807
Views
29
CrossRef citations to date
0
Altmetric
Articles

Online Research with Informal Caregivers: Opportunities and Challenges

, &

References

  • Angeletou, S, Rowe, M & Alani, H 2011, ‘Modelling and analysis of user behaviour in online communities’, The Semantic Web–ISWC 2011, pp. 35–50.
  • Barak, A, Boniel-Nissim, M & Suler, J 2008, ‘Fostering empowerment in online support groups’, Computers in Human Behavior, vol. 24, no. 5, pp. 1867–83.
  • Barrett, P, Hale, B & Butler, M 2014, Family care and social capital: transitions in informal care, Springer, Netherlands.
  • Biddix, JP & Park, HH 2008, ‘Online networks of student protest: the case of the living wage campaign’, New Media & Society, vol. 10, no. 6, pp. 871–91.
  • Brown, RM & Brown, SL 2014, ‘Informal caregiving: a reappraisal of effects on caregivers’, Social Issues and Policy Review, vol. 8, no. 1, pp. 74–102.
  • Burchardt, T 2014, ‘Deliberative research as a tool to make value judgements’, Qualitative Research, vol. 14, no. 3, pp. 353–70.
  • Burridge, L, Winch, S & Clavarino, A 2007, ‘Reluctance to care: a systematic review and development of a conceptual framework’, Cancer Nursing, vol. 30, no. 2, pp. E9–19.
  • Chan, J, Hayes, C & Daly, EM 2010, ‘Decomposing discussion forums and boards using user roles’, ICWSM, vol. 10, pp. 215–8.
  • Denissen, JJ, Neumann, L & van Zalk, M 2010, ‘How the Internet is changing the implementation of traditional research methods, people’s daily lives, and the way in which developmental scientists conduct research’, International Journal of Behavioral Development, vol. 34, no. 6, pp. 564–75.
  • Deneulin, S & Shahani, L (eds.) 2009, An introduction to the human development and capability approach: freedom and agency, IDRC. Earthscan, London, Sterling, VA.
  • Dobrof, J & Ebenstein, H 2003, ‘Family caregiver self-identification: implications for healthcare and social service professionals’, Generations, vol. 27, no. 4, pp. 33–8.
  • Fausset, CB, Harley, L, Farmer, S & Fain, B 2013, ‘Older adults’ perceptions and use of technology: a novel approach’, in Universal access in human-computer interaction.User and context diversity lecture notes in computer science, Springer, Berlin/Heidelberg, pp. 51–8.
  • Fredriksen-Goldsen, KI & Hooyman, NR.2007, ‘Caregiving research, services, and policies in historically marginalized communities: where do we go from here?’, Journal of Gay & Lesbian Social Services, vol. 18, no. 3–4, pp. 129–45.
  • Gosling, SD, Vazire, S, Srivastava, S & John, OP 2004, ‘Should we trust web-based studies? A comparative analysis of six preconceptions about internet questionnaires’, American Psychologist, vol. 59, no. 2, pp. 93–104.
  • Hesse-Biber, S & Griffin, AJ 2013, ‘Internet-mediated technologies and mixed methods research problems and prospects’, Journal of Mixed Methods Research, vol. 7, no. 1, pp. 43–61.
  • Hewson, C 2008, ‘Internet-mediated research as an emergent method and its potential role in facilitating mixed-method research’, in SN Hesse-Biber & P Leavy (eds.), The handbook of emergent technologies in social research, The Guildford Press, New York, pp. 543–70.
  • Hine, C 2008, ‘Internet research as emergent practice’, in SN Hesse-Biber & P Leavy (eds.), The handbook of emergent technologies in social research, The Guildford Press, New York, pp. 525–41.
  • Horrell, B, Stephens, C & Breheny, M, in press, ‘Capability to care: supporting the health of informal caregivers for older people’, Health Psychology.
  • Janssen, D & Kies, R 2005, ‘Online forums and deliberative democracy’, Acta Política, vol. 40, no. 3, pp. 317–35.
  • Jensen, JL 2003, ‘Public spheres on the Internet: anarchic or government-sponsored—a comparison’, Scandinavian Political Studies, vol. 26, pp. 349–74.
  • King, N 2012, ‘Doing template analysis’, in G Symon & C Cassell (eds.), Qualitative organizational research: core methods and current challenges, Sage, London, pp. 426–50.
  • Kinney, JM & Stephens, MAP 1989, ‘Hassles and uplifts of giving care to a family member with dementia’, Psychology and Aging, vol. 4, no. 4, pp. 402–8.
  • Legg, L, Weir, CJ, Langhorne, P, Smith, LN & Stott, DJ 2013, ‘Is informal caregiving independently associated with poor health? A population-based study’, Journal of Epidemiology and Community Health, vol. 67, no. 1, pp. 95–7.
  • Leist, AK 2013, ‘Social media use of older adults: a mini-review’, Gerontology, vol. 59, no. 4, pp. 378–84.
  • Levine, D, Madsen, A, Wright, E, Barar, RE, Santelli, J & Bull, S 2011, ‘Formative research on MySpace: online methods to engage hard-to-reach populations’, Journal of Health Communication, vol. 16, no. 4, pp. 448–54.
  • McGrath, K, Elbanna, A, Hercheui, M, Panagiotopoulos, P & Saad, E 2012, ‘Exploring the democratic potential of online social networking: the scope and limitations of e-participation’, Communications of the Association for Information Systems, vol. 30, pp. 239–54.
  • Macintosh, A 2004, ‘Characterizing e-participation in policy-making’, in Proceedings of the 37th Annual Hawaii International Conference on System Sciences, IEEE. doi:10.1109/HICSS.2004.1265300.
  • Madge, C & O’Connor, H 2002, ‘Online with e-mums: exploring the Internet as a medium for research’, Area, vol. 34, no. 1, pp. 92–102.
  • Margolis, M & Moreno-Riaño, G 2013, The prospect of Internet democracy, Ashgate Publishing, Ltd., Farnham, UK.
  • Moloney, MF, Dietrich, AS, Strickland, O & Myerburg, S 2003, ‘Using Internet discussion boards as virtual focus groups’, Advances in Nursing Science, vol. 26, no. 4, pp. 274–86.
  • Moylan, CA, Derr, AS & Lindhorst, T 2015, ‘Increasingly mobile: how new technologies can enhance qualitative research’, Qualitative Social Work, vol. 14, no. 1, pp. 36–47.
  • Nind, M, Wiles, R, Bengry-Howell, A & Crow, G 2013, ‘Methodological innovation and research ethics: forces in tension or forces in harmony?’, Qualitative Research, vol. 13, no. 6, pp. 650–67.
  • Pickard, S 2010, ‘The “good carer”: moral practices in late modernity’, Sociology, vol. 44, no. 3, pp. 471–87.
  • Pinquart, M & Sörensen, S 2003, ‘Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis’, Psychology and Aging, vol. 18, no. 2, pp. 250–67.
  • Pinquart, M & Sörensen, S 2007, ‘Correlates of physical health of informal caregivers: a meta-analysis’, The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, vol. 62, no. 2, pp. 126–37.
  • Sadler, GR, Lee, HC, Lim, RSH & Fullerton, J 2010, ‘Recruitment of hard-to-reach population subgroups via adaptations of the snowball sampling strategy’, Nursing & Health Sciences, vol. 12, no. 3, pp. 369–74.
  • Sæbø, Ø, Rose, J & Skiftenes Flak, L 2008, ‘The shape of eParticipation: characterizing an emerging research area’, Government Information Quarterly, vol. 25, no. 3, pp. 400–28.
  • Schofield, HL, Herrman, HE, Bloch, S, Howe, A & Singh, B 1997, ‘A profile of Australian family caregivers: diversity of roles and circumstances’, Australian and New Zealand Journal of Public Health, vol. 21, no. 1, pp. 59–66.
  • Sen, A 1980, ‘Equality of what?’, in S McMurrin (ed.), Tanner lectures on human values, volume I, Cambridge University Press, Cambridge.
  • Sen, A 2004, ‘Capabilities, lists, and public reason: continuing the conversation’, Feminist Economics, vol. 10, no. 3, pp. 77–80.
  • Shim, B, Barroso, J & Davis, LL 2012, ‘A comparative qualitative analysis of stories of spousal caregivers of people with dementia: negative, ambivalent, and positive experiences’, International Journal of Nursing Studies, vol. 49, no. 2, pp. 220–9.
  • Silverman, M 2014, ‘Observing women caregivers’ everyday experiences: new ways of understanding and intervening’, Journal of Gerontological Social Work, Advance online publication, doi/abs/10.1080/01634372.2014.939384#.U8n0n_mSz1Y
  • Smith, G, John, P & Sturgis, P 2013, ‘Taking political engagement online: an experimental analysis of asynchronous discussion forums’, Political Studies, vol. 61, no. 4, pp. 709–30.
  • Strickland, OL, Moloney, MF, Dietrich, AS, Myerburg, S, Cotsonis, GA & Johnson, RV 2003, ‘Measurement issues related to data collection on the World Wide Web’, Advances in Nursing Science, vol. 26, no. 4, pp. 246–56.
  • Suler, J 2005, ‘The online disinhibition effect’, International Journal of Applied Psychoanalytic Studies, vol. 2, no. 2, pp. 184–88.
  • Tates, K, Zwaanswijk, M, Otten, R, van Dulmen, S, Hoogerbrugge, PM, Kamps, WA & Bensing, JM 2009, ‘Online focus groups as a tool to collect data in hard-to-include populations: examples from paediatric oncology’, BMC Medical Research Methodology, vol. 9, article 15, doi:10.1186/1471-2288-9-15
  • Toljamo, M, Perälä, ML & Laukkala, H 2012, ‘Impact of caregiving on Finnish family caregivers’, Scandinavian Journal of Caring Sciences, vol. 26, no. 2, pp. 211–8.
  • Valkenburg, PM & Peter, J 2009, ‘Social consequences of the Internet for adolescents: a decade of research’, Current Directions in Psychological Science, vol. 18, no. 1, pp. 1–5.
  • Van Deursen, A & Van Dijk, J 2011, ‘Internet skills and the digital divide’, New Media & Society, vol. 13, no. 6, pp. 893–911.
  • Van Durme, T, Macq, J, Jeanmart, C & Gobert, M 2012, ‘Tools for measuring the impact of informal caregiving of the elderly: a literature review’, International Journal of Nursing Studies, vol. 49, no. 4, pp. 490–504.
  • Van Groenou, MIB, de Boer, A & Iedema, J 2013, ‘Positive and negative evaluation of caregiving among three different types of informal care relationships’, European Journal of Ageing, vol. 10, no. 4, pp. 301–11.
  • Walker, AJ, Pratt, CC & Eddy, L 1995, ‘Informal caregiving to aging family members: a critical review’, Family Relations, vol. 44, no. 4, pp. 402–11.
  • Williams, S, Clausen, MG, Robertson, A, Peacock, S & McPherson, K 2012, ‘Methodological reflections on the use of asynchronous online focus groups in health research’, International Journal of Qualitative Methods, vol. 11, no. 4, pp. 368–84.
  • Wolff, JL and Kasper, JD 2006, ‘Caregivers of frail elders: updating a national profile’, The Gerontologist, vol. 46, no. 3, pp. 344–56.
  • Wright, S & Street, J 2007, ‘Democracy, deliberation and design: the case of online discussion forums’, New Media & Society, vol. 9, pp. 849–69.
  • Zarit, SH, Reever, KE & Bach-Petersen, J 1980, ‘Relatives of the impaired elderly: correlates of feelings of burden’, Gerontologist, vol. 20, no. 6, pp. 649–55.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.