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Articles

Variations in trust in Dr Google when experiencing potential breast cancer symptoms: exploring motivations to seek health information online

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Pages 325-341 | Received 07 Feb 2018, Accepted 30 Oct 2018, Published online: 27 Nov 2018

References

  • Barbalet, J. (2009). A characterization of trust, and its consequences. Theory and Society, 38(4), 367–382.
  • Cancer Research UK. Cancer Statistics for the UK. Retrieved February 1, 2018 from http://www.cancerresearchuk.org/health-professional/cancer-statistics
  • Case, D. O., Andrews, J. E., Johnson, J. D., & Allard, S. L. (2005). Avoiding versus seeking: The relationship of information seeking to avoidance, blunting, coping, dissonance, and related concepts. Journal of the Medical Library Association, 93, 353–362.
  • Castleton, K., Fong, T., Wang-Gillam, A., Waqar, M. A., Jeffe, D. B., Kehlenbrink, L., … Govindan, R. (2011). A survey of Internet utilization among patients with cancer. Supportive Care in Cancer, 19(8), 1183–1190.
  • Chapple, A., Evans, J., & Ziebland, S. (2012). An alarming prognosis: How people affected by pancreatic cancer use (and avoid) internet information. Policy & Internet, 4(2), 1–20.
  • Choi, W., & Stvilia, B. (2015). Web credibility assessment: Conceptualization, operationalization, variability, and models. Journal of the Association for Information Science and Technology, 66(12), 2399–2414.
  • Chu, T. W. J., Wang, P. M., Shen, C., Viswanath, K., Lam, H. T., & Chan, C. S. S. (2017). How, when and why people seek health information online: qualitative study in Hong Kong. Interactive Journal of Medical Research, 6(2), e24.
  • Cotten, S. R., & Gupta, S. S. (2004). Characteristics of online and offline health information seekers and factors that discriminate between them. Social Science & Medicine, 59(9), 1795–1806.
  • Diviani, N., van Den Putte, B., Giani, S., & van Weert, J. C. M. (2015). Low health literacy and evaluation of online health information: A systematic review of the literature. Journal of Medical Internet Research, 17(5), e112.
  • Diviani, N., van Den Putte, B., Meppelink, C. S., & van Weert, J. C. M. (2016). Exploring the role of health literacy in the evaluation of online health information: Insights from a mixed-methods study. Patient Education and Counseling, 99(6), 1017–1025.
  • Emanuel, A. S., Kiviniemi, M. T., Howell, J. L., Hay, J. L., Waters, E. A., Orom, H., & Shepperd, J. A. (2015). Avoiding cancer risk information. Social Science & Medicine, 147, 113–120.
  • Eysenbach, G., & Köhler, C. (2002). How do consumers search for and appraise health information on the world wide web? Qualitative study using focus groups, usability tests, and in-depth interviews. BMJ, 324(7337), 573–577.
  • Foroughi, F., Lam, A. K., Lim, M. S., Saremi, N., & Ahmadvand, A. (2016). “Googling” for cancer: An infodemiological assessment of online search interests in Australia, Canada, New Zealand, the United Kingdom, and the United States. JMIR Cancer, 2(1), e5.
  • Fox, S., & Duggan, M. (2013). Health online 2013. Washington, DC: Pew Research Center’s Internet & American Life Project.
  • Gage, E. A., & Panagakis, C. (2012). The devil you know: Parents seeking information online for paediatric cancer. Sociology of Health & Illness, 34(3), 444–458.
  • Gaspar, R., Luís, S., Seibt, B., Lima, M. L., Marcu, A., Rutsaert, P., … Barnett, J. (2016). Consumers’ avoidance of information on red meat risks: Information exposure effects on attitudes and perceived knowledge. Journal of Risk Research, 19(4), 533–549.
  • Ha, S., & Lee, Y. J. (2011). Determinants of consumer-driven healthcare: Self-confidence in information search, health literacy, and trust in information sources. International Journal of Pharmaceutical and Healthcare Marketing, 5(1), 8–24.
  • Health & Social Care Information Centre. (2015). Breast screening programme, England: Statistics for 2013-14. London. Retrieved from file://homes.surrey.ac.uk/home/bres-scre-prog-eng-2013-14-rep.pdf
  • Henwood, F., Wyatt, S., Hart, A., & Smith, J. (2003). ‘Ignorance is bliss sometimes’: Constraints on the emergence of the ‘informed patient’ in the changing landscapes of health information. Sociology of Health & Illness, 25(6), 589–607.
  • Hesse, B. W., Nelson, D. E., Kreps, G. L., Croyle, R. T., Arora, N. K., Rimer, B. K., & Viswanath, K. (2005). Trust and sources of health information: The impact of the Internet and its implications for health care providers: Findings from the first health information national trends survey. Archives of Internal Medicine, 165(22), 2618–2624.
  • Joffe, H., & Yardley, L. (2004). Content and thematic analysis. In D. F. Marks & L. Yardley (Eds.), Research methods for clinical and health psychology. (pp. 56–68). London: Sage.
  • Klerings, I., Weinhandl, A. S., & Thaler, K. J. (2015). Information overload in healthcare: Too much of a good thing? Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen, 109(4), 285–290.
  • Kontos, E., Blake, D. K., Chou, S. W.-Y., & Prestin, A. (2014). Predictors of eHealth usage: Insights on the digital divide from the health information national trends survey 2012. Journal of Medical Internet Research, 16(7), e172.
  • Kreps, G. L., & Neuhauser, L. (2010). New directions in eHealth communication: Opportunities and challenges. Patient Education and Counseling, 78(3), 329–336.
  • Lee, C.-J., Ramírez, A. S., Lewis, N., Gray, S. W., & Hornik, R. C. (2012). Looking beyond the internet: Examining socioeconomic inequalities in cancer information seeking among cancer patients. Health Communication, 27(8), 806–817.
  • Lee, K., Hoti, K., Hughes, D. J., & Emmerton, L. (2014). Dr Google and the consumer: A qualitative study exploring the navigational needs and online health information-seeking behaviors of consumers with chronic health conditions. Journal of Medical Internet Research, 16(12), e262.
  • Linsell, L., Forbes, L. J. L., Burgess, C., Kapari, M., Thurnham, A., & Ramirez, A. J. (2010). Validation of a measurement tool to assess awareness of breast cancer. European Journal of Cancer, 46(8), 1374–1381.
  • Luhmann, N. (1990). Familiarity, confidence, trust: Problems and alternatives. In D. Gambetta (Ed.), Trust: Making and breaking cooperative relations (pp. 94–107). Oxford: Blackwell.
  • Lussiez, A. D., Burdick, S., Kodali, S., Rubio, G., Mack, J. A., Lin, J., … Reddy, R. M. (2017). Internet usage trends in thoracic surgery patients and their caregivers. Journal of Cancer Education, 32(1), 91–96.
  • Machackova, H., & Smahel, D. (2018). The perceived importance of credibility cues for the assessment of the trustworthiness of online information by visitors of health-related websites: The role of individual factors. Telematics and Informatics, 35(5), 1534–1541.
  • Macias, W., Lee, M., & Cunningham, N. (2018).Inside the mind of the online health information searcher using think-aloud protocol. Health Communication, 33(12), 1482–1493.
  • Marcu, A., Black, G., Vedsted, P., Lyratzopoulos, G., & Whitaker, K. L. (2017). Educational differences in responses to breast cancer symptoms: A qualitative comparative study. British Journal of Health Psychology, 22(1), 26–41.
  • Mayer, D. K., Terrin, N. C., Kreps, G. L., Menon, U., McCance, K., Parsons, S. K., & Mooney, K. H. (2007). Cancer survivors information seeking behaviors: A comparison of survivors who do and do not seek information about cancer. Patient Education and Counseling, 65(3), 342–350.
  • McCloud, R. F., Okechukwu, C. A., Sorensen, G., & Viswanath, K. (2016). Beyond access: Barriers to internet health information seeking among the urban poor. Journal of the American Medical Informatics Association, 23(6), 1053–1059.
  • McDaid, D., & Park, A. L. (2011). Online health: Untangling the web. London: BUPA.
  • McLeod, J., Yu, I., & Ingledew, P.-A. (2017). Peering into the deep: Characterizing the internet search patterns of patients with gynecologic cancers. Journal of Cancer Education, 32, 85–90.
  • Mendes, Á., Abreu, L., Vilar-Correia, M. R., & Borlido-Santos, J. (2017). “That should be left to doctors, That’s what they are there for!”—exploring the reflexivity and trust of young adults when seeking health information. Health Communication, 32(9), 1076–1081.
  • Metzger, M. J., & Flanagin, A. J. (2015). Psychological approaches to credibility assessment online. In S. S. Sundar (Ed.), The handbook of the psychology of communication technology (pp. 445–466). Chichester: Wiley-Blackwell.
  • Miles, A., Voorwinden, S., Chapman, S., & Wardle, J. (2008). Psychologic predictors of cancer information avoidance among older adults: The role of cancer fear and fatalism. Cancer Epidemiology Biomarkers & Prevention, 17(8), 1872–1879.
  • Möllering, G. (2001). The nature of trust: From Georg Simmel to a theory of expectation, interpretation and suspension. Sociology, 35(2), 403–420.
  • Nelissen, S., Beullens, K., Lemal, M., & Van Den Bulck, J. (2015). Fear of cancer is associated with cancer information seeking, scanning and avoiding: A cross-sectional study among cancer diagnosed and non-diagnosed individuals. Health Information & Libraries Journal, 32(2), 107–119.
  • Nettleton, S., Burrows, R., & O’Malley, L. (2005). The mundane realities of the everyday lay use of the internet for health, and their consequences for media convergence. Sociology of Health & Illness, 27(7), 972–992.
  • Norman, D. C., & Skinner, A. H. (2006). eHealth literacy: essential skills for consumer health in a networked world. Journal of Medical Internet Research, 8(2), e9.
  • O’Mahony, M., Hegarty, J., & McCarthy, G. (2011). Women’s help seeking behaviour for self discovered breast cancer symptoms. European Journal of Oncology Nursing, 15(5), 410–418.
  • O’Neill, B. (2017). Towards an improved understanding of modern health information ecology. Social Science & Medicine, 173, 108–109.
  • O’Neill, O. (2017). Intelligent trust in a digital world. New Perspectives Quarterly, 34(4), 27–31.
  • O’Neill, O. (2018). Linking trust to trustworthiness. International Journal of Philosophical Studies, 26(2), 293–300.
  • Persoskie, A., Ferrer, R. A., & Klein, W. M. P. (2014). Association of cancer worry and perceived risk with doctor avoidance: An analysis of information avoidance in a nationally representative US sample. Journal of Behavioral Medicine, 37(5), 977–987.
  • Powell, J. A., & Boden, S. (2012). Greater choice and control? health policy in England and the online health consumer. Policy & Internet, 4(2), 1–23.
  • Ramanadhan, S., & Viswanath, K. (2006). Health and the information nonseeker: A profile. Health Communication, 20(2), 131–139.
  • Santana, S., Lausen, B., Bujnowska-Fedak, M., Chronaki, C. E., Prokosch, H.-U., & Wynn, R. (2011). Informed citizen and empowered citizen in health: Results from an European survey. BMC Family Practice, 12(1), 20.
  • Santer, M., Muller, I., Yardley, L., Burgess, H., Ersser, S. J., Lewis-Jones, S., & Little, P. (2015). ‘You don’t know which bits to believe’: Qualitative study exploring carers’ experiences of seeking information on the internet about childhood eczema. BMJ Open, 5(4), e006339.
  • Sbaffi, L., & Rowley, J. (2017). Trust and credibility in web-based health information: A review and agenda for future research. Journal of Medical Internet Research, 19(6), e218.
  • Sillence, E., Briggs, P., Harris, P. R., & Fishwick, L. (2007). How do patients evaluate and make use of online health information? Social Science & Medicine, 64(9), 1853–1862.
  • Thomson, M. D., Siminoff, L. A., & Longo, D. R. (2012). Internet use for prediagnosis symptom appraisal by colorectal cancer patients. Health Education & Behavior, 39(5), 583–588.
  • Viswanath, K., & Kreuter, M. W. (2007). Health disparities, communication inequalities, and eHealth. American Journal of Preventive Medicine, 32(5 Suppl), S131–133.
  • Vrinten, C., McGregor, L. M., Heinrich, M., von Wagner, C., Waller, J., Wardle, J., & Black, G. B. (2017). What do people fear about cancer? A systematic review and meta-synthesis of cancer fears in the general population. Psycho-Oncology, 26(8), 1070–1079.
  • Vrinten, C., Boniface, D., Lo, S. H., Kobayashi, L. C., von Wagner, C., & Waller, J. (2018). Does psychosocial stress exacerbate avoidant responses to cancer information in those who are afraid of cancer? A population-based survey among older adults in England. Psychology & Health, 33(1), 117–129.
  • Wyatt, S., Henwood, F., Hart, A., & Smith, J. (2005). The digital divide, health information and everyday life. New Media & Society, 7(2), 199–218.
  • Yi, M. Y., Yoon, J. J., Davis, J. M., & Lee, T. (2013). Untangling the antecedents of initial trust in Web-based health information: The roles of argument quality, source expertise, and user perceptions of information quality and risk. Decision Support Systems, 55(1), 284–295.
  • Ziebland, S., & Hunt, K. (2014). Using secondary analysis of qualitative data of patient experiences of health care to inform health services research and policy. Journal of Health Services Research & Policy, 19(3), 177–182.

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