Ethnic and demographic variation in consenting for research in the context of fertility treatment

References

• Charlton, J., Rudisill, C., Bhattarai, N., & Gulliford, M. (2013). Impact of deprivation on occurrence, outcomes and health care costs of people with multiple morbidity. Journal of Health Services Research & Policy, 18(4), 215–223. https://doi.org/10.1177/1355819613493772
   PubMed Web of Science ®Google Scholar
• Choudhary, M., Haimes, E., Herbert, M., Stojkovic, M., & Murdoch, A. P. (2004). Demographic, medical and treatment characteristics associated with couples' decisions to donate fresh spare embryos for research. Human Reproduction (Oxford, England), 19(9), 2091–2096. https://doi.org/10.1093/humrep/deh401
   PubMed Web of Science ®Google Scholar
• Collins, S. C., & Chan, E. (2017). Sociocultural determinants of US women's ethical views on various fertility treatments. Reproductive Biomedicine Online, 35(6), 669–677. https://doi.org/10.1016/j.rbmo.2017.08.015
   PubMed Web of Science ®Google Scholar
• Department of Health (UK). (2009). Tackling health inequalities: 10 years on a review of developments in tackling health inequalities in England over the last 10 years. Department of Health. https://dera.ioe.ac.uk/11036/
   Google Scholar
• Foster, H. M. E., Celis-Morales, C. A., Nicholl, B. I., Petermann-Rocha, F., Pell, J. P., Gill, J. M. R., O'Donnell, C. A., & Mair, F. S. (2018). The effect of socioeconomic deprivation on the association between an extended measurement of unhealthy lifestyle factors and health outcomes: a prospective analysis of the UK Biobank cohort. The Lancet Public Health, 3(12), e576–e585. https://doi.org/10.1016/S2468-2667(18)30200-7
   PubMed Web of Science ®Google Scholar
• Fujimoto, V. Y., Luke, B., Brown, M. B., Jain, T., Armstrong, A., Grainger, D. A., & Hornstein, M. D, Society for Assisted Reproductive Technology Writing Group (2010). Racial and ethnic disparities in assisted reproductive technology outcomes in the United States. Fertility and Sterility, 93(2), 382–390. https://doi.org/10.1016/j.fertnstert.2008.10.061
   PubMed Web of Science ®Google Scholar
• Gerhard, R. S., Ritenour, C. W. M., Goodman, M., Vashi, D., & Hsiao, W. (2014). Awareness of and attitudes towards infertility and its treatment: A cross-sectional survey of men in a United States primary care population. Asian Journal of Andrology, 16(6), 858–863. https://doi.org/10.4103/1008-682X.132782
   PubMed Web of Science ®Google Scholar
• Harding, S., & Balarajan, R. (2000). Limiting long-term illness among black Caribbeans, black Africans, Indians, Pakistanis, Bangladeshis and Chinese born in the UK. Ethnicity & Health, 5(1), 41–46. https://doi.org/10.1080/13557850050007338
   PubMed Web of Science ®Google Scholar
• Human Fertilisation & Embryology Authority. (2017). Human Fertilisation & Embryology Authority Fertility treatment 2017: Trends and figures. Human Fertilisation & Embryology Authority (UK). https://www.hfea.gov.uk/media/2894/fertility-treatment-2017-trends-and-figures-may-2019.pdf
   Google Scholar
• Hussain-Gambles, M., Atkin, K., & Leese, B. (2004). Why ethnic minority groups are under-represented in clinical trials: a review of the literature. Health & Social Care in the Community, 12(5), 382–388. https://doi.org/10.1111/j.1365-2524.2004.00507.x
   PubMed Web of Science ®Google Scholar
• Jain, T., & Missmer, S. A. (2008). Support for embryonic stem cell research among infertility patients. Fertility and Sterility, 90(3), 506–512. https://doi.org/10.1016/j.fertnstert.2007.07.1311
   PubMed Web of Science ®Google Scholar
• Johnstone, E., Sandler, J. R., Addauan-Andersen, C., Sohn, S. H., & Fujimoto, V. Y. (2010). Asian women are less likely to express interest in infertility research. Fertility and Sterility, 94(4), 1249–1253. https://doi.org/10.1016/j.fertnstert.2009.08.011
   PubMed Web of Science ®Google Scholar
• Karlsen, S., & Nazroo, J. Y. (2010). Religious and ethnic differences in health: evidence from the Health Surveys for England 1999 and 2004. Ethnicity & Health, 15(6), 549–568. https://doi.org/10.1080/13557858.2010.497204
   PubMed Web of Science ®Google Scholar
• Maalouf, W., Maalouf, W., Campbell, B., & Jayaprakasan, K. (2017). Effect of ethnicity on live birth rates after in vitro fertilisation/intracytoplasmic sperm injection treatment: analysis of UK national database. BJOG: An International Journal of Obstetrics and Gynaecology, 124(6), 904–910. https://doi.org/10.1111/1471-0528.14241
   PubMed Web of Science ®Google Scholar
• Marmot, M., Ryff, C. D., Bumpass, L. L., Shipley, M., & Marks, N. F. (1997). Social inequalities in health: Next questions and converging evidence. Social Science & Medicine (1982), 44(6), 901–910. https://doi.org/10.1016/S0277-9536(96)00194-3
   PubMed Web of Science ®Google Scholar
• Piette, C., de Mouzon, J., Bachelot, A., & Spira, A. (1990). In-vitro fertilization: Influence of women's age on pregnancy rates. Human Reproduction (Oxford, England), 5(1), 56–59. https://doi.org/10.1093/oxfordjournals.humrep.a137041
   PubMed Web of Science ®Google Scholar
• Purcell, K., Schembri, M., Frazier, L. M., Rall, M. J., Shen, S., Croughan, M., Grainger, D. A., & Fujimoto, V. Y. (2007). Asian ethnicity is associated with reduced pregnancy outcomes after assisted reproductive technology. Fertility and Sterility, 87(2), 297–302. https://doi.org/10.1016/j.fertnstert.2006.06.031
   PubMed Web of Science ®Google Scholar
• Quay, T. A. W., Frimer, L., Janssen, P. A., & Lamers, Y. (2017). Barriers and facilitators to recruitment of South Asians to health research: A scoping review. BMJ Open, 7(5), e014889. https://doi.org/10.1136/bmjopen-2016-014889
   PubMed Web of Science ®Google Scholar
• Richardson, A. L., Baskind, N. E., Karuppusami, R., & Balen, A. H. (2020). Effect of deprivation on in vitro fertilisation outcome: A cohort study. BJOG: An International Journal of Obstetrics & Gynaecology, 127(4), 458–465. https://doi.org/10.1111/1471-0528.16012
   PubMed Web of Science ®Google Scholar
• Sharma, H., Johnstone, E. B., Gates, E., Sohn, S. H., Huddleston, H. G., & Fujimoto, V. Y. (2011). Asian immigrants to the United States are less likely to donate cryopreserved embryos for research use. Fertility and Sterility, 95(5), 1672–1676. https://doi.org/10.1016/j.fertnstert.2011.01.123
   PubMed Web of Science ®Google Scholar
• Shreffler, K. M., Johnson, D. R., & Scheuble, L. K. (2010). Ethical problems with infertility treatments: Attitudes and explanations. The Social Science Journal, 47(4), 731–746. https://doi.org/10.1016/j.soscij.2010.07.012
   PubMed Web of Science ®Google Scholar
• Stirbu, I., Kunst, A. E., Mielck, A., & Mackenbach, J. P. (2011). Inequalities in utilisation of general practitioner and specialist services in 9 European countries. BMC Health Services Research, 11, 288. https://doi.org/10.1186/1472-6963-11-288
   PubMed Web of Science ®Google Scholar
• Tan, T. Y., Lau, S. K., Loh, S. F., & Tan, H. H. (2014). Female ageing and reproductive outcome in assisted reproduction cycles. Singapore Medical Journal, 55(6), 305–309. https://doi.org/10.11622/smedj.2014081
   PubMed Web of Science ®Google Scholar
• van Doorslaer, E., Masseria, C., & Koolman, X, OECD Health Equity Research Group. (2006). Inequalities in access to medical care by income in developed countries. CMAJ: Canadian Medical Association Journal = Journal de l'Association Medicale Canadienne, 174(2), 177–183. https://doi.org/10.1503/cmaj.050584
   PubMed Web of Science ®Google Scholar