REFERENCES
- Adame, N., M. E. Rocha, C. Louden, and R. Agrawal. 2011. Pediatric hospitalists’ perspectives on the care of children with medical complexity. Hospital Pediatrics 1 (1):30–7. doi:10.1542/hpeds.2011-0018.
- Char, D., and S. A. Hollander. 2019. The decision to withdraw in children with ventricular assist devices. The American Journal of Bioethics 19 (3):61–2. doi:10.1080/15265161.2018.1563655.
- Hollander, S. A., B. D. Kaufman, C. Bui, B. Gregori, J. M. Murray, L. Sacks, K. R. Ryan, M. Ma, D. N. Rosenthal, and D. Char. 2021. Compassionate deactivation of pediatric ventricular assist devices: A review of 14 cases. Journal of Pain and Symptom Management 62 (3):523–8. doi:10.1016/j.jpainsymman.2021.01.125.
- Kaufman, B. D., S. A. Hollander, Y. Zhang, S. Chen, D. Bernstein, D. N. Rosenthal, C. S. Almond, J. M. Murray, A. M. Burgart, H. J. Cohen, et al. 2019. Compassionate deactivation of ventricular assist devices in children: A survey of pediatric ventricular assist device clinicians’ perspectives and practices. Pediatric Transplantation 23 (3):e13359. doi:10.1111/petr.13359.
- Kon, A. A., M. Prsa, and C. V. Rohlicek. 2013. Choices doctors would make if their infant had hypoplastic left heart syndrome: Comparison of survey data from 1999 and 2007. Pediatric Cardiology 34 (2):348–53. doi:10.1007/s00246-012-0455-9.
- Morell, E., M. K. Miller, M. Lu, K. G. Friedman, R. E. Breitbart, J. R. Reichman, J. McDermott, L. A. Sleeper, and E. D. Blume. 2021. Parent and physician understanding of prognosis in hospitalized children with advanced heart disease. Journal of the American Heart Association 10 (2):e018488. doi:10.1161/JAHA.120.018488.
- Pagel, C., C. Bull, M. Utley, J. Wray, D. J. Barron, S. Stoica, S. M. Tibby, V. Tsang, and K. L. Brown. 2019. Exploring communication between parents and clinical teams following children’s heart surgery: A survey in the UK. BMJ Paediatrics Open 3 (1):e000391. doi:10.1136/bmjpo-2018-000391.
- Rady, M. Y., and J. L. Verheijde. 2014. Ethical challenges with deactivation of durable mechanical circulatory support at the end of life: Left ventricular assist devices and total artificial hearts. Journal of Intensive Care Medicine 29 (1):3–12. doi:10.1177/0885066611432415.
- Swetz, K. M., K. E. Cook, A. L. Ottenberg, N. Chang, and P. S. Mueller. 2013. Clinicians’ attitudes regarding withdrawal of left ventricular assist devices in patients approaching the end of life. European Journal of Heart Failure 15 (11):1262–6.
- Toomey, S. L., A. T. Chien, M. N. Elliott, J. Ratner, and M. A. Schuster. 2013. Disparities in unmet need for care coordination: The national survey of children’s health. Pediatrics 131 (2):217–24. doi:10.1542/peds.2012-1535.