ETHICAL IMPLICATIONS OF LIFESTYLE MONITORING DATA IN AGEING RESEARCH

References

• Agich , G. J. 2003 . Dependence and Autonomy in Old Age: An Ethical Framework for Long-term Care , Cambridge : Cambridge University Press .
   Google Scholar
• Amaral, T., Hine, N., Arnott, J.L., Curry, R. & Barlow, J. (2005) ‘Integrating the single assessment process into a lifestyle-monitoring system’, in Proceedings of the 3rd International Conference on Smart Homes and Telematics (ICOST 2005), Sherbrooke, Quebec, Canada, 4–6 July 2005, IOS Press, Amsterdam, pp. 42–49.
   Google Scholar
• Bowes , A. M. and McColgan , G. 2003 . Evaluation of Home Comforts Smart Home Technologies Initiative: Final Report to South Ayrshire Council , Stirling : Department of Applied Social Science, University of Stirling .
   Google Scholar
• Bowes , A. M. and McColgan , G. 2006 . Smart Technology and Community Care for Older People: Innovation in West Lothian, Scotland , Edinburgh : Age Concern Scotland .
   Google Scholar
• Brownsell , S. and Bradley , D. 2003 . “ New generations of telecare equipment ” . In Assistive Technology and Telecare: Forging Solutions for Independent Living , Edited by: Brownsell , S. and Bradley , D. 39 – 49 . Bristol : Policy Press .
   Google Scholar
• Brownsell, S. & Hawley, M. S. (2005) ‘Memorandum by Dr S Brownsell and Professor M. S. Hawley’, Written Evidence to the House of Lords Select Committee on Science and Technology, in House of Lords Select Committee on Science and Technology First Report. Ageing: Scientific Aspects (Session 2005–06) Volume II (House of Lords Paper No. 20-II), [Online] Available at: http://www.publications.parliament.uk/pa/ld200506/ldselect/ldsctech/20/20we01.htm (6 January 2010).
   Google Scholar
• Brownsell , S. , Blackburn , S. and Hawley , M. S. 2008 . An evaluation of second and third generation telecare services in older people's housing . Journal of Telemedicine and Telecare , 14 ( 1 ) : 8 – 12 .
   PubMed Web of Science ®Google Scholar
• Calnan , M. , Badcott , D. and Woolhead , G. 2006 . Dignity under threat? A study of the experiences of older people in the United Kingdom . International Journal of Health Services , 36 ( 2 ) : 355 – 375 .
   PubMed Web of Science ®Google Scholar
• Council of Europe (2003) ‘Convention for the Protection of Human Rights and Fundamental Freedoms, as amended by Protocol No. 11’, Registry of the European Court of Human Rights, September.
   Google Scholar
• Doughty , K. , Cameron , K. and Garner , P. 1996 . Three generations of telecare for the elderly . Journal of Telemedicine and Telecare , 2 ( 2 ) : 71 – 80 .
   PubMedGoogle Scholar
• Gilloran , A. J. , McGlew , T. , McKee , K. , Robertson , A. and Wight , D. 1993 . Measuring the quality of care in psychogeriatric wards . Journal of Advanced Nursing , 18 ( 2 ) : 269 – 275 .
   PubMed Web of Science ®Google Scholar
• Hanson , J. , Osipovič , D. , Hine , N. , Amaral , T. , Curry , R. and Barlow , J. 2007a . Lifestyle monitoring as a predictive tool in telecare . Journal of Telemedicine and Telecare , 13 ( suppl. 1 ) : 26 – 28 .
   PubMed Web of Science ®Google Scholar
• Hanson , J. , Percival , J. , Aldred , H. , Brownsell , S. and Hawley , M. 2007b . Attitudes to telecare among older people, professional care workers and informal carers: a preventative strategy or crisis management? . Universal Access in the Information Society , 6 ( 2 ) : 193 – 205 .
   Google Scholar
• Hensel , B. K. , Demiris , G. and Courtney , K. L. 2006 . Defining obtrusiveness in home telehealth technologies: a conceptual framework . Journal of the American Medical Informatics Association , 13 ( 4 ) : 428 – 431 .
   PubMed Web of Science ®Google Scholar
• Innes , A. 2002 . The social and political context of formal dementia care provision . Ageing and Society , 22 ( 4 ) : 483 – 499 .
   Web of Science ®Google Scholar
• Jones, K. (2004) ‘Enabling technologies for people with dementia. Report of the Assessment Study in England’, ENABLE Project Deliverable 4.1.1, [Online] Available at: http://www.enableproject.org/ (5 January 2010).
   Google Scholar
• Kenner , A. M. 2008 . Securing the elderly body: dementia, surveillance and the politics of ageing in place . Surveillance and Society , 5 ( 3 ) : 252 – 269 .
   Google Scholar
• Lawrence , R. J. 1987 . Housing, Dwellings, and Homes: Design Theory, Research and Practice , Chichester : Wiley .
   Google Scholar
• Lyon , D. 2001 . Surveillance Society: Monitoring Everyday Life , Buckingham and Philadelphia : Open University Press .
   Google Scholar
• Magnusson, L. & Hanson, E. J. (2003) ‘Ethical issues arising from a research, technology and development project to support frail older people and their family carers at home’, Health and Social Care in the Community, vol. 11, no. 5, pp. 431–439.
   Google Scholar
• Mahoney , D. F. , Purtilo , R. B. , Webbe , F. M. , Alwan , M. , Bharucha , A. J. , Adlam , T. D. , Jimison , H. B. , Turner , B. and Becker , S. A. 2007 . In-home monitoring of persons with dementia: ethical guidelines for technology research and development . Alzheimer's and Dementia , 3 ( 3 ) : 217 – 226 .
   PubMed Web of Science ®Google Scholar
• Mahoney , D. M. F. , Mutschler , P. H. , Tarlow , B. and Liss , E. 2008 . Real world implementation lessons and outcomes from the Worker Interactive Networking (WIN) project: workplace-based online caregiver support and remote monitoring of elders at home . Telemedicine and eHealth , 14 ( 3 ) : 224 – 234 .
   PubMed Web of Science ®Google Scholar
• Marx , G. T. 1998 . Ethics for the new surveillance . The Information Society , 14 : 171 – 185 .
   Web of Science ®Google Scholar
• Marziali , E. , Dergal Serafini , J. M. and McCleary , L. 2005 . A systematic review of practice standards and research ethics in technology-based home health care intervention programmes for older adults . Journal of Aging and Health , 17 ( 6 ) : 679 – 696 .
   PubMed Web of Science ®Google Scholar
• Munro , M. and Madigan , R. 1993 . Privacy in the private sphere . Housing Studies , 8 ( 1 ) : 29 – 45 .
   Google Scholar
• Percival, J. & Hanson, J. (2006) ‘Big brother or brave new world? Telecare and its implications for older people's independence and social inclusion’, Critical Social Policy, vol. 26, no. 4, pp. 888–909.
   Google Scholar
• Perry , J. , Bayer , S. and Holm , S. 2009 . Assistive technology, telecare and people with intellectual disabilities: ethical considerations . Journal of Medical Ethics , 35 ( 2 ) : 81 – 86 .
   PubMed Web of Science ®Google Scholar
• Pols , J. and Moser , I. 2009 . Cold technologies versus warm care? On affective and social relations with and through care technologies . ALTER, European Journal of Disability Research , 3 ( 2 ) : 159 – 178 .
   Google Scholar
• Rowan, J. & Mynatt, E. (2005) ‘Digital family portrait field trial: support for aging in place’, paper presented at CH1 2005, Portland, Oregon, 2–5 April.
   Google Scholar
• Sixsmith , A. , Hine , N. , Neild , I. , Brown , S. and Garner , P. 2007 . Monitoring the well-being of older people . Topics in Geriatric Rehabilitation , 23 ( 1 ) : 9 – 23 .
   Web of Science ®Google Scholar
• Splaine Wiggins , M. 2008 . The partnership care delivery model: an examination of the core concept and the need for a new model of care . Journal of Nursing Management , 16 ( 5 ) : 629 – 638 .
   PubMed Web of Science ®Google Scholar
• Stacey , M. 1988 . The Sociology of Health and Ageing. A Textbook , London : Unwin Hyman .
   Google Scholar
• Tadd , W. and Bayer , A. 2006 . Dignity in health and social care for older Europeans: implications of a European project . Aging Health , 2 ( 5 ) : 771 – 779 .
   Google Scholar
• Twigg , J. 1999 . The spatial ordering of care: public and private in bathing support at home . Sociology of Health and Illness , 21 ( 4 ) : 381 – 400 .
   Web of Science ®Google Scholar
• van Wynsberghe , A. and Gastmans , C. 2009 . Telepsychiatry and the meaning of in-person contact: a preliminary ethical appraisal . Medicine Health Care and Philosophy , 12 ( 4 ) : 469 – 476 .
   PubMed Web of Science ®Google Scholar
• Woolhead , G. , Calnan , M. , Dieppe , P. and Tadd , W. 2004 . Dignity in older age: what do older people in the United Kingdom think? . Age and Ageing , 33 ( 2 ) : 165 – 170 .
   PubMed Web of Science ®Google Scholar
• Yeandle , S. 2009 . Telecare: A Crucial Opportunity to Help Save Our Health and Social Care System , London : Bow Group .
   Google Scholar