References
- Miller RG, Rosenberg JA, Gelinas DF et al. Practice parameter: the care of the patient with amyotrophic lateral sclerosis (an evidence-based review): report of the Quality Standards Sub- committee of the American Academy of Neurology: ALS Practice Parameters Task Force. Neurology 1999; 52: 1311–1323.
- Doyle D, O’Connell S. Breaking bad news: starting palliative care. J R Soc Med 1996; 89: 590–591.
- Ley P. Communicating with patients: improving communication, satisfaction and compliance. London: Croom Helm, 1988.
- Chio` A. Update on ISIS survey: Europe, North America and South America. ALS 2000; 1 (Suppl 1): S19–S11.
- Borasio GD, Sloan R, Pongratz DE. Breaking the news in amyotrophic lateral sclerosis. J Neurol Sci 1998; 160 (Suppl 1): S127–S133.
- Report of the Japanese ALS Association. Prognosis of motor neuron disease in Japan. Tokyo: ALS Association, Tokyo, 1995.
- Tanida N. Patients’ right to know in Japan. Lancet 1991; 337: 242–243.
- Mitsumoto H, Chad DA, Pioro EP. Amyotrophic lateral sclerosis. Philadelphia: FA Davis Company, 1998.
- Thomsen OO, Wulff HR, Martin A, Singer PA. What do gastroenterologists in Europe tell cancer patients? Lancet 1993; 341: 473–476.
- Sanson-Fisher RW, Redman S, Walsh R, Mitchell K, Reid AL, Perkins JJ. Training medical practitioners in information transfer skills: the new challenge. Med Educ 1991; 25: 322–333.
- Buckman R. How to break bad news. London: Papermac, 1996.
- Montgomery K. Information is not enough: the place of statistics in the doctor-patient relationship. Cancer Treat Res 2000; 102: 13–21.
- Beisecker AE, Kuckelman Cobb A, Ziegler DW. Patients’ perspectives of the role of care providers in amyotrophic lateral sclerosis. Arch Neurol 1988; 45: 553–556.
- Bennett BM, Alison D. Discussing the diagnosis and prognosis with cancer patients. Postgrad Med J 1996; 72: 25–29.
- Albert SM, Murphy PL, Del Bene ML, Rowland LP. A prospective study of preferences and actual treatment choices in ALS. Neurology 1999; 53: 278–283.
- Chio` A, Silani V. Amyotrophic lateral sclerosis (ALS) patient care in Italy: a nationwide study in neurological centres. J Neurol Sci 2001; 191: 145–150.
- Borasio GD, Shaw PJ, Hardiman O et al., for the European ALS Study Group. Standards of palliative care for patients with amyotrophic lateral sclerosis: results of a European Survey. ALS 2001; 2: 159–164.
- Ptacek JT, Eberhardt TL. Breaking bad news: a review of the literature. JAMA 1996; 276: 496–502.
- Brewin TB. Three ways of giving bad news. Lancet 1991; 337: 1207–1209.
- Johnston M, Earll L, Mitchell E, Morrison V, Wright S. Communicating the diagnosis of motor neuron disease. Palliat Med 1996; 10: 23–34.
- Suls J, Fletcher B. The relative efficacy of avoidant and non- avoidant coping strategy: a meta-analysis. Health Psychology 1985; 4: 249–288.
- Jenkins V, Fallowfield L, Saul J. Information needs of patients with cancer: results from a large study in UK cancer patients. Br J Cancer 2001; 84: 48–51.
- Fallowfield L. Giving sad and bad news. Lancet 1993; 341: 476–478.
- Silani V, Borasio GD. Honesty and hopeannouncement of diagnosis in ALS. Neurology 1999; 53 (Suppl 4): S37–S39.
- Maguire P, Fairnburn S, Fletcher C. Consultation skills of young doctors. Br Med J 1986; 292: 1573–1578.
- Meininger V. Breaking bad news in amyotrophic lateral sclerosis. Palliative Medicine 1993; 7 (Suppl. 2): 37–40.
- Baile WF, Buckman R, Lenzi R, Glober G, Beale EA, Kudelka AP. SPIKES: a six-step protocol for delivering bad news: applica- tion to the patient with cancer. Oncologist 2000; 5: 302– 311.
- Gelinas BF. Patient and caregiver communications and decisions. Neurology 1997; 48 (Suppl 4): S9–S14.
- Earll L, Johnston M, Mitchell E. Coping with motor neuron disease: an analysis using a self-regulation theory. Palliat Med 1993; 7: 21–30.
- Baile WF, Beale EA. Giving bad news to cancer patients: match- ing process and content. J Clin Oncol 2001; 19: 2575–2577.
- Benson J, Britten N. Respecting the autonomy of cancer patients when talking with their families: qualitative analysis of semi- structured interviews with patients. Br Med J 1996; 313: 729–731.
- Buckman R. Communication skills in palliative care: a practical guide. Neurologic Clinics 2001; 19: 989–1004.
- Buis C, De Boo T, Hull R. Touch and breaking bad news. Fam Pract 1991; 8: 303–304.
- Maguire P. Barriers to psychological care of the dying. Br Med J 1985; 291: 1711–1713.
- Seale C. Communication and awareness about death: a study of a random sample of dying people. Soc Sci Med 1991; 32: 943–52.
- O’ Brien T, Kelly M, Saunders C. Motor neuron disease: a hospice perspective. Br Med J 1992; 304: 471–473.
- Neudert C, Oliver D, Wasner M, Borasio GD. The course of the terminal phase in patients with amyotrophic lateral sclerosis. J Neurol 2001; 248: 612–616.
- Simpson M, Buckman R, Stewart M et al. Doctor-patient communication: the Toronto consensus statement. Br Med J 1991; 303: 1385–1387.
- Garg A, Buckman R, Kason Y. Teaching medical students how to break bad news. CMAJ 1997; 156: 1159–1164.