Effect of non‐invasive ventilation on survival, quality of life, respiratory function and cognition: A review of the literature

References

• del Aguila M. A., Longstreth W. T., Jr., McGuire V., Koepsell T. D., van B. G. Prognosis in amyotrophic lateral sclerosis: a population‐based study. Neurology 2003; 60: 813–9
   PubMed Web of Science ®Google Scholar
• Chancellor A. M., Warlow C. P. Adult onset motor neuron disease: worldwide mortality, incidence and distribution since 1950. J Neurol Neurosurg Psychiatry 1992; 55: 1106–15
   PubMed Web of Science ®Google Scholar
• Haverkamp L. J., Appel V., Appel S. H. Natural history of amyotrophic lateral sclerosis in a database population. Validation of a scoring system and a model for survival prediction. Brain 1995; 118: 707–19
   PubMed Web of Science ®Google Scholar
• Hardiman O. Symptomatic treatment of respiratory and nutritional failure in amyotrophic lateral sclerosis. J Neurol 2000; 247: 245–51
   PubMed Web of Science ®Google Scholar
• Lyall R. A., Donaldson N., Fleming T., Wood C., Newsom‐Davis I., Polkey M. I., et al. A prospective study of quality of life in ALS patients treated with non‐invasive ventilation. Neurology 2001; 57: 153–6
   PubMed Web of Science ®Google Scholar
• Tandan R., Bradley W. G. Amyotrophic lateral sclerosis: Part 1. Clinical features, pathology, and ethical issues in management. Ann Neurol 1985; 18: 271–80
   PubMed Web of Science ®Google Scholar
• Miller R. G. Examining the evidence about treatment in ALS/MND. Amyotroph Lateral Scler Other Motor Neuron Disord 2001; 2: 3–7
   PubMed Web of Science ®Google Scholar
• Bradley W. G., Anderson F., Gowda N., Miller R. G. Changes in the management of ALS since the publication of the AAN ALS practice parameter 1999. Amyotroph Lateral Scler Other Motor Neuron Disord 2004; 5: 240–4
   PubMed Web of Science ®Google Scholar
• Bach J. R. Amyotrophic lateral sclerosis: prolongation of life by non‐invasive respiratory AIDS. Chest 2002; 122: 92–8
   PubMed Web of Science ®Google Scholar
• Buhr‐Schinner H., Laier‐Groeneveld G., Criee C. P. Amyotrophic lateral sclerosis and nasal mechanical ventilation. Med Klin (Munich) 1999; 94((1 Spec No))102–4
   PubMedGoogle Scholar
• David W. S., Bundlie S. R., Mahdavi Z. Polysomnographic studies in amyotrophic lateral sclerosis. J Neurol Sci 1997; 152((Suppl 1))S29–35
   Web of Science ®Google Scholar
• Kleopa K. A., Sherman M., Neal B., Romano G. J., Heiman‐Patterson T. Bipap improves survival and rate of pulmonary function decline in patients with ALS. J Neurol Sci 1999; 164: 82–8
   PubMed Web of Science ®Google Scholar
• Aboussouan L. S., Khan S. U., Meeker D. P., Stelmach K., Mitsumoto H. Effect of non‐invasive positive pressure ventilation on survival in amyotrophic lateral sclerosis. Ann Intern Med 1997; 127: 450–3
   PubMed Web of Science ®Google Scholar
• Aboussouan L. S., Khan S. U., Banerjee M., Arroliga A. C., Mitsumoto H. Objective measures of the efficacy of non‐invasive positive pressure ventilation in amyotrophic lateral sclerosis. Muscle Nerve 2001; 24: 403–9
   PubMed Web of Science ®Google Scholar
• Bourke S. C., Bullock R. E., Williams T. L., Shaw P. J., Gibson G. J. Non‐invasive ventilation in ALS: indications and effect on quality of life. Neurology 2003; 61: 171–7
   PubMed Web of Science ®Google Scholar
• Jackson C. E., Rosenfeld J., Moore D. H., Bryan W. W., Barohn R. J., Wrench M., et al. A preliminary evaluation of a prospective study of pulmonary function studies and symptoms of hypoventilation in ALS/MND patients. J Neurol Sci 2001; 191: 75–8
   PubMed Web of Science ®Google Scholar
• Newsom‐Davis I. C., Lyall R. A., Leigh P. N., Moxham J., Goldstein L. H. The effect of non‐invasive positive pressure ventilation (NIPPV) on cognitive function in amyotrophic lateral sclerosis (ALS): a prospective study. J Neurol Neurosurg Psychiatry 2001; 71: 482–7
   PubMed Web of Science ®Google Scholar
• Winterholler M. G., Erbguth F. J., Hecht M. J., Heuss D., Neundorfer B. Survival with artificial respiration at home. An open, prospective study on home ventilation for neuromuscular diseases, in particular the situation of ALS patients. Nervenarzt 2001; 72: 293–301
   PubMedGoogle Scholar
• Pinto A. C., Evangelista T., Carvalho M., Alves M. A., Sales Luis M. L. Respiratory assistance with a non‐invasive ventilator (Bipap) in MND/ALS patients: survival rates in a controlled trial. J Neurol Sci 1995; 129((Suppl))19–26
   PubMed Web of Science ®Google Scholar
• Albert S. M., Murphy P. L., Del Bene M. L., Rowland L. P. A prospective study of preferences and actual treatment choices in ALS. Neurology 1999; 53: 278–83
   PubMed Web of Science ®Google Scholar
• Borasio G. D., Voltz R. Discontinuation of mechanical ventilation in patients with amyotrophic lateral sclerosis. J Neurol 1998; 245: 717–22
   PubMed Web of Science ®Google Scholar
• Borasio G. D., Gelinas D. F., Yanagisawa N. Mechanical ventilation in amyotrophic lateral sclerosis: a cross‐cultural perspective. J Neurol 1998; 245((Suppl 2))S7–12
   PubMed Web of Science ®Google Scholar
• Cazzolli P. A., Oppenheimer E. A. Home mechanical ventilation for amyotrophic lateral sclerosis: nasal compared to tracheostomy‐intermittent positive pressure ventilation. J Neurol Sci 1996; 139((Suppl))123–8
   PubMed Web of Science ®Google Scholar
• Lechtzin N., Weiner C. M., Clawson L. A fatal complication of non‐invasive ventilation. N Engl J Med 2001; 344: 533
   PubMed Web of Science ®Google Scholar
• Mitsumoto H. Patient choices in ALS: life‐sustaining treatment versus palliative care?. Neurology 1999; 53: 248–9
   PubMed Web of Science ®Google Scholar
• Moss A. H., Casey P., Stocking C. B., Roos R. P., Brooks B. R., Siegler M. Home ventilation for amyotrophic lateral sclerosis patients: outcomes, costs, and patient, family, and physician attitudes. Neurology 1993; 43: 438–43
   PubMed Web of Science ®Google Scholar
• Oppenheimer E. A. Decision‐making in the respiratory care of amyotrophic lateral sclerosis: should home mechanical ventilation be used?. Palliat Med 1993; 7((Suppl 4))49–64
   PubMedGoogle Scholar
• Sivak E. D., Shefner J. M., Mitsumoto H., Taft J. M. The use of non‐invasive positive pressure ventilation (NIPPV) in ALS patients. A need for improved determination of intervention timing. Amyotroph Lateral Scler Other Motor Neuron Disord 2001; 2: 139–45
   PubMed Web of Science ®Google Scholar
• Miller R. G., Rosenberg J. A., Gelinas D. F., Mitsumoto H., Newman D., Sufit R., et al. Practice parameter: the care of the patient with amyotrophic lateral sclerosis (an evidence‐based review): report of the Quality Standards Subcommittee of the American Academy of Neurology: ALS Practice Parameters Task Force. Neurology 1999; 52: 1311–23
   PubMed Web of Science ®Google Scholar