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Original Articles

Exploring how parents of children with unilateral hearing loss make habilitation decisions: a qualitative study

, ORCID Icon, &
Pages 183-190 | Received 15 Jul 2019, Accepted 24 Jul 2020, Published online: 13 Aug 2020

References

  • Alamoudi, U., and P. Hong. 2015. “Readability and Quality Assessment of Websites Related to Microtia and Aural Atresia.” International Journal of Pediatric Otorhinolaryngology 79 (2): 151–156. doi:10.1016/j.ijporl.2014.11.027.
  • Appachi, Swathi, Jessica L. Specht, Nikhila Raol, Judith E. C. Lieu, Michael S. Cohen, Kavita Dedhia, and Samantha Anne. 2017. “Auditory Outcomes with Hearing Rehabilitation in Children with Unilateral Hearing Loss: A Systematic Review.” Otolaryngology-Head and Neck Surgery: Official Journal of American Academy of Otolaryngology-Head and Neck Surgery 157 (4): 565–571. doi:10.1177/0194599817726757.
  • Bamford, J., H. Fortnum, K. Bristow, J. Smith, G. Vamvakas, L. Davies and S. Hind 2007. “Current Practice, Accuracy, Effectiveness and Cost-Effectiveness of the School Entry Hearing Screen.” Health Technology Assessment (Winchester, England) 11 (32): 1–168. doi:10.3310/hta11320.
  • Bamford, J., K. Uus, and A. Davis. 2005. “Screening for Hearing Loss in Childhood: Issues, Evidence and Current Approaches in the UK.” Journal of Medical Screening 12 (3): 119–124. doi:10.1258/0969141054855256.
  • Charmaz, K. 2006. Constructing Grounded Theory. London: Sage. ISBN13 978 0 7619 7352 2.
  • Ching, T. Y. C., N. Scarinci, V. Marnane, J. Sjahalam-King, L. Button, and J. Whitfield. 2018. “Factors Influencing Parents’ Decisions About Communication Choices During Early Education of Their Child with Hearing Loss: A Qualitative Study.” Deafness & Education International: The Journal of the British Association of Teachers of the Deaf 20 (3–4): 154–181. doi:10.1080/14643154.2018.1512393.
  • Crowe, K., L. A. Fordham, S. McLeod, and T. Y. C. Ching. 2014. “Part of our world”: Influences on caregiver decisions about communication choices for children with hearing loss.” Deafness & Education International: The Journal of the British Association of Teachers of the Deaf 16 (2): 61–85. doi:10.1179/1557069X13Y.0000000026.
  • Crowe, K., S. McLeod, D. H. McKinnon, and T. Y. C. Ching. 2014. “Speech, Sign, or Multilingualism for Children with Hearing Loss: Quantitative Insights into caregivers' decision making.” Language, Speech, and Hearing Services in Schools 45 (3): 234–247. doi:10.1044/2014_LSHSS-12-0106.
  • Decker, K. B., and C. D. Vallotton. 2016. “Early Intervention for Children with Hearing Loss: Information Parents Receive about Supporting Children’s Language.” Journal of Early Intervention 38 (3): 151–169. doi:10.1177/1053815116653448.
  • Donald, A. J., and R. J. Kelly-Campbell. 2016. “Pediatric Audiology Report: Assessment and Revision of an Audiology Report Written to Parents of Children with Hearing Impairment.” Journal of Speech, Language, and Hearing Research: JSLHR 59 (2): 359–372. doi:10.1044/2015_JSLHR-H-15-0120.
  • Doshi, Jayesh, Rupan Banga, Anne Child, Rebecca Lawrence, Andrew Reid, David Proops, Ann-Louise McDermott, et al. 2013. “Quality-of-Life Outcomes after Bone-Anchored Hearing Device Surgery in Children with Single-Sided Sensorineural Deafness.” Otology & Neurotology: Official Publication of the American Otological Society, American Neurotology Society [and] European Academy of Otology and Neurotology 34 (1): 100–103. doi:10.1097/MAO.0b013e318277a3dd.
  • Fitzpatrick, E. M., A. Durieux-Smith, and J. Whittingham. 2010. “Clinical Practice for Children with Mild Bilateral and Unilateral Hearing Loss.” Ear and Hearing 31 (3): 392–400. doi:10.1097/AUD.0b013e3181cdb2b9.
  • Fitzpatrick, E. M., I. Gaboury, A. Durieux-Smith, D. Coyle, J. Whittingham, and F. Nassrallah. 2019. “Auditory and Language Outcomes in Children with Unilateral Hearing Loss.” Hearing Research 372: 42–51. doi:10.1016/j.heares.2018.03.015.
  • Fitzpatrick, E., V. Grandpierre, A. Durieux-Smith, I. Gaboury, D. Coyle, E. Na, and N. Sallam. 2016. “Children with Mild Bilateral and Unilateral Hearing Loss: Parents’ Reflections on Experiences and Outcomes.” Journal of Deaf Studies and Deaf Education 21 (1): 34–43. doi:10.1093/deafed/env047.
  • Fitzpatrick, E. M., J. Jacques, and D. Neuss. 2011. “Parental Perspectives on decision-making and outcomes in pediatric bilateral cochlear implantation.” International Journal of Audiology 50 (10): 679–687. doi:10.3109/14992027.2011.590823.
  • Fortnum, H., O. C. Ukoumunne, C. Hyde, R. S. Taylor, M. Ozolins, S. Errington, C. Pritchard, et al. 2016. “A Programme of Studies Including Assessment of Diagnostic Accuracy of School Hearing Screening Tests and a Cost-Effectiveness Model of School Entry Hearing Screening Programmes.” Health Technology Assessment 20 (36): 1–178. doi:10.3310/hta20360.
  • Grandpierre, V., E. M. Fitzpatrick, E. Na, and O. Mendonca. 2018. “School-Aged Children with Mild Bilateral and Unilateral Hearing Loss: Parents’ Reflections on Services, Experiences and Outcomes.” Journal of Deaf Studies and Deaf Education 23 (2): 14–147. doi:10.1093/deafed/enx049.
  • Gravel, J. S., and C. C..Mccaughey. 2004. “Family-Centered Audiologic Assessment for Infants and Young Children with Hearing Loss.” Seminars in Hearing 25 (04): 309–317. doi:10.1055/s-2004-836133.
  • Greenhalgh, T., J. Howick, and N. Maskrey. 2014. “Evidence Based Medicine: A Movement in crisis??” BMJ (Clinical Research ed.) 348: g3725–7. doi:10.1136/bmj.g3725.
  • Hardonk, S., S. Bosteels, G. Desnerck, G. Loots, G. Van Hove, E. Van Kerschaver, and F. Louckx. 2010. “Pediatric Cochlear Implantation: A Qualitiative Study of Parental Decision Making Processes in Flanders, Belgium.” American Annals of the Deaf 155 (3): 339–352. www.jstor.org/stable/26235072. doi:10.1353/aad.2010.0012
  • Hassepass, Frederike, Antje Aschendorff, Thomas Wesarg, Stefanie Kröger, Roland Laszig, Rainer L. Beck, Christian Schild, and Susan Arndt. 2013. “Unilateral Deafness in Children: Audiologic and Subjective Assessment of Hearing Ability after Cochlear implantation.” Otology & Neurotology: Official Publication of the American Otological Society, American Neurotology Society [and] European Academy of Otology and Neurotology 34 (1): 53–60. doi:10.1097/MAO.0b013e31827850f0.
  • Henderson, R. J., A. Johnson, and S. Moodie. 2014. “Parent-to-Parent Support for Parents with Children Who Are Deaf or Hard of Hearing: A Conceptual Framework.” American Journal of Audiology 23 (4): 437–448. doi:10.1044/2014_AJA-14-0029.
  • Holstrum, W. J., M. Gaffney, J. S. Gravel, R. F. Oyler, and D. S. Ross. 2008. “Early Intervention for Children with Unilateral and Mild Bilateral Degrees of Hearing Loss.” Trends in Amplification 12 (1): 35–41. doi:10.1177/1084713807312172.
  • Hyde, M., R. Punch, and L. Komesaroff. 2010. “Coming to a Decision about Cochlear Implantation: Parents Making Choices for Their Deaf Children.” Journal of Deaf Studies and Deaf Education 15 (2): 162–178. doi:10.1093/deafed/enq004.
  • Legare, F., S. Ratte, K. Gravel, and I. D. Graham. 2008. “Barriers and Facilitators to Implementing Shared Decision-Making in Clinical Practice: Update of a Systematic Review of Health Professionals’ Perceptions.” Patient Education and Counseling 73 (3): 526–535. doi:10.1016/j.pec.2008.07.018.
  • Li, Y. L., L. Bain, and A. G. Steinberg. 2004. “Parental Decision Making in considering Cochlear Implant Technology for a Deaf Child.” International Journal of Pediatric Otorhinolaryngology 68 (8): 1027–1038. doi:10.1016/j.ijporl.2004.03.010.
  • Lieu, J. E. 2018. “Permanent Unilateral Hearing Loss (UHL) and Childhood Development.” Current Otorhinolaryngology Reports 6 (1): 74–81. doi:10.1007/s40136-018-0185-5.
  • Lieu, J. E. C. 2013. “Unilateral Hearing Loss in Children: Speech-Language and School Performance.” B-Ent, Suppl 21: 107–115. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4382076/pdf/nihms675094.pdf.
  • Lipstein, E. A., W. B. Brinkman, and M. T. Britto. 2012. “What is Known about Parents’ Treatment Decisions? A Narrative Review of Pediatric Decision Making.” Medical Decision Making: An International Journal of the Society for Medical Decision Making 32 (2): 246–258. doi:10.1177/0272989X11421528.
  • Mauldin, L. 2019. “Don’t Look at It as a Miracle Cure: Contested Notions of Success and Failure in Family Narratives of Pediatric Cochlear Implantation.” Social Science & Medicine 228: 117–125. doi:10.1016/j.socscimed.2019.03.021.
  • Porter, A., P. Creed, M. Hood, and T. Y. Ching. 2018. “Parental Decision-Making and Deaf Children: A Systematic Literature Review.” Journal of Deaf Studies and Deaf Education 23 (4): 295–306. doi:10.1093/deafed/eny019.
  • Purcell, P. L., J. R. Shinn, G. E. Davis, and K. C. Sie. 2016. “Children with Unilateral Hearing Loss May Have Lower Intelligence Quotient Scores: A Meta-Analysis.” The Laryngoscope 126 (3): 746–754. doi:10.1002/lary.25524.
  • Ramsden, J. D., V. Papaioannou, K. A. Gordon, A. L. James, and B. C. Papsin. 2009. “Parental and Program's Decision Making in Paediatric Simultaneous Bilateral Cochlear Implantation: Who Says No and Why?” International Journal of Pediatric Otorhinolaryngology 73 (10): 1325–1328. doi:10.1016/j.ijporl.2009.05.001.
  • Rohlfs, A. K., J. Friedhoff, A. Bohnert, A. Breitfuss, M. Hess, F. Muller, A. Strauch, M. Rohrs, and T. Wiesner. 2017. “Unilateral Hearing Loss in Children: A Retrospective Study and a Review of the Current Literature.” European Journal of Pediatrics 176 (4): 475–486. doi:10.1007/s00431-016-2827-2.
  • Roland, L., C. Fischer, K. Tran, T. Rachakonda, D. Kallogjeri, and J. E. Lieu. 2016. “Quality of Life in Children with Hearing Impairment: Systematic Review and Meta-Analysis.” Otolaryngology-Head and Neck Surgery: Official Journal of American Academy of Otolaryngology-Head and Neck Surgery 155 (2): 208–219. doi:10.1177/0194599816640485.
  • Ross, D. S., W. J. Holstrum, M. Gaffney, D. Green, R. F. Oyler, and J. S. Gravel. 2008. “Hearing Screening and Diagnostic Evaluation of Children with Unilateral and Mild Bilateral Hearing Loss.” Trends in Amplification 12 (1): 27–34. doi:10.1177/1084713807306241.
  • Scarinci, N., Meyer, C., Ekberg, K. and Hickson, L. 2013. “Using a Family-Centered Care Approach in Audiologic Rehabilitation for Adults with Hearing Impairment.” Perspectives on Aural Rehabilitation and Its Instrumentation 20 (3): 83–90. doi:10.1044/arri20.3.83.
  • Strauss, A., and J. Corbin. 1998. Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory (2nd ed.) Thousand Oaks, CA: Sage. ISBN 0 8039 5939 7
  • Strong, K., N. Wald, A. Miller, A. Alwan, and Grp, W. H. O. C. 2005. “Current Concepts in Screening for Noncommunicable Disease: World Health Organization Consultation Group Report on Methodology of Noncommunicable Disease Screening.” Journal of Medical Screening 12 (1): 12–19. doi:10.1258/0969141053279086.
  • Watkin, P., and M. Baldwin. 2012. “The Longitudinal Follow up of a Universal Neonatal Hearing Screen: The Implications for Confirming Deafness in Childhood.” International Journal of Audiology 51 (7): 519–528. doi:10.3109/14992027.2012.673237.
  • Wood, S. A., G. J. Sutton, and A. C. Davis. 2015. “Performance and Characteristics of the Newborn Hearing Screening Programme in England: The First Seven Years.” International Journal of Audiology 54 (6): 353–358. doi:10.3109/14992027.2014.989548.
  • Yoshinaga-Itano, C., C. D. Johnson, K. Carpenter, and A. S. Brown. 2008. “Outcomes of Children with Mild Bilateral Hearing Loss and Unilateral Hearing Loss.” Seminars in Hearing 29 (2): 196–211. doi:10.1055/s-2008-1075826.
  • Young, A., G. Carr, R. Hunt, W. McCracken, A. Skipp, and H. Tattersall. 2006. “Informed Choice and Deaf Children: Underpinning Concepts and Enduring Challenges.” Journal of Deaf Studies and Deaf Education 11 (3): 322–336. doi:10.1093/deafed/enj041.
  • Ziebland, S., and S. Wyke. 2012. “Health and Illness in a Connected World: How Might Sharing Experiences on the Internet Affect People’s Health?” The Milbank Quarterly 90 (2): 219–249. doi:10.1111/j.1468-0009.2012.00662.x.