Buying reassurance: uptake of non-invasive prenatal testing among pregnant women of advanced maternal age in China

References

• Akaishi, R., Yamada, T., Kawaguchi, S., Kojima, T., Koyama, T., Umazume, T., … Minakami, H. (2015). Uptake of non–Invasive prenatal testing by Japanese women. Ultrasound in Obstetrics & Genecology, 45(1), 113–114.
   PubMed Web of Science ®Google Scholar
• Anagnost, A. (2004). The corporeal politics of quality (suzhi). Public Culture, 16(2), 189–208.
   Web of Science ®Google Scholar
• Ashoor, G., Syngelaki, A., Poon, L. C. Y., Rezende, J. C., & Nicolaides, K. H. (2013). Fetal fraction in maternal plasma cell‐free DNA at 11–13 weeks’ gestation: Relation to maternal and fetal characteristics. Ultrasound in Obstetrics & Gynecology, 41(1), 26–32.
   PubMed Web of Science ®Google Scholar
• Beck, U. (1992). Risk society: Towards a new modernity. London: Sage Publication.
   Google Scholar
• Becker, H. S., & Geer, B. (1957). Participant observation and interviewing: A Comparison. Human Organization, 16(3), 28–32.
   Web of Science ®Google Scholar
• Benn, P. A., & Chapman, A. R. (2010). Ethical challenges in providing noninvasive prenatal diagnosis. Current Opinion in Obstetrics and Gynecology, 22(2), 128–134.
   PubMed Web of Science ®Google Scholar
• Browner, C. H., & Nancy, A. P. (1995). The normalization of prenatal diagnostic screening. In F. D. Ginsburg & R. Rapp (Eds.), Conceiving the new world order: The global politics of reproduction (pp. 307–322). California: University of California Press.
   Google Scholar
• Cao, H. (2014). Becoming mothers: Physical diagnoses of urban pregnant women. Collection of Women’s Studies, 1, 88–95. In Chinese
   Google Scholar
• Chen, L. (2018). The analysis of causes to pregnant women at advanced maternal age’s declining amniocentesis and suggestions. Modern Medicine and Health Research, 2, 33. In Chinese
   Google Scholar
• Chetty, S., Garabedian, M. J., & Norton, M. E. (2013). Uptake of noninvasive prenatal testing (NIPT) in women following positive aneuploidy screening. Prenatal Diagnosis, 33, 542–546.
   PubMed Web of Science ®Google Scholar
• China Food and Drug Administration (CFDA). (2014). Notice on management of genetic products and technologies in clinical use by CFDA and NHFPC (食品药品监管总局办公厅国家卫生计生委办公厅关于加强临床使用基因测序相关产品和技术管理的通知, shipin yaopin jianguan zongju bangognting guojia weisheng jishengwei bangongting guanyu jiaqiang shiyong jiyin xiangguanchanpin he jishu guanli de tongzhi). Retrieved from http://www.sda.gov.cn/WS01/CL0845/96853.html
   Google Scholar
• Coxon, K. (2014). Risk in pregnancy and birth: Are we talking to ourselves? Health, Risk and Society, 16, 481–493.
   Web of Science ®Google Scholar
• Coxon, K., Chisholm, A., Malouf, R., Rowe, R., & Hollowell, J. (2017). What influences birth place preferences, choices and decision–Making amongst healthy women with straightforward pregnancies in the UK? A qualitative evidence synthesis using a ‘best fit’ framework approach. BMC Pregnancy and Childbirth, 17, 103–118.
   PubMed Web of Science ®Google Scholar
• Coxon, K., Sandall, J., & Fulop, N. (2012). Birth place decisions: Who wants to give birth where, and why? Archives of Disease in Childhood: Fetal & Neonatal, 97, A76.
   Google Scholar
• Dean, M. (2010). Governmentality: Power and rule in modern society. London: Sage.
   Google Scholar
• Deans, Z., Clark, A. J., & Newson, A. J. (2015). For your interest? The ethical acceptability of using non‐invasive prenatal testing to test ‘purely for information’. Bioethics, 29, 19–25.
   PubMed Web of Science ®Google Scholar
• Douglas, M. (1992). Risk and blame: Essays in cultural theory. London: Routledge.
   Google Scholar
• Douglas, M., & Wildavsky, A. (1982). Risk and culture: An essay on the selection of technical and environmental dangers. Berkeley: University of California Press.
   Google Scholar
• Fan, Y., & Lin, X. (2014). Normal delivery: Body, power and medicalization in the field of caesarean. Youth Study, 3, 36–45. In Chinese
   Google Scholar
• Guo, X., & Zhao, Y. (2013). The analysis of causes of pregnant women at advanced maternal age’s declining of amniocentesis and suggestions. Maternal and Child Health Care of China, 23, 3875–3876. In Chinese
   Google Scholar
• Han, J., Zhen, L., Pan, M., Yang, X., Ou, Y.-M., Liao, C., & Li, D.-Z. (2015). Uptake of non–Invasive prenatal testing in Chinese women: Money matters. European Journal of Obstetrics & Gynecology and Reproductive Biology, 195, 100–102.
   PubMed Web of Science ®Google Scholar
• Heuvel, A. V. D., Chitty, L., Dormandy, E., Newson, A., Deans, Z., Attwood, S., … Marteau, T. M. (2010). Will the introduction of non–Invasive prenatal diagnostic testing erode informed choices? An experimental study of health care professionals. Patient Education and Counselling, 78, 24–28.
   PubMed Web of Science ®Google Scholar
• Jerolmack, C., & Khan, S. (2014). Talk is cheap: Ethnography and the attitudinal fallacy. Sociological Method and Research, 3, 1–32.
   Google Scholar
• Kipnis, A. (2006). suzhi : a keyword approach. Quarterly,186,295-313 Quarterly,186,295-313 186. doi:10.1017/S0305741006000166
   Google Scholar
• Lewis, C., Choudhury, M., & Chitty, L. S. (2015). ‘Hope for safe prenatal gene tests’. A content analysis of how the UK press media are reporting advances in non‐invasive prenatal testing. Prenatal Diagnosis, 35, 420–427.
   PubMed Web of Science ®Google Scholar
• Lewis, C., Hill, M., Silcock, C., Daley, R., & Chitty, L. S. (2014). Non‐invasive prenatal testing for trisomy 21: A cross‐sectional survey of service users’ views and likely uptake. British Journal of Obstetrics and Gynaecology, 121, 582–594.
   Google Scholar
• Lewis, C., Silcock, C., & Chitty, L. S. (2013). Non–Invasive prenatal testing for Down’s syndrome: Pregnant women’s views and likely uptake. Public Health Genomics, 16, 223–232.
   PubMed Web of Science ®Google Scholar
• Li, C. (2014). Research on the regulation of prenatal diagnosis and screening technical service in China ( Unpublished Phd Dissertation). Fudan University, China. (In Chinese)
   Google Scholar
• Li, F., Hao, X. F., & Wu, Y. H. (2004). The research development of testing the fetal DNA in blood circulation of pregnant women to make non–Invasive diagnosis. Chinese Journal of Obstetrics and Gynecology, 39, 201–203. In Chinese
   Google Scholar
• Li, G., & Allyse, M. (2016). Experiences of Mandarin–Speaking and English–Speaking women of undergoing non–Invasive prenatal genetic screening. Ethics, Medicine and Public Health, 2, 372–382.
   Google Scholar
• Lin, X. (2011a). Work and life of urban career women in gestation period: A study focusing on body experience. Journal of China Women’s University, 2, 32–36. In Chinese
   Google Scholar
• Lin, X. (2011b). The image of motherhood: Prenatal examination, body experience and subjectivity of urban women. Society, 5, 133–157. In Chinese
   Google Scholar
• Liu, C. (2017). The social construction of Chinese urban women pregnant medicalization ( Unpublished Ph.D Dissertation). University of Jilin, China. (In Chinese)
   Google Scholar
• Lo, Y. M. D., Corbetta, N., Chamberlain, P. F., Rai, V., Sargent, I. L., Redman, C. W., & Wainscoat, J. S. (1997). Presence of fetal DNA in maternal plasma and serum. The Lancet, 350, 485–487.
   PubMed Web of Science ®Google Scholar
• Löwy, I. (2017). Imperfect pregnancies: A History of birth defects and prenatal diagnosis. Maryland: Johns Hopkins University Press.
   Google Scholar
• Löwy, I. (2018). Tangled diagnosis: Prenatal testing, women and risk. Chicago, IL: The University of Chicago Press.
   Google Scholar
• Lupton, D. (1999). Risk and sociocultural theory. Cambridge: Cambridge University Press.
   Google Scholar
• Lupton, D. (2013). Risk. Oxford: Routledge.
   Google Scholar
• Markens, S., Browner, C. H., & Preloran, H. M. (2003). ‘I’m not the one they’re sticking the needle into’: Latino couples, fetal diagnosis, and the discourse of reproductive rights. Gender & Society, 17, 462–481.
   Web of Science ®Google Scholar
• Maxwell, J. (1996). Qualitative research design: An interactive approach. Thousand Oaks: Sage.
   Google Scholar
• Mei, L., Liu, W., & Li, H. (2014). Application of noninvasive gene detection technique in prenatal diagnosis. Maternal and Child Health Care of China, 29, 4177–4179. In Chinese
   Google Scholar
• Miles, M. B., & HUberman, A. M. (1994). Qualitative data analysis: An Expanded sourcebook (2nd ed.). Newbury Park: Sage.
   Google Scholar
• Minear, M. A., Alessi, S., Allyse, M., Michie, M., & Chandrasekharan, S. (2015). Noninvasive prenatal genetic testing: Current and emerging ethical, legal, and social issues. Annual Review of Genomics and Human Genetics, 16, 369–398.
   PubMed Web of Science ®Google Scholar
• National Development and Reform Commission (NDRC) (2016). The responses on plans of building primary genetic testing application test centres (国家发展改革委办公厅关于第一批基因检测技术应用示范中心建设方案的复函, guojia fazhan gaigewei bangognting guanyu diyipi jiyin jiance jishu yingyong shifan zhongxin jianshe fangan de fuhan). Retrieved from http://www.ndrc.gov.cn/gzdt/201605/t20160516_801949.html
   Google Scholar
• National Health and Family Planning Commission (NHFPC). (2016). Regulations on forbid to test the sex of the baby on non–Medical needs and choice to abort based on sex (禁止非医学需要的胎儿性别鉴定和选择性别人工终止妊娠的规定, jinzhi fei yixue xuyao de taier xingbie jianding he xuanze xingbie rengong zhongzhi renshen de guiding). Retrieved from http://www.nhfpc.gov.cn/fzs/s3576/201604/53498882be944bf4a51926f059403ac0.shtml
   Google Scholar
• Pilnick, A, & Zayts, O. (2012). ‘let’s have it tested first’: choice and circumstances in decision-making following positive antenatal screening in hong kong. Sociology Of Health & Illness, 34(2), 266-282. doi:10.1111/shil.2012.34.issue-2
   PubMed Web of Science ®Google Scholar
• Poon, C. F., Tse, W. C., Kou, K. O., & Leung, K. Y. (2015). Uptake of non–Invasive prenatal testing in Chinese women following positive Down syndrome screening. Fetal Diagnosis and Therapy, 37, 141–147.
   PubMed Web of Science ®Google Scholar
• Qiu, J. (2017). Fluid experience and rational medical choice: Based on case studies of elderly pregnant women. Journal of Chinese Women’s Studies, 1, 21–29. In Chinese
   Google Scholar
• Rapp, R. (1999). Testing women, testing the fetus: The social impact of amniocentesis in US. New York: Routledge.
   Google Scholar
• Root, R., & Browner, C. H. (2001). Practices of the pregnant self: Compliance with a resistance to prenatal norms. Culture, Medicine and Psychiatry, 25, 195–223.
   PubMed Web of Science ®Google Scholar
• Rothman, B. K. (1986). The tentative pregnancy: Prenatal diagnosis and the future of motherhood. New York: Viking.
   Google Scholar
• Schendel, R. V., Dondorp, W. J., Timmermans, D. R. M., van Hugte, E. J. H., de Boer, A., Pajkrt, E., … Henneman, L. (2015). NIPT‐based screening for Down syndrome and beyond: What do pregnant women think?. Prenatal Diagnosis, 35, 598–604.
   PubMed Web of Science ®Google Scholar
• Schendel, R. V., Kuipers, A. K., Lachotzki, E. H. V., Dondorp, W., Cornel, M. C., & Henneman, L. (2017). What do parents of children with Down syndrome think about non–Invasive prenatal testing (NIPT)? Journal of Genetic Counselling, 26, 522–531.
   PubMed Web of Science ®Google Scholar
• Shanghai Municipal Health Commision (2018). Regulations on genetic counselling technology service (上海市遗传咨询技术服务管理办法, shanghaishi yichuan zixun jishu fuwu guanli banfa). Retrieved from http://www.wsjsw.gov.cn/zcfg2/20180831/62125.html
   Google Scholar
• Silcock, C., Liao, L. M., Hill, M., & Chitty, L. S. (2015). Will the introduction of non‐invasive prenatal testing for Down’s syndrome undermine informed choice? Health Expectations, 18, 1658–1671.
   PubMed Web of Science ®Google Scholar
• Skirton, H., & Patch, C. (2013). Factors affecting the clinical use of non‐invasive prenatal testing: A mixed methods systematic review. Prenatal Diagnosis, 33, 532–541.
   PubMed Web of Science ®Google Scholar
• Snowden, A., Martin, C., Jomeen, J., & Hollins Martin, C. (2011). Concurrent analysis of choice and control in childbirth. Bmc Pregnancy and Childbirth, 1 1 11, 11–40. doi:10.1186/1471-2393-11-40
   Web of Science ®Google Scholar
• Song, Y., Liu, C., Qi, H., Zhang, Y., Bian, X., & Liu, J. (2013). Non–Invasive prenatal testing of fetal aneuploidies by massively parallel sequencing in a prospective Chinese population. Prenatal Diagnosis, 33, 700–706.
   PubMed Web of Science ®Google Scholar
• Tao, Y. (2012). Obstetricians encountering the ‘fear of maternal pain’? The body politics of Chinese women’s delivery experience. Collection of Women’s Studies, 1, 86–96. In Chinese
   Google Scholar
• Taylor, J. S. (2000). Of sonogram and baby prams: Prenatal diagnosis, pregnancy, and consumption. Feminist Studies, 26, 391–418.
   Web of Science ®Google Scholar
• Taylor, J. S. (2008). The public life of fetus sonogram: Technology, consumption and the politics of reproduction. New Jersey: Rutgers University Press.
   Google Scholar
• Theodorou, E., & Spyrou, S. (2013). Motherhood in utero: Consuming away anxiety. Journal of Consumer Culture, 13, 79–96.
   Web of Science ®Google Scholar
• Thomas, G. M. (2014). Prenatal screening for Down’s syndrome: Parent and healthcare practitioner experiences. Sociology Compass, 8, 837–850.
   Google Scholar
• Thomas, G. M., & Rothman, B. K. (2016). Keeping the backdoor to eugenics ajar? Disability and the future of prenatal screening. AMA Journal of Ethics, 18, 406.
   PubMedGoogle Scholar
• Tischler, R., Hudgins, L., Blumenfeld, Y. J., Greely, H. T., & Ormond, K. E. (2011). Non–Invasive prenatal diagnosis: Pregnant women’s interest and expected uptake. Prenatal Diagnosis, 31, 1292–1299.
   PubMed Web of Science ®Google Scholar
• Vanstone, M., King, C., Vrijer, B., & Nisker, J. (2014). Non–Invasive prenatal testing: Ethics and policy considerations. Journal of Obstetrics and Gynaecology Canada, 36, 515–526.
   PubMedGoogle Scholar
• Verhoef, T. I., Griffin, E., Page, J., Pilliod, R., Shaffer, B. L., & Caughey, A. B. (2016). Non‐invasive prenatal diagnosis (NIPD) for single gene disorders: Cost analysis of NIPD and invasive testing pathways. Prenatal Diagnosis, 36, 636–642.
   PubMed Web of Science ®Google Scholar
• Wang, C. (2014). A sociological empirical research on induced abortion in China: 1979–2012. China’s Social Science, 10, 62–78. In Chinese
   Google Scholar
• Wax, J. R., Cartin, A., Chard, R., Lucas, F. L., & Pinette, M. G. (2015). Non–Invasive prenatal testing: Impact on genetic counselling, invasive prenatal diagnosis, and trisomy 21 detection. Journal of Clinical Ultrasound, 43, 1–6.
   PubMed Web of Science ®Google Scholar
• Wong, F. C., & Lo, Y. D. (2016). Prenatal diagnosis innovation: Genome sequencing of maternal plasma. Annual Review of Medicine, 67, 419–432.
   PubMed Web of Science ®Google Scholar
• Xie, Q., Xu, H., Wang, D., Jia, ZJ.,Tang, H., Hu, R., Wang, R. (2014). The application of non–Invasive prenatal testing among 4168 high–Risk pregnant women in prenatal screening. Medical Information. 27, 99–100. In Chinese
   Google Scholar
• Xun, J., & Tian, Y. (2014). The generative mechanism of the abuse of caesarean delivery: From market–Oriented reform to medicalization of childbirth. Social Science, 12, 77–83. In Chinese
   Google Scholar
• Yang, L., & Ren, Y. (2014). The medicalisation of pregnancy and birth: A reflection on the social construction process. Open Times, 6, 168–179. In Chinese
   Google Scholar
• Zeng, X. F., Zannoni, L., Löwy, I., & Camporesi, S. (2016). Localizing NIPT: Practices and meanings of non–Invasive prenatal testing in China, Italy, Brazil and the UK. Ethics, Medicine and Public Health, 2, 392–401.
   Google Scholar
• Zhang, S., Qi, H.,Mao, X., Wang, Y., Chen, Y.,Meng, R., Xu, L., Lu, B. (2015). Factor analysis of 541 pregnant women accepting NIPT. Journal of Chinese Eugenics and Genetics. 23, 17–18. In Chinese
   Google Scholar
• Zhu, J. (2008). Winning the competition at the start line: Chinese modernity, reproduction and the desire for a ‘high quality’ population ( Unpublished Ph.d dissertation). University of Minnesota.
   Google Scholar
• Zhu, J. (2010). Mothering expectant mothers: Consumption, production, and two motherhoods in contemporary China. Ethos, 38, 406–421.
   Web of Science ®Google Scholar
• Zhu, J. (2013). Projecting potentiality: Understanding maternal serum screening in contemporary China. Current Anthropology, 54(S7), S36–S44.
   Google Scholar