References
- Chalder T, Berelowitz G, Pawlikowska T et al. Development of a fatigue scale. J Psychosom Res 1993; 37: 147–153.
- Jenkinson C, Levvy G, Fitzpatrick R, Garratt A. The amyo- trophic lateral sclerosis assessment questionnaire (ALSAQ- 40): tests of data quality, score reliability and response rate in a survey of patients. J Neurol Sci 2000; 180: 194–200.
- Krivickas LS, Shockley L, Mitsumoto H. Home care of patients with amyotrophic lateral sclerosis (ALS). J Neurol Sci 1997; 152(Suppl 1): S82–S89.
- Manne SL, Taylor KL, Dougherty J, Kementy N. Supportive and negative responses in the partner relationship: their association with psychological adjustment among individu- als with cancer. J Behav Med 1997; 2: 101–125.
- Rabkin JG, Wagner GJ, Del Bene M. Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosom Med 2000; 62: 271–279.
- Woolley JM, Ringel S. Caregiver quality of life in ALS: rela- tionship between patient health status and caregiver health related quality of life, role satisfaction and workforce partici- pation [abstract]. In: Proceedings of the Eighth International Symposium on ALS and Motor Neuron Disease; 3–5 Nov 1997; Glasgow. p. 33.
- Zarit SH, Reever K, Bach-Peterson J. Relatives of the impaired elderly: correlates of feeling of burden. Gerontologist 1980; 20: 649–655.
- Consensus Guidelines for the Design and Implementation of Clinical Trials in ALS. 2nd Airlie House Workshop 1998. Subcommittee on Motor Neuron Disease of the World Fed- eration of Neurology Research Group on Neuromuscular Disease.