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The American Journal of Bioethics Volume 18, 2018 - Issue 4
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Open Peer Commentaries

Learning Is Not Enough: Earning Institutional Trustworthiness Through Knowledge Translation

Stephanie R. MorainBaylor College of MedicineCorrespondence[email protected]
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,
Nancy E. KassJohns Hopkins University and Johns Hopkins Bloomberg School of Public HealthView further author information
&
Ruth R. FadenJohns Hopkins UniversityView further author information
Pages 31-34 | Published online: 05 Apr 2018

REFERENCES

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  • Kass, N. E., J. Sugarman, R. Faden, and M. Schnock-Spana. 1996. Trust the fragile foundation of contemporary biomedical research. Hastings Center Report 26 (5):25–29. doi:10.2307/3528467.
  • Kass, N. E., R. E. Fabi, S. Morain, et al. 2016. Alternative consent models for comparative effectiveness studies: Views of patients from two institutions. AJOB Empirical Bioethics 7 (2):92–105. doi:10.1080/23294515.2016.1156188.
  • Kelley, M., C. James, S. Alessi Kraft, et al. 2015. Patient perspectives on the learning health system: The importance of trust and shared decision making. American Journal of Bioethics 15 (9): 4–17. doi:10.1080/15265161.2015.1062163.
  • Kraft, S. A., K. M. Porter, D. M. Korngiebel, et al. 2017. Research on medical practices: Why patients consider participating and the investigational misconception. IRB Ethics and Human Research 39 (4):10–16.
  • Kraft, S., M. Cho, K. Gillespie, et al. 2018. Beyond consent: Building trusting relationships with diverse populations in precision medicine research. American Journal of Bioethics 18 (4):3–20.
  • Largent, E. A. 2015. What's trust got to do with it? Trust and the importance of the research-care distinction. American Journal of Bioethics 15 (9):22–24. doi:10.1080/15265161.2015.1062182.
  • Mangione-Smith R., A. DeCristofaro, C. M. Setodji, et al. 2007. The quality of ambulatory care delivered to children in the United States. New England Journal of Medicine 357:1515–23. doi:10.1056/NEJMsa064637.
  • McGlynn, E. A., et al. 2003. The quality of health care delivered to adults in the United States. New England Journal of Medicine 348 (26):2635–45. doi:10.1056/NEJMsa022615.
  • Morain, S. R., E. Tambor, R. Moloney, et al. 2017. Stakeholder perspectives regarding alternate approaches to informed consent for comparative effectiveness research. Learning Health Systems 2017:e10047. doi:10.1002/lrh2.10047.
  • Sabatello, M., and P. S. Appelbaum. 2017. The precision medicine nation. Hastings Center Report 47 (4):19–29. doi:10.1002/hast.736.

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