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Culture, Health & Sexuality
An International Journal for Research, Intervention and Care
Volume 23, 2021 - Issue 4: Intersex: Cultural and social perspectives
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‘That decision really was mine…’. Insider perspectives on health care controversies about intersex/diverse sex development

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Pages 472-483 | Received 15 Aug 2020, Accepted 16 Feb 2021, Published online: 23 Mar 2021

References

  • Amnesty International. 2017. First, Do No Harm – Ensuring the Rights of Children with Variations of Sex Characteristics in Denmark and Germany. London: Amnesty International.
  • Creighton, S. M., L. Michala, I. Mushtaq, and M. Yaron. 2014. “Childhood Surgery for Ambiguous Genitalia: Glimpses of Practice Changes or More of the Same?” Psychology & Sexuality 5 (1): 34–43. doi:10.1080/19419899.2013.831214
  • Danon, L. M., and A. Krämer. 2017. “Between Concealing and Revealing Intersexed Bodies: Parental Strategies.” Qualitative Health Research 27 (10): 1562–1574. doi:10.1177/1049732317697100
  • Danon, L. M., and K. Schweizer. 2020. “Psychosocial Approaches and Discursive Gaps in Intersex Healthcare: Findings from an Israeli–German Action Research Study.” Culture, Health & Sexuality. Advance Online Publication. doi:10.1080/13691058.2020.1810779
  • Davis, G., J. M. Dewey, and E. L. Murphy. 2016. “Giving Sex: Deconstructing Intersex and Trans Medicalization Practices.” Gender & Society 30 (3): 490–514. doi:10.1177/0891243215602102
  • Döhnert, U., L. Wünsch, and O. Hiort. 2017. “Gonadectomy in Complete Androgen Insensitivity Syndrome: Why and When?” Sexual Development 11 (4): 171–174. doi:10.1159/000478082
  • Earp, B. D., and R. Steinfeld. 2018. “Genital Autonomy and Sexual Well-being.” Current Sexual Health Reports 10 (1): 7–17. doi:10.1007/s11930-018-0141-x
  • Helfferich, C. 2009. Die Qualität qualitativer Daten. Manual für die Durchführung qualitativer Interviews. 3rd revised ed. Wiesbaden: VS Verlag für Sozialwissenschaften.
  • Hughes, I. A., C. Houk, S. F. Ahmed, P. A. Lee, and Lawson Wilkins Pediatric Endocrine Society/European Society for Paediatric Endocrinology Consensus Group. 2006. “Consensus Statement on Management of Intersex Disorders.” Journal of Pediatric Urology 2 (3): 148–162. doi:10.1016/j.jpurol.2006.03.004
  • Krege, S., F. Eckoldt, A. Richter-Unruh, B. Köhler, I. Leuschner, H.-J. Mentzel, A. Moss, et al. 2019. “Variations of Sex Development: The First German Interdisciplinary Consensus Paper.” Journal of Pediatric Urology 15 (2): 114–123. doi:10.1016/j.jpurol.2018.10.008
  • Kvale, S. 1996. InterViews. An Introduction to Qualitative Research Interviewing. Thousand Oaks, CA: SAGE.
  • Lampalzer, U., P. Briken, and K. Schweizer. 2020. “Dealing with Uncertainty and Lack of Knowledge in Diverse Sex Development: Controversies on Early Surgery and Questions of Consent.” Sexual Medicine 8 (3): 472–489. doi:10.1016/j.esxm.2020.03.002
  • Liao, L. M., and M. E. Boyle. 2004. “Surgical Feminizing: The Right Approach?” Psychologist 17 (8): 459–462.
  • Liao, L. M., and K. Roen. 2014. “Intersex/DSD Post-Chicago: New Developments and Challenges for Psychologists.” Psychology & Sexuality 5 (1): 1–4. doi:10.1080/19419899.2013.831210
  • Lundberg, T. 2017. “Knowing Bodies: Making Sense of Intersex/DSD a Decade Post-Consensus.” Diss., Oslo: University of Oslo, Faculty of Social Sciences.
  • Mårtenson, E. K., and A. M. Fägerskiöld. 2008. “A Review of Children’s Decision-Making Competence in Health Care.” Journal of Clinical Nursing 17 (23): 3131–3141. doi:10.1111/j.1365-2702.2006.01920.x
  • Mayring, P. 2010. Qualitative Inhaltsanalyse. Grundlagen und Techniken. 11th updated and revised ed. Weinheim: Beltz.
  • Michala, L., L. M. Liao, D. Wood, G. S. Conwa, and S. M. Creighton. 2014. “Practice Changes in Childhood Surgery for Ambiguous Genitalia?” Journal of Pediatric Urology 10 (5): 934–939. doi:10.1016/j.jpurol.2014.01.030
  • Myers, A., and B. D. Earp. 2020. “What Is the Best Age to Circumcise? A Medical and Ethical Analysis.” Bioethics 34 (7): 645–663. doi:10.1111/bioe.12714
  • Nordenström, A., and U. Thyen. 2014. “Improving the Communication of Healthcare Professionals with Affected Children and Adolescents.” Endocrine Development 27: 113–127. doi:10.1159/000363636
  • Pleskacova, J., R. Hersmus, J. W. Oosterhuis, B. A. Setyawati, S. M. Faradz, M. Cools, K. P. Wolffenbuttel, J. Lebl, S. L. Drop, and L. H. Looijenga. 2010. “Tumor Risk in Disorders of Sex Development.” Sexual Development 4 (4-5): 259–269. doi:10.1159/000314536
  • Rink, R. C., M. C. Adams, and R. Misseri. 2005. “A New Classification for Genital Ambiguity and Urogenital Sinus Anomalies.” BJU International 95 (4): 638–642. doi:10.1111/j.1464-410X.2005.05354.x
  • Roen, K. 2019. “Intersex or Diverse Sex Development: Critical Review of Psychosocial Health Care Research and Indications for Practice.” Journal of Sex Research 56 (4-5): 511–528. doi:10.1080/00224499.2019.1578331
  • Rolston, A. M., M. Gardner, K. van Leeuwen, L. Mohnach, C. Keegan, E. Délot, E. Vilain, D. E. Sandberg, and members of the DSD-TRN Advocacy Advisory Network and Accord Alliance. 2017. “Disorders of Sex Development (DSD): Clinical Service Delivery in the United States.” American Journal of Medical Genetics. Part C, Seminars in Medical Genetics 175 (2): 268–278. doi:10.1002/ajmg.c.31558
  • Schabram, G. 2017. “Kein Geschlecht bin ich ja nun auch nicht.” Sichtweisen intergeschlechtlicher Menschen und ihrer Eltern zur Neuregelung des Geschlechtseintrags. Berlin: Deutsches Institut für Menschenrechte.
  • Schweizer, K., F. Brunner, C. Handford, B. Gedrose, and H. Richter-Appelt. 2017. “Coping with Diverse Sex Development: Treatment Experiences and Psychosocial Support during Childhood and Adolescence and Adult Well-Being.” Journal of Pediatric Psychology 42 (5): 504–519. doi:10.1093/jpepsy/jsw058
  • Schweizer, K., and H. Richter-Appelt. 2012. “Behandlungspraxis gestern und heute. Vom »optimalen Geschlecht« zur individuellen Indikation.” In Intersexualität kontrovers. Grundlagen, Erfahrungen, Positionen, edited by K. Schweizer and H. Richter-Appelt, 99–118. Gießen: Psychosozial.
  • The Brussels Collaboration on Bodily Integrity. 2019. “Medically Unnecessary Genital Cutting and the Rights of the Child: Moving toward Consensus.” American Journal of Bioethics 19 (10): 17–28. doi:10.1080/15265161.2019.1643945

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