Long-term outcomes in refractory status epilepticus

References

• Trinka E, Cock H, Hesdorffer D, et al. A definition and classification of status epilepticus–report of the ILAE Task Force on classification of status epilepticus. Epilepsia. 2015;56(10):1515–1523. doi: 10.1111/epi.13121
   PubMed Web of Science ®Google Scholar
• Trinka E, Leitinger M. Management of Status Epilepticus, Refractory Status Epilepticus, and Super-refractory Status Epilepticus. Contin Minneap Minn. 2022;28(2):559–602. doi: 10.1212/CON.0000000000001103
   PubMedGoogle Scholar
• Shorvon S, Sen A. What is status epilepticus and what do we know about its epidemiology? Seizure. 2020;75:131–136. doi: 10.1016/j.seizure.2019.10.003
   PubMed Web of Science ®Google Scholar
• Nelson SE, Varelas PN. Status Epilepticus, Refractory Status Epilepticus, and Super-refractory Status Epilepticus. Contin Minneap Minn. 2018 Dec;24(6):1683–1707. doi: 10.1212/CON.0000000000000668
   PubMedGoogle Scholar
• Betjemann JP, Lowenstein DH. Status epilepticus in adults. Lancet Neurol. 2015;14(6):615–624. doi: 10.1016/S1474-4422(15)00042-3
   PubMed Web of Science ®Google Scholar
• Barcia Aguilar C, Sánchez Fernández I, Loddenkemper T. Status epilepticus—work-Up and management in children. Semin Neurol. 2020;40(6):661–674. doi: 10.1055/s-0040-1719076
   PubMedGoogle Scholar
• Sculier C, Gaspard N. New onset refractory status epilepticus (NORSE). Seizure. 2019;68:72–78. doi: 10.1016/j.seizure.2018.09.018
   PubMed Web of Science ®Google Scholar
• Tharmaraja T, Ho JSY, Neligan A, et al. The etiology and mortality of new-onset refractory status epilepticus (NORSE) in adults: a systematic review and meta-analysis. Epilepsia. 2023;64(5):1113–1124. doi: 10.1111/epi.17523
   PubMedGoogle Scholar
• Gaspard N, Shorvon S. Is NORSE a meaningful clinical entity? Epilepsy Behav. 2023;141:109097. doi: 10.1016/j.yebeh.2023.109097
   PubMed Web of Science ®Google Scholar
• Madžar D, Knappe RU, Reindl C, et al. Factors associated with occurrence and outcome of super-refractory status epilepticus. Seizure. 2017;52:53–59. doi: 10.1016/j.seizure.2017.09.003
   PubMed Web of Science ®Google Scholar
• Vasquez A, Farias-Moeller R, Tatum W. Pediatric refractory and super-refractory status epilepticus. Seizure. 2019;68:62–71. doi: 10.1016/j.seizure.2018.05.012
   PubMed Web of Science ®Google Scholar
• Sculier C, Gaínza-Lein M, Sánchez Fernández I, et al. Long-term outcomes of status epilepticus: a critical assessment. Epilepsia. 2018;59(S2):155–169. doi: 10.1111/epi.14515
   PubMedGoogle Scholar
• Kantanen AM, Reinikainen M, Parviainen I, et al. Long-term outcome of refractory status epilepticus in adults: a retrospective population-based study. Epilepsy Res. 2017;133:13–21. doi: 10.1016/j.eplepsyres.2017.03.009
   PubMed Web of Science ®Google Scholar
• Caronna E, Vilaseca A, Maria Gràcia Gozalo R, et al. Long-term prognosis related to deep sedation in refractory status epilepticus. Acta Neurol Scand. 2020;142(6):555–562. doi: 10.1111/ane.13302
   PubMed Web of Science ®Google Scholar
• Lai A, Outin HD, Jabot J, et al. Functional outcome of prolonged refractory status epilepticus. Crit Care. 2015;19(1):199. doi: 10.1186/s13054-015-0914-9
   PubMedGoogle Scholar
• Kantanen AM, Reinikainen M, Parviainen I, et al. Incidence and mortality of super-refractory status epilepticus in adults. Epilepsy Behav. 2015;49:131–134. doi: 10.1016/j.yebeh.2015.04.065
   PubMed Web of Science ®Google Scholar
• Gugger JJ, Husari K, Probasco JC, et al. New-onset refractory status epilepticus: A retrospective cohort study. Seizure. 2020;74:41–48. doi: 10.1016/j.seizure.2019.12.002
   PubMed Web of Science ®Google Scholar
• Kantanen AM, Kälviäinen R, Parviainen I, et al. Predictors of hospital and one-year mortality in intensive care patients with refractory status epilepticus: a population-based study. Crit Care Lond Engl. 2017;21(1):71. doi: 10.1186/s13054-017-1661-x
   PubMedGoogle Scholar
• Li Y, Tian L, Zeng T, et al. Clinical features and outcome of super-refractory status epilepticus: a retrospective analysis in West China. Seizure. 2014;23(9):722–727. doi: 10.1016/j.seizure.2014.05.014
   PubMed Web of Science ®Google Scholar
• Atmaca MM, Bebek N, Baykan B, et al. Predictors of outcomes and refractoriness in status epilepticus: a prospective study. Epilepsy Behav. 2017;75:158–164. doi: 10.1016/j.yebeh.2017.07.046
   PubMed Web of Science ®Google Scholar
• Gaínza-Lein M, Barcia Aguilar C, Piantino J, et al. Factors associated with long-term outcomes in pediatric refractory status epilepticus. Epilepsia. 2021;62(9):2190–2204. doi: 10.1111/epi.16984
   PubMed Web of Science ®Google Scholar
• Lambrechtsen FACP, Buchhalter JR. Aborted and refractory status epilepticus in children: a comparative analysis. Epilepsia. 2008;49(4):615–625. doi: 10.1111/j.1528-1167.2007.01465.x
   PubMed Web of Science ®Google Scholar
• Jayalakshmi S, Patil A, Challa A, et al. Determinants of mortality and long-term outcome in children with refractory and super refractory status epilepticus. J Clin Neurosci Off J Neurosurg Soc Australas. 2022;97:12–16. doi: 10.1016/j.jocn.2021.12.030
   PubMed Web of Science ®Google Scholar
• Patel N, Rao VA, Heilman-Espinoza ER, et al. Simple and reliable determination of the modified rankin scale score in neurosurgical and neurological patients: the mRS-9Q. Neurosurgery. 2012;71(5):971–975. discussion 975. doi: 10.1227/NEU.0b013e31826a8a56
   PubMed Web of Science ®Google Scholar
• Banks JL, Marotta CA. Outcomes validity and reliability of the modified Rankin scale: implications for stroke clinical trials: a literature review and synthesis. Stroke. 2007;38(3):1091–1096. doi: 10.1161/01.STR.0000258355.23810.c6
   PubMed Web of Science ®Google Scholar
• Beers SR, Wisniewski SR, Garcia-Filion P, et al. Validity of a pediatric version of the glasgow outcome scale–extended. J Neurotrauma. 2012;29(6):1126–1139. doi: 10.1089/neu.2011.2272
   PubMed Web of Science ®Google Scholar
• Prabhakar H, Kalaivani M. Propofol versus thiopental sodium for the treatment of refractory status epilepticus. Cochrane Database Syst Rev. 2017;2(2):CD009202. doi: 10.1002/14651858.CD009202.pub4
   PubMedGoogle Scholar
• Espino PH, Burneo JG, Moscol G, et al. Long‐term outcomes after NORSE: treatment with vagus nerve stimulation. Epilepsia Open. 2022;7(4):822–828. doi: 10.1002/epi4.12654
   PubMedGoogle Scholar
• Shrestha A, Wood EL, Berrios-Siervo G, et al. Long-term neuropsychological outcomes in children with febrile infection-related epilepsy syndrome (FIRES) treated with anakinra. Front Neurol. 2023;14:1100551. doi: 10.3389/fneur.2023.1100551
   PubMed Web of Science ®Google Scholar
• Taraschenko O, Pavuluri S, Schmidt CM, et al. Seizure burden and neuropsychological outcomes of new-onset refractory status epilepticus: systematic review. Front Neurol. 2023;14:1095061. doi: 10.3389/fneur.2023.1095061
   PubMed Web of Science ®Google Scholar
• Pro-epanutin 75 mg/mL, concentrate for solution for infusion/solution for injection - summary of product characteristics (SmPC) - (emc) [Internet]. [cited 2023 Aug 29]. Available from: https://www.medicines.org.uk/emc/product/2260
   Google Scholar
• Diazepam injection BP - Summary of product characteristics (SmPC) - (emc) [Internet]. [cited 2023 Aug 29]. Available from: https://www.medicines.org.uk/emc/product/6274/smpc
   Google Scholar
• Kirmani BF, Au K, Ayari L, et al. Super-refractory status epilepticus: prognosis and Recent advances in management. Aging Dis. 2021;12(4):1097–1119. doi: 10.14336/AD.2021.0302
   PubMed Web of Science ®Google Scholar
• Stavropoulos I, Pak HL, Alarcon G, et al. Neuromodulation techniques in children with super-refractory status epilepticus. Brain Sci. 2023;13(11):1527. doi: 10.3390/brainsci13111527
   PubMedGoogle Scholar
• Lopinto-Khoury C, Sperling MR. Autoimmune status epilepticus. Curr Treat Options Neurol. 2013;15(5):545–556. doi: 10.1007/s11940-013-0252-7
   PubMed Web of Science ®Google Scholar
• Zummo L, Lo Coco D, Lopez G, et al. Refractory status epilepticus behind autoimmune encephalitis. Neurol Sci Off J Ital Neurol Soc Ital Soc Clin Neurophysiol. 2020;41(5):1291–1295. doi: 10.1007/s10072-019-04164-z
   Google Scholar
• Kellinghaus C, Rossetti AO, Trinka E, et al. SENSE registry for status epilepticus. Epilepsia. 2018;59(2):150–154. doi: 10.1111/epi.14495
   PubMedGoogle Scholar
• Ochoa JG, Dougherty M, Papanastassiou A, et al. Treatment of Super-Refractory Status Epilepticus: A Review. Epilepsy Curr. 2021;21(6):405–415. doi: 10.1177/1535759721999670
   Web of Science ®Google Scholar
• Heuser K, Olsen KB, Ulvin LB, et al. Modern treatment of status epilepticus in adults. In: Czuczwar S, editor. Epilepsy [internet]. Brisbane (AU): Exon Publications;2022. [cited 2023 Aug 29]. Available from. http://www.ncbi.nlm.nih.gov/books/NBK580620/
   Google Scholar