An exploration of significant others’ experience with ongoing vestibular disorders

References

• Allen, R I., and C G. Petr. 1996. “Toward developing standards and measurements for family-centered practice in family support programs.” https://ezp.lib.unimelb.edu.au/login?url=https://search.ebscohost.com/login.aspx?direct=true&db=flh&AN=MRB-FSD0434271&site=eds-live&scope=site.
   Google Scholar
• Arroll, Megan, Christine P. Dancey, Elizabeth A. Attree, Sharon Smith, and Trevor James. 2012. “People with Symptoms of Meniere’s Disease: The Relationship between Illness Intrusiveness, Illness Uncertainty, Dizziness Handicap, and Depression.” Otology & Neurotology 33 (5): 816–823. doi:10.1097/MAO.0b013e3182536ac6.
   PubMed Web of Science ®Google Scholar
• Bertilsson, Ann-Sofie, Lena von Koch, Kerstin Tham, and Ulla Johansson. 2015. “Client-Centred ADL Intervention after Stroke: Significant Others’ Experiences.” Scandinavian Journal of Occupational Therapy 22 (5): 377–386. doi:10.3109/11038128.2015.1044561.
   PubMed Web of Science ®Google Scholar
• Bisdorff, Alexandre, Michael Von Brevern, Thomas Lempert, and David E. Newman-Toker. 2009. “Classification of Vestibular Symptoms: Towards an International Classification of Vestibular Disorders.” Journal of Vestibular Research 19 (1–2): 1–13. doi:10.3233/VES-2009-0343.
   PubMed Web of Science ®Google Scholar
• Braun, Virginia, and Victoria Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3 (2): 77–101. doi:10.1191/1478088706qp063oa.
   Google Scholar
• Creswell, John W., and Cheryl N. Poth. 2018. Qualitative Inquiry & Research Design : Choosing among Five Approaches. Los Angeles, CA : Sage. https://ezp.lib.unimelb.edu.au/login?url=https://search.ebscohost.com/login.aspx?direct=true&db=cat00006a&AN=melb.b6422674&site=eds-live&scope=site.
   Google Scholar
• Deek, Hiba, Sandra Hamilton, Nicola Brown, Sally C. Inglis, Michelle Digiacomo, Phillip J. Newton, Samar Noureddine, Peter S. Macdonald, and Patricia M. Davidson. 2016. “Family-Centred Approaches to Healthcare Interventions in Chronic Diseases in Adults: A Quantitative Systematic Review.” Journal of Advanced Nursing 72 (5): 968–979. doi:10.1111/jan.12885.
   PubMed Web of Science ®Google Scholar
• Ekberg, Katie, Carly Meyer, Nerina Scarinci, Caitlin Grenness, and Louise Hickson. 2015. “Family Member Involvement in Audiology Appointments with Older People with Hearing Impairment.” International Journal of Audiology 54 (2): 70–76. doi:10.3109/14992027.2014.948218.
   PubMed Web of Science ®Google Scholar
• Epley, Pamela, Jean Ann Summers, and Ann Turnbull. 2010. “Characteristics and Trends in Family-Centered Conceptualizations.” Journal of Family Social Work 13 (3): 269–285. doi:10.1080/10522150903514017.
   Google Scholar
• Guinand, N., F. Boselie, J P. Guyot, and H. Kingma. 2012. “Quality of Life of Patients with Bilateral Vestibulopathy.” Annals of Otology, Rhinology & Laryngology 121 (7): 471–477. doi:10.1177/000348941212100708.
   PubMed Web of Science ®Google Scholar
• Hamilton, Muriel E., Mary A. Roach, and David A. Riley. 2003. “Moving toward Family-Centered Early Care and Education : The past, the Present, and a Glimpse of the Future*.” Early Childhood Education Journal 30 : 225–232. doi:10.1023/A:1023335523871
   Google Scholar
• Hülse, Roland, Andreas Biesdorf, Karl Hörmann, Boris Stuck, Michael Erhart, Manfred Hülse, and Angela Wenzel. 2019. “Peripheral Vestibular Disorders.” Otology & Neurotology 40 (1): 88–95. doi:10.1097/MAO.0000000000002013.
   PubMed Web of Science ®Google Scholar
• Levo, Hilla, Erna Kentala, Jyrki Rasku, and Ilmari Pyykk. 2013. “Fatigue in Ménière’s Disease.” Hearing, Balance and Communication 11 (4): 191–197. doi:10.3109/21695717.2013.835090.
   Google Scholar
• Manchaiah, V. K. C., I. Pyykkö, E. Kentala, H. Levo, and D. Stephens. 2013. “Positive Impact of Ménière’s Disorder on Significant Others as Well as on Patients: Our Experience from Eighty-Eight Respondents.” Clinical Otolaryngology 38 (6): 550–554. doi:10.1111/coa.12190.
   PubMed Web of Science ®Google Scholar
• Manen, Max Van. 1990. Researching Lived Experience: Human Science for an Action Sensitive Pedagogy [Electronic Resource] . SUNY Series in the Philosophy of Education. London, ON: State University of New York Press.
   Google Scholar
• Marchetti, Gregory F., Susan L. Whitney, Mark S. Redfern, and Joseph M. Furman. 2011. “Factors Associated with Balance Confidence in Older Adults with Health Conditions Affecting the Balance and Vestibular System.” Archives of Physical Medicine and Rehabilitation 92 (11): 1884–1891. doi:10.1016/j.apmr.2011.06.015.
   PubMed Web of Science ®Google Scholar
• Martire, Lynn M., Richard Schulz, Vicki S. Helgeson, Brent J. Small, and Ester M. Saghafi. 2010. “Review and Meta-Analysis of Couple-Oriented Interventions for Chronic Illness.” Annals of Behavioral Medicine 40 (3): 325–342. doi:10.1007/s12160-010-9216-2.
   PubMed Web of Science ®Google Scholar
• Mason, Mark. 2010. “Sample Size and Saturation in PhD Studies Using Qualitative Interviews.” Forum Qualitative Sozialforschung/Forum: Qualitative Social Research 11 (3): Art 8. https://doi.org/ISSN.1438-5627.
   Google Scholar
• Miffon, Maëva, and Jean Philippe Guyot. 2015. “Difficulties Faced by Patients Suffering from Total Bilateral Vestibular Loss.” Orl 77 (4): 241–247. doi:10.1159/000433553.
   Google Scholar
• Neuhauser, Hannelore K., Andrea Radtke, Michael Von Brevern, Franziska Lezius, Maria Feldmann, and Thomas Lempert. 2008. “Burden of Dizziness and Vertigo in the Community.” Archives of Internal Medicine 168 (19): 2118–2124. doi:10.1001/archinte.168.19.2118.
   PubMedGoogle Scholar
• Patton, Michael Quinn. 2002. Qualitative Research & Evaluation Methods. Thousand Oaks, CA : Sage Publications. https://ezp.lib.unimelb.edu.au/login?url=https://search.ebscohost.com/login.aspx?direct=true&db=cat00006a&AN=melb.b2705131&site=eds-live&scope=site.
   Google Scholar
• Piker, Erin, Gary P. Jacobson, Devin L. Mccaslin, and Sarah L. Grantham. 2008. “Psychological Comorbidities and Their Relationship to Self-Reported Handicap in Samples of Dizzy Patients.” Journal of the American Academy of Audiology 19 (4): 337–347. doi:10.3766/jaaa.19.4.6.
   PubMed Web of Science ®Google Scholar
• Porter, Megan, and Roger A. Boothroyd. 2015. “Symptom Severity, Social Supports, Coping Styles, and Quality of Life among Individuals’ Diagnosed with Ménierè’s Disease.” Chronic Illness 11 (4): 256–266. doi:10.1177/1742395314567926.
   PubMed Web of Science ®Google Scholar
• Pyykkő, Ilmari, Vinaya Manchaiah, Hilla Levo, Erna Kentala, and Jyrki Rasku. 2015. “Attitudes of Significant Others of People with Ménière’s Disease Vary from Coping to Victimization.” International Journal of Audiology 54 (5): 316–322. doi:10.3109/14992027.2014.989547.
   PubMed Web of Science ®Google Scholar
• Sakagami, Masaharu, Tadashi Kitahara, Tadao Okayasu, Akinori Yamashita, Akihito Hasukawa, Ichiro Ota, and Toshiaki Yamanaka. 2016. “Negative Prognostic Factors for Psychological Conditions in Patients with Audiovestibular Diseases.” Auris Nasus Larynx 43 (6): 632–636. doi:10.1016/j.anl.2016.02.006.
   PubMed Web of Science ®Google Scholar
• Seesing, Femke Marie, Gea Drost, Baziel G. M. Van Engelen, Johannes Groenewoud, and Gert Jan Van Der Wilt. 2014. “Shared Medical Appointments Improve QOL in Neuromuscular Patients.” Neurology 83 : 240–246. doi:10.1212/WNL.0000000000000588
   PubMed Web of Science ®Google Scholar
• Stephens, Dafydd, Ilmari Pyykkö, Erna Kentala, Hilla Levo, and Jyrki Rasku. 2012. “The Effects of Ménière’s Disorder on the Patient’s Significant Others.” International Journal of Audiology 51 (12): 858–863. doi:10.3109/14992027.2012.723141.
   PubMed Web of Science ®Google Scholar
• Yates, Bernice Helen. 1989. “Illness Demands and Social Support During Recovery from a Cardiac Illness Event.” UNIVERSITY OF WASHINGTON. https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=109869128&site=ehost-live.
   Google Scholar