Charities’ use of Twitter: exploring social support for women living with and beyond breast cancer

References

• Aaronson, N., Mattioli, V., Minton, O., Weis, J., Johansen, C., Dalton, S., … Van de Poll-Franse, L. V. (2014). Beyond treatment – Psychosocial and behavioural issues in cancer survivorship research and practice. European Journal of Cancer Supplements, 12(1), 54–64. doi: 10.1016/j.ejcsup.2014.03.005
   Google Scholar
• All Party Parliamentary Group report on Global Health. (2015). The UK’s contribution to health globally: Benefitting the country and the world. Retrieved from http://www.appg-globalhealth.org.uk/
   Google Scholar
• Anderson, S., & Clarke, V. (2017). Disgust, shame and the psychosocial impact of skin picking: Evidence from an online support forum. Journal of Health Psychology. doi: 10.1177/1359105317700254
   Google Scholar
• Armstong, C. L., & Gao, F. (2010). Now tweet this: How news organisations use Twitter. Electronic News, 4(4), 218–235.
   Google Scholar
• Artwick, C. G. (2014). News sourcing and gender on Twitter. Journalism, 15(8), 1111–1127. doi: 10.1177/1464884913505030
   Web of Science ®Google Scholar
• Atkins, L. (2015). Half the battle: Social support among women with cancer. Qualitative Inquiry. doi: 10.1177/1077800415574911
   Web of Science ®Google Scholar
• Attai, D., Cowher, M., Al-Hamadani, M., Schoger, J., Staley, A., & Landercasper, J. (2015). Twitter social Media is an effective tool for breast cancer patient education and support: Patient-reported outcomes by survey. Journal of Medical Internet Research, 17(7), e188. doi: 10.2196/jmir.4721
   PubMed Web of Science ®Google Scholar
• Bloom, J., Stewart, S., Johnston, M., Banks, P., & Fobair, P. (2001). Sources of support and the physical and mental well-being of young women with breast cancer. Social Science & Medicine, 53(11), 1513–1524. doi: 10.1016/s0277-9536(00)00440-8
   PubMed Web of Science ®Google Scholar
• Boinon, D., Sultan, S., Charles, C., Stulz, A., Guillemeau, C., Delaloge, S., & Dauchy, S. (2014). Changes in psychological adjustment over the course of treatment for breast cancer: The predictive role of social sharing and social support. Psycho-Oncology, 23(3), 291–298. doi: 10.1002/pon.3420
   PubMed Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. doi: 10.1191/1478088706qp063oa
   Google Scholar
• Breast Cancer Care. (2016). Battling, brave or victim: why the language of cancer matters. Retrieved from https://www.breastcancercare.org.uk/information-support/vita-magazine/battling-brave-or-victim-why-language-cancer-matters
   Google Scholar
• British Psychological Society. (2009). Code of ethics and conduct: Guidance published by the ethics committee of the British psychological society. Leicester: Author.
   Google Scholar
• British Psychological Society. (2013). Ethics Guidelines for Internet-mediated Research. INF206/1.2013. Leicester: Author. Retrieved from: www.bps.org.uk/publications/policy-andguidelines/research-guidelines-policydocuments/research-guidelines-poli
   Google Scholar
• Burg, M., Adorno, G., Lopez, E., Loerzel, V., Stein, K., Wallace, C., & Sharma, D. (2015). Current unmet needs of cancer survivors: Analysis of open-ended responses to the American cancer society study of cancer survivors II. Cancer, 121(4), 623–630. doi: 10.1002/cncr.28951
   PubMed Web of Science ®Google Scholar
• Burke, M., & Kraut, R. (2016). The relationship between facebook use and well-being depends on communication type and tie strength. Journal of Computer-Mediated Communication, 21(4), 265–281. doi: 10.1111/jcc4.12162
   Web of Science ®Google Scholar
• Cancer Research UK. (2015). Cancer Taskforce. Retrieved from http://www.cancerresearchuk.org/about-us/cancer-taskforce
   Google Scholar
• Chae, B. (2015). Insights from hashtag #supplychain and twitter analytics: Considering twitter and twitter data for supply chain practice and research. International Journal Of Production Economics, 165, 247–259. doi: 10.1016/j.ijpe.2014.12.037
   Web of Science ®Google Scholar
• Chen, A. (2014). What’s in a virtual hug? A transdisciplinary review of methods in online health discussion forum research. Library & Information Science Research, 36(2), 120–130. doi: 10.1016/j.lisr.2013.10.007
   Web of Science ®Google Scholar
• Cheng, K., Wong, W., & Koh, C. (2015). Unmet needs mediate the relationship between symptoms and quality of life in breast cancer survivors. Supportive Care Cancer, 24(5), 2025–2033. doi: 10.1007/s00520-015-2994-0
   PubMed Web of Science ®Google Scholar
• Chou, A., Stewart, S., Wild, R., & Bloom, J. (2010). Social support and survival in young women with breast carcinoma. Psycho-Oncology, 21(2), 125–133. doi: 10.1002/pon.1863
   PubMed Web of Science ®Google Scholar
• Chretien, K., Azar, J., & Kind, T. (2011). Physicians on Twitter. JAMA, 305(6), 566. doi: 10.1001/jama.2011.68
   PubMed Web of Science ®Google Scholar
• deBronkart, D. (2015). From patient centred to people powered: Autonomy on the rise. BMJ, 350(feb10 14), h148–h148. doi: 10.1136/bmj.h148
   PubMedGoogle Scholar
• Drageset, S., Lindstrøm, T., Giske, T., & Underlid, K. (2012). The support I need. Cancer Nursing, 35(6), E39–E47. doi: 10.1097/ncc.0b013e31823634aa
   PubMed Web of Science ®Google Scholar
• Drageset, S., Lindstrøm, T., Giske, T., & Underlid, K. (2015). Women’s experiences of social support during the first year following primary breast cancer surgery. Scandinavian Journal of Caring Sciences, 30(2), 340–348. doi: 10.1111/scs.12250
   PubMed Web of Science ®Google Scholar
• Elo, S., & Kyngäs, H. (2008). The qualitative content analysis process. Journal of Advanced Nursing, 62(1), 107–115. doi: 10.1111/j.1365-2648.2007.04569.x
   PubMed Web of Science ®Google Scholar
• Falagas, M., Zarkadoulia, E., Ioannidou, E., Peppas, G., Christodoulou, C., & Rafailidis, P. (2007). The effect of psychosocial factors on breast cancer outcome: A systematic review. Breast Cancer Research, 9(4), doi: 10.1186/bcr1744
   PubMed Web of Science ®Google Scholar
• Fiszer, C., Dolbeault, S., Sultan, S., & Brédart, A. (2014). Prevalence, intensity, and predictors of the supportive care needs of women diagnosed with breast cancer: A systematic review. Psycho-oncology,, 23, 361–374.
   PubMed Web of Science ®Google Scholar
• Foley, N., O’Mahony, M., Lehane, E., Cil, T., & Corrigan, M. (2015). A qualitative content analysis of breast cancer narratives hosted through the medium of social media. British Journal Of Medicine And Medical Research, 6(5), 474–483. doi: 10.9734/bjmmr/2015/15309
   Google Scholar
• Fong, A., Scarapicchia, T., McDonough, M., Wrosch, C., & Sabiston, C. (2016). Changes in social support predict emotional well-being in breast cancer survivors. Psycho-Oncology, n/a-n/a. doi: 10.1002/pon.4064
   Web of Science ®Google Scholar
• Foster, C., & Fenlon, D. (2011). Recovery and self-management support following primary cancer treatment. British Journal of Cancer, 105, S21–S28. doi: 10.1038/bjc.2011.419
   PubMed Web of Science ®Google Scholar
• Foster, C., Wright, D., Hill, H., Hopkinson, J., & Roffe, L. (2009). Psychosocial implications of living 5 years or more following a cancer diagnosis: A systematic review of the research evidence. European Journal of Cancer Care, 18(3), 223–247. doi: 10.1111/j.1365-2354.2008.01001.x
   PubMed Web of Science ®Google Scholar
• Fussell Sisco, H., & McCorkindale, T. (2013). Communicating “pink”: an analysis of the communication strategies, transparency, and credibility of breast cancer social media sites. International Journal Of Nonprofit And Voluntary Sector Marketing, 18(4), 287–301. doi: 10.1002/nvsm.1474
   Google Scholar
• Garrison, K. (2007). The personal is rhetorical: War, protest, and peace in breast cancer narratives. Disability Studies Quarterly, 27(4), doi: 10.18061/dsq.v27i4.52
   Google Scholar
• Goldsmith, D. J., & Albrecht, T. L. (2011). Social support, social networks and health: A guiding framework. In T. L. Thompson, R. Parrott, & J. F. Nussbaum (Eds.), The Routledge handbook of health communications (2nd ed., pp. 335–348). New York: Routledge.
   Google Scholar
• Greenburg, J., & MacAulay, M. (2009). NPO 2.0? Exploring the web presence of environmental nonprofit organizations in Canada. Global Media Journal – Canadian Edition, 2(1), 63–88. Retrieved from http://www.gmj.uottawa.ca/0901/v2i1_greenberg%20and%20macaulay.pdf
   Google Scholar
• Harrison, J., Young, J., Price, M., Butow, P., & Solomon, M. (2009). What are the unmet supportive care needs of people with cancer? A systematic review. Supportive Care In Cancer, 17(8), 1117–1128. doi: 10.1007/s00520-009-0615-5
   PubMed Web of Science ®Google Scholar
• Helgeson, V. (1993). Two important distinctions in social support: Kind of support and perceived versus Received. Journal of Applied Social Pyschology, 23(10), 825–845. doi: 10.1111/j.1559-1816.1993.tb01008.x
   Web of Science ®Google Scholar
• Himelboim, I., & Han, J. (2013). Cancer talk on twitter: Community structure and information sources in breast and prostate cancer social networks. Journal of Health Communication, 19(2), 210–225. doi: 10.1080/10810730.2013.811321
   PubMed Web of Science ®Google Scholar
• House of Lords, Select Committee on Charities Report of Session 2016-17. (2017). Stronger charities for a stronger society (pp. 73-78). London: The Authority of the House of Lords.
   Google Scholar
• Hughes, A., & Palen, L. (2009). Twitter adoption and use in mass convergence and emergency events. International Journal of Emergency Management, 6(3/4), 248. doi: 10.1504/ijem.2009.031564
   Google Scholar
• Hunt, D., Koteyko, N., & Gunter, B. (2015). UK policy on social networking sites and online health: From informed patient to informed consumer? Digital Health, 1(0), doi: 10.1177/2055207615592513
   PubMedGoogle Scholar
• Jamieson-Powell, S., Linehan, C., Daley, L., Garbutt, A., & Lawson, S. (2015). “I can’t get no sleep”; discussing #insomnia on Twitter. In Conference on human factors in computing systems. Austin: ACM. doi: 10.1145/2207676.2208612
   Google Scholar
• Kroenke, C., Kubzansky, L., Schernhammer, E., Holmes, M., & Kawachi, I. (2006). Social networks, social support, and survival after breast cancer diagnosis. Journal Of Clinical Oncology, 24(7), 1105–1111. doi: 10.1200/jco.2005.04.2846
   PubMed Web of Science ®Google Scholar
• Lin, X., Zhang, D., & Li, Y. (2016). Delineating the dimensions of social support on social networking sites and their effects: A comparative model. Computers in Human Behavior, 58, 421 –430. doi: 10.1016/j.chb.2016.01.017
   Web of Science ®Google Scholar
• Livingston, G. (2009). High-dollar non-profit donors would embrace social media. Journal Of New Communications Research, 4(1), 87–94.
   Google Scholar
• Loader, B., & Mercea, D. (2012). Networked democracy? Information, Communication & Society, 14(6), 757–769. doi: 10.1080/1369118X.2011.592648
   Google Scholar
• Lovejoy, K., Waters, R., & Saxton, G. (2012). Engaging stakeholders through Twitter: How non-profit organizations are getting more out of 140 characters or less. Public Relations Review, 38(2), 313–318. doi: 10.1016/j.pubrev.2012.01.005
   Web of Science ®Google Scholar
• Luke, D. A., Caburnay, C. A., & Cohen, E. L. (2011). How much is enough? New recommendations for using constructed week sampling in newspaper content analysis of health stories. Communication Methods and Measures, 5(1), 76–91. doi: 10.1080/19312458.2010.547823
   Google Scholar
• Lyles, C., López, A., Pasick, R., & Sarkar, U. (2012). “5 mins of uncomfyness is better than dealing with cancer 4 a lifetime”: An exploratory qualitative analysis of cervical and breast cancer screening dialogue on Twitter. Journal of Cancer Education, 28(1), 127–133. doi: 10.1007/s13187-012-0432-2
   Web of Science ®Google Scholar
• Macmillan Cancer Support. (2015). General Election 2015 ‒ Campaigns ‒ Macmillan.org.uk. Retrieved from http://www.macmillan.org.uk/GetInvolved/Campaigns/GeneralElection2015/GeneralElection2015.aspx
   Google Scholar
• Maddams, J. B. D., Gavin, A., Steward, J., Elliott, J., Utley, M., & Møller, H. (2009). Cancer prevalence in the United Kingdom: Estimates for 2008. British Journal of Cancer, 101, 541–547.
   PubMed Web of Science ®Google Scholar
• Maddams, J., Utley, M., & Møller, H. (2012). Projections of cancer prevalence in the United Kingdom, 2010–2040. British Journal of Cancer, 107, 1195–1202.
   PubMed Web of Science ®Google Scholar
• Maher, E. J., & Fenlon, D. (2010). The psychosocial issues of survivorship in breast cancer. Advanced Breast Cancer, 7(2), 17–22.
   Google Scholar
• Maher, J., & McConnell, H. (2011). New pathways of care for cancer survivors: Adding the numbers. British Journal of Cancer, 105, S5–S10. doi: 10.1038/bjc.2011.417
   PubMed Web of Science ®Google Scholar
• McCorkle, R., Ercolano, E., Lazenby, M., Schulman-Green, D., Schilling, L., Lorig, K., & Wagner, E. (2011). Self-management: Enabling and empowering patients living with cancer as a chronic illness. CA: A Cancer Journal For Clinicians, 61(1), 50–62. doi: 10.3322/caac.20093
   PubMed Web of Science ®Google Scholar
• Merolli, M., Gray, K., & Martin-Sanchez, F. (2013). Health outcomes and related effects of using social media in chronic disease management: A literature review and analysis of affordances. Journal of Biomedical Informatics, 46(6), 957–969. doi: 10.1016/j.jbi.2013.04.010
   PubMed Web of Science ®Google Scholar
• Morozov, E. (2009). The brave new world of slacktivism. Foreign Policy. Retrieved from http://foreignpolicy.com/2009/05/19/the-brave-new-world-of-slacktivism/
   Google Scholar
• Papacharissi, Z. (2010). A private sphere. Cambridge, UK: Polity.
   Google Scholar
• Park, B., & Hwang, S. (2012). Unmet needs of breast cancer patients relative to survival duration. Yonsei Medical Journal, 53(1), 118. doi: 10.3349/ymj.2012.53.1.118
   PubMed Web of Science ®Google Scholar
• Phethean, C., Tiropanis, T., & Harris, L. (2015a). Engaging with charities on social media: Comparing interaction on Facebook and Twitter. INSCI 2015, LNCS 9089, pp. 15–29. doi: 10.1007/978-3-319-18609-2_2
   Google Scholar
• Phethean, C., Tiropanis, T., & Harris, L. (2015b, June 28–July 1). Assessing the value of social media for organisations: The case for charitable use. ACM WebSci’15, Oxford. doi: 10.1145/2786451.2786457
   Google Scholar
• Phua, J., Jin, S., & Kim, J. (2017). Uses and gratifications of social networking sites for bridging and bonding social capital: A comparison of Facebook, Twitter, Instagram, and Snapchat. Computers In Human Behavior, 72, 115–122. doi: 10.1016/j.chb.2017.02.041
   Web of Science ®Google Scholar
• Rains, S., Peterson, E., & Wright, K. (2015). Communicating social support in computer-mediated contexts: A meta-analytic review of content analyses examining support messages shared online among individuals coping with illness. Communication Monographs, 82(4), 403–430. doi: 10.1080/03637751.2015.1019530
   Web of Science ®Google Scholar
• Ream, E., Blows, E., Scanlon, K., & Richardson, A. (2009). An investigation of the quality of breast cancer information provided on the internet by voluntary organisations in Great Britain. Patient Education And Counseling, 76(1), 10–15. doi: 10.1016/j.pec.2008.11.019
   PubMed Web of Science ®Google Scholar
• Rui, J., Chen, Y., & Damiano, A. (2013). Health organizations providing and seeking social support: A twitter-based content analysis. Cyberpsychology, Behavior, And Social Networking, 16(9), 669–673. doi: 10.1089/cyber.2012.0350
   PubMed Web of Science ®Google Scholar
• Saxton, G., & Wang, L. (2013). The social network effect: The determinants of giving through social media. Nonprofit and Voluntary Sector Quarterly, 43(5), 850–868. doi: 10.1177/0899764013485159
   Web of Science ®Google Scholar
• Scanlon, K. (2013). Oral and symposium abstracts of the IPOS 15th World Congress: The role of Facebook and Twitter in signposting people affected by breast cancer to relevant information and support services: A case study of Breast Cancer Care UK. Psycho-Oncology, 22(Suppl. 3), 1–123. doi: 10.1111/j.1099-1611.2013.3393
   Google Scholar
• Semino, E., Demjen, Z., Demmen, J., Koller, V., Payne, S., Hardie, A., & Rayson, P. (2015). The online use of violence and journey metaphors by patients with cancer, as compared with health professionals: A mixed methods study. BMJ Supportive & Palliative Care. doi: 10.1136/bmjspcare-2014-000785
   PubMed Web of Science ®Google Scholar
• Smitko, K. (2012). Donor engagement through Twitter. Public Relations Review, 38(4), 633–635. doi: 10.1016/j.pubrev.2012.05.012
   Web of Science ®Google Scholar
• Sugawara, Y., Narimatsu, H., Hozawa, A., Shao, L., Otani, K., & Fukao, A. (2012). Cancer patients on Twitter: A novel patient community on social media. BMC Research Notes, 5(1), 699. doi: 10.1186/1756-0500-5-699
   PubMedGoogle Scholar
• Sulik, G. (2011). ‘Our diagnoses, our selves’: The rise of the technoscientific illness identity. Sociology Compass, 5(6), 463–477. doi: 10.1111/j.1751-9020.2011.00374.x
   Google Scholar
• Suwankhong, D., & Liamputtong, P. (2015). Social support and women living With breast cancer in the south of Thailand. Journal of Nursing Scholarship, 48(1), 39–47. doi: 10.1111/jnu.12179
   PubMed Web of Science ®Google Scholar
• Thackeray, R., Burton, S., Giraud-Carrier, C., Rollins, S., & Draper, C. (2013). Using Twitter for breast cancer prevention: An analysis of breast cancer awareness month. BMC Cancer, 13(1), 508. doi: 10.1186/1471-2407-13-508
   PubMed Web of Science ®Google Scholar
• Thoits, P. (2011). Mechanisms linking social ties and support to physical and mental health. Journal Of Health And Social Behavior, 52(2), 145–161. doi: 10.1177/0022146510395592
   PubMed Web of Science ®Google Scholar
• Tsuya, A., Sugawara, Y., Tanaka, A., & Narimatsu, H. (2014). Do cancer patients tweet? Examining the Twitter use of cancer patients in Japan. Journal of Medical Internet Research, 16(5), e137. doi: 10.2196/jmir.3298
   PubMed Web of Science ®Google Scholar
• Twitter. (2016). Privacy Policy. Retrieved from https://twitter.com/privacy
   Google Scholar
• Vaismoradi, M., Tururen, H., & Bondas, T. (2013). Content analysis and thematic analysis: Implications for conducting a qualitative descriptive study. Nursing & Health Sciences, 15(3), 398–405. doi: 10.1111/nhs.12048
   PubMed Web of Science ®Google Scholar
• Waters, R., & Jamal, J. (2011). Tweet, tweet, tweet: A content analysis of nonprofit organizations’ Twitter updates. Public Relations Review, 37(3), 321–324. doi: 10.1016/j.pubrev.2011.03.002
   Web of Science ®Google Scholar
• Wright, K., Sparks, L., & O’Hair, H. (2013). Health communication in the 21st century (2nd ed.). Malden, MA: Wiley-Blackwell.
   Google Scholar
• Zimmer, M., & Proferes, N. (2014). A topology of Twitter research: Disciplines, methods, and ethics. Aslib Journal Of Information Management, 66(3), 250–261. doi: 10.1108/ajim-09-2013-0083
   Web of Science ®Google Scholar