Confronting comorbidity risks within HIV biographies: gay men’s integration of HPV-associated anal cancer risk into their narratives of living with HIV

References

• Adam, B. D., Husbands, W., Murray, J., & Maxwell, J. (2005). Risk construction in the reinfection discourses of HIV-positive men. Health, Risk & Society, 7(1), 63–71.
   Web of Science ®Google Scholar
• Alaszewski, A. (2005). Risk communication: The importance of social context. Health, Risk &Society, 7, 101–105.
   Web of Science ®Google Scholar
• Armstrong, N. (2005). Resistance through risk: Women and cervical cancer screening. Health, Risk & Society, 7(2), 161–176.
   Web of Science ®Google Scholar
• Blackwell, C. W., & Eden, C. (2011). Human papillomavirus and anorectal carcinoma knowledge in men who have sex with men. Journal of the Association of Nurses in AIDS Care, 22(6), 444–453.
   PubMed Web of Science ®Google Scholar
• Burchell, A. N., Ogilvie, G., Grewal, R., Raboud, J., Grennan, T., & Salit, I., for the HPV-SAVE Study Team. (2017, July). HIV-positive men’s knowledge and attitudes regarding HPV, HPV vaccine, and anal cancer screening. Abstract presented at the World STI & HIV Congress, Rio de Janeiro, Brazil.
   Google Scholar
• Bury, M. R. (1982). Chronic illness as biographical disruption. Sociology of Health and Illness, 4(2), 137–169.
   Google Scholar
• Chiao, E. Y., Giordano, T. P., Palefsky, J. M., Tyring, S., & El Serag, H. (2006). Screening HIV-infected individuals for anal cancer precursor lesions: A systematic review. Clinical Infectious Diseases, 43(2), 223–233.
   PubMed Web of Science ®Google Scholar
• Crum-Cianflone, N. F., Hullsiek, K. H., Marconi, V. C., Ganesan, A., Weintrob, A., Barthel, R. V., & Agan, B. K. (2010). Anal cancers among HIV-infected persons: HAART is not slowing rising incidence. AIDS, 24(4), 535–543.
   PubMed Web of Science ®Google Scholar
• D’Souza, G., Cook, R. L., Ostrow, D., Johnson-Hill, L. M., Wiley, D., & Silvestre, T. (2008). Anal cancer screening behaviors and intentions in men who have sex with men. Journal of General Internal Medicine, 23(9), 1452–1457.
   PubMed Web of Science ®Google Scholar
• Darragh, T., Birdsong, G., Luff, R., & Davey, D. (2004). Anal-rectal cytology. In D. Solomon & R. Nayar (Eds.), The Bethesda System for reporting cervical cytology: Definitions, criteria, and explanatory notes (3rd ed., pp. 169–176). New York: Springer-Verlag.
   Google Scholar
• Davis, M. D., Hart, G., Imrie, J., Davidson, O., Williams, I., & Stephenson, J. (2002). HIV is HIV to me: The meanings of treatment, viral load and reinfection for gay men living with HIV. Health, Risk & Society, 4(1), 31–43.
   Web of Science ®Google Scholar
• Ezzy, D. (2000). Illness narratives: Time, hope and HIV. Social Science & Medicine, 50(5), 605–617.
   PubMed Web of Science ®Google Scholar
• Flowers, P. (2001). Gay men and HIV/AIDS risk management. Health, 5, 50–75.
   Web of Science ®Google Scholar
• Frank, A. W. (1997). Illness as moral occasion: Restoring agency to ill people. Health, 1(2), 131–148.
   Google Scholar
• Frank, A. W. (2006). Health stories as connectors and subjectifiers. Health, 10(4), 421–440.
   PubMed Web of Science ®Google Scholar
• Giddens, A. (1990). The consequences of modernity. Cambridge: Polity Press.
   Google Scholar
• Giddens, A. (1991). Modernity and self-identity: Self and society in the late modern age. California: Stanford University Press.
   Google Scholar
• Gilbert, P. A., Brewer, N. T., & Reiter, P. L. (2011). Association of human papillomavirus-related knowledge, attitudes, and beliefs with HIV status: A national study of gay men. Journal of Lower Genital Tract Disease, 15(2), 83–88.
   PubMed Web of Science ®Google Scholar
• Glaser, B. G., & Strauss, A. L. (2012). The discovery of grounded theory: Strategies for qualitative research. New Brunswick: AldineTransaction.
   Google Scholar
• Grace, D., Chown, S., Kwag, M., Steinberg, M., Lim, E., & Gilbert, M. (2015). Becoming ‘undetectable’: Longitudinal narratives of gay men’s sex lives after a recent HIV diagnosis. AIDS Education & Prevention, 27(4), 333–349.
   PubMed Web of Science ®Google Scholar
• Grace, D., Gaspar, M., Paquette, R., Rosenes, R., Burchell, A. N., Grennan, T., & Salit, I. E. (2017, November). HIV-positive gay men’s knowledge and perceptions of human papillomavirus (HPV) and HPV vaccination: A qualitative study. Paper presented at the Gay Men’s Health Summit. Community-Based Research Centre for Gay Men’s Health. Vancouver, British Columbia.
   Google Scholar
• Grace, D., Jollimore, J., MacPherson, P., Strang, M. J., & Tan, D. H. (2018). The pre-exposure prophylaxis-stigma paradox: Learning from Canada’s first wave of PrEP users. AIDS Patient Care and STDs, 32(1), 24–30.
   PubMed Web of Science ®Google Scholar
• Grulich, A. E., Poynten, I. M., Machalek, D. A., Jin, F., Templeton, D. J., & Hillman, R. J. (2012). The epidemiology of anal cancer. Sexual Health, 9(6), 504–508.
   PubMed Web of Science ®Google Scholar
• Heyman, B. (2010). Screening for health risks: A social science perspective. Health, Risk & Society, 12(1), 1–6.
   Web of Science ®Google Scholar
• Holstein, J. A., & Gubrium, J. F. (1995). The active interview. Thousand Oaks: Sage.
   Google Scholar
• Howson, A. (2001). Locating uncertainties in cervical screening. Health, Risk & Society, 3(2), 167–179.
   Web of Science ®Google Scholar
• Joffe, H. (2003). Risk: From perception to social representation. British Journal of Social Psychology, 42(1), 55–73.
   PubMed Web of Science ®Google Scholar
• Jones, R., & Candlin, C. (2003). Constructing risk across timescales and trajectories: Gay men’s stories of sexual encounters. Health, Risk & Society, 5(2), 199–213.
   Web of Science ®Google Scholar
• Kenen, R., Ardern-Jones, A., & Eeles, R. (2003). Living with chronic risk: Healthy women with a family history of breast/ovarian cancer. Health, Risk & Society, 5(3), 315–331.
   Web of Science ®Google Scholar
• Körner, H., Hendry, O., & Kippax, S. (2005). It’s not just condoms: Social contexts of unsafe sex in gay men’s narratives of post-exposure prophylaxis for HIV. Health, Risk & Society, 7(1), 47–62.
   Web of Science ®Google Scholar
• Koskan, A. M., LeBlanc, N., & Rosa-Cunha, I. (2016). Exploring the perceptions of anal cancer screening and behaviors among gay and bisexual men infected with HIV. Cancer Control : Journal of the Moffitt Cancer Center, 23(1), 52–58.
   PubMed Web of Science ®Google Scholar
• Krüsi, A., Mcneil, R., Moore, D., & Small, W. (2017). ‘Because I’ve been extremely careful’: HIV seroconversion, responsibility, citizenship and the neo-liberal drug-using subject. Health, Risk & Society, 19 (1–2),58–73. 19 124-73 doi:10.1080/13698575.2016.1245850
   Google Scholar
• Lee, S. J. (2010). Uncertain futures: Individual risk and social context in decision-making in cancer screening. Health, Risk & Society, 12(2), 101–117.
   PubMed Web of Science ®Google Scholar
• Leontini, R. (2010). Genetic risk and reproductive decisions: Meta and counter narratives. Health, Risk & Society, 12(1), 7–20.
   Web of Science ®Google Scholar
• Lupton, D., McCarthy, S., & Chapman, S. (1995). Panic bodies: Discourses on risk and HIV antibody testing. Sociology of Health and Illness, 17(1), 89–108.
   Web of Science ®Google Scholar
• Machalek, D. A., Poynten, M., Jin, F., Fairley, C. K., Farnsworth, A., Garland, S. M., … Grulich, A. E. (2012). Anal human papillomavirus infection and associated neoplastic lesions in men who have sex with men: A systematic review and meta-analysis. Lancet Oncology, 13(5), 487–500.
   PubMed Web of Science ®Google Scholar
• Mazanderani, F., & Paparini, S. (2015). The stories we tell: Qualitative research interviews, talking technologies and the ‘normalisation’ of life with HIV. Social Science & Medicine, 131, 66–73.
   PubMed Web of Science ®Google Scholar
• Moores, A., Phillips, J. C., O’Byrne, P., & Macpherson, P. (2015). Anal cancer screening knowledge, attitudes, and experiences among men who have sex with men in Ottawa, Ontario. The Canadian Journal of Human Sexuality, 24(3), 228–236.
   Web of Science ®Google Scholar
• Nadarzynski, T., Smith, H., Richardson, D., Jones, C. J., & Llewellyn, C. D. (2014). Human papillomavirus and vaccine-related perceptions among men who have sex with men: A systematic review. Sexually Transmitted Infections, 90(7), 515–523.
   PubMed Web of Science ®Google Scholar
• Nadarzynski, T., Smith, H., Richardson, D., Pollard, A., & Llewellyn, C. (2017). Perceptions of HPV and attitudes towards HPV vaccination amongst men who have sex with men: A qualitative analysis. British Journal of Health Psychology, 22(2), 345–361.
   PubMed Web of Science ®Google Scholar
• Newman, P. A., Roberts, K. J., Masongsong, E., & Wiley, D. J. (2008). Anal cancer screening: Barriers and facilitators among ethnically diverse gay, bisexual, transgender, and other men who have sex with men. Journal of Gay & Lesbian Social Services, 20(4), 328–353.
   PubMedGoogle Scholar
• Owen, G., & Catalan, J. (2012). ‘We never expected this to happen’: Narratives of ageing with HIV among gay men living in London, UK. Culture, Health & Sexuality, 14(1), 59–72.
   PubMed Web of Science ®Google Scholar
• Palefsky, J. M., Holly, E. A., Hogeboom, C. J., Ralston, M. L., Dacosta, M. M., Botts, R., … Darragh, T. M. (1998). Virologic, immunologic, and clinical parameters in the incidence and progression of anal squamous intraepithelial lesions in HIV-positive and HIV-negative homosexual men. Journal of Acquired Immune Deficiency Syndromes and Human Retrovirology, 17(4), 314–319.
   PubMedGoogle Scholar
• Perrett, S. E., & Biley, F. C. (2013). Negotiating uncertainty: The transitional process of adapting to life with HIV. Journal of the Association of Nurses in AIDS Care, 24(3), 207–218.
   PubMed Web of Science ®Google Scholar
• Piketty, C., Selinger-Leneman, H., Bouvier, A., Belot, A., Mary-Krause, M., Duvivier, C., … Grabar, S. (2012). Incidence of HIV-related anal cancer remains increased despite long-term combined antiretroviral treatment: Results from the French Hospital Database on HIV. Journal of Clinical Oncology, 30(35), 4360–4366.
   PubMed Web of Science ®Google Scholar
• Reed, A. C., Reiter, P. L., Smith, J. S., Palefsky, J. M., & Brewer, N. T. (2010). Gay and bisexual men’s willingness to receive anal Papanicolaou testing. American Journal of Public Health, 100(6), 1123–1129.
   PubMed Web of Science ®Google Scholar
• Roark, R. (2011). The need for anal dysplasia screening and treatment programs for HIV-infected men who have sex with men: A review of the literature. Journal of the Association of Nurses in AIDS Care, 22(6), 433–443.
   PubMed Web of Science ®Google Scholar
• Russo, S., Mccaffery, K., Ellard, J., Poynten, M., Prestage, G., Templeton, D. J., & Grulich, A. E. (2017). Experience and psychological impact of anal cancer screening in gay, bisexual and other men who have sex with men: A qualitative study. Psycho-Oncology, 27(1), 125–131.
   PubMed Web of Science ®Google Scholar
• Samji, H., Cescon, A., Hogg, R. S., Modur, S. P., Althoff, K. N., Buchacz, K., … Gange, S. J. (2013). Closing the Gap: Increases in life expectancy among treated HIV-positive individuals in the United States and Canada. PLoS One, 8(12), e81355.
   PubMed Web of Science ®Google Scholar
• Silverberg, M. J., Lau, B., Achenbach, C. J., Jing, Y., Althoff, K. N., & D’Souza, G.; North American AIDS Cohort Collaboration on Research and Design of The International Epidemiologic Databases to Evaluate AIDS. (2015). Cumulative incidence of cancer among persons with HIV in North America: A cohort study. Annals of Internal Medicine, 63(7), 507–518.
   Google Scholar
• Smith, M. (2015). Should HPV vaccination be gender neutral? Canadian Medical Association Journal, 187(11), E337–E338.
   Web of Science ®Google Scholar
• Sools, A. (2012). Narrative health research: Exploring big and small stories as analytical tools. Health, 17(1), 93–110.
   PubMed Web of Science ®Google Scholar
• Trainor, A., & Ezer, H. (2000). Rebuilding life: The experience of living with AIDS after facing imminent death. Qualitative Health Research, 10(5), 646–660.
   PubMed Web of Science ®Google Scholar
• Valderas, J. M., Starfield, B., Sibbald, B., Salisbury, C., & Roland, M. (2009). Defining comorbidity: Implications for understanding health and health services. The Annals of Family Medicine, 7(4), 357–363.
   PubMed Web of Science ®Google Scholar
• Ward, J. K., Crépin, L., Bauquier, C., Vergelys, C., Bocquier, A., Verger, P., & Peretti-Watel, P. (2017). ‘I don’t know if I’m making the right decision’: French mothers and HPV vaccination in a context of controversy. Health, Risk & Society, 19(1), 38–57.
   Web of Science ®Google Scholar
• Williams, S. (2000). Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept. Sociology of Health and Illness, 22(1), 40–67.
   Web of Science ®Google Scholar
• Yang, D. Y., & Bracken, K. (2016). Update on the new 9-valent vaccine for human papillomavirus prevention. Canadian Family Physician, 62(5), 399–402.
   PubMed Web of Science ®Google Scholar
• Zinn, J. O. (2005). The biographical approach: A better way to understand behaviour in health and illness. Health, Risk & Society, 7(1), 1–9.
   Web of Science ®Google Scholar