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The American Journal of Bioethics Volume 18, 2018 - Issue 3
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Guest Editorial

Pediatric Participation in Medical Decision Making: Optimized or Personalized?

Maya SabatelloColumbia UniversityCorrespondence[email protected]
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,
Annie JanvierUniversity of MontrealView further author information
,
Eduard VerhagenUniversity of GroningenView further author information
,
Wynne MorrisonThe Children's Hospital of PhiladelphiaView further author information
&
John LantosChildren's Mercy Hospital and University of Missouri at Kansas CityView further author information
Pages 1-3 | Published online: 21 Feb 2018

REFERENCES

  • Alderson, P. 2007. Competent children? Minors’ consent to health care treatment and research. Social Sciences & Medicine 65 (11):2272–83. doi:10.1016/j.socscimed.2007.08.005.
  • Betsch, C., R. Bohm, C. O. Airhihenbuwa, et al. 2016. Improving medical decision making and health promotion through culture-sensitive health communication: An agenda for science and practice. Medical Decision Making 36 (7):811–33. doi:10.1177/0272989X15600434.
  • Cochran, D., S. Saleem, S. Khowaja-Punjwani, et al. 2017. Cross-cultural differences in communication about a dying child. Pediatrics 140 (5):e20170690. doi:10.1542/peds.2017-0690.
  • Grootens-Wiegers, P., I. M. Hein, J. M. van den Broek, and M. C. de Vries. 2017. Medical decision-making in children and adolescents: Developmental and neuroscientific aspects. BMC Pediatrics 17(1):120. doi:10.1186/s12887-017-0869-x.
  • Iacono, T. 2006. Ethical challenges and complexities of including people with intellectual disability as participants in research. Journal of Intellectual and Developmental Disabilility 31 (3):173–79. doi:10.1080/13668250600876392.
  • Katz, A. L., S. A. Webb, and AAP Committee on Bioethics. 2016. Informed consent in decision-making in pediatric practice. Pediatrics 138 (2):e20161485. doi:10.1542/peds.2016-1485.
  • Lantos, J. D. 2015. Do patients want to participate in decisions about their own medical care? American Journal of Bioethics 15 (10):1–2. doi:10.1080/15265161.2015.1083350.
  • Olszewski, A. E., and S. F. Goldkind. 2018. The default position: Optimizing pediatric participation in medical decision making. American Journal of Bioethics 18 (3):4–9.
  • Sabatello, M. 2009. Children's bioethics. Boston, MA: Martinus Nijhoff/Brill.
  • Sabatello, M., and P. S. Appelbaum. 2016. Raising genomic citizens: Adolescents and the return of secondary genomic findings. Journal of Law, Medicine, and Ethics 44 (2):292–308. doi:10.1177/1073110516654123.
  • Steinberg, L. 2013. Does recent research on adolescent brain development inform the mature minor doctrine? Journal of Medical Philosophy 38 (3):256–67. doi:10.1093/jmp/jht017.

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