1,420
Views
15
CrossRef citations to date
0
Altmetric
Feature Articles

Perspectives of Time and Occupation: Experiences of People with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

(Therapy Director) & (Professor of Occupational Therapy & Faculty Research Coordinator)

REFERENCES

  • Anagnostou, E., & Mitsikostas, D. (2005). Time perception in migraine sufferers: An experimental matched pair study. Cephalalgia, 25(1), 60–67. doi:10.1111/j.1468-2982.2004.00809.x
  • Angrilli, A., Cherubini, P., Pavese, A., & Manfredini, S. (1997). The influence of affective factors on time perception. Perception and Psychophysics, 59(6), 972–982. doi:10.3758/BF03205512
  • Boneva, R., Decker, M., Maloney, E., Lin, J. M., Jones, J., Helgason, H., … Reeves, W. C. (2007). Higher heart rate and reduced heart rate variability persist during sleep in chronic fatigue syndrome: A population-based study. Autonomic Neuroscience: Basic and Clinical, 137(1–2), 94–101. 10.1016/j.autneu.2007.08.002
  • Cairns, R., & Hotopf, M. (2005). A systematic review describing the prognosis of chronic fatigue syndrome. Occupational Medicine, 55(1), 20–31. doi:10.1093/occmed/kqi013
  • Charmaz, K. (1991). Good days, bad days: The self in chronic illness and time. New Brunswick, NJ: Rutgers University Press.
  • Charmaz, K. (2006). Constructing grounded theory. London, UK: Sage.
  • Chastin, S., & Granat, M. (2010). Methods of objective measure, quantification and analysis of sedentary behaviour and inactivity. Gait and Posture, 31(1), 82–86. doi:10.1016/j.gaitpost.2009.09.002
  • Christiansen, C., & Matuska, K. (2006). Lifestyle balance: A review of concepts and research. Journal of Occupational Science, 13(1), 49–61. doi:10.1080/14427591.2006.9686570
  • Cleare, A. (2003). The neuroendocrinology of chronic fatigue syndrome. Endocrine Reviews, 24(2), 236–252. doi:10.1210/er.2001-0014
  • Corbin, J., & Strauss, A. (2008). Basics of qualitative research . (3rd ed.). London, UK: Sage.
  • Cox, D. L. (1999). Chronic fatigue syndrome - an occupational therapy programme. Occupational Therapy International, 6(1), 52–64. doi:10.1002/oti.88
  • Cox, D. L. (2002). Chronic fatigue syndrome: An evaluation of an inpatient occupational therapy intervention. British Journal of Occupational Therapy, 65(10), 461–468.
  • Eagleman, D., & Pariyadath, V. (2009). Is subjective duration a signature of coding efficiency?Philosophical Transactions of the Royal Society, 364(1525), 1841–1851. doi:10.1098/rstb.2009.0026
  • Evering, R., Tonis, T., & Vollenbroek-Hutton, M. (2011). Deviations in daily physical activity patterns in patients with chronic fatigue syndrome: A case control study. Journal of Psychosomatic Research, 71(3), 129–135. doi:10.1016/j.jpsychores.2011.04.004
  • Evering, R., van Weering, M., Groothuis-Oudshoorn, K., & Vollenbroek-Hutton, M. (2011). Daily physical activity of patients with chronic fatigue syndrome: A systematic review. Clinical Rehabilitation, 25(2), 112–133. doi:10.1177/0269215510380831
  • Farnworth, L. (2004). Time use and disability. In M. Molineux, Occupation for occupational therapists (pp. 46–65). Oxford, UK: Blackwell.
  • Farnworth, L., & Fossey, E. (2003). Occupational terminology interactive dialogue: Explaining the concepts of time use, tempo and temporality. Journal of Occupational Science, 10(3), 150–153. doi:10.1080/14427591.2003.9686523
  • Friedberg, F. (2010). Chronic fatigue syndrome, fibromyalgia, and related illnesses: A clinical model of assessment and intervention. Journal of Clinical Psychology, 66(6), 641–665. doi:10.1002/jclp.20676
  • Fukuda, K., Straus, S., Hickie, I., Sharpe, M., Dobbins, J. G., & Komaroff, A. (1994). Chronic fatigue syndrome: A comprehensive approach to its definition and study. Annals of Internal Medicine, 121(12), 953–959. doi:10.7326/0003-4819-121-12-199412150-00009
  • Fuller-Thomson, E., & Nimigon, J. (2008). Factors associated with depression among individuals with chronic fatigue syndrome: Findings from a nationally representative survey. Family Practice, 25(6), 414–422. doi:10.1093/fampra/cmn064
  • Gaab, J., Huster, D., Peisen, R., Engert, V., Heitz, V., Schad, T., … Ehlert. U. (2002). Hypothalamic-pituitary-adrenal axis reactivity in chronic fatigue syndrome and health under psychological, physiological, and pharmacological stimulation. Psychosomatic Medicine, 64(6), 951–962. doi:10.1097/01.PSY.0000038937.67401.61
  • Glaser, B., & Strauss, A. (1967). The discovery of grounded theory. Hawthorne, NY: Aldine de Gruyter.
  • Gray, M., & Fossey, E. (2003). Illness experience and occupations of people with chronic fatigue syndrome. Australian Occupational Therapy Journal, 50(3), 127–136. doi:10.1046/j.1440-1630.2003.00336.x
  • Green, J., & Thorogood, N. (2009). Qualitative methods for health research. London, UK: Sage.
  • Hatcher, S., & House, A. (2003). Life events, difficulties and dilemmas in the onset of chronic fatigue syndrome: A case-control study. Psychological Medicine, 33(7), 1185–1192. doi:10.1017/S0033291703008274
  • Ivry, R., & Schlerf, J. (2008). Dedicated and intrinsic models of time perception. Trends in Cognitive Sciences, 12(7), 273–280. doi:10.1016/j.tics.2008.04.002
  • Jason, L. A., Porter, N., Hunnell, J., Brown, A., Rademaker, A. W., & Richman, J. A. (2011). A natural history study of chronic fatigue syndrome. Rehabilitation Psychology, 56(1), 32–42. doi:10.1037/a0022595
  • Jason, L. A., Brown, M., Brown, A., Evans, M., Flores, S., Grant-Holler, E., & Sunnquist, M. (2013). Energy conservation/envelope theory interventions. Fatigue: Biomedicine, Health & Behavior, 1(1–2), 27–42. doi:10.1080/21641846.2012.733602
  • Larson, E. (2004). The time of our lives: The experience of temporality in occupation. Canadian Journal of Occupational Therapy, 71(1), 24–35. doi:10.1177/000841740407100107
  • Larson, E., & Zemke, R. (2003). Shaping the temporal patterns of our lives: The social co-ordination of activity. Journal of Occupational Science, 10(2), 80–89. doi:10.1080/14427591.2003.9686514
  • Larun, L., & Malterud, K. (2011). Finding the right balance of physical activity: A focus group study about experiences among patients with chronic fatigue syndrome. Patient Education and Counselling, 83(2), 222–226. doi:10.1016/j.pec.2010.05.027
  • Levine, R. (2006). A geography of time: The temporal misadventure of a social psychologist. Oxford, UK: OneWorld.
  • Lewis, P., & Miall, C. (2006). Remembering the time: A continuous clock. Trends in Cognitive Sciences, 10(9), 401–406. doi:10.1016/j.tics.2006.07.006
  • Lynch, H. (2009). Patterns of activity of Irish children aged five to eight years: City living in Ireland today. Journal of Occupational Science, 16(1), 44–49. doi:10.1080/14427591.2009.9686641
  • MacHale, S., Cavanagh, J., Bennie, J., Carroll, S., Goodwin, G., & Lawrie, S. (1998). Diurnal variation of adrenocortical activity in chronic fatigue syndrome. Neuropsychobiology, 38, 213–217. doi:10.1159/000026543
  • Matuska, K., & Christiansen, C. (2009). A theoretical model of life balance and imbalance. In K. Matuska, C. Christiansen, H. Polatajko & J. Davis, Life balance: Multidisciplinary theories and research (pp. 149–164). Thorofare, NJ: Slack & AOTA Press.
  • McKenna, K., Broome, K., & Liddle, J. (2007). What older people do: Time use and exploring the link between role participation and life satisfaction in people aged 65 years and older. Australian Occupational Therapy Journal, 54(4), 273–284. doi:10.1111/j.1440-1630.2007.00642.x
  • Menzies, H. (2005). No time: Stress and the crisis of modern life. Vancouver, Canada: Douglas and McIntyre.
  • Meyer, A. (1977). The philosophy of occupational therapy. American Journal of Occupational Therapy (1977), 31(10), 639–642. Original work published 1922
  • Michiels, V., & Cluydts, R. (2001). Neuropsychological functioning in chronic fatigue syndrome: A review. Acta Psychiatrica Scandinavica, 103(2), 84–93. doi:10.1034/j.1600-0447.2001.00017.x
  • Nacul, L., Lacerda, E., Campion, P., Pheby, D., Dracher, M., Leite, J., … Molokhia, M. (2011). The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers. BMC Public Health, 11(402), 1–11. doi:10.1186/1471-2458-11-402
  • Nater, U., Youngblood, L., Jones, J., Unger, E., Miller, A., Reeves, … Heims, C. (2008). Alterations in diurnal salivary cortisol rhythm in a population-based sample of cases with chronic fatigue syndrome. Psychosomatic Medicine, 70(3), 298–305. doi:10.1097/PSY.0b013e3181651025
  • National Institute for Health and Care Excellence. (2007). Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): Diagnosis and management of CFS/ME in adults and children. NICE clinical guideline CG53. London, UK: Author.
  • Nayar, S. (2012). Grounded theory: A research methodolgy for occupational science. Journal of Occupational Science, 19(1), 76–82. doi:10.1080/14427591.2011.581626
  • Pemberton, S., & Cox, D. (2011). What happened to the time? The relationship of occupational therapy to time. British Journal of Occupational Therapy, 74(2), 78–85. doi:10.4276/030802211X12971689814043
  • Pemberton, S., Hatcher, S., Stanley, P., & House, A. (1994). Chronic fatigue syndrome: A way forward. British Journal of Occupational Therapy, 57(10), 381–383.
  • Persson, D., & Erlandsson, L-K. (2002). Time to reevaluate the machine society: Post-industrial ethics from an occupational perspective. Journal of Occupational Science, 9(2), 93–99. doi:10.1080/14427591.2002.9686497
  • Pierce, D. (2001). Untangling occupation and activity. American Journal of Occupational Therapy, 55(2), 138–146. doi:10.5014/ajot.55.2.138
  • Prasher, D., Smith, A., & Findley, L. (1990). Sensory and cognitive event-potentials in myalgic encephalomyelitis. Journal of Neurology, Neurosurgery, and Psychiatry, 53(3), 247–253. doi:10.1136/jnnp.53.3.247
  • Rahman, K., Burton, A., Galbraith, S., Lloyd, A., & Vollmer-Conna, U. (2011). Sleep-wake behavior in chronic fatige syndrome. Sleep, 34(5), 671–678.
  • Reid, D. (2008). Exploring the relationship between occupational presence, occupational engagement and people's well-being. Journal of Occupational Science, 15(1), 43–47. doi:10.1080/14427591.2008.9686606
  • Reid, D. (2011). Mindfulness and flow in occupational engagement: Presence in doing. Canadian Journal of Occupational Therapy, 78(1), 50–56. doi:10.2182/cjot.2011.78.1.7
  • Roberts, A., Wessely, S., Chalder, T., Papadopoulos, A., & Cleare, A. (2004). Salivary cortisol response to awakening in chronic fatigue syndrome. British Journal of Psychiatry, 184, 136–141. doi:10.1192/bjp.184.2.136
  • Roulston, K. (2010). Reflective interviewing: A guide to theory and practice. London, UK: Sage.
  • Sampalli, T., Berlasso, E., Fox, R., & Petter, M. (2009). A controlled study of the effect of a mindfulness-based stress reduction technique in women with multiple chemical sensitivity, chronic fatigue syndrome and fibromyalgia. Journal of Multidisciplinary Healthcare, 2, 53–59. 10.2147/JMDH.S5220
  • Sheldon, K. (2009). Defining and validating measures of life balance. In K. Matuska, C. Christiansen, H. Polatajko & J. Davis, Life balance: Multidisciplinary theories and research (pp. 61–72). Thorofare, NJ: Slack & AOTA Press.
  • Stanley, M., & Cheek, J. (2003). Grounded theory: Exploiting the potential for occupational therapy. British Journal of Occupational Therapy, 66(4), 143–150.
  • Stewart, P., & Craik, C. (2007). Occupation, mental illness and medium security: Exploring time-use in forensic regional secure units. British Journal of Occupational Therapy, 70(10), 416–425.
  • Swenson, T. (2000). Chronic fatigue syndrome. Journal of Rehabilitation, 66(1), 37–42.
  • Taylor, R. (2004). Quality of life and symptom severity for individuals with chronic fatgiue syndrome: Findings from a randomized clinical trial. American Journal of Occupational Therapy, 58(1), 35–43. doi:10.5014/ajot.58.1.35
  • Taylor, R. R., Kielhofner, G. W., Abelenda, J., Colantuono, K., Fong, T., Heredia, R. … Vazquez, E. (2003). An approach to persons with chronic fatigue syndrome based on the model of human occupation: Part one, impact on occupational performance and participation. Occupational Therapy in Health Care, 17(2), 47–61.
  • Van Cauwenbergh, D., De Kooning, M., Ickmans, K., & Nijs, J. (2012). How to exercise people with chronic fatigue syndrome: Evidence-based practice guidelines. European Journal of Clinical Investigation, 42(10), 1136–1144. doi:10.1111/j.1365-2362.2012.02701.x
  • Van den Eede, F., Moorkens, G., Van Houdenhove, B., Cosyns, P., & Claes, S. (2007). Hypothalamic-pituitary-adrenal axis function in chronic fatigue syndrome. Neuropsychobiology, 55(2), 112–120. doi:10.1159/000104468
  • Van Houdenhove, B., Bruyninckx, K., & Luyten, P. (2006). In search of a new balance. Can high ‘action-proneness’ in patients with chronic fatigue syndrome be changed by a multidisciplinary group treatment?Journal of Psychosomatic Research, 60(6), 623–625. doi:10.1016/j.jpsychores.2005.12.006
  • Van Houdenhove, B., Onghena, P., Neerinckx, E., & Hellin, J. (1995). Does high ‘action-proneness’ make people more vulnerable to chronic fatigue syndrome? A controlled psychometric test. Journal of Psychosomatic Research, 39(5), 633–640. doi:10.1016/0022-3999(95)00008-9
  • Wagman, P., Hakansson, C., & Bjorklund, A. (2012). Occupational balance as used in occupational therapy: A concept analysis. Scandinavian Journal of Occupational Therapy, 19(4), 322–327. doi:10.3109/11038128.2011.596219
  • Ware, N. (1993). Society, mind and body in chronic fatigue syndrome: An anthropological view. In G. Bock & J. Whelan, Ciba Foundation Symposium 173 Chronic Fatigue Syndrome (pp. 62–73). Chichester, UK: John Wiley & Sons. doi:10.1002/9780470514382.ch5
  • White, P. D., Goldsmith, K. A., Johnson, A. L., Potts, L., Walwyn, R., DeCesare, J. C. … Sharp, M. (2011). Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): A randomised trial. The Lancet, 377(9768), 823–836. doi:10.1016/S0140-6736(11)60096-2
  • Whiteford, G., Townsend, E., & Hocking, C. (2000). Reflections on a renaissance of occupation. Canadian Journal of Occupational Therapy, 67(1), 61–69. doi:10.1177/000841740006700109
  • Wyatt, J., Ritz-De Cecco, A., Czeisler, C., & Dijk, D. (1999). Circadian temperature and melatonin rhythms, sleep and neurobehavioral function in humans living on a 20-h day. American Journal of Physiology, 277(4), R1152–R1163.
  • Zemke, R. (2004). Time, space, and the kaleidoscopes of occupation. American Journal of Occupational Therapy, 58(6), 608–620. doi:10.5014/ajot.58.6.608

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.