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Original articles

Evidence-based familial risk explanations in cancer genetic counselling

Negotiating and communicating health risk

&
Pages 607-626 | Received 05 Jan 2012, Accepted 04 Jul 2012, Published online: 02 Oct 2012

References

  • Adelsvärd , V. and Sachs , L. 1998 . Risk discourse: recontextualization of numerical values in clinical practice . Text , 18 ( 2 ) : 191 – 210 .
  • Antaki , C. 1994 . Explaining and arguing: the social organisation of accounts , London : Sage .
  • Arribas-Ayllon , M. , Sarangi , S. and Clarke , A. 2008 . Managing self-responsibility through other-oriented blame: family accounts of genetic testing . Social Science & Medicine , 6 : 1521 – 1532 .
  • Atkinson , P. 1995 . Medical talk and medical work: the liturgy of the clinic , Sage : London .
  • Candlin , C. N. and Candlin , S. 2002 . Discourse, expertise and management of risk in healthcare settings . Research on Language and Social Interaction , 35 ( 2 ) : 115 – 137 .
  • Claes , E. 2003 . Communication with close and distant relatives in the context of genetic testing for hereditary breast and ovarian cancer in cancer patients . American Journal of Medical Genetics , 116A : 11 – 19 .
  • Chafe , W. and Nichols , J. 1986 . Evidentially: the linguistic coding of epistemology , Norwood , NJ : Ablex .
  • Craddock Lee , S.J. 2010 . Uncertain futures: Individual risk and social context in decision-making in cancer screening . Health, Risk & Society , 12 ( 2 ) : 101 – 117 .
  • Danzyger , C. 2010 . Comparing family members’ motivations and attitudes towards genetic testing for hereditary breast and ovarian cancer: a qualitative analysis . European Journal of Human Genetics , 18 : 1289 – 1295 .
  • Douglas , M. 1986 . Risk acceptability according to the social sciences , London : Routledge & Keagan Paul .
  • Downie , R. S. and Calman , K. C. 1994 . Healthy respect: ethics in healthcare , Oxford : Oxford University Press .
  • Gaff , C. L. and Bylund , C.L. 2010 . Family communication about genetics: theory and practice , Oxford : Oxford University Press .
  • Forrest , K. 2003 . To tell or not to tell: barriers and facilitators in family communication about genetic risk . Clinical Genetics , 64 : 317 – 326 .
  • Forrest , L.E. 2007 . Communicating genetic information in families – a review of guidelines and position papers . European Journal of Human Genetics , 15 : 612 – 618 .
  • Hacking , I. 1990 . The taming of chance , Cambridge , , UK : Cambridge University Press .
  • Hallowell , N. 1999 . Doing the right thing: genetic risk and responsibility . Sociology of Health and Illness , 21 : 597 – 621 .
  • Hallowell , N. 2003 . Balancing autonomy and responsibility: the ethics of generating and disclosing genetic information . Journal of Medical Ethics , 29 : 74 – 83 .
  • Heyman , B. 2010 . Editorial. Screening for health risks: a social science perspective . Health, Risk & Society , 12 (1) : 1 – 6 .
  • Iredale , R. 2003 . The information and support needs of women at high risk of familial breast and ovarian cancer: how can cancer genetic services give patients what they want? . Familial Cancer , 2 : 119 – 121 .
  • Lehtinen , E. 2007 . Merging doctor and client knowledge: on doctors’ ways of dealing with clients’ potentially discrepant information in genetic counseling . Journal of Pragmatics , 39 ( 2 ) : 389 – 427 .
  • Lehtinen , E. and Kääriäinen , H. 2005 . Doctor's expertise and managing discrepant information from other sources in genetic counseling: a conversation analytic perspective . Journal of Genetic Counseling , 14 ( 6 ) : 435 – 451 .
  • Måseide , P. 2006 . The deep play of medicine: discursive and collaborative processing of evidence in medical problem solving . Communication & Medicine , 3 ( 1 ) : 43 – 54 .
  • McCann , S. 2009 . Family communication, genetic testing and colonoscopy screening in hereditary non-polyposis colon cancer: a qualitative study . Psychooncology , 18 ( 11 ) : 1208 – 1215 .
  • Michie , S. 2003 . Understanding why negative genetic test results sometimes fail to reassure . American Journal of Medical Genetics , 119A ( 3 ) : 340 – 347 .
  • Parsons , E. and Atkinson , P. 1992 . Lay constructions of genetic risk . Sociology of Health & Illness , 14 ( 4 ) : 437 – 455 .
  • Pilnick , A. 2002 . There are no rights and wrongs in these situations: identifying interactional difficulties in genetic counselling . Sociology of Health & Illness , 24 ( 1 ) : 66 – 88 .
  • Roberts , C. and Sarangi , S. 2005 . Theme-oriented discourse analysis of medical encounters . Medical Education , 39 ( 6 ) : 632 – 640 .
  • Sachs , L. 1999 . Knowledge of no return. Getting and giving information about genetic risk . Acta Oncologica , 38 ( 6 ) : 735 – 740 .
  • Sachs , L. , Taube , A. and Tishelman , C. 2001 . Risk in numbers – difficulties in the transformation of genetic knowledge from research to people. The case of hereditary cancer . Acta Oncologica , 40 ( 4 ) : 445 – 453 .
  • Sarangi , S. 1998 . Interprofessional case construction in social work: the evidential status of information and its reportability . Text , 18 ( 2 ) : 241 – 270 .
  • Sarangi , S. 2000 . “ Activity types, discourse types and interactional hybridity: the case of genetic counseling ” . In Discourse and social life , Edited by: Sarangi , S. and Coulthard , M. 1 – 27 . London : Pearson .
  • Sarangi , S. 2001 . Expert and lay formulation of ‘normality’ in genetic counselling . VALS-ASLA (Vereinigung für angewandte Linguistik in der Schweiz) , 74 : 109 – 127 .
  • Sarangi , S. 2002 . The language of likelihood in genetic counselling discourse . Journal of Language and Social Psychology , 21 ( 1 ) : 7 – 31 .
  • Sarangi , S. 2010 . “ Practising discourse analysis in healthcare settings ” . In The SAGE handbook of qualitative methods in health research , Edited by: Bourgeault , I. , DeVries , R. and Dingwall , R. 397 – 416 . London : Sage .
  • Sarangi , S. and Clarke , A. 2002 . Zones of Expertise and the management of uncertainty in genetic risk communication . Research on Language and Social Interaction , 35 ( 2 ) : 139 – 171 .
  • Sarangi , S. and Candlin , C. 2003 . Editorial. Categorization and explanation of risk: a discourse analytical perspective . Health, Risk & Society , 5 ( 2 ) : 115 – 124 .
  • Sarangi , S. 2003 . Relatively speaking: relativisation of genetic risk in counselling for predictive testing . Health, Risk & Society , 5 ( 2 ) : 155 – 170 .
  • Scott , M. B. and Lyman , S. 1968 . Accounts . American Sociological Review , 33 ( 1 ) : 46 – 62 .
  • Sivell , S. 2008 . How risk is perceived, constructed and interpreted by clients in clinical genetics, and effects on decision making: Systematic review . Journal of Genetic Counseling , 17 : 30 – 63 .
  • Toulmin , S. 1958 . The uses of argument , London : Cambridge University Press .
  • Van den Nieuwenhoff , H.W.P. 2007 . Family communication regarding inherited high cholesterol: why and how do patients disclose genetic risk? . Social Science & Medicine , 65 : 1025 – 1037 .
  • Van Zuuren , F.J. , Van Schie , E.C. and Van Baaren , N.K. 1997 . Uncertainty in the information provided during genetic counseling . Patient Education and Counseling , 32 : 129 – 139 .
  • Walter , F. M. 2004 . Lay understanding of familial risk of common chronic diseases: a systematic review and synthesis of qualitative research . Annals of Family Medicine , 2 : 583 – 594 .
  • Wood , F. , Prior , L. and Gray , J. 2003 . Translations of risk: decision making in a cancer genetics service . Health, Risk & Society , 5 ( 2 ) : 185 – 198 .
  • Wolff , G. and Jung , C. 1995 . Nondirectiveness and genetic counseling . Journal of Genetic Counseling , 4 : 3 – 25 .
  • Zayts , O. and Sarangi , S. Modes of explanation in telephone genetic counselling for G6PD deficiency. Health, Risk & Society under review

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