293
Views
4
CrossRef citations to date
0
Altmetric
Original Articles

Development and validation of the Neonatal Abstinence Syndrome Minimum Data Set (NAS-MDS): a systematic review, focus group discussion, and Delphi technique

ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon show all
Pages 617-624 | Received 03 Jun 2019, Accepted 12 Feb 2020, Published online: 13 Oct 2020

References

  • Jansson LM, Patrick SW. Neonatal abstinence syndrome. Pediatr Clin North Am. 2019;66(2):353–367.
  • O’Grady MJ, Hopewell J, White MJ. Management of neonatal abstinence syndrome: a national survey and review of practice. Arch Dis Child Fetal Neonatal Ed. 2009;94(4):F249–F252.
  • Siu A, Robinson CA. Neonatal abstinence syndrome: essentials for the practitioner. J Pediatr Pharmacol Ther. 2014;19(3):147–155.
  • Grossman M, Berkwitt A. Neonatal abstinence syndrome. Semin Perinatol. 2019;43(3):173–186.
  • Lynch S, Sherman L, Snyder SM, et al. Trends in infants reported to child welfare with neonatal abstinence syndrome (NAS). Child Youth Serv Rev. 2018;86:135–141.
  • Johnson K, Gerada C, Greenough A. Treatment of neonatal abstinence syndrome. Arch Dis Child Fetal Neonatal Ed. 2003;88(1):F2–F5.
  • Patrick SW, Davis MM, Lehmann CU, et al. Increasing incidence and geographic distribution of neonatal abstinence syndrome: United States 2009 to 2012. J Perinatol. 2015;35(8):650–655.
  • Murthy P, Clark D. An unusual cause for neonatal abstinence syndrome. Paediatr Child Health. 2019;24(1):12–14.
  • Kelly LE, Jansson LM, Moulsdale W, et al. A core outcome set for neonatal abstinence syndrome: study protocol for a systematic review, parent interviews and a Delphi survey. Trials. 2016;17(1):536.
  • Milliren CE, Gupta M, Graham DA, et al. Hospital variation in neonatal abstinence syndrome incidence, treatment modalities, resource use, and costs across pediatric hospitals in the United States, 2013 to 2016. Hosp Pediatr. 2018;8(1):15–20.
  • Nayeri F, Shariat M, Firozi M, et al. Frequency of neonatal abstinence syndrome (NAS) and type of the narcotic substance in neonates born from drug addicted mothers. Iran J Neonatol. 2015;5:1–5.
  • Lindoerfer D, Mansmann U. A comprehensive assessment tool for Patient Registry Software Systems: the CIPROS checklist. Methods Inf Med. 2015;54(5):447–454.
  • Lindoerfer D, Mansmann U. Enhancing requirements engineering for patient registry software systems with evidence-based components. J Biomed Inform. 2017;71:147–153.
  • Moeil Tabaghdehi K, Ghazisaeedi M, Shahmoradi L, et al. Designing a minimum data set for major thalassemia patients: towards electronic personal health record. J Commun Health Res. 2018;7(1):24–31.
  • Karimi S, Saghaeiannejad S, Farzandipour M, et al. Comparative study of minimum data sets of health information management of organ transplantation in selected countries and presenting appropriate solution for Iran. Health Inf Manage. 2011;7:497–505.
  • Shanbehzadeh M, Ahmadi M, Abdi J. Development a minimum data set of the health information exchange for computerized HIV reporting in Iran. Int J Comput Sci Netw Secur. 2018;18(1):166–172.
  • Ahmadi M, Alipour J, Mohammadi A, et al. Development a minimum data set of the information management system for burns. Burns. 2015;41(5):1092–1099.
  • Svensson-Ranallo PA, Adam TJ, Sainfort F. A framework and standardized methodology for developing minimum clinical datasets. AMIA Jt Summits Transl Sci Proc. 2011;2011:54–58.
  • Davey CJ, Slade SV, Shickle D. A proposed minimum data set for international primary care optometry: a modified Delphi study. Ophthalmic Physiol Opt. 2017;37(4):428–439.
  • Uebel H, Wright IM, Burns L, et al. Epidemiological evidence for a decreasing incidence of neonatal abstinence syndrome, 2000–11. Paediatr Perinat Epidemiol. 2016;30(3):267–273.
  • Uebel H, Wright IM, Burns L, et al. Reasons for rehospitalization in children who had neonatal abstinence syndrome. Pediatrics. 2015;136(4):e811–e820.
  • Filteau J, Coo H, Dow K. Trends in incidence of neonatal abstinence syndrome in Canada and associated healthcare resource utilization. Drug Alcohol Depend. 2018;185:313–321.
  • Gullickson C, Kuhle S, Campbell-Yeo M. Comparison of outcomes between morphine and concomitant morphine and clonidine treatments for neonatal abstinence syndrome. Acta Paediatr. 2019;108(2):271–274.
  • Nechanská B, Mravčík V, Skurtveit S, et al. Neonatal outcomes after fetal exposure to methadone and buprenorphine: national registry studies from the Czech Republic and Norway. Addiction. 2018;113(7):1286–1294.
  • Gabrhelík R, Nechanská B, Mravčík V, et al. A unique opportunity to study short and long term consequences in children prenatally exposed to illicit drugs and opioid maintenance treatment using Czech and Scandinavian registers. Cent Eur J Public Health. 2016;24(3):248–251.
  • Nørgaard M, Nielsson MS, Heide-Jørgensen U. Birth and neonatal outcomes following opioid use in pregnancy: a Danish population-based study. Subst Abuse Res Treat. 2015;9(Suppl. 2):5–11.
  • Daveluy A, Miremont-Salamé G, Kostrzewa A, et al. Identification of abuse and dependence cases through a hospital database. Pharmacoepidemiol Drug Saf. 2012;21(12):1344–1349.
  • Gupta N, Kabra M, Kapoor S. Establishing National Neonatal Perinatal Database and birth defects registry network – need of the hour! Indian Pediatr. 2014;51(9):693–696.
  • Wurst KE, Zedler BK, Joyce AR, et al. A Swedish population-based study of adverse birth outcomes among pregnant women treated with buprenorphine or methadone: preliminary findings. Subst Abuse Res Abuse. 2016;10:89–97.
  • Fang SY, Huang N, Tsay JH, et al. Excess mortality in children born to opioid-addicted parents: a National Register Study in Taiwan. Drug Alcohol Depend. 2018;183:118–126.
  • Fang SY, Huang N, Lin T, et al. Health insurance coverage and healthcare utilization among infants of mothers in the national methadone maintenance treatment program in Taiwan. Drug Alcohol Depend. 2015;153:86–93.
  • Greig E, Ash A, Douiri A. Maternal and neonatal outcomes following methadone substitution during pregnancy. Arch Gynecol Obstet. 2012;286(4):843–851.
  • Tolia VN, Murthy K, Bennett MM, et al. Morphine vs methadone treatment for infants with neonatal abstinence syndrome. J Pediatr. 2018;203:185–189.
  • Tolia VN, Patrick SW, Bennett MM, et al. Increasing incidence of the neonatal abstinence syndrome in U.S. neonatal ICUs. N Engl J Med. 2015;372(22):2118–2126.
  • Warren MD, Miller AM, Traylor J, et al. Implementation of a statewide surveillance system for neonatal abstinence syndrome – Tennessee, 2013. MMWR Morb Mortal Wkly Rep. 2015;64(5):125–128.
  • Patrick SW, Burke JF, Biel TJ, et al. Risk of hospital readmission among infants with neonatal abstinence syndrome. Hosp Pediatr. 2015;5(10):513–519.
  • Patrick SW, Kaplan HC, Passarella M, et al. Variation in treatment of neonatal abstinence syndrome in US children’s hospitals, 2004–2011. J Perinatol. 2014;34(11):867–872.
  • Palmsten K, Huybrechts KF, Mogun H, et al. Harnessing the Medicaid Analytic eXtract (MAX) to evaluate medications in pregnancy: design considerations. PLoS One. 2013;8(6):e67405.
  • Liu G, Kong L, Leslie DL, et al. A longitudinal healthcare use profile of children with a history of neonatal abstinence syndrome. J Pediatr. 2019;204:111–117.e1.
  • Hall ES, Wexelblatt SL, Greenberg JM. Surveillance of intrauterine opioid exposures using electronic health records. Popul Health Manag. 2018;21(6):486–492.
  • Wang X, Zhu Y, Dave CV, et al. Trends of neonatal abstinence syndrome epidemic and maternal risk factors in Florida. Pharmacotherapy. 2017;37(7):806–813.
  • Scott R. Neonatal Abstinence Syndrome data summary: maternal characteristics among live births from 2011 through 2013. Florida, USA. March; 2015.
  • Martins F, Oppolzer D, Santos C, et al. Opioid use in pregnant women and neonatal abstinence syndrome—a review of the literature. Toxics. 2019;7(1):9.
  • Sheykhotayefeh M, Safdari R, Ghazisaeedi M, et al. Development of a minimum data set (MDS) for C-section Anesthesia Information Management System (AIMS). Anesth Pain Med. 2017;7(2):e44132.
  • Kalankesh LR, Dastgiri S, Rafeey M, et al. Minimum data set for cystic fibrosis registry: a case study in Iran. Acta Inform Med. 2015;23(1):18–21.
  • Alipour J, Ahmadi M, Mohammadi A. The need for development a national minimum data set of the information management system for burns in Iran. Burns. 2016;42(3):710.
  • Ghaneie M, Rezaie A, Ghorbani NR, et al. Designing a minimum data set for breast cancer: a starting point for breast cancer registration in Iran. Iran J Public Health. 2013;42(Suppl. 1):66–73.
  • Ahmadi M, Mohammadi A, Chraghbaigi R, et al. Developing a minimum data set of the information management system for orthopedic injuries in Iran. Iran Red Crescent Med J. 2014;16(7):e17020.
  • Abbasi M, Ahmadian L, Amirian M, et al. The development of a minimum data set for an Infertility Registry. Perspect Health Inf Manag. 2018;15(Winter):1b.
  • Hawes C, Morris JN, Phillips CD, et al. Development of the nursing home Resident Assessment Instrument in the USA. Age Ageing. 1997;26(Suppl. 2):19–25.
  • Shamsabadi A, Safdari R, Ghazisaeedi M, et al. Identifying and prioritizing of data elements for the ophthalmology health smart card. Acta Inform Med. 2018;26(4):245–248.
  • Kazemi-Arpanahi H, Vasheghani-Farahani A, Baradaran A, et al. Developing a minimum data set (MDS) for cardiac electronic implantable devices implantation. Acta Inform Med. 2018;26(3):164–168.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.