Advanced search
Publication Cover
New Genetics and Society
Critical Studies of Contemporary Biosciences
Volume 25, 2006 - Issue 3
Submit an article Journal homepage
300
Views
6
CrossRef citations to date
0
Altmetric
Original Articles

Research scientists surveyed on ethical issues in genetic medicine: a comparison of attitudes of US and European researchers

Isaac RabinoBiological & Health Sciences, Empire State College, State University of New York, USA
Pages 325-342 | Published online: 22 Jan 2007

References

  • American Society of Human Genetics (ASHG), 2000. Statement on gene therapy, American Journal of Human Genetics 67 (2000), pp. 272–3.
  • Andrews, L., et al., 1994. Assessing Genetic Risks: Implications for Health and Social Policy. Washington, DC: National Academy Press; 1994.
  • Beauchamp, T., and Childress, J., 2001. Principles of Biomedical Ethics. Oxford: Oxford University Press; 2001.
  • Council of Europe, 1992. Recommendation on genetic testing and screening for health care Purposes, International Digest of Health Legislation 43 (1992), p. 284.
  • Eurobarometer, 1990–2002. "Social values, science & technology". European Commission; 1990–2002.
  • Deutsche Welle-World, 2004. European court rules against fetus rights, (2004), available at website <www.dw-world.de>.
  • Frankel, M., and Chapman, A., 2000. Human Inheritable Genetic Modifications: Assessing Scientific, Ethical, Religious, and Policy Issues. Washington, DC: American Association for the Advancement of Science (A. A. A. S.)); 2000.
  • Hercz, R., 1998. The gene machine, Canadian Business (1998), pp. 60–4.
  • Holtzman, N., 1989. Proceed with Caution: Predicting Genetic Risks in the Recombinant DNA Era. Baltimore, MD: Johns Hopkins University Press; 1989.
  • Kolata, G., 1997. Advent of testing for breast cancer leads to fears of disclosure and discrimination, The New York Times (1997), pp. C1–3.
  • Kolata, G., 1998. Genetic testing falls short of public embrace, The New York Times (1998), p. A16.
  • Leiden, J. M., 1999. Gene therapy enters adolescence, Science 285 (1999), pp. 1215–16.
  • Lemke, T., 2004. Disposition and determinism—genetic diagnostics in a risk society, The Sociological Review 52 (2004), pp. 550–66.
  • Lemonick, M., 1999. Designer babies, Time (1999), pp. 64–6.
  • Lewin, T., 2000. Boom in gene testing raises questions of sharing results, The New York Times (2000), p. A1.
  • Martindale, D., 2001. Pink slip in your genes, Scientific American (2001), pp. 19–20.
  • McAbee, G., Sherman, J., and Davidoff-Feldman, B., 1998. Physician's duty to warn third parties about the risk of genetic diseases, Pediatrics (1998), pp. 140–2.
  • Milewa, T., 1999. Public opinion and regulation of the new human genetics: a critical review, (1999), available on Public Health Genetics Unit website <www.phgu.org>.
  • National Center for Genome Resources (NCGR), 1998. National survey of public and stakeholders attitudes and awareness of genetic issues, Genetics & Public Issues Program report. Santa Fe, New Mexico. 1998.
  • National Human Genome Research Institute (NHGRI), 1997. "Ethical, legal, and social implications of the Human Genome Project, Office of Communications, NHGRI". Bethesda, Maryland. 1997.
  • Nussbaum, M., 2004. Genética e justiça: tratando a doença, Impulso: Revista a Ciéncias Sociais a Humanas 15 (2004), pp. 25–34.
  • Pollack, A., 1998. Gene therapy's focus shifts from rare illnesses, The New York Times (1998), p. F1.
  • Rabino, I., 1993. How European and US genetic engineering scientists view the impact of public attention on their field: a comparison, Science, Technology, and Human Values 19 (1993), pp. 23–46.
  • Rabino, I., 2004. Survey report: stem cell and cloning controversies, Genetic Engineering News 24 (2004), pp. 4–6.
  • Rabino, I., 2005. Survey of European scientists on ethics of scientific advancements: Germans more guarded vis-à-vis human genetics, Genetic Engineering News (2005), pp. 6–12.
  • Rosenberg, L. E., and Schechter, A., 2000. Gene therapist, heal thyself, Science 287 (2000), p. 1751.
  • Singer, E., Corning, A., and Lamias, M., 1998. Trends: genetic testing, engineering, and therapy: awareness and attitudes, Public Opinion Quarterly (1998), pp. 633–64, winter.
  • Singer, E., Van Hoewyk, J., and Antonucci, T., 2005. US attitudes toward genetic testing, 1990–2000, International Journal of Public Opinion Research (2005), pp. 111–25, spring.
  • Tancredi, L., 1994. "Collection and disclosure of genetic information". In: Frankel, M., and Teich, A., eds. The Genetic Frontier: Ethics, Law, and Policy. Washington, DC: AAAS; 1994. pp. 47–51.
  • Trussell, N., and Lavrakas, P., 2004. The influence of incremental increases in token cash incentives on mail survey response, Public Opinion Quarterly (2004), pp. 349–67, fall.
  • Wade, N., 1999. Gene therapy passes important test, in monkeys, The New York Times (1999), p. F1.
  • Wertz, D., and Fletcher, J., Unpublished observation. Ethics and genetics: an international survey, (Unpublished observation), 1995.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.