References
- Young JM, McNicoll P. Against all odds: The positive life experiences of people with advanced amyotrophic lateral sclerosis. Health and social Work 1998; 23(1): 35–43.
- Earll L, Johnston M, Mitchell E. Coping with motor neuron disease-an analysis using self-regulation theory. Palliative Medicine 1993; 7(Suppl 2): 21–30.
- McDonald ER, Wiedenfeld SA, Hillel A, Carpenter CL, Walter RA. Survival in amyotrophic lateral sclerosis. The role of psychological factors. Arch Neurol 1994; 51: 17–23.
- Ganzini L, Johnston WS, McFarland BH, Tolle SW, Lee MA. Attitudes of patients with amyotrophic lateral sclerosis and their care givers toward assisted suicide. N Engl J Med 1998; 339(14): 967–73.
- Ganzini L, Johnston WS, Hoffman WF. Correlates of suffer-ing in amyotrophic lateral sclerosis. Neurology 1999: 52(7); 1434–40.
- Brown WA, Mueller PS. Psychological function in individu-als with amyotrophic lateral sclerosis (ALS). Psychosom Med 1970; 32(2): 141–52.
- Houpt JL, Gould BS, Norris FH, Jr. Psychological character-istics of patients with amyotrophic lateral sclerosis (ALS). Psychosom Med 1977; 39(5): 299–303.
- Peters PK, Swenson MW, Mulder DW. Is there a characteris-tic personality profile in amyotrophic lateral sclerosis? Arch Neurol 1978;35:321–322.
- Montgomery GK, Erickson LM. Neuropsychological perspec-tives in amyotrophic lateral sclerosis. Neurol Clin 1987; 5(1): 61–81.
- Armon C, Kurland LT, Beard CM, O’Brien PC, Mulder DW. Psychologic and adaptational difficulties anteceding amy otrophic lateral sclerosis: Rochester, Minnesota, 1925-1987. Neuroepidemiology 1991; 10(3): 132–7.
- Brooks BR, Miller RG, Swash M, Munsat TL, Diseases. WFoNRGoMN. El Escorial revisited: revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotroph Lateral Sder Other Motor Neuron Disord 2000: 1(5): 293–9.
- The ALS CNTF Treatment Study (ACTS) Phase 1-11 study group. Arch Neurol 1996; 53: 141–147.
- Klauer T, Filipp SH. Trierer Skalen zur Krankheitsbewalti-gung (TSK)-Handanweisung. Gottingen:: Hogrefe: 1993.
- Steyer R. (Consistency and specificity: Definition of two central terms of differential psychology and a simple model for identification). Z Diff Diagn Pschol 1987; 8: 245–258.
- von Zerssen D. Klinische Selbstbeurteilungsskalen aus dem Miinchner Psychiatrischen Informationssystem: Paranoid-Depressivitatsskala, Depressivitatsskala-Manual. Weinheim: Belt Test Gesellschaft mbH: 1976.
- Ganzini L, Johnston WS, Siveira MJ. The final month of life in patients with ALS. Neurology 2002: 59: 428–431.
- Tedman BM, Young CA, Williams 1R. Assessment of depres-sion in patients with motor neuron disease and other neuro-logically disabling illness. J Neurol Sci 1997; 152(Suppl. 1): S75–S79.
- Moore MJ, Moore PB, Shaw PJ. Mood disturbances in motor neuron disease. J Neurol Sci 1998; 160(Suppl.l): S53–S56.
- Veldink JH, Wocke JHJ, van der Waal G, de Jong JMBV, van den Berg LH. Euthansia and physician-assisted suicide among patients with amyotrophic lateral sclerosis in the Netherlands. N Engl J Med 2002; 346: 1638–1644.
- Finger S. The family support group in the treatment of amy-otrophic lateral sclerosis. Neurol Clin 1987; 5(1): 83–100.
- Bocker FM, Seibold 1, Neundorfer B. Disability in everyday tasks and subjective status of patients with advanced amy-otrophic lateral sclerosis. Fortschr Neurol Psychiatr 1990: 58(6); 224–36.
- Muthny FA. Erfassung von Verarbeitungsprozessen mit dem Freiburger Fragebogen zur Krankheitsverarbeitung. Rehabili-tation 1996; 35:1X-XVI.
- Lee JN, Rigby SA, Burchardt F, Thornton EW, Dougan C, Young CA. Quality of life issues in motor neuron disease: the development and validation of a coping strategies ques-tionnaire, the MND coping scale. J Neurol Sci 2001; 191: 79–85.
- Rigby SA, Thornton EW, Tedman S, Burchardt F, Young CA, Dougan C. Quality of life assessment in MND: development of a Social Withdrawal Scale. J Neurol Sci 1999; 169: 26–34.
- Murphy PL, Albert SM, Weber CM, Del Bene ML, Rowland LP. Impact of spirituality and religiousness on outcomes in patients with ALS. Neurology 2000; 55: 1581–1584.
- Simmons Z, Bremer BA, Robbins RA, Walsh SM, Fischer S. Quality of life in ALS depends on factors other than strength and physical function. Neurology 2000; 55: 388–392.