References
- American Academy of Pediatrics (AAP), 2000. Serving the family from birth to the medical home. Newborn screening: a blueprint for the future. A call for a national agenda on state newborn screening programs, Pediatrics 106 (2) (2000), pp. 389–427.
- ACMG (American College of Medical Genetics), 2005. Newborn Screening: Toward a Uniform Screening Panel and System (2005), (Federal Register).
- Al-Jader, L. N., et al., 1990. Attitudes of parents of cystic fibrosis children towards neonatal screening and antenatal diagnosis, Clinical Genetics 38 (1990), pp. 460–5.
- Annas, G. J., 1982. Mandatory PKU screening: the other side of the looking glass, American Journal of Public Health 72 (1982), pp. 137–60.
- Bates, B., 2003. Prenatal screening halves CF births, ObGyn News 38 (24) (2003), (Online), available from www.obgyn.net/ (accessed June 2005).
- Boland, C., and Thompson, N. L., 1990. Effect of newborn screening of cystic fibrosis on reported maternal behaviour, Archives of Disease in Childhood 65 (11) (1990), pp. 1240–4.
- Centers for Disease Control and Prevention, 2004. Newborn screening for cystic fibrosis: evaluation of benefits and risks and recommendations for state newborn screening programs, MMWR (2004), No. RR-13.
- Ciske, D. J., et al., 2001. Genetic counseling and neonatal screening for cystic fibrosis: an assessment of the communication process, Pediatrics 107 (4) (2001), pp. 699–706.
- Clayton, E. W., 1992a. Symposium: legal and ethical issues raised by human genome project, screening and treatment of newborns, Houston Law Review 29 (1992a), pp. 85–148.
- Clayton, E. W., 1992b. Issues in state newborn screening programs, Pediatrics 90 (1992b), pp. 641–6.
- Curtin, S., and Park, M., 1999. Trends in the attendant, place, and timing of the births, and in the use of obstetric interventions: United States, 1989–97, National Vital Statistics Report, Centers for Disease Control and Prevention 47 (27) (1999), pp. 1–12.
- Dankert-Roelse, J. T., et al., 1987. Effect of screening for cystic fibrosis on the influence of genetic counseling, Clinical Genetics 32 (1987), pp. 271–272.
- Downie, J., and Wildeman, S., 2001. Genetic and metabolic screening of newborns: must health care providers seek explicit parental consent?, Health Law Journal 9 (2001), pp. 61–100.
- Faden, R., et al., 1982. A survey to evaluate parental consent as public policy for neonatal screening, American Journal of Public Health 72 (1982), pp. 1347–52.
- GAO (General Accounting Office), 2003. Newborn Screening: Characteristics of State Programs. Washington, DC: United States General Accounting Office; 2003.
- Hiller, E., et al., 1997. Public participation in medical policy-making and the status of consumer autonomy: the example of newborn-screening programs in the United States, American Journal of Public Health 87 (8) (1997), pp. 1280–9.
- Hoff, T., and Hoyt, A., 2006. Practices and perceptions of long-term follow-up among state newborn screening programs, Pediatrics 117 (6) (2006), pp. 1922–9.
- Holtzman, N., et al., 1983. Effect of informed parental consent on mothers' knowledge of newborn screening, Pediatrics 72 (6) (1983), pp. 807–12.
- Knoppers, B. M., 1994. Newborn screening and informed consent, International Congress Series 1041 (1994), pp. 15–24.
- Lupton, D., 1995. The Imperative of Health: Public Health and the Regulated Body. London: Sage Publications; 1995.
- Mischler, E., et al., 1998. Cystic fibrosis newborn screening: impact on reproductive behavior and implications for genetic counseling, Pediatrics 102 (1) (1998), pp. 44–53.
- Nelkin, D., 1996. The social dynamics of genetic testing: the case of fragile X, Medical Anthropology Quarterly 10 (1996), pp. 537–50.
- Norton, J. P., 1906. The economic advisability of inaugurating a national organization of health, Journal of the American Medical Association XLVII (2) (1906).
- Rosner, J., 2004. Lullabies for Sophia, Hastings Center Report 34 (6) (2004), pp. 20–1.
- Rothman, B. K., 1986. "The Tentative Pregnancy". New York: Viking; 1986.
- Shakespeare, T., 1995. Back to the future? New genetics and disabled people, Critical Social Policy (1995), pp. 22–35.
- Therell, B., 2001. U.S. newborn screening policy dilemmas for the twenty-first century, Molecular Genetics and Metabolism 74 (1–2) (2001), pp. 64–74.
- Tluczek, A., et al., 1992. Parents' knowledge of neonatal screening and response to false-positive cystic fibrosis testing, Journal of Developmental and Behavioral Pediatrics 13 (3) (1992), pp. 181–6.
- Waisbren, S. E., et al., 2003. Effect of expanded newborn screening for biochemical genetic disorders on child outcomes and parental stress, American Medical Association 290 (19) (2003), pp. 2564–74.
- Wertz, D. C., et al., 1992. Attitudes toward the prenatal diagnosis of cystic fibrosis: factors in decision making among affected families, American Journal of Human Genetics 50 (1992), pp. 1077–85.
- Wright, L., et al., 1992. Newborn screening: the miracle and the challenge, Journal of Pediatric Nursing 7 (1992), pp. 26–42.