Family Communication at the End of Life

References

• Adolescent and Young Adult Oncology Progress Review Group. (2006). Closing the gap: Research and care imperatives for adolescents and young adults with cancer (NIH Publication No. 06-6067). Washington, DC: US Department of Health and Human Services.
   Google Scholar
• Aiken, L. A. (2001). Dying, death, and bereavement. Mahwah, NJ: Lawrence Erlbaum.
   Google Scholar
• Beale, E. A., Baile, W. F., & Aaron, J. (2005). Silence is not golden: Communicating with children dying from cancer. Journal of Clinical Oncology, 23, 3629–3631. doi:10.1200/JCO.2005.11.015
   PubMed Web of Science ®Google Scholar
• Bernacki, R. E., & Block, S. D.; American College of Physicians High Value Care Task Force. (2014). Communication about serious illness care goals: A review and synthesis of best practices. JAMA Internal Medicine, 174, 1994–2003. doi:10.1001/jamainternmed.2014.5271
   PubMed Web of Science ®Google Scholar
• Black, D. (1998). The dying child. BMJ: British Medical Journal, 316, 1376–1378. doi:10.1136/bmj.316.7141.1376
   Web of Science ®Google Scholar
• Bluebond-Langner, M. (1996). In the shadow of illness: Parents and siblings of the chronically ill child. Princeton, NJ: Princeton University Press.
   Google Scholar
• Bluebond-Langner, M., Belasco, J. B., & DeMesquita Wander, M. (2010). “I want to live, until I don’t want to live anymore”: Involving children with life-threatening and life-shortening illnesses in decision-making about care and treatment. In E. Kodish (Ed.), Ethics and research with children: A case-based approach (pp. 241–246). New York, NY: Oxford University Press.
   Google Scholar
• Bluebond-Langner, M., & Nordquist Schwallie, M. (2008). “It’s back”: Children with cancer talking about their illness when cure is not likely. In C. Commachio, J. Golden, & G. Witz (Eds.), Healing the world’s children: Interdisciplinary perspectives on child health in the twentieth century (pp. 161–175). Montreal, Quebec, Canada: Mcrill-Queen’s University Press.
   Google Scholar
• Bullock, K. (2011). The influence of culture on end-of-life decision making. Journal of Social Work in End-Of-Life & Palliative Care, 7, 83–98. doi:10.1080/15524256.2011.548048
   PubMedGoogle Scholar
• Carstensen, L. L., Isaacowitz, D. M., & Charles, S. T. (1999). Taking time seriously: A theory of socioemotional selectivity. American Psychologist, 54, 165–181. doi:10.1037/0003-066X.54.3.165
   PubMed Web of Science ®Google Scholar
• Caughlin, J. P., Mikucki-Enyart, S. L., Middleton, A. V., Stone, A. M., & Brown, L. E. (2011). Being open without talking about it: A rhetorical/normative approach to understanding topic avoidance in families after a lung cancer diagnosis. Communication Monographs, 78, 409–436. doi:10.1080/03637751.2011.618141
   Web of Science ®Google Scholar
• Cherlin, E., Fried, T., Prigerson, H. G., Schulman-Green, D., Johnson-Hurzeler, R., & Bradley, E. H. (2005). Communication between physicians and family caregivers about care at the end of life: When do discussions occur and what is said? Journal of Palliative Medicine, 8, 1176–1185. doi:10.1089/jpm.2005.8.1176
   PubMed Web of Science ®Google Scholar
• Ellis, C. (2000). Negotiating terminal illness: Communication, collusion, and coalition in caregiving. In J. Harvey & E. D. Miller (Eds.), Loss and trauma: General and close relationship perspectives (pp. 284–304). New York, NY: Routledge.
   Google Scholar
• Foster, E., & Keeley, M. A. (2015). Conversations at the end of life. In J. F. Nussbaum, H. Giles, & A. K. Worthington (Eds.), Communication at the end of life (pp. 105–120). New York, NY: Peter Lang.
   Google Scholar
• Galvin, K. A. (2015). Family communication as a child is dying. In J. F. Nussbaum, H. Giles, & A. K. Worthington (Eds.), Communication at the end of life (pp. 139–156). New York, NY: Peter Lang.
   Google Scholar
• Generous, M. A., & Keeley, M. P. (2014). Creating and validating the final conversations (FCs) Scale: A measure of end of life relational communication with Dying loved ones. Journal of Social Work in End of life & Palliative Care, 10, 257–289. doi:10.1080/15524256.2014.938892
   PubMedGoogle Scholar
• Generous, M. A., & Keeley, M. P. (2015, February). Topics avoidance during final conversations. Presented to the Interpersonal Communication Division of the Western Communication Association, Spokane, WA.
   Google Scholar
• Goldsmith, J., Wittenberg-Lyles, E., Ragan, S., & Nussbaum, J. F. (2011). Lifespan and end-of-life health communication. In T. L. Thompson, R. Parrott, & J. F. Nussbaum (Eds.), The Routledge handbook of health communication (pp. 441–454). New York, NY: Routledge.
   Google Scholar
• Howk, T., & Wasilewski-Masker, K. (2011). Palliative care for adolescents and young adults: A pediatric perspective. Journal of Adolescent and Young Adult Oncology, 1, 11–12. doi:10.1089/jayao.2011.1503
   PubMed Web of Science ®Google Scholar
• Keeley, M. P. (2004a). Final conversations: Messages of love. Qualitative Research Reports in Communication, 5, 48–57.
   Google Scholar
• Keeley, M. P. (2004b). Final conversations: Survivors’ memorable messages concerning religious faith and spirituality. Health Communication, 16, 87–104. doi:10.1207/S15327027HC1601_6
   PubMed Web of Science ®Google Scholar
• Keeley, M. P. (2007). “Turning toward death together”: The functions of messages during final conversations in close relationships. Journal of Social and Personal Relationships, 24, 225–253. doi:10.1177/0265407507075412
   Web of Science ®Google Scholar
• Keeley, M. P. (2009). Comfort and community: Two emergent communication themes of religious faith and spirituality evident during final conversations. In M. Wills (Ed.), Speaking of spirituality: Perspectives on health from the religious to the numinous (pp. 227–248). Creskill, NJ: Hampton Press Health Communication Series.
   Google Scholar
• Keeley, M. P. (in press). End of life communication. In the oxford research encyclopedia of communication. New York, NY: Oxford University Press.
   Google Scholar
• Keeley, M. P., & Baldwin, P. (2012). Final conversations, Phase 2: Children and everyday communication. Journal of Loss and Trauma, 17, 376–387. doi:10.1080/15325024.2011.650127
   Web of Science ®Google Scholar
• Keeley, M. P., & Generous, M. (2015). The challenges of final conversations: Dialectical tensions during end-of-life family communication from survivors’ retrospective accounts. Southern Communication Journal, 80, 377–387. doi:10.1080/1041794X.2015.1081975
   Web of Science ®Google Scholar
• Keeley, M. P., & Generous, M. A. (2013). Advice from children and adolescents on final conversations with dying loved ones. Death Studies, 38, 308–314. doi:10.1080/07481187.2012.753556
   PubMed Web of Science ®Google Scholar
• Keeley, M. P., Generous, M. A., & Baldwin, P. (2014). Final conversations phase II: Children’s final conversation messages with dying family members. Journal of Family Communication, 14, 208–229. doi:10.1080/15267431.2014.908198
   Google Scholar
• Keeley, M. P., & Koenig Kellas, J. (2005). Constructing life and death through final conversations narratives. In L. M. Harter, P. M. Japp, & C. S. Beck (Eds.), Narratives, health, and healing: Communication theory, research, and practice (pp. 365–390). Mahwah, NJ: Lawrence Erlbaum Associates.
   Google Scholar
• Keeley, M. P., & Yingling, J. (2007). Final conversations: Helping the living and the dying talk to each other. Acton, MA: VanderWyk & Burnham.
   Google Scholar
• King, D., & Quill, T. (2006). Working with families in palliative care: One size does not fit all. Journal of Palliative Medicine, 9, 704–715. doi:10.1089/jpm.2006.9.704
   PubMed Web of Science ®Google Scholar
• Ko, E., Roh, S., & Higgins, D. (2013). Do older Korean immigrants engage in end-of-life communication? Educational Gerontology, 39, 613–622. doi:10.1080/03601277.2012.706471
   Web of Science ®Google Scholar
• Koerner, A. F., & Fitzpatrick, M. A. (2002). Understanding family communication patterns and family functioning: The roles of conversation and conformity orientation. Communication Yearbook, 26, 36‒68. doi:10.1207/s15567419cy2601_2
   Google Scholar
• Kramer, B. J., Kavanaugh, M., Trentham-Dietz, A., Walsh, M., & Yoner, J. A. (2009). Predictors of family conflict at the end of life: The experience of spouses and adult children of persons with lung cancer. The Gerontologist, 50, 215–225. doi:10.1093/geront/gnp121
   PubMed Web of Science ®Google Scholar
• Kreicbergs, U., Valdimarsdottir, U., Onelov, E., Henter, J.-I., & Steineck, G. (2004). Talking about death with children who have severe malignant disease. New England Journal of Medicine, 351, 1175–1186. doi:10.1056/NEJMoa040366
   PubMed Web of Science ®Google Scholar
• Kreling, B., Selsky, C., Perret-Gentil, M., Huerta, E. E., & Mandelblatt, J. S. (2010). “The worst thing about hospice is that they talk about death:” Contrasting hospice decisions and experience among immigrant central and South American Latinos with U.S.-born White, non-Latino cancer caregivers. Palliative Medicine, 24, 427–434. doi:10.1177/0269216310366605
   PubMed Web of Science ®Google Scholar
• Kubler-Ross, E. (1969). On death and dying. New York, NY: Touchstone.
   Google Scholar
• Kubler-Ross, E. (1997). Living with death and dying. New York, NY: Simon & Schuster.
   Google Scholar
• Lobar, S. L., Youngblut, J. M., & Brooten, D. (2006). Cross-cultural beliefs, ceremonies, and rituals surrounding death of a loved one. Pediatric Nursing, 32(1), 44–50.
   PubMedGoogle Scholar
• Maguire, K. C. (2012). Stress and coping in families. Malden, MA: Polity Press.
   Google Scholar
• Manusov, V., & Keeley, M. P. (2015). When talking is difficult: Nonverbal communication at the end of life. Journal of Family Communication, 15, 387–409. doi:10.1080/15267431.2015.1076424
   Web of Science ®Google Scholar
• McQuellon, R. P., & Cowan, M. A. (2000). Turning toward death together: Conversation in mortal time. American Journal of Hospice & Palliative Care, 17, 312–318. doi:10.1177/104990910001700508
   PubMedGoogle Scholar
• Pecchoini, L., & White, R. C. (2015). Family decision making and care at the end of life. In J. F. Nussbaum, H. Giles, & A. K. Worthington (Eds.), Communication at the end of life (pp. 121–138). New York, NY: Peter Lang Publishing Inc.
   Google Scholar
• Ragan, S., Wittenberg-Lyles, E. M., Goldsmith, J., & Sanchez-Reilly, S. (2008). Communication as comfort: Multiple voices in palliative care. New York, NY: Routledge.
   Google Scholar
• Scott, A., & Caughlin, J. P. (2014). Enacted goal attention in family conversations about end-of-life health decisions. Communication Monographs, 81, 261–284. doi:10.1080/03637751.2014.925568
   Web of Science ®Google Scholar
• Wilkins, K. L., & Woodgate, R. L. (2005). A review of qualitative research on the childhood cancer experience from the perspective of siblings: A need to give them a voice. Pediatric Oncology Nursing, 22, 305–319. doi:10.1177/1043454205278035
   PubMedGoogle Scholar
• Wittenberg-Lyles, E., Goldsmith, J., Ferrell, B., & Ragan, S. (2012). Communication in palliative nursing. New York, NY: Oxford University Press.
   Google Scholar
• Wittenberg-Lyles, E., Goldsmith, J., Sanchez-Reilly, S., & Ragan, S. L. (2010). Dying with comfort: Family illness narratives and early palliative care. Cresskill, NJ: Hampton Press.
   Google Scholar
• Wolfe, J., Friebert, S., & Hilden, J. (2002). Caring for children with advanced cancer. Integrating palliative care. Pediatric Clinics of North America, 49, 1043–1062. doi:10.1016/S0031-3955(02)00034-2
   PubMed Web of Science ®Google Scholar
• Yick, A. G., & Gupta, R. (2002). Chinese cultural dimensions of death, dying, and bereavement: Focus group findings. Journal of Cultural Diversity, 9, 32–42.
   PubMedGoogle Scholar
• Yingling, J. (2004). A lifetime of communication. Mahwah, NJ: Lawrence Erlbaum.
   Google Scholar