The UK’s 100,000 Genomes Project: manifesting policymakers’ expectations

References

• Borup, M., N. Brown, K. Konrad, and H. Van Lente. 2006. “The Sociology of Expectations in Science and Technology.” Technology Analysis & Strategic Management 18 (3): 285–298. doi: 10.1080/09537320600777002
   Web of Science ®Google Scholar
• Brown, N., and M. Michael. 2003. “A Sociology of Expectations: Retrospecting Prospects and Prospecting Retrospects.” Technology Analysis & Strategic Management 15 (1): 3–18. doi: 10.1080/0953732032000046024
   Web of Science ®Google Scholar
• Bubela, T., and T. Caulfield. 2004. “Do the Print media “Hype” Genetic Research? A Comparison of Newspaper Stories and Peer-Reviewed Research Papers.” Canadian Medical Association Journal 170 (9): 1399–1407. doi: 10.1503/cmaj.1030762
   PubMed Web of Science ®Google Scholar
• Charmaz, K. 2006. Grounded Theory: A Practical Guide Through Qualitative Analysis. London: SAGE.
   Google Scholar
• Day, S., R. C. Coombes, L. McGrath-Lone, C. Schoenborn, and H. Ward. 2016. “Stratified, Precision or Personalised Medicine? Cancer Services in the “Real World” of a London Hospital.” Sociology of Health & Illness. doi:10.1111/1467-9566.12457.
   PubMed Web of Science ®Google Scholar
• Department of Health. 2003. “Our Inheritance, Our Future – Realising the potential of genetics in the NHS.”
   Google Scholar
• Fitzgerald, J. 1998. “Geneticizing Disability: The Human Genome Project and the Commodification of Self.” Issues in Law & Medicine 14 (2): 147–163.
   PubMed Web of Science ®Google Scholar
• Fortun, M. 2001. “Mediated Speculations in the Genomics Futures Markets.” New Genetics and Society 20: 139–156. doi: 10.1080/14636770124557
   Web of Science ®Google Scholar
• Fortun, M. 2005. “For an Ethics of Promising, or: a few Kind Words About James Watson.” New Genetics and Society 24 (2): 157–174. doi:10.1080/14636770500184792.
   PubMed Web of Science ®Google Scholar
• Fortun, M. 2008. Promising Genomics: Iceland and deCODE Genetics in a World of Speculation. Berkeley: University of California Press.
   Google Scholar
• Gilbert, F., and M. Mulkay. 1984. Opening Pandora’s Box: a Sociological Analysis of Scientists’ Discourse. Cambridge: Cambridge University Press.
   Google Scholar
• Gov.uk. 2012. “DNA tests to revolutionise fight against cancer and help 100,000 NHS patients.” https://www.gov.uk/government/news/dna-tests-to-revolutionise-fight-against-cancer-and-help-100000-nhs-patients.
   Google Scholar
• Hedgecoe, A., and P. Martin. 2003. “The Drugs Don’t Work: Expectations and the Shaping of Pharmacogenetics.” Social Studies of Science 33 (3): 327–364. doi: 10.1177/03063127030333002
   PubMed Web of Science ®Google Scholar
• Henderson, L., and J. Kitzinger. 2007. “Orchestrating a Science “Event”: the Case of the Human Genome Project.” New Genetics and Society 26 (1): 65–83. doi: 10.1080/14636770701218175
   Web of Science ®Google Scholar
• Hilgartner, S. 2015. “Capturing the Imaginary: Vanguards, Visions and the Synthetic Biology Revolution.” In Science and Democracy: Making Knowledge and Making Power in the Biosciences, edited by S. Hilgartner, C. Miller and R. Hagendijk, 33–55. New York, NY: Routledge.
   Google Scholar
• Human Genomics Strategy Group. 2012. “Building on our inheritance: genomic technology in healthcare.”
   Google Scholar
• Joyner, M. J., N. Paneth, and J. P. Ioannidis. 2016. “What Happens When Underperforming Big Ideas in Research Become Entrenched?” JAMA. doi: 10.1001/jama.2016.11076
   Web of Science ®Google Scholar
• Kukk, P., E. H. M. Moors, and M. P. Hekkert. 2016. “Institutional Power Play in Innovation Systems: The Case of Herceptin®.” Research Policy 45: 1558–1569. doi: 10.1016/j.respol.2016.01.016
   Web of Science ®Google Scholar
• Lazaridis, K. N., T. M. McAllister, D. Babovic-Vuksanovic, S. A. Beck, M. J. Borad, A. H. Bryce, A. A. Chanan-Khan, et al. 2014. “Implementing Individualized Medicine Into the Medical Practice.” American Journal of Medical Genetics Part C: Seminars in Medical Genetics 166C (1): 15–23. doi:10.1002/ajmg.c.31387.
   PubMedGoogle Scholar
• Manolio, T. A., R. Ward, and G. S. Ginsburg. 2016. “Clinical Implementation of Genomic Medicine: The Importance of Global Collaboration.” Expert Review of Precision Medicine and Drug Development 1 (4): 349–351. doi:10.1080/23808993.2016.1192460.
   Web of Science ®Google Scholar
• May, C., and T. Finch. 2009. “Implementing, Embedding, and Integrating Practices: An Outline of Normalization Process Theory.” Sociology 43 (3): 535–554. doi: 10.1177/0038038509103208
   Google Scholar
• Michael, M. 2000. “Futures of the Present: From Performativity to Prehension.” In Contested Futures: A Sociology of Prospective Science and Technology, edited by N. Brown, B. Rappert and A. Webster, 21–42. Burlington: Aldershot.
   Google Scholar
• Monitor Deloitte. 2015. Genomics in the UK. An industry study for the Office of Life Sciences.
   Google Scholar
• Nelkin, D. 1995. Selling Science: How the Press Covers Science and Technology. New York: Freeman.
   Google Scholar
• Nerlich, B., R. Dingwall, and D. D. Clarke. 2002. “The Book of Life: how the Completion of the Human Genome Project was Revealed to the Public.” Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 6 (4): 445–469. doi: 10.1177/136345930200600403
   Web of Science ®Google Scholar
• NHS England. 2014. “NHS set to deliver world-leading genomics project in fight against cancer and rare diseases.” https://www.england.nhs.uk/2014/12/genomics-project/.
   Google Scholar
• Peters, D. H., T. Adam, O. Alonge, I. A. Agyepong, and N. Tran. 2013. “Implementation Research: What it is and how to do it.” BMJ 347: f6753. doi:10.1136/bmj.f6753 doi: 10.1136/bmj.f7086
   PubMed Web of Science ®Google Scholar
• Petersen, A. 2001. “Biofantasies: Genetics and Medicine in the Print News media.” Social Science & Medicine 52 (8): 1255–1268. doi: 10.1016/S0277-9536(00)00229-X
   PubMed Web of Science ®Google Scholar
• Petersen, A., and I. Krisjansen. 2015. “Assembling “The Bioeconomy”: Exploiting the Power of the Promissory Life Sciences.” Journal of Sociology 51 (1): 28–46. doi: 10.1177/1440783314562314
   Web of Science ®Google Scholar
• Rogers, E. M. 2003. Diffusion of Innovations. New York: Free Press.
   Google Scholar
• Rose, N. 2001. “The Politics of Life Itself.” Theory, Culture and Society 18 (6): 1–30. doi: 10.1177/02632760122052020
   Web of Science ®Google Scholar
• Strauss, A. L. 1987. Qualitative Analysis for Social Scientists. Cambridge: Cambridge University Press.
   Google Scholar
• The National Academies of Sciences, Engineering, and Medicine. 2016. Applying an Implementation Science Approach to Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press.
   Google Scholar
• Thompson, C. 2005. Making Parents. The Ontological Choreography of Reproductive Technologies. Cambridge, MA: The MIT Press.
   Google Scholar
• van Lente, H. 1993. Promising Technology: the Dynamics of Expectations in Technological Developments. Amsterdam: Proefschrift.
   Google Scholar
• Waldby, C. 2002. “Stem Cells, Tissue Cultures and the Production of Biovalue.” Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 6 (3): 305–323. doi: 10.1177/136345930200600304
   Web of Science ®Google Scholar
• Williams, M. S. 2014. “Genomic Medicine Implementation: Learning by Example.” American Journal of Medical Genetics Part C: Seminars in Medical Genetics 166C (1): 8–14. doi:10.1002/ajmg.c.31394.
   PubMedGoogle Scholar
• Zurr, I., and O. Catts. 2005. “Big Pigs, Small Wings: On Genohype and Artistic Autonomy.” Culture Machine 7. https://www.culturemachine.net/index.php/cm/rt/printerFriendly/30/37.
   Google Scholar