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The American Journal of Bioethics Volume 23, 2023 - Issue 11
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Open Peer Commentaries

Strategies for Data Ethics Governance: Elevating Patient and Community Perspectives

Austin M. StroudMayo ClinicCorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0002-8695-9786View further author information
ORCID Icon,
Journey L. WiseMayo ClinicORCID Iconhttps://orcid.org/0000-0003-0798-8480View further author information
ORCID Icon,
Susan H. CurtisMayo ClinicORCID Iconhttps://orcid.org/0000-0001-6317-1577View further author information
ORCID Icon &
Michelle L. McGowanMayo ClinicORCID Iconhttps://orcid.org/0000-0002-9040-7562View further author information
ORCID Icon
Pages 48-50 | Published online: 25 Oct 2023

REFERENCES

  • Anastasijevic, D. 2019. Mayo Clinic selects Google as strategic partner for health care innovation, cloud computing. Mayo Clinic News Network, September 19, https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-selects-google-as-strategic-partner-for-health-care-innovation-cloud-computing/.
  • Banerjee, S., P. Alsop, L. Jones, and R. N. Cardinal. 2022. Patient and public involvement to build trust in artificial intelligence: A framework, tools, and case studies. Patterns 3 (6):100506. doi:10.1016/j.patter.2022.100506.
  • Jobin, A., M. Ienca, and E. Vayena. 2019. The global landscape of AI ethics guidelines. Nature Machine Intelligence 1 (9):389–99. doi:10.1038/s42256-019-0088-2.
  • Martschenko, D. O., S. L. Callier, N. A. Garrison, S. Soo‐Jin Lee, P. Turley, M. N. Meyer, and E. Parens. 2023. Wrestling with public input on an ethical analysis of scientific research. The Hastings Center Report 53 Suppl 1 (S1):S50–S65. doi:10.1002/hast.1478.
  • McCoy, M. S., A. L. Allen, K. Kopp, M. M. Mello, D. J. Patil, P. Ossorio, S. Joffe, and E. J. Emanuel. 2023. Ethical Responsibilities for Companies That Process Personal Data. The American Journal of Bioethics 23 (11):11–23. doi:10.1080/15265161.2023.2209535.
  • Meagher, K. M., S. H. Curtis, K. O. Gamm, E. J. Sutton, J. B. McCormick, and R. R. Sharp. 2020. At a moment’s notice: Community advisory board perspectives on biobank communication to supplement broad consent. Public Health Genomics 23 (3-4):77–89. doi:10.1159/000507057.
  • Ozalp, H., P. Ozcan, D. Dinckol, M. Zachariadis, and A. Gawer. 2022. Digital colonization” of highly regulated industries: An analysis of big tech platforms’ entry into health care and education. California Management Review 64 (4):78–107. doi:10.1177/00081256221094307.
  • Prem, E. 2023. From ethical AI frameworks to tools: A review of approaches. AI and Ethics 3 (3):699–716. doi:10.1007/s43681-023-00258-9.
  • Richardson, J. P., C. Smith, S. Curtis, S. Watson, X. Zhu, B. Barry, and R. R. Sharp. 2021. Patient apprehensions about the use of artificial intelligence in healthcare. Npj Digital Medicine 4 (1):140. doi:10.1038/s41746-021-00509-1.
  • Spector-Bagdady, K. 2020. Hospitals should act now to notify patients about research use of their data and biospecimens. Nature Medicine 26 (3):306–8. doi:10.1038/s41591-020-0795-6.

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