2,179
Views
3
CrossRef citations to date
0
Altmetric
Articles

Three caregiver profiles: who are they, what do they do, and who are their co-carers?

Tre omsorgsprofiler: Vilka är dom, vad gör dom, och finns det fler omsorgsgivare i deras nätverk?

& ORCID Icon

References

  • AARP. (2020). Caregiving in the United States.
  • Antonucci, T. C., Jackson, J. S., & Biggs, S. (2007). Intergenerational relations: Theory, research, and policy. Journal of Social Issues, 63(4), 679–693. https://doi.org/10.1111/j.1540-4560.2007.00530.x
  • Barbosa, A., Figueiredo, D., Sousa, L., & Demain, S. (2011). Coping with the caregiving role: Differences between primary and secondary caregivers of dependent elderly people. Aging & Mental Health, 15(4), 490–499. https://doi.org/10.1080/13607863.2010.543660
  • Bengtson, V., Lowenstein, A., Putney, N. M., & Gans, D. (2017). Global aging and challenges to families. In V. Bengtson & A. Lowenstein (Eds.), Global aging and its challenge to families. Routledge. 1–26.
  • Bildtgård, T., & Öberg, P. (2017). Intimacy and ageing: New relationships in later life. Policy Press.
  • Brimblecombe, N., Fernandez, J.-L., Knapp, M., Rehill, A., & Wittenberg, R. (2018). Review of the international evidence on support for unpaid carers. Journal of Long-Term Care, 25–40. https://doi.org/10.31389/jltc.3
  • Camacho Ballesta, J. A., & Minguela Recover, M. A. (2017). Mixed care for elderly people in Spain and France: A comparative analysis. Revista de Cercetare si Interventie Sociala, 57, 89–103. http://www.rcis.ro/images/documente/rcis57_06.pdf
  • Chan, C., Barnard, A., & Ng, Y. (2020). ‘Who are our support networks?’ A qualitative study of informal support for carers. Journal of Social Service Research, 47(2), 1–11. https://doi.org/10.1080/01488376.2020.1757012
  • Cheng, S.-T., Lam, L. C., Kwok, T., Ng, N. S., & Fung, A. W. (2013). The social networks of Hong Kong Chinese family caregivers of Alzheimer’s disease: Correlates with positive gains and burden. The Gerontologist, 53(6), 998–1008. https://doi.org/10.1093/geront/gns195
  • Clark, H., Dyer, S., & Horwood, J. (1998). That bit of help: The high value of low level preventative services for older people. Policy Press.
  • Dam, A. E., Boots, L. M., Van Boxtel, M. P., Verhey, F. R., & De Vugt, M. E. (2018). A mismatch between supply and demand of social support in dementia care: A qualitative study on the perspectives of spousal caregivers and their social network members. International Psychogeriatrics, 30(6), 881–892. https://doi.org/10.1017/S1041610217000898
  • Deindl, C., & Brandt, M. (2017). Support networks of childless older people: Informal and formal support in Europe. Ageing and Society, 37(8), 1543. https://doi.org/10.1017/S0144686X16000416
  • Department of Social Services. (2016). Delivering an integrated carer support service. A draft model for the delivery of carer support services. Australian Government.
  • Di Torella, E. C., & Masselot, A. (2020). Caring responsibilities in European Law and policy: Who cares? Routledge.
  • Eby, D. W., Molnar, L. J., Kostyniuk, L. P., St. Louis, R. M., & Zanier, N. (2017). Characteristics of informal caregivers who provide transportation assistance to older adults. PloS One, 12(9), e0184085. https://doi.org/10.1371/journal.pone.0184085
  • Gatz, M., Bengtson, V. L., & Blum, M. J. (1990). Caregiving families. Handbook of the Psychology of Aging, 3, 404–426. https://doi.org/10.1016/B978-0-12-101280-9.50030-9
  • Gonçalves-Pereira, M., Zarit, S. H., Cardoso, A. M., Alves da Silva, J., Papoila, A. L., & Mateos, R. (2020). A comparison of primary and secondary caregivers of persons with dementia. Psychology and Aging, 35(1), 20. https://doi.org/10.1037/pag0000380
  • Henriksen, L. S., Koch-Nielsen, I., & Rosdahl, D. (2008). Formal and informal volunteering in a Nordic context: The case of Denmark. Journal of Civil Society, 4(3), 193–209. https://doi.org/10.1080/17448680802559685
  • Herd, P., & Meyer, M. H. (2002). Care work: Invisible civic engagement. Gender & Society, 16(5), 665–688. https://doi.org/10.1177/089124302236991
  • Holbrook A. L., Krosnick, J. A., & Pfent, A. M. (2008). The Causes and Consequences of Response Rates in Surveys by the News Media and Government Contractor Survey Research Firms. In J. Lepkowski,, B. Harris-Kojetin, P. J., Lavrakas, C. Tucker, E. de Leeuw, M. Link, M. Brick, L. Japec & R. Sangster (Eds.), Telephone survey methodology. Wiley.
  • Horowitz, A. (1985). Family caregiving to the frail elderly. Annual Review of Gerontology and Geriatrics, 5(1), 194–246. https://doi.org/10.1891/0198-8794.5.1.194
  • Jegermalm, M., & Jeppsson Grassman, E. (2009). Caregiving and volunteering among older people in Sweden—prevalence and profiles. Journal of Aging & Social Policy, 21(4), 352–373. https://doi.org/10.1080/08959420903167066
  • Jegermalm, M., & Sundström, G. (2015). Stereotypes about caregiving and lessons from the Swedish panorama of care. European Journal of Social Work, 18(2), 185–197. https://doi.org/10.1080/13691457.2014.892476
  • Jegermalm, M., & Sundström, G. (2017). Det svenska omsorgspanoramat: Givarnas perspektiv [The Swedish panorama of care: The caregivers perspective]. Tidsskrift for omsorgsforskning, 1. https://doi.org/10.18261/issn.2387-5984-2017-01-04
  • Jeppsson Grassman, E. (2001). Medmänniska och anhörig. En studie av informella hjälpinsatser. Sköndalinstitutet.
  • Kemp, C. L., Ball, M. M., & Perkins, M. M. (2013). Convoys of care: Theorizing intersections of formal and informal care. Journal of Aging Studies, 27(1), 15–29. https://doi.org/10.1016/j.jaging.2012.10.002
  • Kennedy, C., & Hartig, H. (2019). Response rates in telephone surveys have resumed their decline. Pew Research Center. https://www.pewresearch.org/fact-tank/2019/02/27/response-rates-in-telephone-surveys-have-resumed-their-decline/
  • Lethin, C., Hanson, E., Margioti, E., Chiatti, C., Gagliardi, C., Vaz de Carvalho, C., & Malmgren Fänge, A. (2019). Support needs and expectations of people living with dementia and their informal carers in everyday life: A European study. Social Sciences, 8(7), 203. https://doi.org/10.3390/socsci8070203
  • Marino, V., Badana, A., & Haley, W. (2018). Stress, strain, health, and service use among primary and secondary caregivers. Innovation in Aging, 2(Suppl 1), 295. https://doi.org/10.1093/geroni/igy023.1088
  • McKie, L., Gregory, S., & Bowlby, S. (2002). Shadow times: The temporal and spatial frameworks and experiences of caring and working. Sociology, 36(4), 897–924. https://doi.org/10.1177/003803850203600406
  • National Board of Health and Welfare. (1994). SoS-rapport 1994:22. Familjen som vårdgivare för äldre och handikappade.
  • National Board of Health and Welfare. (2012). Anhöriga som ger omsorg till närstående. Omfattning och konsekvenser.
  • Organisation for Economic Co-operation and Development. (2013). OECD reviews of health care quality: Sweden 2013. https://doi.org/10.1787/9789264204799-en
  • Parker, G., & Lawton, D. (1990). Further analysis of the general household survey data on informal care. Report 1: A typology of caring. University of York, Social Policy Research Unit.
  • Pearlin, L. I., & Aneshensel, C. S. (1994). Caregiving: The unexpected career. Social Justice Research, 7(4), 373–390. https://doi.org/10.1007/BF02334863
  • Phillips, J. (2007). Care. Polity Press.
  • Plöthner, M., Schmidt, K., De Jong, L., Zeidler, J., & Damm, K. (2019). Needs and preferences of informal caregivers regarding outpatient care for the elderly: A systematic literature review. BMC Geriatrics, 19(1), 82. https://doi.org/10.1186/s12877-019-1068-4
  • SCB [Statistiskmyndigheten]. (2020). Antal hushåll och personer efter region, hushållstyp och antal barn. År 2011–2019. https://www.statistikdatabasen.scb.se/pxweb/sv/ssd/START__BE__BE0101__BE0101S/HushallT05/
  • Sivesind, K. H. (2017). The changing roles of for-profit and nonprofit welfare provision in Norway, Sweden, and Denmark. In K. Sivesind & J. Saglie (Eds.) Promoting active citizenship (pp. 33–74). Palgrave Macmillan.
  • Spasova, S. B.-C. (2018). Challenges in long-term care in Europe. A study of national policies. European Commission.
  • Sundström, G. (2019). Mer familj, mer omsorg: Svenska familjeband under senare år–särskilt 1985–2015. Familjen Först.
  • Swedish Research Council (2017). Good Research Principles. Stockholm: Swedish Research Council.
  • Swartz, K., & Collins, L. G. (2019). Caregiver care. American Family Physician, 99(11), 699–706.
  • Szebehely, M. (2005). Anhörigas betalda och obetalda äldreomsorgsinsatser, i Forskarrapporter till Jämställdhetspolitiska utredningen. SOU 2005:66 (pp. 131–203). Fritzes offentliga publikationer.
  • Takter, M. (2020). Anhörigperspektiv-en möjlighet till utveckling? Nationell kartläggning av kommunernas stöd till anhöriga 2019. Nationellt kompetenscentrum anhöriga.
  • Tolkacheva, N., Broese van Groenou, M., & van Tilburg, T. (2010). Sibling influence on care given by children to older parents. Research on Aging, 32(6), 739–759. https://doi.org/10.1177/0164027510383532
  • Torgé, C. J. (2014). Freedom and imperative: Mutual care between older spouses with physical disabilities. Journal of Family Nursing, 20(2), 204–225. https://doi.org/10.1177/1074840714524058
  • Twigg, J., & Atkin, K. (1994). Carers perceived: Policy and practice in informal care. McGraw-Hill Education.
  • Van Houtven, C. H., & Norton, E. C. (2008). Informal care and medicare expenditures: Testing for heterogeneous treatment effects. Journal of Health Economics, 27(1), 134–156. https://doi.org/10.1016/j.jhealeco.2007.03.002
  • von Essen, J., Jegermalm, M., Kassman, A., Svedberg, L., Vamstad, J., & Lundåsen Wallman, S. (2020). Medborgerligt engagemang i Sverige 1992–2019 [Citizen engagement in Sweden 1992–2019]. Regeringskansliet.
  • Wærness, K. (1996). Omsorgsrationalitet. Reflexioner över ett begrepps karriär. In R. Eliasson (Red.), Omsorgens skiftningar. Begreppet, vardagen, politiken, forskningen. Studentlitteratur. 203–220.
  • Walker, E., & Jane Dewar, B. (2001). How do we facilitate carers’ involvement in decision making? Journal of Advanced Nursing, 34(3), 329–337. https://doi.org/10.1046/j.1365-2648.2001.01762.x
  • White, C., Wray, J., & Whitfield, C. (2020). ‘A fifty mile round trip to change a lightbulb’: An exploratory study of carers’ experiences of providing help, care and support to families and friends from a distance. Health & Social Care in the Community, 28(5), 1632–1642. https://doi.org/10.1111/hsc.12988
  • Winqvist, M. (2014). Anhörigkonsulentens arbete och yrkesroll: Resultat från en enkätundersökning. Nationellt kompetenscentrum anhöriga.
  • Wolff, J. L., & Kasper, J. D. (2006). Caregivers of frail elders: Updating a national profile. The Gerontologist, 46(3), 344–356. https://doi.org/10.1093/geront/46.3.344
  • Zarit, S. H., & Heid, A. R. (2015). Assessment and treatment of family caregivers. In P.A. Lichtenberg, B.T. Mast, B.D. Carpenter & J. Loebach Wetherell (Eds.), APA handbook of clinical geropsychology, Vol. 2: Assessment, treatment, and issues of later life (pp. 521–551). American Psychological Association.
  • Zigante, V. (2018). Informal care in Europe. Exploring formalisation, availability and quality. European Commission.