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Articles

Children’s participation in research on sensitive topics: addressing concerns of decision-makers

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Pages 325-338 | Received 11 May 2018, Accepted 19 Jun 2019, Published online: 09 Jul 2019

References

  • Agbebiyi, A. 2013. “Tiers of Gatekeepers and Ethical Practice: Researching Adolescent Students and Sexually Explicit Online Material.” International Journal of Social Research Methodology 16 (6): 535–540. doi:10.1080/13645579.2013.823290.
  • Alexander, S., R. Pillay, and B. Smith. 2018. “A Systematic Review of the Experiences of Vulnerable People Participating in Research on Sensitive Topics.” International Journal of Nursing Studies 88: 85–96.
  • Australian Institute of Aboriginal and Torres Strait Islander Studies. 2012. Guidelines for Ethical Research in Australian Indigenous Studies. Available at: http://aiatsis.gov.au/sites/default/files/docs/research-andguides/ethics/GERAIS.pdf.
  • Bushin, N. 2007. “Interviewing with Children in Their Homes: Putting Ethical Principles Into Practice and Developing Flexible Techniques.” Children’s Geographies 5 (3): 235–251. doi:10.1080/14733280701445796.
  • Campbell, A. 2008. “For Their Own Good: Recruiting Children to Research.” Childhood 15 (1): 30–49. doi:10.1177/0907568207086834.
  • Carter, B. 2009. “Tick Box for Child? The Ethical Positioning of Children as Vulnerable, Researchers as Barbarians and Reviewers as Overly Cautious.” International Journal of Nursing Studies 46 (6): 858–864. doi:10.1016/j.ijnurstu.2009.01.003.
  • Collings, S., R. Grace, and G. Llewellyn. 2016. “Negotiating with Gatekeepers in Research with Disadvantaged Children: A Case Study of Children of Mothers with Intellectual Disability.” Children & Society 30 (6): 499–509. doi:10.1111/chso.12163.
  • Couch, J., B. Durant, and J. Hill. 2014. “Uncovering Marginalised Knowledges: Undertaking Research with Hard-to-Reach Young People.” International Journal of Multiple Research Approaches 8 (1): 15–23.
  • Cree, V., H. Kay, and K. Tisdall. 2002. “Research with Children: Sharing the Dilemmas.” Child and Family Social Work 7 (1): 47–56. doi:10.1046/j.1365-2206.2002.00223.x.
  • Crowhurst, I., and M. kennedy-macfoy. 2013. “Troubling Gatekeepers: Methodological Considerations for Social Research.” International Journal of Social Research Methodology 16 (6): 457–462. doi:10.1080/13645579.2013.823281.
  • Davis, J. 2009. “Involving Children.” In Researching with Children and Young People, edited by K. Tisdall, J. Davis, and M. Gallagher, 154–193. London: Sage Publications.
  • Gilbertson, R., and J. Barber. 2002. “Obstacles to Involving Children and Young People in Foster Care Research.” Child and Family Social Work 7 (4): 253–258. doi:10.1046/j.1365-2206.2002.00251.x.
  • Herring, J. 2013. “Forging a Relational Approach: Best Interests or Human Rights?” Medical Law International 13 (1): 32–54. doi:10.1177/0968533213486542.
  • Hildebrand, J., B. Maycock, J. Comfort, S. Burns, E. Adams, and P. Howat. 2015. “Ethical Considerations in Investigating Youth Alcohol Norms and Behaviours: A Case for Mature Minor Consent.” Health Promotion Journal of Australia 26 (3): 241–245. doi:10.1071/HE14101.
  • Hood, S., P. Kelley, and B. Mayall. 1996. “Children as Risky Subjects: A Risky Enterprise.” Children and Society 10: 117–128.
  • Isham, L., C. Bradbury-Jones, and A. Hewison. 2019. “Reflections on Engaging with an Advisory Network in the Context of a ‘Sensitive’ Research Study.” International Journal of Social Research Methodology 22 (1): 67–79. doi:10.1080/13645579.2018.1494971.
  • Jackson, Y., J. Gabrielli, A. Tunno, and E. Hambrick. 2012. “Strategies for Longitudinal Research with Youth in Foster Care: A Demonstration of Methods, Barriers, and Innovations.” Children and Youth Services Review 34 (7): 1208–1213. doi:10.1016/j.childyouth.2012.02.007.
  • Kennan, D., A. Fives, and J. Canavan. 2012. “Accessing a Hard to Reach Population: Reflections on Research with Young Carers in Ireland.” Child and Family Social Work 17 (3): 275–283. doi:10.1111/j.1365-2206.2011.00778.x.
  • kennedy-macfoy, m. 2013. “‘It’s Important for the Students to Meet Someone Like You.’ How Perceptions of the Researcher can Affect Gaining Access, Building Rapport and Securing Cooperation in School-Based Research.” International Journal of Social Research Methodology 16 (6): 491–502. doi:10.1080/13645579.2013.823294.
  • Lang, M. 2015. “Touchy Subject: A Foucauldian Analysis of Coaches’ Perceptions of Adult-Child Touch in Youth Swimming.” Sociology of Sport Journal 32: 4–21. doi.org/10.1123/ssj.2013-0083.
  • Lauwers, H., and G. Van Hove. 2010. “Supporting the Participation Rights of Children in a Sensitive Research Project: The Case of Young Road Traffic Victims.” International Journal of Children’s Rights 18: 335–354.
  • Lewis, R. 2009. “Recruiting Parents and Children Into a Research Project: A Qualitative Exploration of Families’ Decision-Making Processes.” International Journal of Social Research Methodology 12 (5): 405–419. doi:10.1080/13645570802289104.
  • Liamputtong, P. 2009. Qualitative Research Methods. Melbourne: Oxford University Press.
  • Melton, G., D. Gross-Manos, A. Ben-Arieh, and E. Yazykova. 2014. “The Nature and Scope of Child Research: Learning About Children’s Lives.” In The Sage Handbook of Child Research, edited by G. Melton, A. Ben-Arieh, J. Cashmore, G. Goodman, and N. Worley, 3–28. London: Sage Publications.
  • Moore, T., V. Saunders, and M. McArthur. 2011. “Championing Choice—Lessons Learned from Children and Young People About Research and Their Involvement.” Child Indicators Research 4 (2): 249–267. doi:10.1007/s12187-010-9083-1.
  • Munro, E. 2008. “Research Governance, Ethics and Access: A Case Study Illustrating the New Challenges Facing Social Researchers.” International Journal of Social Research Methodology 11 (5): 429–439. doi:10.1080/13645570701708600.
  • Munro, E., L. Holmes, and H. Ward. 2005. “Researching Vulnerable Groups: Ethical Issues and the Effective Conduct of Research in Local Authorities.” British Journal of Social Work 35: 1023–1038. doi:10.1093/bjsw/bch220.
  • Ney, T., J. Stoltz, and M. Maloney. 2013. “Voice, Power and Discourse: Experiences of Participants in Family Group Conferences in the Context of Child Protection.” Journal of Social Work 13 (2): 184–202. doi:10.1177/1468017311410514.
  • NHMRC (National Health and Medical Research Council). 2007. National Statement on Ethical Conduct in Human Research. Accessed February 10, 2017. http://www.nhmrc.gov.au/guidelines/publications/e72.
  • Parsons, S., C. Abbot, L. McKnight, and C. Davies. 2015. “High Risk Yet Invisible: Conflicting Narratives on Social Research Involving Children and Young People, and the Role of Research Ethics Committees.” British Educational Research Journal 41 (4): 709–729.
  • Powell, M., M. McArthur, J. Chalmers, A. Graham, T. Moore, M. Spriggs, and S. Taplin. 2018. “Sensitive Topics in Social Research Involving Children.” International Journal of Social Research Methodology 21 (6): 647–660. doi:10.1080/13645579.2018.1462882.
  • Powell, M., and A. B. Smith. 2009. “Children’s Participation Rights in Research.” Childhood 16 (1): 124–142. doi:10.1177/0907568208101694.
  • Rice, M., D. Bunker, K. Duck-Hee, C. Howell, and M. Weaver. 2007. “Accessing and Recruiting Children for Research in Schools.” Western Journal of Nursing Research 29 (4): 501–514. doi:10.1016/j.pedn.2007.10.006.
  • Saunders, V., M. McArthur, and T. Moore. 2015. “Not Seen and Not Heard: Ethical Considerations of Research with Children of Prisoners.” Law in Context 32: 108–125.
  • Skelton, T. 2008. “Research with Children and Young People: Exploring the Tensions between Ethics, Competence and Participation.” Children’s Geographies 6 (1): 21–36. doi:10.1080/14733280701791876.
  • Snowden, A., and J. Young. 2017. “A Screening Tool for Predicting Gatekeeping Behaviour.” Nursing Open 4: 187–199. doi:10.1002/nop2.83.
  • Svirydzenka, N., J. Aitken, and N. Dogra. 2016. “Research and Partnerships with Schools.” Social Psychiatry and Psychiatric Epidemiology 51 (8): 1203–1209. doi:10.1007/s00127-016-1224-5.
  • Turner, N., and K. Almack. 2017. “Recruiting Young People to Sensitive Research: Turning the ‘Wheels Within Wheels’.” International Journal of Social Research Methodology 20 (5): 485–497. doi:10.1080/13645579.2016.1207943.
  • von Benzon, N. 2017. “Confessions of an Inadequate Researcher: Space and Supervision in Research with Learning Disabled Children.” Social & Cultural Geography 18 (7): 1039–1058. doi:10.1080/14649365.2016.1257148.
  • Wanat, C. 2008. “Getting Past the Gatekeepers: Differences between Access and Cooperation in Public School Research.” Field Methods 20 (2): 191–208. doi:10.1177/1525822X07313811.
  • Wendler, D., and T. Jenkins. 2008. “Children’s and Their Parents’ Views on Facing Research Risks for the Benefit of Others.” Archives of Pediatrics & Adolescent Medicine 162 (1): 9–14. doi:10.1001/archpediatrics.2007.3.

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