Resilience in family caregivers of patients diagnosed with advanced cancer – unravelling the process of bouncing back from difficult experiences, a hermeneutic review

References

• Goren A , Gilloteau I , Lees M , et al. Quantifying the burden of informal caregiving for patients with cancer in Europe. Support Care Cancer. 2014;22(6):1637–1646.
   PubMed Web of Science ®Google Scholar
• Bonanno GA . Loss, trauma, and human resilience: have we underestimated the human capacity to thrive after extremely aversive events? Am Psychol. 2004;59(1):20–28.
   PubMed Web of Science ®Google Scholar
• Trevino KM , Prigerson HG , Maciejewski PK . Advanced cancer caregiving as a risk for major depressive episodes and generalized anxiety disorder. Psycho Oncol. 2018;27(1):243–249.
   PubMed Web of Science ®Google Scholar
• Opsomer S , Pype P , Lauwerier E , et al. Resilience in middle-aged partners of patients diagnosed with incurable cancer: a thematic analysis. PloS One. 2019;14(8):e0221096.
   PubMed Web of Science ®Google Scholar
• Cassidy T . Benefit finding through caring: the cancer caregiver experience. Psychol Health. 2013;28(3):250–266.
   PubMed Web of Science ®Google Scholar
• Roen I , Stifoss-Hanssen H , Grande G , et al. Resilience for family carers of advanced cancer patients-how can health care providers contribute? A qualitative interview study with carers. Palliat Med. 2018;32(8):1410–1418.
   PubMed Web of Science ®Google Scholar
• Hwang IC , Kim YS , Lee YJ , et al . Factors associated with caregivers' resilience in a terminal cancer care setting. Am J Hosp Palliat Care. 2018;35(4):677–683.
   PubMed Web of Science ®Google Scholar
• Li Q , Loke AY . A spectrum of hidden morbidities among spousal caregivers for patients with cancer, and differences between the genders: a review of the literature. Eur J Oncol Nurs. 2013;17(5):578–587.
   PubMed Web of Science ®Google Scholar
• Kershaw T , Ellis KR , Yoon H , et al. The interdependence of advanced cancer patients' and their family caregivers' mental health, physical health, and self-efficacy over time. Ann Behav Med. 2015;49(6):901–911.
   PubMed Web of Science ®Google Scholar
• O'Toole MS , Zachariae R , Renna ME , et al. Cognitive behavioral therapies for informal caregivers of patients with cancer and cancer survivors: a systematic review and meta-analysis. Psychooncology. 2017;26(4):428–437.
   PubMed Web of Science ®Google Scholar
• Griffin JM , Meis LA , MacDonald R , et al. Effectiveness of family and caregiver interventions on patient outcomes in adults with cancer: a systematic review. J Gen Intern Med. 2014;29(9):1274–1282.
   PubMed Web of Science ®Google Scholar
• Yehuda R , Flory JD , Southwick S , et al. Developing an agenda for translational studies of resilience and vulnerability following trauma exposure. Ann N Y Acad Sci. 2006;1071:379–396.
   PubMed Web of Science ®Google Scholar
• Joyce S , Shand F , Tighe J , et al. Road to resilience: a systematic review and meta-analysis of resilience training programmes and interventions. BMJ Open. 2018;8(6):e017858.
   PubMed Web of Science ®Google Scholar
• Saria MG , Courchesne N , Evangelista L , et al. Cognitive dysfunction in patients with brain metastases: influences on caregiver resilience and coping. Support Care Cancer. 2017;25(4):1247–1256.
   PubMed Web of Science ®Google Scholar
• Fletcher D , Sarkar M . Psychological resilience. A review and critique of definitions, concepts and theory. Eur Psychol. 2013;18(1):12–23.
   Web of Science ®Google Scholar
• Davydov DM , Stewart R , Ritchie K , et al. Resilience and mental health. Clin Psychol Rev. 2010;30(5):479–495.
   PubMed Web of Science ®Google Scholar
• Greenhalgh T , Thorne S , Malterud K . Time to challenge the spurious hierarchy of systematic over narrative reviews? Eur J Clin Invest. 2018;48(6):e12931.
   PubMed Web of Science ®Google Scholar
• Boell SK , Cecez-Kecmanovic D . A hermeneutic approach for conducting literature reviews and literature searches. Commun Assoc Inf Syst. 2014;34:257–286.
   Google Scholar
• Dickson A , Emad K , Hussein   , Joe AA . Theoretical and conceptual framework: mandatory ingredients of a quality research. Int J Sci Res. 2018;7:438–441.
   Google Scholar
• Rutter M . Psychosocial resilience and protective mechanisms. Am J Orthopsychiatry. 1987;57(3):316–331.
   PubMed Web of Science ®Google Scholar
• Glantz MD , Johnson JL . Resilience and development: positive life adaptations. In: Glantz MD , Johnson JL , editors. Longitudinal research in the social and behavioral sciences: an interdisciplinary series. New York (NY): Kluwer Academic/Plenum Publishers; 1999.
   Google Scholar
• Masten AS . Ordinary magic. Resilience processes in development. Am Psychol. 2001;56(3):227–238.
   PubMed Web of Science ®Google Scholar
• Fergus S , Zimmerman MA . Adolescent resilience: a framework for understanding healthy development in the face of risk. Annu Rev Public Health. 2005;26:399–419.
   PubMed Web of Science ®Google Scholar
• Seery MD , Quinton WJ . Understanding resilience: from negative life events to everyday stressors. Adv Exp Soc Psychol. 2016;54:181–245.
   Web of Science ®Google Scholar
• Fraser MW , Richman JM , Galinsky MJ . Risk, protection, and resilience: towards a conceptual framework for social work practice. Soc Work Res. 1999;23:129–208.
   Web of Science ®Google Scholar
• Kumpfer KL . Factors and processes contributing to resilience. The resilience framework. In: Johnson GA , editor. Resilience and Development. New York: Kluwer Academic/Plenum Publishers; 1999. p. 179–224.
   Google Scholar
• Luthar SS , Cicchetti D , Becker B . The construct of resilience: a critical evaluation and guidelines for future work. Child Dev. 2000;71(3):543–562.
   PubMed Web of Science ®Google Scholar
• Bonanno GA . Resilience in the face of potential trauma. Curr Dir Psychol Sci. 2005;14(3):135–138.
   Web of Science ®Google Scholar
• Letzring TD , Block J , Funder DC . Ego-control and ego-resiliency: generalization of self-report scales based on personality descriptions from acquaintances, clinicians, and the self. J Res Personal. 2005;39(4):395–422.
   Web of Science ®Google Scholar
• Bonanno GA , Mancini AD . The human capacity to thrive in the face of potential trauma. Pediatrics. 2008;121(2):369–375.
   PubMed Web of Science ®Google Scholar
• Grafton E , Gillespie B , Henderson S . Resilience: the power within. Oncol Nurs Forum. 2010;37(6):698–705.
   PubMed Web of Science ®Google Scholar
• Bonanno GA , Westphal M , Mancini AD . Resilience to loss and potential trauma. Annu Rev Clin Psychol. 2011;7:511–535.
   PubMed Web of Science ®Google Scholar
• Windle G . What is resilience? A review and concept analysis. Rev Clin Gerontol. 2011;21(2):152–169.
   Google Scholar
• Bonanno GA . Uses and abuses of the resilience construct: loss, trauma, and health-related adversities. Soc Sci Med. 2012;74(5):753–756.
   PubMed Web of Science ®Google Scholar
• Rutter M . Resilience as a dynamic concept. Dev Psychopathol. 2012;24(2):335–344.
   PubMed Web of Science ®Google Scholar
• Garcia-Dia MJ , DiNapoli JM , Garcia-Ona L , et al. Concept analysis: resilience. Arch Psychiatr Nurs. 2013;27(6):264–270.
   PubMed Web of Science ®Google Scholar
• Hu T , Zhang D , Wang J . A meta-analysis of the trait resilience and mental health. Personal Individ Differ. 2015;76:18–27.
   Web of Science ®Google Scholar
• Kalisch R , Baker DG , Basten U , et al. The resilience framework as a strategy to combat stress-related disorders. Nat Hum Behav. 2017;1(11):784–790.
   PubMed Web of Science ®Google Scholar
• Galatzer-Levy IR , Huang SH , Bonanno GA . Trajectories of resilience and dysfunction following potential trauma: A review and statistical evaluation. Clin Psychol Rev. 2018;63:41–55.
   PubMed Web of Science ®Google Scholar
• Rosa F , Bagnasco A , Aleo G , et al. Resilience as a concept for understanding family caregiving of adults with Chronic Obstructive Pulmonary Disease (COPD): an integrative review. Nurs Open. 2017;4(2):61–75.
   PubMed Web of Science ®Google Scholar
• Autio T , Rissanen S . Positive emotions in caring for a spouse: a literature review. Scand J Caring Sci. 2018;32(1):45–55.
   PubMed Web of Science ®Google Scholar
• Eicher M , Matzka M , Dubey C , et al. Resilience in adult cancer care: an integrative literature review. Oncol Nurs Forum. 2015;42:3–16.
   PubMed Web of Science ®Google Scholar
• APA . The Road to Resilience. Washington (DC): The American Psychological Association (APA); [cited 2020 June 16]. Available from: http://www.apa.org/helpcenter/road-resilience.aspx
   Google Scholar
• Richardson GE . The metatheory of resilience and resiliency. J Clin Psychol. 2002;58(3):307–321.
   PubMed Web of Science ®Google Scholar
• Bonanno GA , Kennedy P , Galatzer-Levy IR , et al. Trajectories of resilience, depression, and anxiety following spinal cord injury. Rehabil Psychol. 2012;57(3):236–247.
   PubMed Web of Science ®Google Scholar
• Bonanno GA , Malgaroli M . Trajectories of grief: comparing symptoms from the DSM-5 and ICD-11 diagnoses. Depress Anxiety. 2020;37(1):17–25. Available from: https://onlinelibrary.wiley.com/doi/epdf/10.1002/da.22902
   PubMed Web of Science ®Google Scholar
• Southwick SM , Bonanno GA , Masten AS , et al. Resilience definitions, theory, and challenges: interdisciplinary perspectives. Eur J Psychotraumatol. 2014;5. DOI:10.3402/ejpt.v5.25338
   PubMed Web of Science ®Google Scholar
• Mancini AD , Sinan B , Bonanno GA . Predictors of prolonged grief, resilience, and recovery among bereaved spouses. J Clin Psychol. 2015;71(12):1245–1258.
   PubMed Web of Science ®Google Scholar
• Bonanno GA , Romero SA , Klein SI . The temporal elements of psychological resilience: an integrative framework for the study of individuals, families, and communities. Psychol Inq. 2015;26(2):139–169.
   Web of Science ®Google Scholar
• Agaibi CE , Wilson JP . Trauma, PTSD, and resilience: a review of the literature. Trauma Violence Abuse. 2005;6(3):195–216.
   PubMed Web of Science ®Google Scholar
• Gillespie BM , Chaboyer W , Wallis M . Development of a theoretically derived model of resilience through concept analysis. Contemp Nurse. 2007;25(1–2):124–135.
   PubMed Web of Science ®Google Scholar
• Liu JJW , Reed M , Girard TA . Advancing resilience: an integrative, multi-system model of resilience. Pers Individ Diff. 2017;111:111–118.
   Web of Science ®Google Scholar
• Opsomer S , Joossens S , De Wit C , et al. Couples coping with nutrition-related problems in advanced cancer: a qualitative study in primary care. Eur J Oncol Nurs. 2019;38:76–84.
   PubMed Web of Science ®Google Scholar
• Opsomer S , Joossens S , De Wit C , et al. Losing health symbols because of nutrition-related problems in advanced cancer: an interpretative phenomenological analysis. J Hosp Palliat Nurs. 2018;20(5):492–499.
   PubMedGoogle Scholar
• Bonanno GA , Wortman CB , Lehman DR , et al. Resilience to loss and chronic grief: a prospective study from preloss to 18-months postloss. J Pers Soc Psychol. 2002;83(5):1150–1164.
   PubMed Web of Science ®Google Scholar
• Walshe C , Roberts D , Appleton L , et al. Coping well with advanced cancer: a serial qualitative interview study with patients and family Carers. PloS One. 2017;12(1):e0169071.
   PubMed Web of Science ®Google Scholar