Self-reported health and sickness benefits among parents of children with a disability

References

• Askheim, O. P., T. Andersen, and J. Eriksen. 2004. Sosiale tjenester: for familier som har barn med funksjonsnedsettelser [Social Services for Families with Children with a Disability]. Oslo: Gyldendal akademisk.
   Google Scholar
• Bailey, D. B. Jr., R. N. Golden, J. Roberts, and A. Ford. 2007. “Maternal Depression and Developmental Disability: Research Critique.” Mental Retardation and Developmental Disabilities Research Reviews 13: 321–329. doi: 10.1002/mrdd.20172
   PubMedGoogle Scholar
• Burton, P., L. Lethbridge, and S. Phipps. 2008. “Children with Disabilities and Chronic Conditions and Longer-Term Parental Health.” Journal of Socio-Economics 37: 1168–1186. doi: 10.1016/j.socec.2007.01.032
   Google Scholar
• Emerson, E. 2003. “Mothers of Children and Adolescents with Intellectual Disability: Social and Economic Situation, Mental Health Status, and the Self-Assessed Social and Psychological Impact of the Child's Difficulties.” Journal of Intellectual Disability Research 47: 385–399. doi: 10.1046/j.1365-2788.2003.00498.x
   PubMed Web of Science ®Google Scholar
• Emerson, E., and C. Hatton. 2005. The Socio-Economic Circumstances of Families Supporting a Child at Risk of Disability in Britain in 2002. Lancaster: Institute for Health Research, University of Lancaster.
   Google Scholar
• Giallo, R., and S. Gavidia-Payne. 2006. “Child, Parent and Family Factors as Predictors of Adjustment for Siblings of Children with a Disability.” Journal of Intellectual Disability Research 50: 937–948. doi: 10.1111/j.1365-2788.2006.00928.x
   PubMed Web of Science ®Google Scholar
• Hastings, R. P., H. Kovshoff, N. J. Ward, F. degli Espinosa, T. Brown, and B. Remington. 2005. “Systems Analysis of Stress and Positive Perceptions in Mothers and Fathers of Pre-school Children with Autism.” Journal of Autism and Developmental Disorders 35: 635–644. doi: 10.1007/s10803-005-0007-8
   PubMed Web of Science ®Google Scholar
• Hatton, C., E. Emerson, H. Graham, J. Blacher, and G. Llewellyn. 2010. “Changes in Family Composition and Marital Status in Families with a Young Child with Cognitive Delay.” Journal of Applied Research in Intellectual Disabilities 23: 14–26. doi: 10.1111/j.1468-3148.2009.00543.x
   Web of Science ®Google Scholar
• Haugen, G. M., M. Hedlund, and C. Wendelborg. 2012. “Det går ikke an å bruke seg på både retta og vranga.” Om helsebelastning, sårbarhet og forebygging i familier med barn med nedsatt funksjonsevne. [“You cannot Burn the Candle at both Ends”. On Health Burden, Vulnerability and Prevention in Families with Children with a Disability]. Trondheim: NTNU Samfunnsforskning AS.
   Google Scholar
• IASSID. 2013. “Families Supporting a Child with Intellectual or Developmental Disabilities: The Current State of Knowledge.” Journal of Applied Research in Intellectual Disabilities. doi:10.1111/jar.12078
   Google Scholar
• Klassen, A., P. Raina, S. Reineking, D. Dix, S. Pritchard, and M. O'Donnell. 2007. “Developing a Literature Base to Understand the Caregiving Experience of Parents of Children with Cancer: A Systematic Review of Factors Related to Parental Health and Well-Being.” Supportive Care in Cancer 15: 807–818. doi: 10.1007/s00520-007-0243-x
   PubMed Web of Science ®Google Scholar
• Laurvick, C. L., M. E. Msall, S. Silburn, C. Bower, N. de Klerk, and H. Leonard. 2006. “Physical and Mental Health of Mothers Caring for a Child with Rett Syndrome.” Pediatrics 118: 1152–1164. doi: 10.1542/peds.2006-0439
   PubMed Web of Science ®Google Scholar
• Lohne, Y., and E. Rønning. 2005. “Typisk norsk å arbeide deltid [Its Typical Norwegian to Work Part Time].” Samfunnspeilet 4: 45–52.
   Google Scholar
• Lundeby, H. 2006. “Hva med jobben? Om yrkesaktivitet blant foreldre til barn med nedsatt funksjonsevne [What about Work? Employment among Parents of Children with Impairments].” In Funksjonshemmete barn i skole og familie. Inkluderingsideal og hverdagspraksis [Children with a Disability in School and Family], edited by J. Tøssebro and B. Ytterhus, 204–243. Oslo: Gyldendal Akademisk.
   Google Scholar
• Lundeby, H., and J. Tøssebro. 2008. “Family Structure in Norwegian Families of Children with Disabilities.” Journal of Applied Research in Intellectual Disabilities 21: 246–256. doi: 10.1111/j.1468-3148.2007.00398.x
   Web of Science ®Google Scholar
• Lundeby, H., and J. Tøssebro. 2009. “Livsløp i familier med funksjonshemmete barn. [Life Course in Families with Children with a Disability].” In Funksjonshemming: politikk, hverdagsliv og arbeidsliv [Disability: Politics, everyday life and work], edited by J. Tøssebro, 147–162. Oslo: Universitetsforlaget.
   Google Scholar
• Norwegian Board of Health Supervision. 2007. Ikkje likeverdige habiliteringstenester til barn: Oppsummering av landsomfattande tilsyn med habiliteringstenester til barn 2006. [Unequal Habilitation Services for Children: A Review of a Nationwide Audit of Child Habilitation Services in 2006]. Oslo: Norwegian Board on Health Supervision.
   Google Scholar
• Olsson, M. B., and C. P. Hwang. 2001. “Depression in Mothers and Fathers of Children with Intellectual Disability.” Journal of Intellectual Disability Research 45: 535–543. doi: 10.1046/j.1365-2788.2001.00372.x
   PubMed Web of Science ®Google Scholar
• Raina, P., M. O'Donnell, P. Rosenbaum, J. Brehaut, S. D. Walter, D. Russell, M. Swinton, B. Zhu, and E. Wood. 2005. “The Health and Well-Being of Caregivers of Children with Cerebral Palsy.” Pediatrics 115 (6): 626–636. doi: 10.1542/peds.2004-1689
   PubMed Web of Science ®Google Scholar
• Seltzer, M. M., J. S. Greenberg, F. J. Floyd, Y. Pettee, and J. Hong. 2001. “Life Course Impacts of Parenting a Child with a Disability.” American Journal on Mental Retardation 106: 265–286. doi: 10.1352/0895-8017(2001)106<0265:LCIOPA>2.0.CO;2
   PubMedGoogle Scholar
• Sosialdepartementet. 2003. Nedbygging av funksjonshemmende barrierer: strategier, mål og tiltak i politikken for personer med nedsatt funksjonsevne [Removal of Disabling Barriers: Strategies, Objectives, and Measures in Disability Policy]. Oslo: Sosialdepartementet.
   Google Scholar
• Stoneman, Z. 2007. “Examining the Down Syndrome Advantage: Mothers and Fathers of Young Children with a Disability.” Journal of Intellectual Disability Research 51 (12): 1006–1017. doi: 10.1111/j.1365-2788.2007.01012.x
   PubMed Web of Science ®Google Scholar
• Tøssebro, J., and H. Lundeby. 2002. Å vokse opp med funksjonshemming: de første årene [Growing up with a Disability: The First Years]. Oslo: Gyldendal Akademisk.
   Google Scholar
• Tøssebro, J., and C. Wendelborg. 2015. “Ordinary or not? Families of Children Growing Up with Disabilities.” In Childhood and Disability in the Nordic Countries: Being, Becoming, Belonging, edited by R. Traustadottir, B. Ytterhus, S. T. Egilson, and B. Berg, 199–213. Hampshire: Palgrave Macmillan.
   Google Scholar
• Tøssebro, J., and B. Ytterhus. 2006. Funksjonshemmete barn i skole og familie: inkluderingsideal og hverdagspraksis [Children with a Disability in School and Family: Social Ideals and Everyday Practice]. Oslo: Gyldendal akademisk.
   Google Scholar
• Veisson, M. 1999. “Depression Symptoms and Emotional States in Parents of Disabled and Non-Disabled Children.” Social Behavior & Personality: An International Journal 27: 87–97. doi: 10.2224/sbp.1999.27.1.87
   Web of Science ®Google Scholar
• Wendelborg, C. 2010. Barrierer mot deltakelse: Familier med barn og unge med nedsatt funksjonsevne. [Barriers to Participation: Families with Children with a Disability]. Trondheim: NTNU Samfunnsforskning AS.
   Google Scholar