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Research Article

Primary mental healthcare for adults with mild intellectual disabilities: Patients’ perspectives

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Article: 2354414 | Received 12 Sep 2023, Accepted 07 May 2024, Published online: 17 May 2024

References

  • Mazza MG, Rossetti A, Crespi G, et al. Prevalence of co-occurring psychiatric disorders in adults and adolescents with intellectual disability: a systematic review and meta-analysis. J Appl Res Intellect Disabil. 2020;33(2):126–138. doi:10.1111/jar.12654.
  • Cooper SA, Hughes-McCormack L, Greenlaw N, et al. Management and prevalence of long-term conditions in primary health care for adults with intellectual disabilities compared with the general population: a population-based cohort study. J Appl Res Intellect Disabil. 2017;31(S1):68–81. doi:10.1111/jar.12386.
  • Krahn GL, Hammond L, Turner A. A cascade of disparities: health and health care access for people with intellectual disabilities. Ment Retard Dev Disabil Res Rev. 2006;12(1):70–82. doi:10.1002/mrdd.20098.
  • Wieland J, Ten Doesschate M. Awareness and accessibility of the Dutch mental health care system for people with borderline intellectual functioning or mild intellectual disabilities. AMHID. 2018;12(3/4):114–120. doi:10.1108/AMHID-03-2018-0014.
  • Pouls KP, Koks-Leensen MC, Mastebroek M, et al. Adults with intellectual disabilities and mental health disorders in primary care: a scoping review. Br J Gen Pract. 2022;72(716):e168–e178. doi:10.3399/BJGP.2021.0164.
  • Global, regional, and national burden of 12 mental disorders in 204 countries and territories, 1990-2019: a systematic analysis for the global burden of disease study 2019. Lancet Psychiatry. 2022;9(2):137–150.
  • American Assosiation on Intellectual and Developmental Disabilities. Intellectual disability: definition, classification, and systems of supports, 11th Edition USA; 2010 [cited 2024 May 8]. Available from: https://eric.ed.gov/?id=ED509596
  • American Psychiatric Association. Diagnostic and statistical manual of mental disorders. 5th ed. Washington (DC): American Psychiatric Association Publishing; April 2022. doi:10.1176/appi.books.9780890425787.
  • Woittiez I, Putman L, Eggink E, et al. Zorg beter begrepen. Verklaringen voor de groeiende vraag naar zorg voor mensen met een verstandelijke beperking [Understanding care better. Explanations for the growing demand for care for people with intellectual disbilities]. Sociaal en Cultureel Planbureau. November 2014 [cited 2024 May 8]. Available from: https://repository.scp.nl/bitstream/handle/publications/584/Zorg%20beter%20begrepen_drukversie.pdf?sequence=1&isAllowed=y
  • World Health Organisation. World mental health report: transforming mental health for all. Geneva; 2022 [cited 2024 May 8]. Available from: https://www.who.int/publications/i/item/9789240049338
  • Woittiez I, Eggink E, Ras M. Het aantal mensen met een lichte verstandelijke beperking: een schatting [The number of people with a mild intellectual disability: an estimate]. Sociaal en Cultureel Planbureau. The Hague; 2019 [cited 2024 May 8]. Available from: https://www.scp.nl/publicaties/publicaties/2019/10/01/het-aantal-mensen-met-een-licht-verstandelijke-beperking-een-schatting
  • Pouls KPM, Koks-Leensen MCJ, Assendelft WJJ, et al. Primary mental healthcare for adults with mild intellectual disabilities: a Dutch database study. Eur J Gen Pract. 2022;28(1):234–241. doi:10.1080/13814788.2022.2142936.
  • Loeb DF, Bayliss EA, Binswanger IA, et al. Primary care physician perceptions on caring for complex patients with medical and mental illness. J Gen Intern Med. 2012;27(8):945–952. doi:10.1007/s11606-012-2005-9.
  • Oud MJ, Schuling J, Slooff CJ, et al. Care for patients with severe mental illness: the general practitioner’s role perspective. BMC Fam Pract. 2009;10(1):29. doi:10.1186/1471-2296-10-29.
  • Fredheim T, Haavet OR, Danbolt LJ, et al. Intellectual disability and mental health problems: a qualitative study of general practitioners’ views. BMJ Open. 2013;3(3):e002283. doi:10.1136/bmjopen-2012-002283.
  • Wigham S, Melvin E, Lester J, et al. Factors associated with the identification of mental health conditions among people with learning disabilities in primary care: a scoping review. Brit J Learn Disabil. 2023;52(1):36–53. doi:10.1111/bld.12544.
  • Oosterveld-Vlug M, Oldenkamp M, Mastebroek M, et al. What difficulties do people with mild intellectual disabilities experience when seeking medical help from their GP? A qualitative study. J Appl Res Intellect Disabil. 2021;34(1):178–189. doi:10.1111/jar.12796.
  • Perry J, Felce D, Kerr M, et al. Contact with primary care: the experience of people with intellectual disabilities. J Appl Res Intellect Disabil. 2014;27(3):200–211. doi:10.1111/jar.12072.
  • Sturman N, Williams R, Ostini R, et al. A really good GP': Engagement and satisfaction with general practice care of people with severe and persistent mental illness. Aust J Gen Pract. 2020;49(1-2):61–65. doi:10.31128/AJGP-02-19-4854.
  • Rijksoverheid. Wat moet ik weten als ik mee wil doen aan medisch-wetenschappelijk onderzoek? [What do I need to know if I want to participate in medical scientific research?]. Consulted on February 18th 2024 [cited 2024 May 8]. Available from: https://www.rijksoverheid.nl/onderwerpen/medisch-wetenschappelijk-onderzoek/vraag-en-antwoord/wat-moet-ik-weten-als-ik-mee-wil-doen-aan-medisch-wetenschappelijk-onderzoek.
  • Etz RS, Zyzanski SJ, Gonzalez MM, et al. A new comprehensive measure of high-value aspects of primary care. Ann Fam Med. 2019;17(3):221–230. doi:10.1370/afm.2393.
  • Frielink N, Schuengel C, Embregts P. Autonomy support, need satisfaction, and motivation for support among adults with intellectual disability: testing a self-determination theory model. Am J Intellect Dev Disabil. 2018;123(1):33–49. doi:10.1352/1944-7558-123.1.33.
  • United Nations. Convention on the rights of persons with disabilities. Geneva; December 2006 [cited 2024 May 8]. Available from: https://legal.un.org/avl/ha/crpd/crpd.html
  • Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101. doi:10.1191/1478088706qp063oa.
  • Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–357. doi:10.1093/intqhc/mzm042.
  • Mastebroek M, Naaldenberg J, van den Driessen Mareeuw FA, et al. Experiences of patients with intellectual disabilities and carers in GP health information exchanges: a qualitative study. Fam Pract. 2016;33(5):543–550. doi:10.1093/fampra/cmw057.
  • Murphy J. Perceptions of communication between people with communication disability and general practice staff. Health Expect. 2006;9(1):49–59. doi:10.1111/j.1369-7625.2006.00366.x.
  • Zorginstituut Nederland. Verbetersignalement Zorg voor mensen met een lichte verstandelijke beperking en een gezondheidsprobleem [Improvement report on care for people with mild intellectual disabilities and health issues]. Diemen, the Netherlands. 2022. [cited 2024 May 8]. Available from: https://www.zorginstituutnederland.nl/publicaties/rapport/2022/01/25/zinnige-zorg-verbetersignalement-lvb.
  • Mastebroek M, Naaldenberg J, van den Driessen Mareeuw FA, et al. Health information exchange for patients with intellectual disabilities: a general practice perspective. Br J Gen Pract. 2016;66(651):e720-728–e728. doi:10.3399/bjgp16X686593.
  • Nijman H, Kaal H, van Scheppingen L, et al. Development and testing of a screener for intelligence and learning disabilities (SCIL). J Appl Res Intellect Disabil. 2018;31(1):e59–e67.
  • Hayes SC. Hayes ability screening index (HASI), manual. Department of Behavioural Sciences in Medicine, University of Sydney; 2000 [cited 2024 May 8]. Available from: https://www.hasi.com.au/wp-content/uploads/2021/07/manual.pdf.
  • Mastebroek M, Naaldenberg J, Tobi H, et al. Priority-setting and feasibility of health information exchange for primary care patients with intellectual disabilities: A modified Delphi study. Patient Educ Couns. 2017;100(10):1842–1851. doi:10.1016/j.pec.2017.04.010.
  • Bakker-van Gijssel EJ, Lucassen P, Olde Hartman TC, et al. Health assessment instruments for people with intellectual disabilities-A systematic review. Res Dev Disabil. 2017;64:12–24. doi:10.1016/j.ridd.2017.03.002.
  • Bakker-van Gijssel EJ, Olde Hartman TC, Lucassen PL, et al. GPs’ opinions of health assessment instruments for people with intellectual disabilities: a qualitative study. Br J Gen Pract. 2017;67(654):e41–e48. doi:10.3399/bjgp16X688585.
  • MEE. Cliëntondersteuning [Client support]. Consulted on July 1th 2024 2023 [cited 2024 May 8]. Available from: https://www.mee.nl/clientondersteuning.
  • Winkel MTT, Slottje P, de Kruif AJ, et al. General practice and patient characteristics associated with personal continuity: a mixed-methods study. Br J Gen Pract. 2022;72(724):e780–e789. doi:10.3399/BJGP.2022.0038.
  • Webb P, Davidson G, Edge R, et al. Service users’ experiences and views of support for decision-making. Health Soc Care Commun. 2020;28(4):1282–1291. doi:10.1111/hsc.12961.
  • United Nations. Article 12-Equal recognition before the law. Geneva; 2006 [cited 2024 May 8]. Available from: https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/article-12-equal-recognition-before-the-law.html.