REFERENCES
- Akwesasne Task Force on the Environment. 1997. Akwesasne good mind research protocol. Akwesasne Notes New Series 2 (1):94–99.
- Beecher, H. 1966. Ethics and clinical research. New England Journal of Medicine 274 (24):1354.
- Bowekaty, M. B., and D. S. Davis. 2003. Cultural issues in genetic research with American Indian and Alaskan Native people. IRB: Ethics & Human Research 25 (4):12–15.
- Braveman, P. A., C. Cubbin, S. Egerter, D. R. Williams, and E. Pamuk. 2010. Socioeconomic disparities in health in the United States: What the patterns tell Us. American Journal of Public Health 100 (S1):S186–96.
- Caldwell, J. Y., J. D. Davis, B. Du Bois, and H. Echo-Hawk. 2005. Culturally competent research with American Indians and Alaska natives: Findings and recommendations of the first symposium of the work group on American Indian research and program evaluation methodology1. American Indian and Alaska Native Mental Health Research (Online) 12 (1):1.
- Chadwick, J. Q., K. C. Copeland, M. R. Daniel, et al. 2014. Partnering in research: A national research trial exemplifying effective collaboration with American Indian Nations and the Indian Health Service. American Journal of Epidemiology 180 (12):1202–7.
- Community IRBS & research review boards: Shaping the future of community-engaged research. 2012. Albert Einstein College of Medicine, The Bronx Health Link and Community-Campus Partnerships for Health. Available at: https://depts.washington.edu/ccph/pdf_files/Shaping_the_Future_of_CEnR.pdf (accessed October 19, 2017).
- Dickert, N., and J. Sugarman. 2005. Ethical goals of community consultation in research. American Journal of Public Health 95 (7):1123–27.
- Duster, T. 2006. Lessons from history: Why race and ethnicity have played a major role in biomedical research. Journal of Law, Medicine & Ethics 34 (3):487–96.
- Hull, S. C., and D. R. Wilson. 2017. Beyond Belmont: Ensuring respect for AI/AN communities through Tribal IRBs, laws, and policies. American Journal of Bioethics 17 (7):60–62.
- Levenson D. 2010. After Havasupai litigation, Native Americans wary of genetic research. American Journal of Medical Genetics 152A (Part A):IX.
- Martin del Campo, F., J. Casado, P. Spencer, and H. Strelnick. 2013. The development of the Bronx Community Research Review Board: A pilot feasibility project for a model of community consultation. Progress in Community Health Partnerships: Research, Education, and Action 7 (3):341–52.
- Mitchell, T. L., and E. Baker. 2005. Community-building versus career-building research: The challenges, risks, and responsibilities of conducting research with Aboriginal and Native American communities. Journal of Cancer Education 20 (S1):41–46.
- Morton, D. J., J. Proudfit, D. Calac, et al. 2013. Creating research capacity through a tribally based institutional review board. American Journal of Public Health 103 (12):2160–4.
- Quigley, D. 2001. Compilation on environmental health research ethics issues with native communities. Syracuse, NY: Syracuse Initiative for Research Ethics in Environmental Health.
- Quigley, D. 2006. Perspective: A review of improved ethical practices in environmental and public health research: Case examples from native communities. Health Education & Behavior 33 (2):130–47.
- Schnarch, B. 2004. Ownership, control, access, and possession (OCAP) or self-determination applied to research: A critical analysis of contemporary First Nations research and some options for First Nations communities. International Journal of Indigenous Health 1 (1):80.
- Tsosie, R. 2007. Cultural challenges to biotechnology: Native American genetic resources and the concept of cultural harm. Los Angeles, CA: Sage.
- Whitaker, R. 2002. Mad in America: Bad science, bad medicine, and the enduring mistreatment of the mentally ill. Cambridge, MA: Perseus Pub.
- Yuan, N. P., J. Bartgis, and D. Demers. 2014. Promoting ethical research with American Indian and Alaska Native people living in urban areas. American Journal of Public Health 104 (11):2085–91.