Exploring the lived experiences of British Sign Language (BSL) users who access NHS adult hearing aid clinics: an interpretative phenomenological analysis

References

• Bahan, B. 2008. “Upon the Formation of a Visual Variety of the Human Race.” in Open Your Eyes: Deaf Studies Talking, edited by H. B. L. Dirksen. Minneapolis: University of Minnesota Press.
   Google Scholar
• Billard, I. 2014. “The Hearing and Otitis Program: A Model of Community Based Ear and Hearing Care Services for Inuit of Nunavik.” Canadian Journal of Speech-Language Pathology & Audiology 38 (2): 206–217.
   Google Scholar
• Bowland, A., T. Wilson, and R. Winiarczy. 2015. “Deaf International Practitioners and Researchers Working Effectively in Deaf Communities.” in It’s a Small World: International Deaf Spaces and Encounters, edited by M. Friedner and A. Kusters, 239–248. Washington, DC: Gallaudet University Press.
   Google Scholar
• BDA (British Deaf Association) 2018. Facts and Figures Within the UK. British Deaf Association. Accessed 25 March 2021. http://www.bda.org.uk/bsl-statistics
   Google Scholar
• Butler, C., and F. Martin. 1987. “A Survey of the Deaf Community concerning Their Opinions, Needs and Knowledge of Audiology and Audiology Services.” American Annals of the Deaf 132 (3): 221–226. doi:10.1353/aad.2012.0746.
   PubMed Web of Science ®Google Scholar
• Cabinet Office: Government Digital Service. 2020. Guidance: Understanding Accessibility Requirements for Public Sector Bodies. Accessed 25 March 2021. https://www.gov.uk/guidance/accessibility-requirements-for-public-sector-websites-and-apps
   Google Scholar
• Children’s Health Queensland Hospital and Health Services. 2017a. Milpa Binna: Families Learning and Sharing Their Hearing Loss Journey. Accessed 25 March 2021. http://www.childrens.health.qld.gov.au/chq/our-services/community-health-services/healthy-hearing-program/mipla-binna/
   Google Scholar
• Children’s Health Queensland Hospital and Health Services. 2017b. Deadly Ears: Helping Little People to Hear, Learn, Talk and Play. Accessed 25 March 2021. https://www.childrens.health.qld.gov.au/chq/our-services/community-health-services/deadly-ears/
   Google Scholar
• Choi, J. S., K. S. Shim, N. E. Shin, C. L. Nieman, S. K. Mamo, H. R. Han, and F. R. Lin. 2019. “Cultural Adaptation of a Community-Based Hearing Health Intervention for Korean American Older Adults with Hearing Loss.” Journal of Cross-Cultural Gerontology 34 (3): 223–243. doi:10.1007/s10823-019-09376-6.
   PubMed Web of Science ®Google Scholar
• Cross, T., B. Bazron, K. Dennis, and M. Isaacs. 1989. Towards a Culturally Competent System of Care. A Monograph on Effective Services for Minority Children Who Are Severely or Emotionally Disturbed. Washington, DC: Georgetown University Child Development Centre.
   Google Scholar
• Cue, K. R., K. K. Pudans-Smith, J. A. Wolsey, S. J. Wright, and M. D. Clark. 2019. “The Odyssey of Deaf Epistemology: A Search for Meaning-Making.” American Annals of the Deaf 164 (3): 395–422. doi:10.1353/aad.2019.0017.
   PubMed Web of Science ®Google Scholar
• Dammeyer, J., C. Lehane, and M. Marschark. 2017. “Use of Technological Aids and Interpretation Services among Children and Adults with Hearing Loss.” International Journal of Audiology 56 (10): 740–748. doi:10.1080/14992027.2017.1325970.
   PubMed Web of Science ®Google Scholar
• De Clerck, G. 2017. Deaf Epistemologies, Identity, and Learning: A Comparative Perspective. Washington, DC: Gallaudet University Press. muse.jhu.edu/book/49233.
   Google Scholar
• Derrida, J. 1976. Of Grammatology. Baltimore, MA: The John Hopkins University Press.
   Google Scholar
• Emond, A., M. Ridd, H. Sutherland, L. Allsop, A. Alexander, and J. Kyle. 2015. “Access to Primary Care Affects the Health of Deaf People.” The British Journal of General Practice 65 (631): 95–96. doi:10.3399/bjgp15X683629.
   PubMed Web of Science ®Google Scholar
• Friedner, M. 2016. “Understanding and Not-Understanding: What Do Epistemologies and Ontologies Do in Deaf Worlds?” Sign Language Studies 16 (2): 184–203. doi:10.1353/sls.2016.0001.
   Web of Science ®Google Scholar
• Grenness, Caitlin, Louise Hickson, Ariane Laplante-Lévesque, and Bronwyn Davidson. 2014. “Patient-Centred Care: A Review for Rehabilitative Audiologists.” International Journal of Audiology 53 (sup1): S60–S67. doi:10.3109/14992027.2013.847286.
   PubMed Web of Science ®Google Scholar
• Hammersley, M. 2007. “The Issue of Quality in Qualitative Research.” International Journal of Research & Method in Education 30 (3): 287–306. doi:10.1080/17437270701614782.
   Google Scholar
• Harris, L., and R. Paludneviciene. 2011. “Impact of Cochlear Implant on the Deaf Community.” In Cochlear Implants: Evolving Perspectives, edited by R. Paludneviciene and I. Leigh, 3–15. Washington, DC: Gallaudet University Press.
   Google Scholar
• Haualand, H.,. A. Kusters, and M. Friedner. 2016. “Transnationalism.” in The SAGE Deaf Studies Encyclopaedia, edited by G. Gertz and P. Boudreault. Thousand Oaks, CA: SAGE Publications.
   Google Scholar
• Hauser, P. C., A. O'Hearn, M. McKee, A. Steider, and D. Thew. 2010. “Deaf Epistemology: Deafhood and Deafness.” American Annals of the Deaf 154 (5): 486–492. doi:10.1353/aad.0.0120.
   PubMed Web of Science ®Google Scholar
• Holcomb, L., T. P. Horejes, O. Ocuto, and J. Santini. 2019. “Sociological Perspectives on Deaf Identities.” in Deaf Identities: Exploring New Frontiers, edited by I. O. B. C. Leigh. New York, NY: Oxford University Press.
   Google Scholar
• Holcomb, T. K. 2010. “Deaf Epistemology: The Deaf Way of Knowing.” American Annals of the Deaf 154 (5): 471–478. doi:10.1353/aad.0.0116.
   PubMed Web of Science ®Google Scholar
• Iezzoni, Lisa I. 2006. “Make No Assumptions: Communication between Persons with Disabilities and Clinicians.” Assistive Technology 18 (2): 212–219. doi:10.1080/10400435.2006.10131920.
   PubMed Web of Science ®Google Scholar
• Jongen, C., J. McCalman, and R. Bainbridge. 2018. “Health Workforce Cultural Competency Interventions: A Systematic Scoping Review.” BMC Health Services Research 18 (1): 232. doi:10.1186/s12913-018-3001-5.
   PubMed Web of Science ®Google Scholar
• Ladd, P. 2003. Understanding Deaf Culture: In Search of Deafhood. Clevedon: Multilingual Matters.
   Google Scholar
• Lane, H. 2005. “Ethnicity, Ethics, and the Deaf-World.” Journal of Deaf Studies and Deaf Education 10 (3): 291–310. doi:10.1093/deafed/eni030.
   PubMed Web of Science ®Google Scholar
• Lane, H., R. Pillard, and U. Hedberg. 2011. The People of the Eye: Deaf Ethnicity and Ancestry: New York: Oxford University Press.
   Google Scholar
• Napier, J., R. Oram, A. Young, and R. Skinner. 2019. “When I Speak People Look at Me": British Deaf Signers Use of Bimodal Use of Translanguaging Strategies and the Representation of Identities.” Translation and Translanguaging in Multilingual Contexts 5 (2): 95–120. doi:10.1075/ttmc.00027.nap.
   Google Scholar
• NHS England. 2016a. The Accessible Information Standard (DCB1605). Accessed 25 March 2021. https://www.england.nhs.uk/ourwork/accessibleinfo NHS England
   Google Scholar
• NHS England. 2016b. Commissioning Services for People with Hearing Loss: A Framework for Clinical Commissioning Groups. Accessed 25 March 2021. https://www.england.nhs.uk/wp-content/uploads/2016/07/HLCF.pdf
   Google Scholar
• NHS England/Primary Care Commissioning. 2018. Guidance for Commissioners: Interpreting and Translation Services in Primary Care. Accessed 25 March 2021. https://www.england.nhs.uk/publication/guidance-for-commissioners-interpreting-and-translation-services-in-primary-care/ NHS England.
   Google Scholar
• O’Brien, D., and A. Kusters. 2017. “Visual Methods in Deaf Studies: using Photography and Filmmaking in Research with Deaf People.” In Innovations in Deaf Studies: The Role of Deaf Scholars, edited by A. Kuster, M. De Meulder, and D. O’Brien. New York: Oxford University Press. http://ray.yorksj.ac.uk/id/eprint/2254
   Google Scholar
• Osborn, M., and J. A. Smith. 1998. “The Personal Experience of Chronic Benign Lower Back Pain: An Interpretative Phenomenological Analysis.” British Journal of Health Psychology 3 (1): 65–83. doi:10.1111/j.2044-8287.1998.tb00556.x.
   Google Scholar
• Padden, C., and T. Humphries. 1988. Deaf in America: Voices from a Culture: Cambridge, MA: Harvard University Press.
   Google Scholar
• Patton, M. Q. 2002. Qualitative Research and Evaluation Methods. 3rd ed. Thousand Oaks, CA: Sage Publications.
   Google Scholar
• Pollard, R. Q. Jr., and S. Barnett. 2009. “Health-Related Vocabulary Knowledge among Deaf Adults.” Rehabilitation Psychology 54 (2): 182–185. doi:10.1037/a0015771.
   PubMed Web of Science ®Google Scholar
• Public Sector Equality Duty. 2011. Accessed 25 March 2021. https://www.legislation.gov.uk/ukpga/2010/15/section/149
   Google Scholar
• Reel, L. A., C. B. Hicks, N. Ortiz, and A. Rodriguez. 2015. “New Resources for Audiologists Working with Hispanic Patients: Spanish Translations and Cultural Training.” American Journal of Audiology 24 (1): 11–22. doi:10.1044/2014_AJA-14-0027.
   PubMed Web of Science ®Google Scholar
• Smith, A. 2003. British Sign Language. Accessed 25 March 2021. https://api.parliament.uk/historic-hansard/written-statements/2003/mar/18/british-sign-language
   Google Scholar
• Smith, J. A. 2009. Interpretative Phenomenological Analysis: Theory, Method and Research. Los Angeles, CA: SAGE.
   Google Scholar
• Smith, J. A., and M. Osborn. 2003. Interpretative Phenomenological Analysis'. Qualitative Psychology: A Practical Guide to Research Methods. Thousand Oaks, CA: Sage Publications.
   Google Scholar
• Sutton-Spence, R., and B. Woll. 1999. The Linguistics of British Sign Language. Cambridge: Cambridge University Press.
   Google Scholar
• Swinbourne, J. 2017. “Why I Have Trust Issues with Audiologists.” The Limping Chicken. Accessed 25 March 2021. https://limpingchicken.com/2017/11/19/joanne-swinbourne-why-i-have-trust-issues-with-audiologists-bsl-2/
   Google Scholar
• The British Irish Hearing Instrument Manufacturers Association. 2019. BIHIMA Quarter 4 Market Statistics 2019. Accessed 25 March 2021. https://www.bihima.com/download/bihima-q4-2019-market-data
   Google Scholar
• Tong, A., P. Sainsbury, and J. Craig. 2007. “Consolidated Criteria for Reporting Qualitative Research (COREQ): a 32-Item Checklist for Interviews and Focus Groups.” International Journal for Quality in Health Care 19 (6): 349–357. doi:10.1093/intqhc/mzm042.
   PubMed Web of Science ®Google Scholar
• UCLA. 2012. Section 4: Key Informant Interviews. Accessed 25 March 2021. http://healthpolicy.ucla.edu/programs/healthdata/trainings/documents/tw_cba23.pdf
   Google Scholar
• Withey, R. 2014. “Why I loathed the audiologist's choice of words.” The Limping Chicken. Accessed 25 March 2021. https://limpingchicken.com/2014/03/03/audiologist-choice-of-words/
   Google Scholar
• Woodward, J. 1972. “Implications for Sociolinguistic Research among the Deaf.” Sign Language Studies 1: 1–7. doi:10.1353/sls.1972.0004.
   Google Scholar
• Young, A. M., and J. Ackerman. 2001. “Reflections on Validity and Epistemology in a Study of Working Relations between Deaf and Hearing Professionals.” Qualitative Health Research 11 (2): 179–189. doi:10.1177/104973230101100204.
   PubMed Web of Science ®Google Scholar
• Young, A., and B. Temple. 2014. Approaches to Social Research: The Case of Deaf Studies. New York, NY: Oxford University Press.
   Google Scholar
• Young, A., L. Ferrarini, A. Irving, C. Storbeck, R. Swannack, A. Tomkins, and S. Wilson. 2019. “‘The World Is Full of Magic Things, Patiently Waiting for Our Senses to Grow Sharper’ (WB Yeats): Enhancing Resilience Among Deaf Young People in South Africa Through Photography and Filmmaking.” Medical Humanities 45 (4): 416–427. doi:10.1136/medhum-2019-011661.
   PubMed Web of Science ®Google Scholar