End-of-life care for gay, lesbian, bisexual and transgender people

References

• Almack , K. , Seymour , J. and Bellamy , G. 2010 . Exploring the impact of sexual orientation on experiences and concerns about end of life care and on bereavement for lesbian, gay and bisexual older people . Sociology , 44 : 908 – 24 .
   Google Scholar
• Auger , J.A. 2003 . Passing through: The end-of-life decisions of lesbians and gay men , Halifax, Nova Scotia : Fernwood .
   Google Scholar
• Blevins , D. and Werth , J.L.J. 2006 . “ End-of-life issues for LGBT older adults ” . In Lesbian, gay, bisexual and transgender aging: Research and clinical perspectives , Edited by: Kimmel , D. , Rose , T. and Steven , D. 206 – 26 . New York : Columbia University Press .
   Google Scholar
• Bloomer , M. , Tan , H. and Lee , S. 2010 . End-of-life care: The importance of advance care planning . Australian Family Physician , 39 : 734 – 7 .
   PubMed Web of Science ®Google Scholar
• British Medical Association. 2009. End-of-life decisions: Views of the British Medical Association. British Medical Association. http://www.bma.org.uk/images/endlifedecisionsaug2009_tcm41-190116.pdf
   Google Scholar
• Cartwright, C.M. 2004. Factors impacting on the quality of life of terminally ill older people in the community. Unpublished PhD thesis, University of Queensland
   Google Scholar
• Cartwright , C.M. 2011 . Planning for the end of life for people with dementia: A report for Alzheimer's Australia, part 1 , Lismore, NSW : Southern Cross University .
   Google Scholar
• Cartwright , C. , Montgomery , J. , Rhee , J. and Zwar , N. 2009 . NSW medical practitioners' knowledge of and attitudes to advance care planning , Report to NSW Health Lismore, NSW : Southern Cross University .
   Google Scholar
• Cartwright , C.M. and Parker , M.H. 2004 . Advance care planning and end-of-life decision making . Australian Family Physician , 33 : 815 – 9 .
   PubMedGoogle Scholar
• Cartwright , C.M. , Robinson , G.W. , Steinberg , M.A. , Williams , G.M. , Najman , J.M. and Tyler , W.B. 1998 . End-of-life decision-making: Perspectives of Northern Territory doctors, nurses and community members , Darwin, NT : The University of Queensland and Northern Territory University .
   Google Scholar
• Cartwright , C.M. , Williams , G.M. , Parker , M.H. and Steinberg , M.A. 2006 . Medical decisions at the end of life: Attitudes and practises of Australian medical practitioners , Report to the National Health and Medical Research Council Brisbane : The University of Queensland .
   Google Scholar
• Cochran , S.D. , Mays , V.M. , Bowen , D. , Gage , S. , Bybee , D. , Roberts , S.J. , Goldstein , R.S. , Robinson , A. , Rankow , E.J. and White , J. 2001 . Cancer-related risk indicators and preventive screening behaviours among lesbians and bisexual women . American Journal of Public Health , 91 : 591 – 7 .
   PubMed Web of Science ®Google Scholar
• Detering , K.M. , Hancock , A.D. , Reade , M.C. and Sylvester , W. 2010 . The impact of advance care planning on end of life care in elderly patients: Randomised controlled trial . British Medical Journal , doi: 10.1136/bmj.c134
   Google Scholar
• Doka , K. 1989 . Disenfranchised grief: Recognising hidden sorrow , Lexington, MA : Lexington Books .
   Google Scholar
• Ezzy , D. 2002 . Qualitative analysis: Practice and innovation , Sydney : Allen and Unwin .
   Google Scholar
• Fagerlin , A. and Schneider , C.E. 2004 . Enough: The failure of the living will . Hastings Centre Report , 34 : 30 – 42 .
   PubMed Web of Science ®Google Scholar
• Fried , T.R. , Bullock , K. , Iannone , L. and O'Leary , J.R. 2009 . Understanding advance care planning as a process of health behavior change . Journal of the American Geriatrics Society , 57 : 1547 – 55 .
   PubMed Web of Science ®Google Scholar
• Gillick , M.R. 2004 . Advance care planning . New England Journal of Medicine , 350 : 7 – 8 .
   PubMed Web of Science ®Google Scholar
• Grbich , C. 2007 . Qualitative data analysis: An introduction , London : Sage .
   Google Scholar
• Harrison , J. 2006 . Coming out ready or not! Gay, lesbian, bisexual, transgender and intersex ageing and aged care in Australia: Reflections, contemporary developments and the road ahead . Gay and Lesbian Issues and Psychology Review , 2 : 44 – 53 .
   Google Scholar
• Hash , K. 2006 . Caregiving and post-caregiving experiences of midlife and older gay men and lesbians . Journal of Gerontological Social Work , 47 : 121 – 38 .
   PubMedGoogle Scholar
• Hash , K.M. and Netting , F.E. 2007 . Long-term planning and decision making among midlife and older gay men and lesbians . Journal of Social Work in End-of-Life and Palliative Care , 3 : 59 – 77 .
   PubMedGoogle Scholar
• Heaphy , B. 2007 . Sexualities, gender and ageing: Resources and social change . Current Sociology , 55 : 193 – 210 .
   Web of Science ®Google Scholar
• Heffner , J.E. 2011 . Advance care planning in chronic obstructive pulmonary disease: Barriers and opportunities . Current Opion in Pulmonary Medicine , 17 : 103 – 9 .
   PubMed Web of Science ®Google Scholar
• Holt , M. 2011 . Gay men and ambivalence about ‘gay community’: From gay community attachment to personal communities . Culture, Health and Sexuality , 13 : 857 – 71 .
   PubMed Web of Science ®Google Scholar
• Hughes , M. 2007 . Older lesbians and gays accessing health and aged care services . Australian Social Work , 60 : 197 – 209 .
   Google Scholar
• Hughes , M. 2009 . Lesbian and gay people's concerns about ageing and accessing services . Australian Social Work , 62 : 186 – 201 .
   Web of Science ®Google Scholar
• Hughes , M. 2010 . Expectations of later life support among lesbian and gay Queenslanders . Australasian Journal on Ageing , 29 : 161 – 6 .
   PubMed Web of Science ®Google Scholar
• Hunter and New England Area Health Service v A [2009] NSWSC 761; NSW Supreme Court
   Google Scholar
• Lannutti , P.J. 2011 . Security, recognition, and misgivings: Exploring older same-sex couples' experience of legally recognized same-sex marriage . Journal of Social and Personal Relationships , 28 : 64 – 82 .
   Web of Science ®Google Scholar
• Owen , G. and Catalan , J. 2012 . ‘We never expected this to happen’: Narratives of ageing with HIV among gay men living in London, UK . Culture, Health and Sexuality , 14 : 59 – 72 .
   PubMed Web of Science ®Google Scholar
• Schickendanz , A.D. , Schillinger , D. , Landefeld , C.S. , Knight , S.J. , Williams , B.A. and Sudore , R.L. 2009 . A clinical framework for improving the advance care planning process: Start with patients' self-identified barriers . Journal of the American Geriatrics Society , 57 : 31 – 9 .
   Web of Science ®Google Scholar
• Seale , C.F. 2004 . “ Demographic change and the experience of dying ” . In Death, dying and bereavement , Edited by: Dickinson , D. , Johnson , M. and Katz , J.S. 35 – 43 . London : Sage .
   Google Scholar
• Seymour , J. , Almack , K. and Kennedy , S. 2010 . Implementing advance care planning: A qualitative study of community nurses' views and experiences . BMC Palliative Care , 9 : 1 – 9 .
   Google Scholar
• Shippy , R.A. , Cantor , M.H. and Brennan , M. 2004 . Social networks of aging gay men . Journal of Men's Studies , 13 : 107 – 20 .
   Google Scholar
• Smolinski , K.M. and Colón , Y. 2006 . Silent voices and invisible walls: Exploring end of life care with lesbians and gay men . Journal of Psychosocial Oncology , 24 : 51 – 64 .
   PubMed Web of Science ®Google Scholar
• Stein , G.L. and Bonuck , K.A. 2001 . Attitudes on end-of-life care and advance care planning in the lesbian and gay community . Journal of Palliative Medicine , 4 : 173 – 90 .
   PubMedGoogle Scholar
• Steinberg , M.A. , Najman , J.M. , Cartwright , C.M. , MacDonald , S.M. and Williams , G.M. 1997 . End-of-life decision-making: Community and medical practitioners' perspectives . Medical Journal of Australia , 166 : 131 – 4 .
   PubMed Web of Science ®Google Scholar
• Stewart , F. , Goddard , C. , Schiff , R. and Hall , S. 2011 . Advanced care planning in care homes for older people: A qualitative study of the views of care staff and families . Age and Ageing , 40 : 330 – 5 .
   Web of Science ®Google Scholar
• Williams , M.E. and Freeman , P.A. 2007 . Transgender health: Implications for aging and caregiving . Journal of Gay and Lesbian Social Services , 18 : 93 – 108 .
   Google Scholar