Regulating, fostering and preserving: the production of sexual normates through cognitive ableism and cognitive othering

References

• Alagiakrishnan, K., D. Lim, A. Brahim, A. Wong, A. Wood, A. Senthilselvan, W. Chimich, and L. Kagan. 2005. “Sexually Inappropriate Behaviour in Demented Elderly People.” Postgraduate Medical Journal 81 (957): 463–466.
   PubMed Web of Science ®Google Scholar
• Alzheimer Society of Ontario. 2014. Shifting Focus: A Guide to Understanding Dementia Behaviour. Toronto: Alzheimer Knowledge Exchange, and Behavioral Supports Ontario. http://www.alzheimer.ca/sites/default/files/files/on/shifting-focus/shifting_focus_full_guide.pdf
   Google Scholar
• Archibald, C. 1998. “Sexuality, Dementia and Residential Care: Managers Report and Response.” Health & Social Care in the Community 6 (2): 95–101.
   PubMed Web of Science ®Google Scholar
• Balogh, R., K. Bretherton, S. Whibley, T. Berney, S. Graham, P. Richold, C. Worsley, and H. Firth. 2001. “Sexual Abuse in Children and Adolescents with Intellectual Disability.” Journal of Intellectual Disability Research : JIDR 45 (Pt 3): 120–194.
   Google Scholar
• Bauer, M., L. McAuliffe, R. Nay, and C. Chenco. 2013. “Sexuality in Older Adults: Effect of an Education Intervention on Attitudes and Beliefs of Residential Aged Care Staff.” Educational Gerontology 39 (2): 82–91.
   Web of Science ®Google Scholar
• Benbow, S., and D. Beeston. 2012. “Sexuality, aging, and dementia.” International Psychogeriatrics 24 (7): 1026–1033.
   PubMed Web of Science ®Google Scholar
• Bertilsdotter Rosqvist, H. 2014. “Becoming an ‘Autistic Couple’: Narratives of Sexuality and Couplehood within the Swedish Autistic Self-Advocacy Movement.” Sexuality and Disability 32 (3): 351–363.
   Web of Science ®Google Scholar
• Bertilsdotter Rosqvist, H., and V. Lövgren. 2013. “Doing Adulthood through Parenthood: Notions of Parenthood among People with Learning Disabilities and Autism.” Alter 7 (1): 56–68.
   Google Scholar
• Black, B., S. Muralee, and R. R. Tampi. 2005. “Inappropriate Sexual Behaviors in Dementia.” Journal of Geriatric Psychiatry and Neurology 18 (3): 155–162.
   PubMed Web of Science ®Google Scholar
• Borawska-Charko, M., P. Rohleder, and W. M. L. Finlay. 2017. “The Sexual Health Knowledge of People with Intellectual Disabilities: A Review.” Sexuality Research and Social Policy 14 (4): 393–409.
   Web of Science ®Google Scholar
• Cambridge, P. 1998. “Challenges for Safer Sex Education and HIV Prevention in Services for People with Intellectual Disabilities in Britain.” Health Promotion International 13 (1): 67–74.
   Web of Science ®Google Scholar
• Carlson, L. 2001. “Cognitive Ableism and Disability Studies: Feminist Reflections on the History of Mental Retardation.” Hypatia 16 (4): 124–146.
   Google Scholar
• Carlson, L. 2003. “Rethinking Normalcy.” In: Science and Other Cultures, edited by R. Figueroa and S. Harding, 154–171. New York: Routledge.
   Google Scholar
• Carlson, L., and E. F. Kittay. 2009. “Introduction: Rethinking Philosophical Presumptions in Light of Cognitive Disability.” Metaphilosophy 40 (3–4): 307–330.
   Web of Science ®Google Scholar
• Caruso, S.M., R.B. Bruce, D. Hopkins, M. Lauer, S. Russell, E. Meranto, and K. Stisser. 1997. “The Development of a Regional Association to Address the Sexuality Needs of Individuals with Disabilities.” Sexuality and Disability 15 (4): 285–291.
   Web of Science ®Google Scholar
• Davies, H. D., L. A. Newkirk, C.B. Pitts, C. A. Coughlin, S. B. Sridhar, L. M. Zeiss, and A. M. Zeiss. 2010. “The Impact of Dementia and Mild Memory Impairment (MMI) on Intimacy and Sexuality in Spousal Relationships.” International Psychogeriatrics 22 (4): 618–628.
   PubMed Web of Science ®Google Scholar
• Davies, H. D., A. M. Zeiss, E. A. Shea, and J.R. Tinklenberg. 1998. “Sexuality and Intimacy in Alzheimer’s Patients and Their Partners.” Sexuality and Disability 16 (3): 193–203.
   Web of Science ®Google Scholar
• DTSC (Dementia Study Training Centres). 2014. Sexualities and Dementia: Education Resource for Health Professionals. Queensland. https://dta.com.au/resources/sexualities-and-dementia-education-resource/
   Google Scholar
• Eloniemi-Sulkava, U., I. L. Notkola, K. Hämäläinen, T. Rahkonen, P. Viramo, M. Hentinen, S. L. Kivelä, and R. Sulkava. 2002. “Spouse Caregivers’ Perceptions of Influence of Dementia on Marriage.” International Psychogeriatrics 14 (1): 47–58.
   PubMed Web of Science ®Google Scholar
• Frankowski, A. C., and L. J. Clark. 2009. “Sexuality and Intimacy in Assisted Living: Residents' Perspectives and Experiences.” Sexuality Research & Social Policy 6 (4): 25–37.
   PubMed Web of Science ®Google Scholar
• Galea, J., J. Butler, T. Iacono, and D. Leighton. 2004. “The Assessment of Sexual Knowledge in People with Intellectual Disability.” Journal of Intellectual & Developmental Disability 29 (4): 350–365.
   Web of Science ®Google Scholar
• Galvin, R. 2006. “A Genealogy of the Disabled Identity in Relation to Work and Sexuality.” Disability & Society 21 (5): 499–512.
   Web of Science ®Google Scholar
• Garland Thomson, R. 1997. Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature. New York: Columbia University Press.
   Google Scholar
• Gill, M. 2010. “Rethinking Sexual Abuse, Questions of Consent, and Intellectual Disability.” Sexuality Research and Social Policy 7 (3): 201–213.
   Web of Science ®Google Scholar
• Grigorovich, A., and P. Kontos. 2018. “Advancing an Ethic of Embodied Relational Sexuality to Guide Decision-Making in Dementia Care.” The Gerontologist 58 (2): 219–225.
   PubMed Web of Science ®Google Scholar
• Haight, S. L., an, and d D. D. Fachting. 1986. “Materials for Teaching Sexuality, Love and Maturity to High School Students with Learning Disabilities.” Journal of Learning Disabilities 19 (6): 344–350.
   PubMed Web of Science ®Google Scholar
• Harris, P. B. 2009. “Intimacy, Sexuality, and Early‐Stage Dementia: The Changing Marital Relationship.” Alzheimer’s Care Today 10 (2): 63–77.
   Google Scholar
• Hayes, J., C. Boylstein, and M.K. Zimmerman. 2009. “Living and Loving with Dementia: Negotiating Spousal and Caregiver Identity through Narrative.” Journal of Aging Studies 23 (1): 48–59.
   Web of Science ®Google Scholar
• Herskovits, E. 1995. “Struggling over Subjectivity: Debates about the "self" and Alzheimer's disease.” Medical Anthropology Quarterly 9 (2): 146–164.
   PubMed Web of Science ®Google Scholar
• Isler, A., D. Beytut, F. Tas, and Z. Conk. 2009. “A Study on Sexuality with the Parents of Adolescents with Intellectual Disability.” Sexuality and Disability 27 (4): 229–237.
   Web of Science ®Google Scholar
• Kafer, A. 2013. Feminist, Queer, Crip. Bloomington: Indiana University Press.
   Google Scholar
• Kontos, P., A. Grigorovich, A. P. Kontos, and K. L. Miller. 2016. “Citizenship, Human Rights, and Dementia: Towards a New Embodied Relational Ethic of Sexuality.” Dementia 15 (3): 315–329.
   PubMedGoogle Scholar
• Krekula, C., A. L. Närvänen, and E. Näsman. 2005. “Ålder i Intersektionell Analys.” Kvinnovetenskaplig Tidskrift 26 (2–3): 81–94.
   Google Scholar
• Kulick, D., and J. Rydström. 2015. Loneliness and Its Opposite: Sex, Disability, and the Ethics of Engagement. Durham, NC: Duke University Press.
   Google Scholar
• Kuppuswamy, M., H. Davies, A. Spira, A. Zeiss, and J. Tinklenberg. 2007. “Sexuality and Intimacy between Individuals with Alzheimer's Disease and Their Partners.” Clinical Gerontologist 30 (3): 75–81.
   Google Scholar
• Lindsay, J. R. 2010. “The Need for More Specific Legislation in Sexual Consent Capacity Assessments for Nursing Home Residents.” The Journal of Legal Medicine 31 (3): 303–323.
   PubMed Web of Science ®Google Scholar
• Löfgren-Mårtenson, L. 2008. “Love in Cyberspace: Swedish Young People with Intellectual Disabilities and the Internet1.” Scandinavian Journal of Disability Research 10 (2): 125–138. doi:https://doi.org/10.1080/15017410701758005
   Google Scholar
• Mahieu, L., K. Van Elssen, and C. Gastmans. 2011. “Nurses' Perceptions of Sexuality in Institutionalized Elderly: A Literature Review.” International Journal of Nursing Studies 48 (9): 1140–1154.
   PubMed Web of Science ®Google Scholar
• Marshall, B. L. 2012. “Medicalization and the Refashioning of Age-Related Limits on Sexuality.” Journal of Sex Research 49 (4): 337–343.
   PubMed Web of Science ®Google Scholar
• McRuer, R. 2006. Crip Theory: Cultural Signs of Queerness and Disability. New York: New York University Press.
   Google Scholar
• Miles, S. H., and K. Parker. 1999. “Sexuality in the Nursing Home: Iatrogenic Loneliness.” Generations 23: 36–43.
   Web of Science ®Google Scholar
• Murphy, N. A., and E. R. Elias. 2006. “Sexuality of Children and Adolescents with Developmental Disabilities.” Pediatrics 118 (1): 398–403.
   PubMed Web of Science ®Google Scholar
• Nelson, N. 2006. “Caregiving and the Sexual Relationship in Dementia.” In Supporting the Caregiver in Dementia: A Guide for Health Care Professionals, edited by S. M. LoboPrabhu, V. Molinari, and J. W. Lomax, 117–131. Baltimore, MD: Johns Hopkins University Press.
   Google Scholar
• O’Dell, L., C. Brownlow, and H. Bertilsdotter Rosqvist. 2018. Different Childhoods: Non/Normative Development and Transgressive Trajectories. Abingdon: Routledge.
   Google Scholar
• Perry, B. L., and E. R. Wright. 2006. “The Sexual Partnerships of People with Serious Mental Illness.” Journal of Sex Research 43 (2): 174–181.
   PubMed Web of Science ®Google Scholar
• Rembis, M.A. 2010. “Beyond the Binary: Rethinking the Social Model of Disabled Sexuality.” Sexuality and Disability 28 (1): 51–60.
   Web of Science ®Google Scholar
• Sandberg, L. J. 2018. “Dementia and the Gender Trouble?: Theorising Dementia, Gendered Subjectivity and Embodiment.” Journal of Aging Studies 45: 25–31.
   PubMed Web of Science ®Google Scholar
• Sanders, S., and J. Osterhaus. 2013. “Birth of a Stranger: Intimacy, Sexuality and Dementia.” In Living, Loving, and Loss: The Interplay of Intimacy, Sexuality, and Grief, edited by B. DeFord and R. Gilbert, 121–149. Amityville, NY: Baywood Publishing Company.
   Google Scholar
• Sarikaya, S., and B. Sarikaya. 2018. “Aripiprazole for the Treatment of Inappropriate Sexual Behavior: Case Report of an Alzheimer's Disease Patient Known as Heterosexual with Recently Shifted Sexual Orientation to Same Gender.” Journal of Alzheimer's Disease Reports 2 (1): 117–121.
   PubMedGoogle Scholar
• Shakespeare, T., H. Zeilig, and P. Mittler. 2019. “Rights in Mind: Thinking Differently about Dementia and Disability.” Dementia 18 (3): 1075–1088.
   PubMedGoogle Scholar
• Shildrick, M. 2009. Dangerous Discourses of Disability, Subjectivity and Sexuality. Basingstoke: Palgrave Macmillan.
   Google Scholar
• Simonelli, C., F. Tripodi, R. Rossi, A. Fabrizi, D. Lembo, V. Cosmi, and L. Pierleoni. 2008. “The Influence of Caregiver Burden on Sexual Intimacy and Marital Satisfaction in Couples with an Alzheimer Spouse.” International Journal of Clinical Practice 62 (1): 47–52.
   PubMed Web of Science ®Google Scholar
• Swango-Wilson, A. 2008. “Caregiver Perceptions and Implications for Sex Education for Individuals with Intellectual and Developmental Disabilities.” Sexuality and Disability 26 (3): 167–174.
   Web of Science ®Google Scholar
• Swango-Wilson, A. 2010. “Systems Theory and the Development of Sexual Identity for Individuals with Intellectual/Developmental Disability.” Sexuality and Disability 28 (3): 157–164.
   Web of Science ®Google Scholar
• Tucker, I. 2010. “Management of Inappropriate Sexual Behaviors in Dementia: A Literature Review.” International Psychogeriatrics 22 (5): 683–692.
   PubMed Web of Science ®Google Scholar
• Ward, R., and E. Price. 2016. “Reconceptualising Dementia: Towards a Politics of Senility.” In Lesbian, Gay, Bisexual and Trans* Individuals Living with Dementia: Concepts, Practice and Rights, edited by S. Westwood and E. Price, 65–78. Abingdon: Routledge.
   Google Scholar
• Ward, R., A. A. Vass, N. Aggarwal, C. Garfield, and B. Cybyk. 2005. “A Kiss is Still a Kiss?’ The Construction of Sexuality in Dementia Care.” Dementia 4 (1): 49–72.
   Google Scholar
• Wilkins, J. M. 2015. “More than Capacity: Alternatives for Sexual Decision Making for Individuals with Dementia.” The Gerontologist 55 (5): 716–723.
   PubMed Web of Science ®Google Scholar
• Wilson, N. J., Parmenter, T. R. Stancliffe, R. J., and R. P. Shuttleworth. 2011. “Conditionally Sexual: Men and Teenage Boys with Moderate to Profound Intellectual Disability.” Sexuality and Disability 29 (3): 275–289.
   Web of Science ®Google Scholar
• Withers, P., I. Ensum, D. Howarth, P. Krall, D. Thomas, D. Weekes, C. Winter, A. Mulholland, T. Dindjer, and J. Hall. 2001. “A Psychoeducational Group for Men with Intellectual Disabilities Who Have Sex with Men.” Journal of Applied Research in Intellectual Disabilities 14 (4): 327–339.
   Web of Science ®Google Scholar
• Wright, L. K. 1998. “Affection and Sexuality in the Presence of Alzheimer's Disease: A Longitudinal Study.” Sexuality and Disability 16 (3): 167–179.
   Web of Science ®Google Scholar