Health-related quality of life in South African children who use cochlear implants

References

• Allegretti, C.M. 2002. “The Effects of a Cochlear Implant on the Family of a Hearing-Impaired Child.” Pediatric Nursing 28 (6): 614–620.
   PubMedGoogle Scholar
• Almeida, R.P., C.G. de Matas, M.I.V. Couto, and A.C.M. Carvalho. 2015. “Quality of Life Evaluation in Children with Cochlear Implants.” CoDAS 27 (1): 29–36. doi:10.1590/2317-1782/20152014129.
   PubMed Web of Science ®Google Scholar
• Archbold, Sue M., Mark E. Lutman, Susan Gregory, Ciaran O'Neill, and Thomas P. Nikolopoulos. 2002. “Parents and Their Deaf Child: Their Perceptions Three Years after Cochlear Implantation.” Deafness and Education International 4 (1): 12–40. doi:10.1002/dei.114.
   Google Scholar
• Archbold, Sue, Tracey Sach, Ciaran O'neill, Mark Lutman, and Susan Gregory. 2008. “Outcomes from Cochlear Implantation for Child and Family: Parental Perspectives.” Deafness and Education International 10 (3): 120–142. doi:10.1002/dei.243.
   Google Scholar
• Barton, G.R., P.C. Stacey, H.M. Fortnum, and A.Q. Summerfield. 2006. “Hearing-Impaired Children in the United Kingdom, II: Cochlear Implantation and the Cost of Compulsory Education.” Ear and Hearing 27 (2): 187–207. doi:10.1097/01.aud.0000202348.77016.1f.
   PubMed Web of Science ®Google Scholar
• Beadle, E.A., A. Shores, and E.J. Wood. 2000. “Parental Perceptions of the Impact Upon the Family of Cochlear Implantation in Children.” Annals of Otology, Rhinology & Laryngology 185: 111–114. doi:10.1177/0003489400109S1248.
   Google Scholar
• Bjornson, K.F., and J.F. McLaughlin. 2001. “The Measurement of Health-Related Quality of Life (HRQL) in Children with Cerebral Palsy.” European Journal of Neurology 8 (s5): 183–193. doi:10.1046/j.1468-1331.2001.00051.x.
   PubMedGoogle Scholar
• Black, J., L. Hickson, B. Black, and C. Perry. 2011. “Prognostic Indicators in Paediatric Cochlear Implant Surgery: A Systematic Literature Review.” Cochlear Implants International 12 (2): 67–93. doi:10.1179/146701010X486417.
   PubMedGoogle Scholar
• Clark, James H., Nae-Yuh Wang, Anne W. Riley, Christine M. Carson, Rachel L. Meserole, Frank R. Lin, Laurie S. Eisenberg, et al., 2012. “Timing of Cochlear Implantation and Parents’ Global Ratings of Children’s Health and Development.” Otology and Neurotology 33 (4): 545–552. doi:10.1097/MAO.0b013e3182522906.
   PubMed Web of Science ®Google Scholar
• Cohen, J. 1988. Statistical Power Analysis for the Behavioral Sciences. 2nd ed. Hillsdale, NJ: Lawrence Erlbaum Associates Publishers.
   Google Scholar
• Damen, G.W.J.A., P.F.M. Krabbe, S.M. Archbold, and E.A.M. Mylanus. 2007. “Evaluation of the Parental Perspective Instrument for Pediatric Cochlear Implantation to Arrive at a Short Version.” International Journal of Pediatric Otorhinolaryngology 71 (3): 425–433. doi:10.1016/j.ijporl.2006.11.008.
   PubMed Web of Science ®Google Scholar
• Dowell, R.C., R. Hollow, and E. Winton. 2004. “Outcomes for Cochlear Implant Users with Significant Residual Hearing: Implications for Selection Criteria in Children.” Archives of Otolaryngology–Head & Neck Surgery 2004 (130): 575–581. doi:10.1001/archotol.130.5.575.
   Google Scholar
• Fitzpatrick, Elizabeth, Janet Olds, Andrée Durieux-Smith, Rosemary McCrae, David Schramm, and Isabelle Gaboury. 2009. “Pediatric Cochlear Implantation: How Much Hearing Is Too Much?” International Journal of Audiology 48 (2): 91–97. doi:10.1080/14992020802516541.
   PubMed Web of Science ®Google Scholar
• Food and Drug Administration. 2009. Guidance for Industry: Patient-Reported Outcome Measures: Use in Medical Product Development to Support Labeling Claims. Available at: www.fda.gov/downloads/Drugs/Guidances/UCM193282.pdf.
   Google Scholar
• Fortunato-Tavares, T.,. D. Befi-Lopes, R.F. Bento, and C.R. de Andrade. 2012. “Children with Cochlear Implants: Communication Skills and Quality of Life.” Brazilian Journal of Otorhinolaryngology 78 (1): 15–25. doi:10.1590/S1808-86942012000100003.
   PubMed Web of Science ®Google Scholar
• Härkönen, Kati, Ilkka Kivekäs, Markus Rautiainen, Voitto Kotti, Ville Sivonen, and Juha-Pekka Vasama. 2015. “Sequential Bilateral Cochlear Implantation Improves Working Performance, Quality of Life, and Quality of Hearing.” Acta Oto-Laryngologica 135 (5): 440–446. doi:10.3109/00016489.2014.990056.
   PubMed Web of Science ®Google Scholar
• Hays, Ross M., Jeanette Valentine, Gerri Haynes, J. Russel Geyer, Nanci Villareale, Beth Mckinstry, James W. Varni, and Shervin S. Churchill. 2006. “The Seattle Pediatric Palliative Care Project: Effects on Family Satisfaction and Health-Related Quality of Life.” Journal of Palliative Medicine 9 (3): 716–728. doi:10.1089/jpm.2006.9.716.
   PubMed Web of Science ®Google Scholar
• Hinderink, J.B., P.F.M. Krabbe, and P. Van Den Broek. 2000. “Development and Application of a Health-Related Quality-of-Life Instrument for Adults with Cochlear Implants: The Nijmegen Cochlear Implant Questionnaire.” Otolaryngology–Head and Neck Surgery 123 (6): 756–765. doi:10.1067/mhn.2000.108203.
   PubMed Web of Science ®Google Scholar
• Hoffman, M.F., I. Cejas, and A.L. Quittner. 2019. “Health-Related Quality of Life Instruments for Children with Cochlear Implants: Development of Child and Parent-Proxy Measures.” Ear and Hearing 40 (3): 592–604. doi:10.1097/AUD.0000000000000631.
   PubMed Web of Science ®Google Scholar
• Huttunen, K., S. Rimmanen, S. Vikman, N. Virokannas, M. Sorri, S. Archbold, and M.E. Lutman. 2009. “Parents’ Views on the Quality of Life of Their Children 2-3 Years after Cochlear Implantation.” International Journal of Pediatric Otorhinolaryngology 73 (12): 1786–1794. doi:10.1016/j.ijporl.2009.09.038.
   PubMed Web of Science ®Google Scholar
• Incesulu, A., M. Vural, and U. Erkam. 2003. “Children with Cochlear Implants: Parental Perspective.” Otology & Neurotology 24 (4): 605–611. doi:10.1097/00129492-200307000-00013.
   PubMed Web of Science ®Google Scholar
• Johnston, J. Cyne, Andrée Durieux-Smith, Douglas Angus, Annette O'Connor, and Elizabeth Fitzpatrick. 2009. “Bilateral Paediatric Cochlear Implants: A Critical Review.” International Journal of Audiology 48 (9): 601–617. doi:10.1080/14992020802665967.
   PubMed Web of Science ®Google Scholar
• Kumar, R., A. Warner-Czyz, C.H. Silver, B. Loy, and E. Tobey. 2015. “American Parent Perspectives on Quality of Life in Pediatric Cochlear Implant Recipients.” Ear and Hearing 36 (2): 269–278. doi:10.1097/AUD.0000000000000108.
   PubMed Web of Science ®Google Scholar
• Le Roux, T., D.W. Swanepoel, A. Louw, B. Vinck, and M. Tshifularo. 2015. “Profound Childhood Hearing Loss in a South Africa Cohort: Risk Profile, Diagnosis and Age of Intervention.” International Journal of Pediatric Otorhinolaryngology 79 (1): 8–14. doi:10.1016/j.ijporl.2014.09.033.
   PubMed Web of Science ®Google Scholar
• Le Roux, Talita, Bart Vinck, Iain Butler, Liebie Louw, Leone Nauta, Dani Schlesinger, and De Wet Swanepoel. 2017. “Predictors of Health-Related Quality of Life in Adult Cochlear Implant Recipients in South Africa.” International Journal of Audiology 56 (1): 16–23. doi:10.1080/14992027.2016.1227482.
   PubMed Web of Science ®Google Scholar
• Le Roux, Talita, Bart Vinck, Iain Butler, Nicolize Cass, Liebie Louw, Leone Nauta, Dani Schlesinger, Maggi Soer, Mashudu Tshifularo, and De Wet Swanepoel. 2016. “Predictors of Pediatric Cochlear Implantation Outcomes in South Africa.” International Journal of Pediatric Otorhinolaryngology 84: 61–70. doi:10.1016/j.ijporl.2016.02.025.
   PubMed Web of Science ®Google Scholar
• Loeffler, Christoph, Antje Aschendorff, Thorsten Burger, Stefanie Kroeger, Roland Laszig, and Susan Arndt. 2010. “Quality of Life Measurements after Cochlear Implantation.” The Open Otorhinolaryngology Journal 4 (1): 47–54. doi:10.2174/1874428101004010047.
   Google Scholar
• Loy, B., A.D. Warner-Czyz, L. Tong, E.A. Tobey, and P.S. Roland. 2010. “The Children Speak: An Examination of the Quality of Life of Pediatric Cochlear Implant Users.” Otolaryngology–Head and Neck Surgery 142 (2): 247–253. doi:10.1016/j.otohns.2009.10.045.
   PubMed Web of Science ®Google Scholar
• Meserole, Rachel L., Christine M. Carson, Anne W. Riley, Nae-Yuh Wang, Alexandra L. Quittner, Laurie S. Eisenberg, Emily A. Tobey, Howard W. Francis, and John K. Niparko. 2014. “Assessment of Health-Related Quality of Life 6 Years after Childhood Cochlear Implantation.” Quality of Life Research 23 (2): 719–731. doi:10.1007/s11136-013-0509-3.
   PubMed Web of Science ®Google Scholar
• Moeller, M. P., G. Carr, L. Seaver, A. Stredler-Brown, and D. Holzinger. 2013. “Best Practices in Family-Centered Early Intervention for Children Who Are Deaf or Hard of Hearing: An International Consensus Statement.” Journal of Deaf Studies and Deaf Education 18 (4): 429–445. doi:10.1093/deafed/ent034.
   PubMed Web of Science ®Google Scholar
• Nunes, T., U. Pretzlik, and S. Ilicak. 2005. “Validation of a Parent Outcome Questionnaire from Pediatric Cochlear Implantation.” Journal of Deaf Studies and Deaf Education 10 (4): 330–356. doi:10.1093/deafed/eni027.
   PubMed Web of Science ®Google Scholar
• O’Neill, C., M.E. Lutman, S.M. Archbold, S. Gregory, and T.P. Nikolopoulos. 2004. “Parents and Their Cochlear Implanted Child: Questionnaire Development to Assess Parental Views and Experiences.” International Journal of Pediatric Otorhinolaryngology 68 (2): 149–160. doi:10.1016/j.ijporl.2003.09.015.
   PubMed Web of Science ®Google Scholar
• Olze, H., S. Gräbel, H. Haupt, U. Förster, and B. Mazurek. 2012. “Extra Benefit of a Second Cochlear Implant with respect to Health-Related Quality of Life and Tinnitus.” Otology & Neurotology 33 (7): 1169–1175. doi:10.1097/MAO.0b013e31825e799f.
   PubMed Web of Science ®Google Scholar
• Polat, F. 2003. “Factors Affecting Psychosocial Adjustment of Deaf Students.” Journal of Deaf Studies and Deaf Education 8 (3): 325–339. doi:10.1093/deafed/eng018.
   PubMedGoogle Scholar
• Ruffin, C.V., W.G. Kronenberger, B.G. Colson, S.C. Henning, and D.B. Pisoni. 2013. “Long Term Speech and Language Outcomes in Prelingually Deaf Children, Adolescents and Young Adults Who Received Cochlear Implants in Childhood.” Audiology and Neurotology 18 (5): 289–296. doi:10.1159/000353405.
   PubMed Web of Science ®Google Scholar
• Sach, T.H., and G.R. Barton. 2007. “Interpreting Parental Proxy Reports of (Health-Related) Quality of Life for Children with Unilateral Cochlear Implants.” International Journal of Pediatric Otorhinolaryngology 71 (3): 435–445. doi:10.1016/j.ijporl.2006.11.011.
   PubMed Web of Science ®Google Scholar
• Sach, Tracey H., and David K. Whynes. 2005. “Paediatric Cochlear Implantation: The Views of Parents.” International Journal of Audiology 44 (7): 400–407. doi:10.1080/14992020500146500.
   PubMed Web of Science ®Google Scholar
• Samuel, V., C. Gamble, H. Cullington, F. Bathgate, E. Bennett, N. Coop, J. Cropper, A. Emond, R. Kentish, and L. Edwards. 2016. “Brief Assessment of Parental Perception (BAPP): Development and Validation of a New Measure for Assessing Paediatric Outcomes after Bilateral Cochlear Implantation.” International Journal of Audiology 55 (11): 699–705. doi:10.1080/14992027.2016.1204669.
   PubMed Web of Science ®Google Scholar
• Schorr, E.A., F.P. Roth, and N.A. Fox. 2009. “Quality of Life for Children with Cochlear Implants: Perceived Benefits and Problems and the Perception of Single Words and Emotional Sounds.” Journal of Speech, Language, and Hearing Research 52 (1): 141. doi:10.1044/1092-4388(2008/07-0213).
   PubMed Web of Science ®Google Scholar
• Soleimanifar, S., Z. Jafari, and M. Motasaddi Zarandy. 2015. “Validity and Reliability of “Parental Attitudes of Various Aspects of Cochlear Implantation” Questionnaire.” Iran Journal of Otorhinolaryngology 27 (83): 449–457.
   PubMedGoogle Scholar
• South African Cochlear Implant Group (SACIG) 2017. Annual Report 2017 (Unpublished Society Document).
   Google Scholar
• Sparreboom Marloes, Jelmer van Schoonhoven, Bert G. A. van Zanten, Rob J. P. M. Scholten, Emmanuel A. M. Mylanus, Wilko Grolman, and Bert Maat. 2010. “The Effectiveness of Bilateral Cochlear Implants for Severe-to-Profound Deafness in Children: A Systematic Review.” Otology & Neurotology 31 (7): 1062–1071. doi:10.1097/MAO.0b013e3181e3d62c.
   PubMed Web of Science ®Google Scholar
• Warner-Czyz, A.D., B. Loy, E.A. Tobey, P. Nakonezny, and P.S. Roland. 2011. “Health-Related Quality of Life in Children and Adolescents Who Use Cochlear Implants.” International Journal of Pediatric Otorhinolaryngology 75 (1): 95–105. doi:10.1016/j.ijporl.2010.10.018.
   PubMed Web of Science ®Google Scholar
• Warner-Czyz, A.D., B. Loy, P.S. Roland, and E.A. Tobey. 2013. “A Comparative Study of Psychosocial Development in Children Who Receive Cochlear Implants.” Cochlear Implants International 14 (5): 266–275. doi:10.1179/1754762812Y.0000000021.
   PubMedGoogle Scholar
• Warner-Czyz, A.D., B. Loy, P.S. Roland, L. Tong, and E.A. Tobey. 2009. “Parent versus Child Assessment of Quality of Life in Children Using Cochlear Implants.” International Journal of Pediatric Otorhinolaryngology 73 (10): 1423–1429. doi:10.1016/j.ijporl.2009.07.009.
   PubMed Web of Science ®Google Scholar
• Wiebe, S., G. Guyatt, B. Weaver, S. Matijevic, and C. Sidwell. 2003. “Comparative Responsiveness of Generic and Specific Quality-of-Life Instruments.” Journal of Clinical Epidemiology 56 (1): 52–60. doi:10.1016/S0895-4356(02)00537-1.
   PubMed Web of Science ®Google Scholar
• Zaidman-Zait, A. 2010. “Quality of Life among Cochlear Implant Recipients.” In International Encyclopedia of Rehabilitation, edited by Stone, J. H., Blouin, M. eds. Buffalo, NY: Center for International Rehabilitation Research Information and Exchange. Retrieved: http://cirrie.buffalo.edu/encyclopedia/en/article/293/.
   Google Scholar
• Zhao, Yawen, Ying Li, Zhipeng Zheng, Jing Li, Xiaolu Nie, Xin Jin, Jun Zheng, et al. 2019. “Health-Related Quality of Life in Mandarin-Speaking Children with Cochlear Implants.” Ear and Hearing 40 (3): 605–614. doi:10.1097/AUD.0000000000000633.
   PubMed Web of Science ®Google Scholar