Creative collaboration on a disability and sexuality participatory action research project: A reflective diary account

References

• Boydell, KM, Hodgins, M, Gladstone, BM, Stasiulis, E, Belliveau, G, Cheu, H & Parsons, J 2016, ‘Arts-based health research and academic legitimacy: transcending hegemonic conventions’, Qualitative Research, vol. 16, no. 6, pp. 681–700.
   Web of Science ®Google Scholar
• Braun, V, Clarke, V & Terry, G 2015, ‘Thematic analysis’, in P Rohleder & A Lyons (eds.), Qualitative research in clinical and health psychology, Palgrave Macmillan, Basingstoke, pp. 95–113.
   Google Scholar
• Carew, M, Braathen, S, Swartz, L, Hunt, X – Rohleder, P, 2017, ‘The sexual lives of people with disabilities within low- and middle-income countries: A scoping study of studies published in English’, Global Health Action, vol. 10, no. 1, pp. 1337342.
   PubMed Web of Science ®Google Scholar
• Catalani, C & Minkler, M 2010, ‘Photovoice: A review of the literature in health and public health’, Health Education & Behavior, vol. 37, no. 3, pp. 424–451.
   PubMed Web of Science ®Google Scholar
• Chevalier, JM & Buckles, DJ 2013, Participatory action research: theory and methods for engaged inquiry, Routledge, London.
   Google Scholar
• De Beaudrap, P, Beninguisse, G, Pasquier, E, Tchoumkeu, A, Touko, A, Essomba, F & Mac-Seing, M 2017, ‘Prevalence of HIV infection among people with disabilities: a population-based observational study in Yaoundé, Cameroon (HandiVIH)’, The Lancet HIV, vol. 4, no. 4, pp. e161-e168.
   PubMed Web of Science ®Google Scholar
• Eide, AH, Schür, C, Ranchod, C, Rohleder, P, Swartz, L & Schneider, M 2011, ‘Disabled persons’ knowledge of HIV prevention and access to health care prevention services in South Africa’, AIDS Care, vol. 23, no. 12, pp. 1595–1601.
   PubMed Web of Science ®Google Scholar
• Ensign, J 2003, ‘Ethical issues in qualitative health research with homeless youths’, Journal of Advanced Nursing, vol. 43, no. 1, pp. 43–50.
   PubMed Web of Science ®Google Scholar
• Esmail, S, Darry, K, Walter, A & Knupp, H 2010, ‘Attitudes and perceptions towards disability and sexuality’, Disability & Rehabilitation, vol. 32, no. 14, pp. 1148–1155.
   PubMed Web of Science ®Google Scholar
• Freire, P 1972, Pedagogy of the oppressed, Penguin, Harmondsworth.
   Google Scholar
• Garland-Thomson, R 2009, Staring: how we look, Oxford University Press, Oxford.
   Google Scholar
• Goodley, D 2011, Disability Studies: an Interdisciplinary Introduction, Sage Publications, London.
   Google Scholar
• Groce, NE, Rohleder, P, Eide, AH, MacLachlan, M, Mall, S & Swartz, L 2013, ‘HIV issues and people with disabilities: a review and agenda for research’, Social Science & Medicine, vol. 77, pp. 31–40.
   PubMed Web of Science ®Google Scholar
• Hanass-Hancock, J 2009, ‘Interweaving conceptualizations of gender and disability in the context of vulnerability to HIV/AIDS in KwaZulu-Natal, South Africa’, Sexuality & Disability, vol. 27, pp. 35–47.
   Web of Science ®Google Scholar
• Hunt, X, Carew, M, Braathen, SH, Swartz, L, Chiwaula, M & Rohleder, P 2017, ‘The sexual and reproductive rights and benefit derived from sexual and reproductive health services of people with physical disabilities in South Africa: beliefs of non-disabled people’, Reproductive Health Matters, vol. 25, no. 50, pp. 66–79.
   Google Scholar
• Hunt, X, Swartz, L, Carew, M, Braathen, S, Chiwaula, M & Rohleder, P 2018, ‘Dating persons with physical disabilities: the perceptions of South Africans without disabilities’, Culture, Health & Sexuality, vol. 20, no. 2, pp. 141–155.
   Google Scholar
• Kagan, C, Burton, M, Duckett, P, Lawthom, R & Siddiquee, A 2011, Critical community psychology, Wiley, West Sussex, UK.
   Google Scholar
• Kagan, C, Burton, M & Siddiquee, A 2017, ‘Action research’, in C Willig & W Stainton-Rogers (Eds.), Handbook of qualitative research methods in psychology, 2nd edn, Sage Publications, London, pp. 55–73.
   Google Scholar
• Kvam, MH & Braathen, SH 2008, ‘“I thought… maybe this is my chance”: sexual abuse against girls and women with disabilities in Malawi’, Sex Abuse, vol. 20, no. 1, pp. 5–24.
   PubMed Web of Science ®Google Scholar
• Löfgren-Mårtenson, L 2009, ‘The invisibility of young homosexual women and men with intellectual disabilities’, Sexuality & Disability, vol. 27, no. 1, pp. 21–26.
   Web of Science ®Google Scholar
• Marini, I, Chan, R, Feist, A & Flores-Torres, L 2011, ‘Student attitudes toward intimacy with persons who are wheelchair users’, Rehabilitation Research, Policy, and Education, vol. 25, no. 1–2, pp. 15–25.
   Google Scholar
• Milligan, MS & Neufeldt, AH 2001, ‘The myth of asexuality: A survey of social and empirical evidence’, Sexuality & Disability, vol. 19, no. 2, pp. 91–109.
   Web of Science ®Google Scholar
• Nama, N & Swartz, L 2002, ‘Ethical and social dilemmas in community‐based controlled trials in situations of poverty: a view from a South African project’, Journal of Community & Applied Social Psychology, vol. 12, no. 4, pp. 286–297.
   PubMed Web of Science ®Google Scholar
• Parker, I 2004, ‘Criteria for qualitative research in psychology’, Qualitative Research in Psychology, vol. 1, no. 2, pp. 95–106.
   Google Scholar
• Rohleder, P & Smith, C 2015, ‘Ethical considerations’, in P Rohleder & A Lyons (eds.), Qualitative research in clinical and health psychology, Palgrave Macmillan, Basingstoke.
   Google Scholar
• Rohleder, P & Swartz, L 2012, ‘Disability, sexuality and sexual health’, in P Aggleton, P Boyce, HL Moore & R Parker (Eds.), Understanding global sexualities: new frontiers, Routledge, London, pp. 138–152.
   Google Scholar
• Shakespeare, T 2000, ‘Disabled sexuality: toward rights and recognition’, Sexuality & Disability, vol. 18, no. 3, pp. 159–166.
   Web of Science ®Google Scholar
• Shakespeare, T & Richardson, S 2018, ‘The sexual politics of disability, twenty years on’, Scandinavian Journal of Disability Research, vol. 20, pp. 1.
   Web of Science ®Google Scholar
• United Nations 2006, Convention on the rights of persons with disabilities, United Nations, Geneva.
   Google Scholar
• Vaughan, C 2015, ‘Participatory research’, in P Rohleder & A Lyons (eds.), Qualitative research in clinical and health psychology, Palgrave Macmillan, Basingstoke, pp. 257–276.
   Google Scholar
• Wang, C & Burris, M 1997, ‘Photovoice: concept, methodology, and use for participatory needs assessment’, Health Education & Behavior, vol. 24, pp. 369–387.
   PubMed Web of Science ®Google Scholar
• Weeks, J 1998, ‘The sexual citizen’, Theory, Culture & Society, vol. 15, no. 3, pp. 35–52.
   Web of Science ®Google Scholar
• World Health Organisation (WHO) 2011, World Report on Disability, World Health Organisation, Geneva.
   Google Scholar