3,375
Views
60
CrossRef citations to date
0
Altmetric
Articles

‘What about my voice’: emancipating the voices of children with disabilities through participant-centred methods

ORCID Icon
Pages 600-613 | Received 15 Aug 2016, Accepted 31 Jan 2017, Published online: 02 Mar 2017

References

  • Abbott, D. 2013. “Who Says What, Where, Why and How? Doing Real-world Research with Disabled Children, Young People and Family Member.” In Disabled Children’s Childhood Studies, edited by T. Curran and K. Ruswick-Cole, 39–56. Basingstoke: Palgrave MacMillian.
  • Abebe, T. 2009. “Multiple Methods, Complex Dilemmas: Negotiating Socio-ethical Spaces in Participatory Research with Disadvantaged Children.” Children’s Geographies 7 (4): 451–465. doi: 10.1080/14733280903234519
  • Beazley, H., S. Bessell, J. Ennew, and R. Waterson. 2009. “The Right to Be Properly Researched: Research with Children in a Messy, Real World.” Children’s Geographies 7 (4): 365–378. doi: 10.1080/14733280903234428
  • Beazley, H., and J. Ennew. 2006. “Participatory Methods and Approaches: Tackling the Two Tyrannies.” In Doing Development Research, edited by V. Desai and R. Potter, 189–199. London: Sage.
  • Bushin, N. 2007. “Interviewing with Children in Their Homes: Putting Ethical Principles into Practice and Developing Flexible Techniques.” Children’s Geographies 5 (3): 235–251. doi: 10.1080/14733280701445796
  • Campbell, F. K. 2009. Contours of Ableism: The Production of Disability and Ableness. London: Palgrave Macmillan.
  • Chouinard, V. 1997. “Making Space for Disabling Differences: Challenging Ablest Geographies.” Environment and Planning D: Society and Space 15: 379–387. doi: 10.1068/d150379
  • Christensen, P. M., and A. James, eds. 2008. Research with Children: Perspectives and Practices. 2nd ed. New York: Routledge.
  • Clark, A., S. McQuail, and P. Moss. 2003. Exploring the Field of Listening to and Consulting with Young Children. Thomas Coram Research Unit Research Report No 45. Accessed July 1, 2016. http://www.ness.bbk.ac.uk/support/GuidanceReports/documents/172.pdf
  • Cocks, A. 2008. “Researching the Lives of Disabled Children: The Process of Participant Observation in Seeking Inclusivity.” Qualitative Social Work 7 (2): 163–180. doi: 10.1177/1473325008089628
  • Convention on the Rights of Persons with Disabilities (United Nations). 2006. Accessed July 1, 2016. http://www2.ohchr.org/english/law/disabilities-convention.htm
  • Convention on the Rights of the Child (United Nations). 1989. Accessed July 1, 2016. http://www2.ohchr.org/english/law/crc.htm
  • Curran, T., and K. Runswick-Cole, eds. 2013. Disabled Children’s Childhood Studies: Critical Approaches in a Global Context. Basingstoke: Palgrave Macmillan.
  • Davis, J. M. 2004. “Disabled and Childhood: Deconstructing the Stereotypes.” In Disabling Barriers – Enabling Environments, edited by J. Swain, V. Finkelstein, S. French, and M. Oliver, 142–148. London: Sage.
  • Davis, J. M., and N. Watson. 2001. “Countering Stereotypes of Disability: Disabled Children and Resistance.” In Disability and Postmodernity: Embodying Disability Theory, edited by M. Corker and T. Shakespeare, 159–174. London: Continuum.
  • Davis, J., N. Watson, and S. Cunningham-Burley. 2008. “Disabled Children, Ethnography and Unspoken Understandings: The Collaborative Construction of Diverse Identities.” In Research with Children Perspectives and Practices, 2nd ed., edited by P. Christensen and A. James, 220–238. Abingdon: Routledge.
  • Egilson, S. T., and R. Traustadóttir. 2009. “Theoretical Perspectives and Childhood Participation.” Scandinavian Journal of Disability Research 11 (1): 51–63. doi: 10.1080/15017410802461970
  • Finlay, L. 2011. Phenomenology for Therapist: Researching the Lived World. Hoboken, NJ: John Wiley.
  • Fox, B. 1999. “Directions in Research: Language and the Body.” Research on Language and Social Interaction 32 (1–2): 51–59. doi: 10.1080/08351813.1999.9683607
  • Franklin, A., and P. Sloper. 2009. “Supporting the Participation of Disable and Young People in Decision-Making.” Children and Society 23 (1): 3–15. doi: 10.1111/j.1099-0860.2007.00131.x
  • Gilles, V., and Y. Robinson. 2012. “Developing Creative Research Methods with Challenging Pupils.” International Journal of Social Research Methodology 15 (2): 161–173. doi: 10.1080/13645579.2012.649407
  • Goodley, D., and K. Runswick-Cole. 2012. “Decolonizing Methodology: Disabled Children as Research Managers and Participant Ethnographers.” In Inclusive Communities: A Critical Reader, Studies in Inclusive Education Volume 16, edited by A. Azzopardi and S. Grech, 215–232. Rotterdam: Sense.
  • Graue, M. E., and D. J. Walsh. 1998. Studying Children in Context: Theories, Methods, and Ethics. Thousand Oaks, CA: Sage.
  • Greenstein, A. 2014. “Today’s Learning Objective Is to Have a Party: Playing Research with Students in a Secondary School Special Needs Unit.” Journal of Research in Special Educational Needs 14 (2): 71–81. doi:10.1111/1471-3802.12009 doi: 10.1111/1471-3802.12009
  • Holt, L. 2004. “The ‘Voices’ of Children: De-centring Empowering Research Relations.” Children’s Geographies 2 (1): 13–27. doi: 10.1080/1473328032000168732
  • Holt, L. 2007. “Children’s Sociospatial (Re)production of Disability Within Primary School Playgrounds.” Environment and Planning D: Society and Space 25: 783–802. doi: 10.1068/d73j
  • Holt, L. 2010. “Young People’s Embodied Social Capital and Performing Disability.” Children’s Geographies 8 (1): 25–37. doi: 10.1080/14733280903500158
  • Holt, L., and S. Holloway. 2006. “Editorial: Theorising other Childhoods in a Globalised World.” Children’s Geographies 4 (2): 135–142. doi: 10.1080/14733280600806817
  • Jacoby, S., and E. Ochs. 1995. “Co-construction: An Introduction.” Research on Language and Social Interaction 28 (3): 171–183. doi: 10.1207/s15327973rlsi2803_1
  • James, A. 1993. Childhood Identities: Self and Social Relationships in the Experience of the Child. Edinburgh: Edinburgh University Press.
  • James, A., C. Jenks, and A. Prout. 1998. Theorising Childhood. Cambridge: Polity Press.
  • Jones, O. 2008. “True Geography [ ] Quickly Forgotten, Giving Away to an Adult-imagined Universe. Approaching the Otherness of Childhood.” Children’s Geographies 6 (2): 195–212. doi: 10.1080/14733280801963193
  • Lewis, M. 2001. Learning to Listen: Consulting Children and Young People with Disabilities. London: Save the Children.
  • Mallett, R., and K. Runswick-Cole. 2014. Approaching Disability: Critical Issues and Perspectives. Abingdon: Routledge.
  • Malone, K. 2006. “United Nations: A Key Player.” In Creating Child Friendly Cities: Reinstating Kids in the City, edited by B. Gleeson and N. Sipe, 13–32. Oxon: Routledge.
  • Moore, S., L. Melchior, and J. M. Davis. 2008. “Me and the 5 P’s: Negotiating Rights-based Critical Disabilities Studies and Social Inclusion.” International Journal of Children’s Rights 16: 249–262. doi: 10.1163/157181808X301827
  • Morris, J. 2003. “Including All Children: Finding Out about the Experiences of Children with Communication and/or Cognitive Disabilities.” Children and Society 17: 337–348. doi: 10.1002/chi.754
  • Morris, J. 1993. “Pride Against Prejudice: Transforming Attitudes to Disability.” In Disabling Barriers – Enabling Environments, edited by J. Swain, V. Finkelstein, S. French, and M. Oliver, 101–106. London: Sage.
  • Ochs, E., and L. Capps. 2001. Living Narrative: Creating Lives in Everyday Storytelling. Cambridge: Harvard University Press.
  • Priestley, M. 1998. “Childhood Disability and Disabled Childhoods: Agendas for Research.” Childhood 5 (2): 207–223. doi: 10.1177/0907568298005002007
  • Prout, A.2001. “Representing Children: Reflection on the Children 5–16 Programme.” Children and Society 15: 193–201. doi: 10.1002/chi.667
  • Punch, S. 2007. “‘I Felt They Were Ganging Up on Me’: Interviewing Siblings at Home.” Children’s Geographies 5 (3): 219–234. doi: 10.1080/14733280701445770
  • Pyer, M., J. Horton, F. Tucker, S. Ryan, and P. Kraftl. 2010. “Editorial: Children, Young People and ‘Disability’: Challenging Children’s Geographies?” Children’s Geographies 8 (1): 1–8. doi: 10.1080/14733280903500059
  • Scully, J. 2008. “Disability and the Thinking Body.” In Arguing about Disability: Philosophical Perspectives, edited by K. Kristiansen, S. Vehmas, and T. Shakespeare, 57–73. Hoboken: Routledge.
  • Shakespeare, T. 2015. Disability Research Today: International Perspectives. New York: Routledge.
  • Sinclair, R. 2004. “Participation in Practice: Making it Meaningful, Effective and Sustainable.” Children and Society 18 (2): 106–118. doi: 10.1002/chi.817
  • Solomon-Rice, P., and G. Soto. 2010. “Co-construction as a Facilitative Factor in Supporting the Personal Narratives of Children Who Use Augmentative and Alternative Communication.” Communication Disorders Quarterly 32 (2): 70–82. doi: 10.1177/1525740109354776
  • Stafford, L. M. 2013. “The Journey of Becoming Involved: The Experience of Participation in Urban Spaces by Children with Diverse Mobility.” Unpublished doctoral diss., Queensland University of Technology, Brisbane, Australia.
  • Stalker, K., D. Abbott, B. Beresford, J. Carpenter, R. McConkey, and N. Watson. 2012. “Researching the Lives of Disabled Children and Young People.” Children and Society 26 (3): 173–180. doi: 10.1111/j.1099-0860.2012.00430.x
  • Stewart, D., and P. Shamdasani. 1990. Focus Groups: Theory and Practice. London: Sage.
  • Tisdall, E. K. M.2012. “The Challenge and Challenging of Childhood Studies? Learning from Disability Studies and Research with Disabled Children.” Children and Society 26 (3): 181–191. doi: 10.1111/j.1099-0860.2012.00431.x
  • Toombs, K., Lisa Sowle Cahill, Margaret A. Farley, Paul A. Komesaroff, Arthur W. Frank, and Lennard J. Davis. 1997. “Taking the Body Seriously.” Hastings Center Report 27 (5): 39–43. doi: 10.2307/3527804
  • Valentine, G., and T. Skelton. 2007. “Re-defining ‘Norms’: D/deaf Young People’s Transition to Independence.” The Sociological Review 55 (1): 104–123. doi: 10.1111/j.1467-954X.2007.00684.x
  • Watson, N. 2012. “Theorising the Lives of Disabled Children: How Can Disability Theory Help?” Children and Society 26 (3): 192–202. doi: 10.1111/j.1099-0860.2012.00432.x
  • Watson, N., T. Shakespeare, S. Cunningham-Burley, C. Barnes, M. Corker, J. Davis, and M. Priestley. 1999. Life as a Disabled Child: A Qualitative Study of Young People’s Experiences and Perspectives. University of Edinburgh, Department of Nursing Studies. Accessed July 1, 2016. http://pf7d7vi404s1dxh27mla5569.wpengine.netdna-cdn.com/files/2011/10/life-as-a-disabled-child-report.pdf.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.