospital Inc, , et al. United States District Court Eastern District of New York, New York, NY 2004
   Google Scholar
• US Department of Health and Human Services, O. f. c. r. , et al, 2007, Hospitals and effective communication (available at: http://www.hhs.gov/ocr/hospitalcommunication.html) (accessed on 30 July 2007)
   Google Scholar
• Usher K., Monkley D. Effective communication in an intensive care setting: nurses' stories. Contemporary Nurse 2001; 10: 91–101
   Google Scholar
• Valuing People. , et al, 2007, Valuing people (available at: http://valuingpeople.gov.uk) (accessed on 12 November 2007)
   Google Scholar
• Ward E., Van As‐Brooks C. Head and Neck Cancer: Treatment, Rehabilitation and Outcomes. Plural, San Diego, CA 2007
   Google Scholar
• World Health Organisation (WHO). International Classification of Functioning, Disability and Health. WHO, Geneva 2001
   Google Scholar
• Witte T., Kuzel A. Elderly deaf patients' heath care experiences. Journal of the American Board of Family Practice 2000; 13((1))17–22
   Google Scholar
• Wojnicki‐Johansson G. Communication between nurse and patient during ventilator treatment: patient reports and RN evaluations. Intensive and Critical Care Nursing 2001; 17: 29–39
   Google Scholar
• Worrall L., Rose T., Howe T., McKenna K., Hickson L. Developing an evidence‐base for accessibility for people with aphasia. Aphasiology 2007; 21((1))124–136
   Web of Science ®Google Scholar
• Ylvisaker M., Feeney T., Urbanczyk B. Developing a positive communication culture for rehabilitation: communication training for staff and family members. Staff Development and Clinical Intervention in Brain Injury Rehabilitation, C Durgin. Aspen, Gaithersburg, MD 1993a; 57–85
   Google Scholar
• Ylvisaker M., Feeney T., Urbanczyk B. A social–environmental approach to communication and behaviour after traumatic brain injury. Seminars in Speech and Language 1993b; 14((1))74–86
   Google Scholar
• Augmentative Communication in the Medical Setting, K Yorkston. Communication Skill Builders, Tucson, AZ 1992
   Google Scholar