Publication Cover
Human Fertility
an international, multidisciplinary journal dedicated to furthering research and promoting good practice
Volume 26, 2023 - Issue 5
160
Views
1
CrossRef citations to date
0
Altmetric
Review Articles

Lessons from 10 years’ experience running the Fiom KID-DNA database, a voluntary DNA-linking register for donor-conceived people and donors in The Netherlands

, &
Pages 1164-1172 | Received 09 Feb 2022, Accepted 23 May 2022, Published online: 13 Nov 2022

References

  • Allan, S. (2017). Donor conception and the search for information: from secrecy and anonymity to openness. Routledge.
  • BADOK II-study. (2020). Ontmoeting tussen donor en donorkind; wat zijn de behoeftes aan ondersteuning en een ethische beschouwing (Meeting between donor and donor-conceived person; what are the needs for support and an ethical consideration). ZONMWProjectnumber 854020001. https://www.zonmw.nl/nl/onderzoek-resultaten/kwaliteit-van-zorg/programmas/project-detail/ethiek-en-gezondheid-3/ontmoeting-tussen-donor-en-donorkind-wat-zijn-de-behoeftes-aan-ondersteuning-en-een-ethische-bescho/verslagen/
  • Blyth, E., & Frith, L. (2015). Access to genetic and biographical history in donor conception: An analysis of recent trend and future possibilities. In K. Horsey (Ed.), Revisiting the regulation of human fertilisation and embryology (pp 136–152). Routledge.
  • Boffey, D. (2022). Netherlands fertility doctor used own sperm to father 21 children. The Guardian. https://www.theguardian.com/world/2022/feb/02/netherlands-fertility-doctor-jos-beek-father-21-children
  • Bolt, S., Postema, D., van der Heij, A., & Maas, A. (2021). Anonymous Dutch sperm donors releasing their identity. Human Fertility, 24(1), 24–30. https://doi.org/10.1080/14647273.2018.1564156
  • CBO, Centraal Begeleidingsorgaan voor de Intercollegiale Toetsing (Central Guidance Body for Peer review) (1992). Advies medisch technische aspekten van kunstmatige donorinseminatie(Advice on medical technical aspects of artificial donor insemination). CBO.
  • Crawshaw, M. (2018). Direct-to-consumer DNA testing: The fallout for individuals and their families unexpectedly learning of their donor conception origins. Human Fertility, 21(4), 225–228. https://doi.org/10.1080/14647273.2017.1339127
  • Crawshaw, M., Daniels, K., Adams, D., Bourne, K., van Hooff, J. A. P., Kramer, W., Pasch, L., & Thorn, P. (2016a). Emerging models for facilitating contact between people genetically related through donor conception: A preliminary analysis and discussion. Reproductive Biomedicine & Society Online, 1(2), 71–80. https://doi.org/10.1016/j.rbms.2015.10.001
  • Crawshaw, M., Frith, L., van den Akker, O., & Blyth, E. (2016b). Voluntary DNA-based information exchange and contact services following donor conception: An analysis of service users’ needs. New Genetics and Society, 35(4), 372–392. https://doi.org/10.1080/14636778.2016.1253462
  • Crawshaw, M., & Marshall, L. (2008). Practice experiences of running UK DonorLink, a voluntary information exchange register for adults related through donor conception. Human Fertility, 11(4), 231–237. https://doi.org/10.1080/14647270801908228
  • ESHRE Campus Course (2020). Moving on from individual connections to networks: New challenges in donor conception. https://www.focusonreproduction.eu/article/Blogs-Donor-conception
  • Harper, J. C., Kennett, D., & Reisel, D. (2016). The end of donor anonymity: How genetic testing is likely to drive anonymous gamete donation out of business. Human Reproduction (Oxford, England), 31(6), 1135–1140. https://doi.org/10.1093/humrep/dew065
  • Indekeu, A., Bolt, S., & Maas, A. (2021). Meeting multiple same-donor offspring: psychosocial challenges. Human Fertility, 2, 1–16. Advance online publication https://doi.org/10.1080/14647273.2021.1872804
  • Indekeu, A., Maas, A., McCormick, E., Benward, J., & Scheib, J. (2021). Factors associated with searching for people related through donor conception among donor-conceived people, parents and donors: A systematic review. F&S Reviews, 2(2), 93–119. https://doi.org/10.1016/j.xfnr.2021.01.003
  • Janssens, P. M. W., Simons, A. H. M., Van Kooij, R. J., Blokzijl, E., & Dunselman, G. A. J. (2006). A new Dutch Law regulating provision of identifying information of donors to offspring: Background, content and impact. Human Reproduction, 21(4), 852–856. https://doi.org/10.1093/humrep/dei407
  • Regalado, A. (2018). 2017 was the year consumer DNA testing blew up: More people took genetic ancestry tests last year than in all previous years combined. MIT Technology Review. https://www.technologyreview.com/s/610233/2017-was-theyear-consumer-dna-testing-blew-up/
  • Scheib, J. E., Ruby, A., & Benward, J. (2017). Who requests their sperm donor’s identity? The first ten years of information releases to adults with open-identity donors. Fertility and Sterility, 107(2), 483–493. https://doi.org/10.1016/j.fertnstert.2016.10.023
  • Schippers, E. (2017). Kamerbrief Actieplan ondersteuning donorkinderen. Ministerie van Volksgezondheid, Welzijn en Sport. https://www.rijksoverheid.nl/documenten/kamerstukken/2017/07/04/kamerbrief-over-actieplan-ondersteuning-donorkinderen
  • Visser, M., Mochtar, M. H., De Melker, A. A., Van Der Veen, F., Repping, S., & Gerrits, T. (2016). Psychosocial counselling of identifiable sperm donors. Human Reproduction (Oxford, England), 31(5), 1066–1074. https://doi.org/10.1093/humrep/dew037

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.